Research Reports/Briefs

Family Handbook on Future Planning

Family Handbook on Future Planning (2003). Davis, Sharon, (Ed.). Produced by The Arc of the United States and the RRTC on Aging with Developmental Disabilities. This guide helps families take the initial steps to address the future personal, legal, and financial needs of their sons or daughters with intellectual and developmental disabilities. It teaches families […]

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Coordinating systems serving carers of children and adults with developmental disabilities

Coordinating systems serving carers of children and adults with developmental disabilities (2002). Janicki, M. Aging adults with intellectual and developmental disabilities face many of the same challenges as other aging adults. Physical aging, social isolation, disengagement from work or activities and challenges of retirement are issues that must be faced by aging adults with cognitive

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Promoting healthy aging, family support, and age-friendly communities for persons with developmental disabilities: Report of the 2001 Invitational Research Symposium on Aging with Developmental Disabilities

Promoting healthy aging, family support, and age-friendly communities for persons with developmental disabilities: Report of the 2001 Invitational Research Symposium on Aging with Developmental Disabilities (2002). Heller, T., Janicki, M, P., Hammel, J., & Factor, A.R. This report summarizes the research to date and presents recommendations for future research, progressive policies, and innovative intervention to

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Grandparents raising grandchildren with developmental disabilities

Grandparents raising grandchildren with developmental disabilities (2002). Heller, T., & Ganguly, R. This paper examines the demographics of grandparent caregivers of children and adults with developmental disabilities, their reasons for assuming this role, their needs, concerns and challenges. Additionally it reviews supportive interventions for this population and implications for the aging network in designing and

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Adolescents and Adults With Autism, Report #1: A Book of Quotes: Shared Experiences of Families of Adolescents and Adults with Autism

Adolescents and Adults With Autism, Report #1: A Book of Quotes: Shared Experiences of Families of Adolescents and Adults with Autism (2002). Seltzer, M.M., Krauss, M.W., Greenberg, J.S., Leavitt, L., Magana, S. & Orsmond, G.I. This report is based on interviews with more than 400 parents caring for a son or daughter with autism. This

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Adolescents and Adults with Autism, Report #2: A Profile of Adolescents and Adults With Autism Spectrum Disorders

Adolescents and Adults with Autism, Report #2: A Profile of Adolescents and Adults With Autism Spectrum Disorders (2002). Seltzer, M.M., Krauss, M.W., Greenberg, J.S., Leavitt, L., Magana, S. & Orsmond, G.I. This report presents the objectives, methodology, and initial findings of the first large-scale research study of 405 adolescents and adults with autism and spectrum

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Adolescents and Adults with Autism: Reflections From Adult Siblings Who Have a Brother or Sister With Autism Spectrum Disorder, Report #3

Adolescents and Adults with Autism: Reflections From Adult Siblings Who Have a Brother or Sister With Autism Spectrum Disorder, Report #3 (2002). Krauss, M.W., Seltzer, M.M., Greenberg, R., Orsmond, G.I. & Magana, S. This report presents siblings’ perspectives on having a brother or sister with autism. It is based on a study of caregiving that

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Adolescents and Adults With Autism: Recommended Resources From Families, Report #4

Adolescents and Adults With Autism: Recommended Resources From Families, Report #4 (2002), Krauss, M.W., Seltzer, M.M., Greenberg, R., Orsmond, G.I. & Magana, S. This report contains the books, videos, and internet web sites that helped families learn more about their son or daughter’s autism spectrum disorder. Families recommended these resources in a study of more

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Aging With Mental Retardation: Oral Health for Older Individuals With Disabilities

Aging With Mental Retardation: Oral Health for Older Individuals With Disabilities (2001). Farsai, P. & Calabrese, J. This brief discusses oral health care for older people with disabilities. It explains the conditions leading to oral health problems for people with disabilities and specifies what to look for in dental treatment and in choosing a dentist.

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Healthy aging: Adults with intellectual disabilities: Women’s health and related issues

Healthy aging: Adults with intellectual disabilities: Women’s health and related issues (2000). Walsh, P. N., Heller, T., Schupf, N. & van Schrojenstein Lantman-de-Valk, H. Geneva, Switzerland: International Association for the Scientific Study of Intellectual Disabilities and the World Health Organization.

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