National Task Group on Intellectual Disabilities and Dementia Practices (NTG)

What is the NTG?

The National  Task Group on Intellectual Disabilities and Dementia Practices (the ‘NTG’) is a coalition of interested persons and organizations working toward ensuring that the needs and interests of adults with intellectual and developmental disabilities who are affected by Alzheimer’s disease and related dementia – as well as their families and friends – are taken into account as part of the National Plan to Address Alzheimer’s Disease, and is represented by members at the quarterly meetings of the federal Advisory Council on Alzheimer’s Research, Care, and Services.

NTG Links

The NTG is composed of families, association and organization representatives, practitioners, academics, and others who contribute time and effort to its activities.  The NTG is supported by with the Rehabilitation Research and Training Center on Aging with Developmental Disabilities-Lifespan Health and Function at the University of Illinois at Chicago and the American Academy of Developmental Medicine and Dentistry.  The NTG has produced a number of guidelines, screening instruments, and helpful materials, and provides a program of national workshops on intellectual disability and dementia.  These materials and access to the workshops can be obtained at the NTG’s website – www.aadmd.org/ntg.

An invitation to affiliate with the NTG is open. Anyone interested in contributing to this effort can register as a contributing member or NTG friend at the NTG’s webpage.

For more information or questions, please contact either Seth Keller, M.D. (American Academy of Developmental Medicine and Dentistry) at sethkeller@aol.com or Matthew Janicki, Ph.D. (University of Illinois at Chicago) at mjanicki@uic.edu, the co-chairs of the NTG.

Visit NTG for more information or contact Dr. Matthew Janicki and NTG Caregiver News for those who are caring for, or have cared for, loved ones with Alzheimer’s and intellectual disabilities.

 

Project Staff

Matthew P. Janicki, Ph.D.

Study Findings

National Task Group on Intellectual Disabilities and Dementia Practices

Research Outcomes

Educational Activities

National Task Group on Intellectual Disabilities and Dementia Practices

The National Task Group on Intellectual Disabilities and Dementia Practices organized a national task group along with the American Association on Developmental Medicine and Dentistry that produced a seminal report and recommendations for federal, state, and local agencies and organizations as well as into the National Alzheimer’s Project Act. The project uses a web-based interaction, national meeting and broad based dissemination for training and affecting public policy. A summative report “My Thinker’s Not Working” was created.(11) Presentations have been made in webinars, a series of workshops, and conferences. Guidelines for structuring community care and supports for people with intellectual disabilities affected by dementia has been published in the Journal of Policy and Practice in Intellectual Disabilities. It also has been widely disseminated through RRTC website, NTG, and through its national network.

The NTG’s Educational Activities

The NTG is engaging in an awareness campaign that involves a series of national and regional workshops and Webinar series, and distribution of public education materials. NTG members are also involved in special presentations at the annual meetings of various national associations and organizations. The 2017 workshop schedule is available at http://aadmd.org/ntg/schedule.

The NTG also maintains a program of educational Webinars. For the Webinar schedule go to http://aadmd.org/ntg/webinars.

The NTG also has a promotional brochure and set of FAQs that promote awareness of dementia and of the activities of the NTG.  NTG members have helped create informational materials that are  distributed by other organizations, such as the National Down Syndrome Society.

Products & Publications of the NTG

The NTG has produced a number of products which may be helpful. To obtain a copy of any of the following products, via download, go to www.aadmd.org/ntg.

  • Janicki, M., & Keller, S. (2012) ‘My Thinker’s Not Working:’ A National Strategy for Enabling Adults with Intellectual Disabilities Affected By Dementia to Remain In Their Community and Receive Quality Supports.
  • ‘My Thinker’s Not Working’: A National Strategy for Enabling Adults with Intellectual Disabilities Affected by Dementia to Remain in Their Community and Receive Quality Supports (PDF)
  • ‘My Thinker’s Not Working’: A National Strategy for Enabling Adults with Intellectual Disabilities Affected by Dementia to Remain in Their Community and Receive Quality Supports – Executive Summary (PDF)
  • Guidelines for Structuring Community Care and Supports for People with Intellectual Disabilities Affected by Dementia (Booklet version)
  • Guidelines for Structuring Community Care and Supports for People with Intellectual Disabilities Affected by Dementia (Journal version)
  • NTG-Early Detection Screen for Dementia – English (PDF)
  • NTG-Early Detection Screen for Dementia – German (PDF)
  • NTG-Early Detection Screen for Dementia – Italian (PDF)
  • The National Task Group on Intellectual Disabilities and Dementia Practices Consensus Recommendations for the Evaluation and Management of Dementia in Adults with Intellectual Disabilities (PDF) – Available soon
  • Frequently Asked Questions (PDF)
  • NTG Brochure (PDF)

Publications

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