A systematic review of the existing instruments assessing dementia, aiming to support researchers and clinicians’ best practice found the most used instrument completed by an informant or carer was the Dementia Questionnaire for Learning Disabilities (DLD) Source: Brain Sciences | Free Full-Text Background and Aims: Screening and assessment of cognitive changes in adults with Intellectual […]
“Next Chapter Book Club truly fits our understanding of literary activism and what that kind of movement can do. When any community is dismissed, when we lose a voice or an audience, we all suffer for it. Next Chapter Book Club is using literature as a way to bring people with intellectual disabilities into a
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The T21RS has developed a series of infographics highlighting key findings – https://www.t21rs.org/results-from-covid-19-and-down-syndrome-survey/ Source: T21RS
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Health conditions and immune dysfunction associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19 once infected by SARS-CoV-2. Source: medRxiv ABSTRACT Background Health conditions and immune dysfunction associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19 once infected by SARS-CoV-2. Methods The T21RS COVID-19 Initiative launched an international
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Bars, restaurants, nursing homes and assisted living facilities have closed or are practicing social distancing in Arizona. But group homes and other programs have received little guidance, putting people with intellectual disabilities at risk. John and Christi Estrada, one of many Arizona families left without COVID-19 guidance. (Courtesy of Christi Estrada) by Amy Silverman, Arizona Daily Star,
Left to right: Kyra Wade, Drew Bolender, Emory Webster, Eric Nunn, Jaden Ruiz and Mike Lundergan are all Arizonans with intellectual or developmental disabilities. Though they don’t know each other, each has struggled to receive care from the state’s Division of Developmental Disabilities agency. (Tyrone Weedon/Make Studio for ProPublica) Source: ProPublica Arizona is known as the
Nutrition is vital to the healthy development and well-being of infants, children, youth, and adults, including those with special health care needs. MCHB’s programs promote the nutritional well-being of maternal and child populations across the lifespan. Learn more about HRSA’s initiatives to support healthy nutrition for families. Source: Maternal and Child Health Bureau Nutrition is
Developers of mHealth apps may wish to incorporate adaptations such as haptic feedback, speech-to-text or text-to-speech conversion, and fitness advice designed for people with physical disabilities. In addition, symptom management apps may be an under-utilized resource for people with chronic conditions such as diabetes. Targeted marketing efforts may assist in promoting adoption of these apps
“We are so pleased that the quality of our guideline rose to the occasion of being published in JAMA, and we are deeply grateful to our families and self-advocates for pushing us to work on this difficult project,” says Michelle Sie Whitten, president and CEO of the Global Down Syndrome Foundation, or GLOBAL, which spearheaded
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An infographic explaining some of the risk factors for dementia. Source: Imperial College London Dementia strikes one in 14 people in the UK over 65, and 47 million people worldwide. Yet scientists are still urgently trying to find why the disease affects some but not others. In the below infographic, Imperial researcher Dr Ruth Peters explores
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