Publications

Doctor’s care is a balance of skill, empathy for Virginia Tech Carilion School of Medicine student : Augusta Free Press

Source: Doctor’s care is a balance of skill, empathy for Virginia Tech Carilion School of Medicine student : Augusta Free Press Alyssa Savelli has wanted to be a doctor for as long as she can remember. “When I was 5, I would just sit and watch Discovery Health Channel and watch open heart surgery.” A …

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Siblings of disabled peoples’ attitudes toward prenatal genetic testing and disability: A mixed methods approach

Carli Friedman, Aleksa L Owen Siblings of disabled peoples’ attitudes toward prenatal genetic testing and disability: A mixed methods approach. Disability Studies Quarterly, 36(3).Abstract We used the phenomenon of prenatal genetic testing to learn more about how siblings of disabled people understand prenatal genetic testing and social meanings of disability. By interweaving data on siblings’ …

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Un/paid labor: Medicaid Home and Community Based Services waiver that pay family as personal care providers

Carli Friedman and Mary C. Rizzolo (2016) Un/Paid Labor: Medicaid Home and Community Based Services Waivers That Pay Family as Personal Care Providers. Intellectual and Developmental Disabilities: August 2016, Vol. 54, No. 4, pp. 233-244. doi: http://dx.doi.org/10.1352/1934-9556-54.4.233Correspondence concerning this article should be addressed to Carli Friedman, Disability and Human Development, University of Illinois at Chicago, …

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Racial and Ethnic Disparities among Adults with Intellectual and Developmental Disabilities

January 5, 2016 This study investigated the extent of racial and ethnic disparities in the health of adults with intellectual and developmental disabilities. Analyzing data from the 2002-2011 Medical Expenditure Panel Survey and the 2000-2010 National Health Interview Survey, we found that Black and Latino adults with intellectual and developmental disabilities have markedly worse health …

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Policy to Practice: Falls in Adults with Intellectual Disabilities

August 3, 2016One out of every three adults aged 65 years or older in the general population falls at least once each year. For adults with intellectual disability (ID), the prevalence of falls is even higher with studies estimating a fall rate ranging from between 29% to 70%. Falls are a major cause of serious …

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HealthMatters Program Team Consulting on Walmart Foundation Grant to AUCD “Nutrition is for Everyone”

Walmart Foundation Grant to AUCD Expands Nutrition Efforts for People with Disabilities in Four States SILVER SPRING, MD – The Association of University Centers on Disabilities (AUCD) is pleased to announce that the Walmart Foundation has granted AUCD and four of its member Centers $300,000 to launch the “Nutrition is for Everyone” project. This one-year …

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Individual, parent and social–environmental correlates of caregiving experiences among parents of adults with autism spectrum disorder

Burke, M. & Heller, T. (2016) Individual, parent and social–environmental correlates of caregiving experiences among parents of adults with autism spectrum disorder. Journal of Intellectual Disability Research, 60 (5), pp 401–411. doi: 10.1111/jir.12271Abstract Compared to parents of adults with other types of disabilities, parents of adults with autism spectrum disorder (ASD) experience worse well-being. Thus, …

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Health Care for People with Intellectual and Developmental Disabilities across the Lifespan

Rubin, I.L., Merrick, J., Greydanus, D.E., Patel, D.R. (Eds.) (2016), Health Care for People with Intellectual and Developmental Disabilities across the Lifespan Switzerland: Springer.A new book has been published that offers a unique lifespan approach on health care for people with intellectual and developmental disabilities. It addresses the clinical as well as the systems of …

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Health services appraisal and the transition to Medicaid Managed Care from fee for service

Owen, R., Heller, T. & Bowers, A. (2016).  Health services appraisal and the transition to Medicaid Managed Care from fee for service.  Disability and Health, 9(2), 239-247. doi:10.1016/j.dhjo.2015.10.004 Abstract:Background: Many states are transitioning fee-for-service (FFS) Medicaid into Medicaid   Managed Care (MMC) for people with disabilities.Objective: This study examined managed care’s impact on health services appraisal (HSA) …

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