HealthMatters

Dr. Marks directs research programs to empower people with disabilities through health promotion, health advocacy, and primary health care.

Pain and pain assessment in people with intellectual disability: Issues and challenges in practice

Source: 2017 – British Journal of Learning Disabilities – Wiley Online Library Authors: Owen Doody, Maria E. Bailey Abstract Accessible summary Pain is difficult to identify when people cannot communicate. If pain is not identified, it cannot be managed and causes stress. Pain assessment is essential in order to identify pain. Pain assessment requires a combination …

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“Tell me what they do to my body”: A survey to find out what information people with learning disabilities want with their medications

Fifty-eight people completed the questionnaire. Many of them said they did not get enough information about their medicine. Most people wanted easy-read leaflets and pictures. Authors: Rebecca Fish, Chris Hatton, Umesh Chauhan Source: British Journal of Learning Disabilities – 2017 – Wiley Online Library Abstract Accessible summary We gave a questionnaire to self-advocates who were attending …

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Internet and cell phone usage patterns among young adults with intellectual disabilities

Source: JARID Authors Cristina Jenaro, Noelia Flores, Maribel Cruz, Ma Carmen Pérez, Vanessa Vega, Víctor A Torres First published: 24 July 2017 Abstract Background The risks and opportunities associated with the use of technologies are of growing research interest. Patterns of technology usage illuminate these opportunities and risks. However, no studies have assessed the usage …

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Management and prevalence of long-term conditions in primary health care for adults with intellectual disabilities compared with the general population: A population-based cohort study

Source: JARID Sally-Ann Cooper, Laura Hughes-McCormack, Nicola Greenlaw, Alex McConnachie, Linda Allan, Marion Baltzer, Laura McArthur, Angela Henderson, Craig Melville, Paula McSkimming, Jill Morrison First published: 20 July 2017 Abstract Background In the UK, general practitioners/family physicians receive pay for performance on management of long-term conditions, according to best-practice indicators. Method Management of long-term conditions …

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What Effect Does Transition Have on Health and Well-Being in Young People with Intellectual Disabilities? A Systematic Review

 Source: JARID Background Transition to adulthood might be a risk period for poor health in people with intellectual disabilities. However, the present authors could find no synthesis of evidence on health and well-being outcomes during transition in this population. This review aimed to answer this question. MethodPRISMA/MOOSE guidelines were followed. Search terms were defined, electronic searches of …

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Prospects for an Impact Evaluation of Project SEARCH: An Evaluability Assessment

Source: Prospects for an Impact Evaluation of Project SEARCH: An Evaluability Assessment Authors: Arif A. Mamun, Lori Timmins, and David C. Stapleton Download Report Project SEARCH has emerged as a promising program to address the challenges related to improving employment outcomes of youth with disabilities. It is a high school to work transition program that integrates …

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The Peter and Elizabeth C. Tower Foundation | Intellectual Disabilities

To be eligible for funding, organizations must be located in or primarily serve residents in one of the following geographic areas: Barnstable, Dukes, Essex, and Nantucket Counties of Massachusetts; Erie and Niagara Counties of New York. Source: The Peter and Elizabeth C. Tower Foundation | Intellectual Disabilities The Tower Foundation will now offer three opportunities per year to …

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2017 National Research Summit on Care, Services and Supports for Persons with Dementia and Their Caregivers

The National Research Summit on Care, Services and Supports for Persons with Dementia and Their Caregivers is two-day meeting of researchers, service providers, persons with dementia, family caregivers, and other stakeholder groups. Source: 2017 National Research Summit on Care, Services and Supports for Persons with Dementia and Their Caregivers Registration is open for the 2017 National …

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How I bridge 2 worlds as a deaf medical student

Growing up as a deaf person has given me unique insights into patient care, which I hope to incorporate into my practice when I’m a physician. Source: How I bridge 2 worlds as a deaf medical student By VICTORIA MACPHERSON, OMS II  MONDAY, FEB. 13, 2017 I was born profoundly deaf in both ears, which means …

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Developing a medical picture book for reducing venipuncture distress in preschool-aged children

Source: International Journal of Nursing Practice Ying Tsao, Hui-Chen Kuo, Hsui-Chuan Lee and Shuenn-Jiun Yiin Version of Record online: 20 JUL 2017 | DOI: 10.1111/ijn.12569 Abstract Aim Distress associated with needle-related procedures is a major concern in preschool-aged children nursing. This study developed a medical picture book for supporting preschool-aged children facing a venipuncture and determined the effectiveness …

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