HealthMatters

Dr. Marks directs research programs to empower people with disabilities through health promotion, health advocacy, and primary health care.

The RAISE Family Caregiver Resource and Dissemination Center

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Source: The National Academy for State Health Policy The Family Caregiving Advisory Council The impact of the nation’s aging population on state budgets and policies cannot be addressed without understanding the needs of family caregivers. Under the RAISE Act, the Secretary of the Department of Health and Human Services must develop a national Family Caregiving […]

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Screening of Cognitive Changes in Adults with Intellectual Disabilities: A Systematic Review

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A systematic review of the existing instruments assessing dementia, aiming to support researchers and clinicians’ best practice found the most used instrument completed by an informant or carer was the Dementia Questionnaire for Learning Disabilities (DLD) Source: Brain Sciences | Free Full-Text Background and Aims: Screening and assessment of cognitive changes in adults with Intellectual

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An international survey on the impact of COVID-19 in individuals with Down syndrome

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Health conditions and immune dysfunction associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19 once infected by SARS-CoV-2. Source: medRxiv ABSTRACT Background Health conditions and immune dysfunction associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19 once infected by SARS-CoV-2. Methods The T21RS COVID-19 Initiative launched an international

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Intellectual Disability Service Providers Want to Protect Clients. The State Isn’t Telling Them How

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Bars, restaurants, nursing homes and assisted living facilities have closed or are practicing social distancing in Arizona. But group homes and other programs have received little guidance, putting people with intellectual disabilities at risk. John and Christi Estrada, one of many Arizona families left without COVID-19 guidance. (Courtesy of Christi Estrada) by Amy Silverman, Arizona Daily Star,

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People with Developmental Disabilities Were Promised Help. Instead, They Face Delays and Denials.

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Left to right: Kyra Wade, Drew Bolender, Emory Webster, Eric Nunn, Jaden Ruiz and Mike Lundergan are all Arizonans with intellectual or developmental disabilities. Though they don’t know each other, each has struggled to receive care from the state’s Division of Developmental Disabilities agency. (Tyrone Weedon/Make Studio for ProPublica) Source:  ProPublica Arizona is known as the

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Nutrition

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Nutrition is vital to the healthy development and well-being of infants, children, youth, and adults, including those with special health care needs.  MCHB’s programs promote the nutritional well-being of maternal and child populations across the lifespan. Learn more about HRSA’s initiatives to support healthy nutrition for families. Source: Maternal and Child Health Bureau Nutrition is

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People with Disabilities Describe Features of Mobile Health Apps that Would Increase Accessibility

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Developers of mHealth apps may wish to incorporate adaptations such as haptic feedback, speech-to-text or text-to-speech conversion, and fitness advice designed for people with physical disabilities. In addition, symptom management apps may be an under-utilized resource for people with chronic conditions such as diabetes. Targeted marketing efforts may assist in promoting adoption of these apps

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New Guidelines For Treating Adults With Down Syndrome

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“We are so pleased that the quality of our guideline rose to the occasion of being published in JAMA, and we are deeply grateful to our families and self-advocates for pushing us to work on this difficult project,” says Michelle Sie Whitten, president and CEO of the Global Down Syndrome Foundation, or GLOBAL, which spearheaded

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