Health Care Providers

How Are Disabled People Affected When COVID-19 Health Care Rationing Happens? 

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Source: NPR December 14, 20203:47 PM ET Heard on All Things Considered Joseph Shapiro Kimberly Conger, Sarah McSweeney’s nurse at her group home, shows a photo of McSweeney on her phone. She says McSweeney was outgoing and fun: “She absolutely adored going into malls and getting her makeup done and getting her hair done.” On the […]

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How Are Disabled People Affected When COVID-19 Health Care Rationing Happens?

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In an Oregon hospital, a disabled woman fought for her life as her friends and advocates pleaded for proper care. Her case raises the question: Are disabled lives equally valued during a pandemic? Source: NPR JOSEPH SHAPIRO

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Dementia and IDD | Julie Moran, DO Discusses Dementia, Aging, and IDD

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Introduction In this webinar series, Julie Moran, DO discusses dementia, aging, and IDD.  Dr. Moran provides a basic overview of dementia, the stages of Alzheimer’s Disease, as well as caregiving. Source: Eunice Kennedy Shriver Center Presentation Slides (PDF) Additional Trainings and Resources Resources for Individuals with IDD and Alzheimer’s Disease and Related Dementias Early Evaluation of

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Resources for Individuals with IDD and Alzheimer’s Disease and Related Dementias

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Under the Administration for Community Living’s Alzheimer’s Disease Initiative Specialized Support Services program, the Massachusetts Councils on Aging received a grant to assess and provide supports for people with Alzheimer’s Disease and Related Dementias and their caregivers. Source: Eunice Kennedy Shriver Center One-Page Guides An Overview of IDD and Dementia in Massachusetts Individuals with intellectual

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New Guidelines For Treating Adults With Down Syndrome

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“We are so pleased that the quality of our guideline rose to the occasion of being published in JAMA, and we are deeply grateful to our families and self-advocates for pushing us to work on this difficult project,” says Michelle Sie Whitten, president and CEO of the Global Down Syndrome Foundation, or GLOBAL, which spearheaded

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How Can Health Systems Help Older Adults Address Social Isolation and Loneliness? A Conversation with The John A. Hartford Foundation’s Terry Fulmer

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This blog post features a conversation with Terry Fulmer, president of the John A. Hartford Foundation, who explores the NASEM report findings and discuss potential solutions for older adults experiencing social isolation and loneliness — both during and after the COVID-19 pandemic. Source: Playbook April 9, 2020 By Logan Kelly, Center for Health Care Strategies

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Multi-morbidity in older people with intellectual disability

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Rafat Hussain, Stuart Wark, Matthew P. Janicki, Trevor Parmenter, & Marie Knox Source: Journal of Applied Research in Intellectual Disabilities – Wiley Online Library 20 April 2020 (https://doi.org/10.1111/jar.12743) Abstract Background There is paucity of research from Australia about comorbidity in older people with intellectual disability (PwID). This paper examines the burden of chronic diseases and

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Potential Impacts of COVID-19 on Individuals with Intellectual and Developmental Disability: A Call for Accurate Cause of Death Reporting

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COVID-19 deaths will likely be more prevalent among those with intellectual and developmental disability (IDD).Death rates from pneumonia are between 2.2 times and 5.8 times higher among individuals with an IDD than among those without IDD, giving us a clear warning of the severity of COVID-19 among people with IDD.Underestimation of COVID-19 deaths is potentially

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Preparing Individuals with Intellectual/Developmental Disabilities for Medical Treatment at Hospitals

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Source: Disability COVID-19 Forms Click on the name of your state below to download a COVID-19 Disability Form to complete online and print. Alabama         Alaska        Arizona        Arkansas         California         Colorado         Connecticut         Delaware         Florida     

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Applying HHS’s Guidance for States and Health Care Providers on Avoiding Disability-Based Discrimination in Treatment Rationing – Disability Rights Education & Defense Fund

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Persons with disabilities…should not be put at the end of the line for health services during emergencies. Download document Source: Disability Rights Education & Defense Fund On March 28, 2020, the U.S. Department of Health and Human Services issued a Bulletin entitled “Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19),” stating “HHS is committed

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