HealthMatters

Dr. Marks directs research programs to empower people with disabilities through health promotion, health advocacy, and primary health care.

Beyond Care Coordination: Cross-Systems Care Integration for Adults with IDD
Betty Geer, DNP, RN, CPNP · Brystal Karber, BA · Nichole Guerra, DBA
February 15th, 2018

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RRTCDD and The Arc 2018 Health and Wellness Webinar Series Webinar 2: Beyond Care Coordination: Cross-Systems Care Integration for Adults with Intellectual and Developmental Disabilities 3:00 pm, Eastern Standard Time PLAY RECORDING (1 hr 6 min) Download Presentation Slides Abstract: This presentation will define a new experimental role known as the Care Integration Specialist and explain …

Beyond Care Coordination: Cross-Systems Care Integration for Adults with IDD
Betty Geer, DNP, RN, CPNP · Brystal Karber, BA · Nichole Guerra, DBA
February 15th, 2018 Read More »

Health of Parents with Disabilities
Susan Parish, PhD, MSW
January, 18th, 2018

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Webinar 1: Health of Parents with Disabilities Play recording (57 min) View Health of Parents with Disabilities Presentation Handouts Compendium of Health Data Sources for Parents with Disabilities in the United States Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children Presenter: Susan Parish, PhD, MSW (s.parish@northeastern.edu) Abstract: The health of …

Health of Parents with Disabilities
Susan Parish, PhD, MSW
January, 18th, 2018 Read More »

‘It’s Not Easy’: School Nurse Pain Assessment Practices for Students with Special Needs

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Brenna L. Quinn PhD, RN, NCSN Assistant Professor, Susan & Alan Solomont School of Nursing, Email: Brenna_Quinn@uml.edu Abstract Assessing pain in children with special needs presents unique challenges for school nurses, as no evidence-based or clinical standards to guide practices have been established for use in the school setting. Additionally, school nurse staffing has not …

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Reported gum disease as a cardiovascular risk factor in adults with intellectual disabilities

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Hsieh, K., Murthy, S., Heller, T., Rimmer, J., Yen, G. (2017). Reported gum disease as a cardiovascular risk factor in adults with intellectual disabilities. Journal of Intellectual Disability Research, DOI: 10.1111/jir.12438 http://onlinelibrary.wiley.com/doi/10.1111/jir.12438/abstract ABSTRACT Background Several risk factors for cardiovascular disease (CVD) have been identified among adults with intellectual disabilities (ID). Periodontitis has been reported to …

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Low Levels of Physical Activity and Sedentary Behavior in Adults with Intellectual Disabilities

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Int. J. Environ. Res. Public Health 2017, 14(12), 1503; doi:10.3390/ijerph14121503 Kelly Hsieh 1,* , Thessa I. M. Hilgenkamp 2, Sumithra Murthy 1, Tamar Heller 1 and James H. Rimmer 3 1 Department of Disability and Human Development, University of Illinois at Chicago, Chicago, IL 60609, USA 2 Department of Kinesiology and Nutrition, University of Illinois …

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Blind Spot: Understanding a disabled son’s vulnerability as a state of grace

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American Journal of Nursing Blind Spot: Understanding a disabled son’s vulnerability as a state of grace by Diane Stonecipher, BSN, RN “His IQ may have been devastated, but his EQ has not. He has lived 25 years on this earth and his experiences are valuable and visceral to him.” Diane Stonecipher is a nurse living and …

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National Council for Aging Care’s Comprehensive Guide on Exercising for Seniors

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Comprehensive Guide on Exercising for Seniors When people think about their later years, they usually imagine a life freed from work or career commitments. They hope, too, that this new freedom will allow them to give their full attention to family, friends, and the activities they feel most passionate about. Making this dream a reality, …

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Principales conclusiones acordadas durante la Cumbre sobre discapacidad intelectual y demencia

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Matthew P. Janicki†, Karen Watchman*, Juan Fortea Ormaechea# and the members of the International Summit on Intellectual Disability and Dementia http://www.who.int/mental_health/neurology/dementia/action_plan_consultation/en/ † University of Illinois at Chicago, USA * University of Stirling, Scotland, UK # Fundació Catalana de Síndrome de Down (FCSD), Barcelona, España y Unidad de Memoria, Departamento de Neurología, Hospital de la Santa …

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National task group early detection screen for dementia

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Esralew, L., Janicki, M.P.., & Keller, S M. (2017).  National task group early detection screen for dementia (NTG-EDSD) [Chapter 11].  In V.P. Prasher (Ed.), Neurological assessments of dementia in Down syndrome and intelectual disabilities (pp. 197-213, Appendix I).  Basel, Switzerland: Springer. DOI 10.1007/978-3-319-61720-6_11

The Intersection of Intellectual Disability and Dementia: Report of The International Summit on Intellectual Disability and Dementia

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Karen Watchman, PhD and Matthew P Janicki, PhD (Members of the International Summit on Intellectual Disability and Dementia) The Gerontologist, gnx160, https://doi.org/10.1093/geront/gnx160 Published: 02 November 2017 Abstract An International Summit on Intellectual Disability and Dementia, held in Glasgow, Scotland (October 13–14, 2016), drew individuals and representatives of numerous international and national organizations and universities with a stake in …

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