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# HealthMatters Program

Promoting health where we live, learn, work, and play!

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## Posts

- [Autism, Aging, and Dementia](https://healthmattersprogram.org/2024/06/13/autism-aging-and-dementia/) - Autism, Aging, and Dementia: A consensus report of the Autism/Dementia Work Group of the 2nd International Summit on Intellectual Disabilities and Dementia
- [Over-Medication and Older Adults with Intellectual Disability: Risks for Brain Health (Statement)](https://healthmattersprogram.org/2024/06/13/over-medication-and-older-adults-with-intellectual-disability-risks-for-brain-health-statement/) - This document is issued jointly by the NTG and the HealthMatters Program as part of an advisory series on risk reduction in adults with intellectual disability and promoting healthy brain outcomes. We recognize that in some instances overmedicating can have negative consequences on physical and brain health, as well as potentially increase the risk for mild
- [Addressing Brain Health in Adults With Intellectual Disabilities and Developmental Disabilities](https://healthmattersprogram.org/2024/06/13/addressing-brain-health-in-adults-with-intellectual-disabilities-and-developmental-disabilities/) - A Companion to the GSA KAER Toolkit for Primary Care Teams Supporting Conversations About Brain Health, Timely Detection of Cognitive Impairment, and Accurate Diagnosis of Dementia
- [Push is on for states to ban organ transplant discrimination](https://healthmattersprogram.org/2021/03/10/push-is-on-for-states-to-ban-organ-transplant-discrimination/) - New laws would prevent people with Down syndrome, autism and other disabilities from being denied transplants solely because of their conditions. Source: Push is on for states to ban organ transplant discrimination March 10, 2021, 3:30 AM CST By Sara Reardon Griffin Dalrymple is an energetic 7-year-old who loves going to school in Eureka, Montana. But
- [Intellectual Disability Among Greatest COVID-19 Risk Factors, Study Finds - Disability Scoop](https://healthmattersprogram.org/2021/03/10/intellectual-disability-among-greatest-covid-19-risk-factors-study-finds-disability-scoop/) - New research suggests that people with intellectual disability are about six times more likely to die if they contract COVID-19, a higher risk than almost anyone else. Source: Intellectual Disability Among Greatest COVID-19 Risk Factors, Study Finds - Disability Scoop New research suggests that people with intellectual disability are about six times more likely to
- [COVID-19 Accessible Resources Home](https://healthmattersprogram.org/2021/02/19/covid-19-accessible-resources-home/) - Source: Center for Inclusive Design and Innovation Our goal is to increase access to information about COVID-19. This project was made possible with funding from the CDC Foundation. Resources on this site are adapted and accessible versions of CDC's COVID-19 guidance. For CDC's full guidance, please visit www.cdc.gov/coronavirus. Resources by Accessibility Type All resources and documents made available how
- [The Dark Side of CRISPR](https://healthmattersprogram.org/2021/02/18/the-dark-side-of-crispr/) - But some of those in Sandy’s circle still believed pregnancy inadvisable because, to them, producing a child who would carry the CF gene was equally undesirable. Sandy called out their assumption: that her condition was inherently inferior—a point they took as self-evident despite the fact that an estimated 24 percent of people worldwide are carriers for genetic
- [Fury at ‘do not resuscitate’ notices given to Covid patients with learning disabilities | Coronavirus](https://healthmattersprogram.org/2021/02/15/fury-at-do-not-resuscitate-notices-given-to-covid-patients-with-learning-disabilities-coronavirus/) - Vulnerable people have encountered ‘shocking discrimination’ during pandemic, says Mencap charity Source: The Guardian James Tapper Sat 13 Feb 2021 08.56 EST People with learning disabilities have been given do not resuscitate orders during the second wave of the pandemic, in spite of widespread condemnation of the practice last year and an urgent investigation by
- [Telemedicine Treatment and Care for Patients with Intellectual Disability](https://healthmattersprogram.org/2021/02/15/telemedicine-treatment-and-care-for-patients-with-intellectual-disability/) - Krzysztof Krysta 1,*, Monika Romańczyk 1, Albert Diefenbacher 2 and Marek Krzystanek 1 1 Department and Clinic of Psychiatric Rehabilitation, Department of Psychiatry and Psychotherapy, Faculty of Medical Sciences, Medical University of Silesia in Katowice, Ziołowa 45/47, 40‐635 Katowice, Poland; romanczykmonika@ wp.pl (M.R.); krzystanekmarek@gmail.com (M.K.) 2 Department of Psychiatry and Psychotherapy (CBF), Charité University Medicine
- [Vaccine Considerations for People with Disabilities | CDC](https://healthmattersprogram.org/2021/02/05/vaccine-considerations-for-people-with-disabilities-cdc/) - Symptoms, testing, what to do if sick, daily activities, and more. Source: CDC What People with Disabilities and Care Providers Need to Know About the COVID-19 Vaccine This webpage provides information for people with disabilities or conditions that may increase their risk of getting and spreading COVID-19, and for their care providers. If you do
- [COVID vaccine panel: No higher rank to disabled Californians](https://healthmattersprogram.org/2021/02/05/covid-vaccine-panel-no-higher-rank-to-disabled-californians/) - A state panel sticks with California’s decision to make age — not disability or condition — the prime criteria for fast COVID vaccination. BY BARBARA FEDER OSTROV FEBRUARY 3, 2021 IN SUMMARY An influential state committee holds fast, for now, to California’s decision to make age — not disability or chronic health condition — the primary criteria
- [Impact of COVID-19: Nursing challenges to meeting the care needs of people with developmental disabilities](https://healthmattersprogram.org/2021/02/02/impact-of-covid-19-nursing-challenges-to-meeting-the-care-needs-of-people-with-developmental-disabilities/) - Source: ScienceDirect - Disability and Health Journal (https://doi.org/10.1016/j.dhjo.2020.101015) Melissa L.DesrochesPhDa Sarah AileyPhDb Kathleen FisherPhDc Judith StychDNPd Abstract Background People with developmental disabilities (DD) are a population at high-risk for poor outcomes related to COVID-19. COVID-19-specific risks, including greater comorbidities and congregate living situations in persons with DD compound existing health disparities. With their expertise in
- [“The doctor will see you now”: Direct support professionals’ perspectives on supporting adults with intellectual and developmental disabilities accessing health care during COVID-19](https://healthmattersprogram.org/2021/02/02/the-doctor-will-see-you-now-direct-support-professionals-perspectives-on-supporting-adults-with-intellectual-and-developmental-disabilities-accessing-health-care-during-cov/) - Source: ScienceDirect - Disability and Health Journal (https://doi.org/10.1016/j.dhjo.2021.101066) Y.Lunsky(PhD)abcN.Bobbette(PhD)aA.Selick(MA)acM.I.Jiwa(MD)a Abstract Background It is critical to consider how rapid changes in health care delivery and the rise in use of virtual modalities have impacted adults with intellectual and developmental disabilities and caregivers. Objective The purpose of this paper is to describe direct support professionals’ experiences assisting
- [Opportunity hoarding linked to racial and ethnic inequities in children's neighborhoods](https://healthmattersprogram.org/2021/02/02/opportunity-hoarding-linked-to-racial-and-ethnic-inequities-in-childrens-neighborhoods/) - Source: Diversity Data Kids Across the U.S. we see vast inequality in child neighborhood opportunity within metropolitan areas. In a single metro, just a few miles apart, some children experience the best neighborhood conditions available to any child in the U.S., while others experience the worst conditions. Not all metros are the same though. Some
- [Nothing About Us Without All of Us: Part 2 ](https://healthmattersprogram.org/2021/01/26/nothing-about-us-without-all-of-us-part-2/) - The Racial Wealth Gap and People with Disabilities Source: Accelerate Disability Inclusion | Medium As explained in Part 1 of this series, the racial wealth gap describes the difference in median wealth between White households and households of color. Wealth doesn’t just mean “dollars earned”; it includes assets plus income minus debts. According to a recent Federal
- [Nothing About Us Without All of Us: Part 1](https://healthmattersprogram.org/2021/01/26/nothing-about-us-without-all-of-us-part-1/) - The Racial Wealth Gap and People with Disabilities Source:Accelerate Disability Inclusion | Medium “To this day, African-Americans make a lot less money than Whites,” actress Samira Wiley narrates in a recent episode of Netflix’s Explained. “They’re far more likely to be unemployed, and studies show employers still discriminate. But even if we managed to close those gaps
- [The Biden Plan For Full Participation And Equality For People With Disabilities](https://healthmattersprogram.org/2021/01/26/the-biden-plan-for-full-participation-and-equality-for-people-with-disabilities/) - Read Joe Biden’s plan to support people with disabilities during the COVID-19 pandemic at https://joebiden.com/covid19-disabilities/. “Joe Biden believes that everyone should be treated with dignity and have a fair shot at getting ahead. This year, on July 26, we will mark the 30th anniversary of the Americans with Disabilities Act (ADA). Thanks to the leadership
- [Certain Medical Conditions and Risk for Severe COVID-19 Illness](https://healthmattersprogram.org/2021/01/21/certain-medical-conditions-and-risk-for-severe-covid-19-illness/) - Symptoms, testing, what to do if sick, daily activities, and more. Source: CDC Summary of Recent Changes Revisions were made on December 23, 2020 to reflect recent data supporting increased risk of severe illness among persons with Down syndrome from the virus that causes COVID-19. Revisions also include addition of sickle cell disease and chronic
- [Use of behaviour change techniques by direct support professionals to support healthy lifestyle behaviour for people with moderate to profound intellectual disabilities](https://healthmattersprogram.org/2021/01/18/use-of-behaviour-change-techniques-by-direct-support-professionals-to-support-healthy-lifestyle-behaviour-for-people-with-moderate-to-profound-intellectual-disabilities/) - Annelies Overwijk Annette A. J. van der Putten Cees P. van der Schans Mariël Willems Thessa I. M. Hilgenkamp Aly Waninge First published: 08 December 2020 https://doi.org/10.1111/jar.12845 Source: Journal of Applied Research in Intellectual Disabilities - Wiley Online Library Abstract Background Behaviour change techniques (BCTs) can be employed to support a healthy lifestyle for people
- [When will people with disabilities get the coronavirus vaccine? States disagree on answer.](https://healthmattersprogram.org/2021/01/14/when-will-people-with-disabilities-get-the-coronavirus-vaccine-states-disagree-on-answer/) - “They don’t look at Sloan and see what I see,” Lincicome said. “They don’t see the guy who just recorded an album or has an annual Christmas carol concert. They see a wheelchair, and somebody who is laying in their bed all day.” Source: The Washington Post
- [Telework and Accessibility](https://healthmattersprogram.org/2021/01/14/telework-and-accessibility/) - Buy IT!Your Guide for Purchasing Accessible Technology Staff TrainingGuideAccessibility Skills & Awareness Resources TalentWorksAccessible eRecruiting for Employers TechCheck Source: Peatworks Many employers and employees have shifted to telework. PEAT is here to help with the transition to ensure your digital communications and platforms are as accessible as possible for everyone, including people with disabilities. The
- [Caring for the Future: The Power and Potential of America’s Direct Care Workforce](https://healthmattersprogram.org/2021/01/14/caring-for-the-future-the-power-and-potential-of-americas-direct-care-workforce/) - This report takes an extensive look at direct care workers and the industry shaping their jobs. Source:PHI
- [States Plan for Vaccinating their Populations against COVID-19](https://healthmattersprogram.org/2021/01/14/states-plan-for-vaccinating-their-populations-against-covid-19/) - Source: The National Academy for State Health Policy Guided by evolving federal recommendations and limited vaccine supplies, states are refining their distribution plans that prioritize when specific workforce members and populations receive the COVID-19 vaccine. This chart "State Priorities for Distributions as of January 2021" below shows how each state is prioritizing populations in recently updated
- [Make Every Bite Count With the Dietary Guidelines](https://healthmattersprogram.org/2021/01/13/make-every-bite-count-with-the-dietary-guidelines/) - Source: Dietary Guidelines for Americans Download Dietary Guidelines for Americans, 2020-2025. This edition marks the first time the Guidelines provide recommendations by life stage, from birth through older adulthood. Each stage of life is distinct and has unique needs that affect health and disease risk. Early food preferences influence food and beverage choices later. And
- [CDC SVI Documentation 2018 | Place and Health](https://healthmattersprogram.org/2021/01/08/cdc-svi-documentation-2018-place-and-health/) - Source: CDC ATSDR Introduction What is Social Vulnerability? Every community must prepare for and respond to hazardous events, whether a natural disaster like a tornado or a disease outbreak, or an anthropogenic event such as a harmful chemical spill. The degree to which a community exhibits certain social conditions, including high poverty, low percentage of
- [Difference in Healthcare Usage, Pharmacy Prescriptions, and Healthcare Cost for Special Olympic Athletes Compared to Non‐athletes with Intellectual Disabilities](https://healthmattersprogram.org/2021/01/07/difference-in-healthcare-usage-pharmacy-prescriptions-and-healthcare-cost-for-special-olympic-athletes-compared-to-non‐athletes-with-intellectual-disabilities/) - Source: Journal of Policy and Practice in Intellectual Disabilities - Wiley Online Library Muhammad O. Al‐Heizan PhD, Brittany St. John MS, OTR/L, Lindsay DuBois PhD, Brandi Niemeier PhD, Karla K. Ausderau PhD, OTR/L First published: 30 September 2020 https://doi.org/10.1111/jppi.12363 Abstract Objectives Examine healthcare usage, pharmacy prescriptions and healthcare cost among people with Intellectual Disability (ID)
- [How Are Disabled People Affected When COVID-19 Health Care Rationing Happens? ](https://healthmattersprogram.org/2021/01/04/how-are-disabled-people-affected-when-covid-19-health-care-rationing-happens-2/) - Source: NPR December 14, 20203:47 PM ET Heard on All Things Considered Joseph Shapiro Kimberly Conger, Sarah McSweeney's nurse at her group home, shows a photo of McSweeney on her phone. She says McSweeney was outgoing and fun: "She absolutely adored going into malls and getting her makeup done and getting her hair done." On the
- [How Are Disabled People Affected When COVID-19 Health Care Rationing Happens?](https://healthmattersprogram.org/2020/12/24/how-are-disabled-people-affected-when-covid-19-health-care-rationing-happens/) - In an Oregon hospital, a disabled woman fought for her life as her friends and advocates pleaded for proper care. Her case raises the question: Are disabled lives equally valued during a pandemic? Source: NPR JOSEPH SHAPIRO
- [Dementia and IDD | Julie Moran, DO Discusses Dementia, Aging, and IDD](https://healthmattersprogram.org/2020/11/24/dementia-and-idd-julie-moran-do-discusses-dementia-aging-and-idd/) - Introduction In this webinar series, Julie Moran, DO discusses dementia, aging, and IDD. Dr. Moran provides a basic overview of dementia, the stages of Alzheimer’s Disease, as well as caregiving. Source: Eunice Kennedy Shriver Center https://youtu.be/H_N-yaId71s Presentation Slides (PDF) Additional Trainings and Resources Resources for Individuals with IDD and Alzheimer’s Disease and Related Dementias Early Evaluation
- [Resources for Individuals with IDD and Alzheimer’s Disease and Related Dementias](https://healthmattersprogram.org/2020/11/24/resources-for-individuals-with-idd-and-alzheimers-disease-and-related-dementias/) - Under the Administration for Community Living’s Alzheimer’s Disease Initiative Specialized Support Services program, the Massachusetts Councils on Aging received a grant to assess and provide supports for people with Alzheimer’s Disease and Related Dementias and their caregivers. Source: Eunice Kennedy Shriver Center One-Page Guides An Overview of IDD and Dementia in Massachusetts Individuals with intellectual
- [The RAISE Family Caregiver Resource and Dissemination Center](https://healthmattersprogram.org/2020/11/17/the-raise-family-caregiver-resource-and-dissemination-center/) - Source: The National Academy for State Health Policy The Family Caregiving Advisory Council The impact of the nation’s aging population on state budgets and policies cannot be addressed without understanding the needs of family caregivers. Under the RAISE Act, the Secretary of the Department of Health and Human Services must develop a national Family Caregiving
- [Screening of Cognitive Changes in Adults with Intellectual Disabilities: A Systematic Review](https://healthmattersprogram.org/2020/11/12/screening-of-cognitive-changes-in-adults-with-intellectual-disabilities-a-systematic-review/) - A systematic review of the existing instruments assessing dementia, aiming to support researchers and clinicians’ best practice found the most used instrument completed by an informant or carer was the Dementia Questionnaire for Learning Disabilities (DLD) Source: Brain Sciences | Free Full-Text Background and Aims: Screening and assessment of cognitive changes in adults with Intellectual
- [Next Chapter Book Club](https://healthmattersprogram.org/2020/11/12/next-chapter-book-club/) - "Next Chapter Book Club truly fits our understanding of literary activism and what that kind of movement can do. When any community is dismissed, when we lose a voice or an audience, we all suffer for it. Next Chapter Book Club is using literature as a way to bring people with intellectual disabilities into a
- [New Guidelines For Treating Adults With Down Syndrome](https://healthmattersprogram.org/2020/11/03/in-first-doctors-get-guidelines-for-treating-adults-with-down-syndrome/) - “We are so pleased that the quality of our guideline rose to the occasion of being published in JAMA, and we are deeply grateful to our families and self-advocates for pushing us to work on this difficult project,” says Michelle Sie Whitten, president and CEO of the Global Down Syndrome Foundation, or GLOBAL, which spearheaded
- [Risk factors for dementia](https://healthmattersprogram.org/2020/10/26/risk-factors-for-dementia/) - An infographic explaining some of the risk factors for dementia. Source: Imperial College London Dementia strikes one in 14 people in the UK over 65, and 47 million people worldwide. Yet scientists are still urgently trying to find why the disease affects some but not others. In the below infographic, Imperial researcher Dr Ruth Peters explores
- [COVID-19 and Down syndrome Survey - Infographic](https://healthmattersprogram.org/2020/11/09/covid-19-and-down-syndrome-survey-infographic/) - The T21RS has developed a series of infographics highlighting key findings - https://www.t21rs.org/results-from-covid-19-and-down-syndrome-survey/ Source: T21RS
- [An international survey on the impact of COVID-19 in individuals with Down syndrome](https://healthmattersprogram.org/2020/11/09/an-international-survey-on-the-impact-of-covid-19-in-individuals-with-down-syndrome/) - Health conditions and immune dysfunction associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19 once infected by SARS-CoV-2. Source: medRxiv ABSTRACT Background Health conditions and immune dysfunction associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19 once infected by SARS-CoV-2. Methods The T21RS COVID-19 Initiative launched an international
- [Intellectual disability and dementia: perspectives on environmental influence](https://healthmattersprogram.org/2020/10/26/intellectual-disability-and-dementia-perspectives-on-environmental-influence/) - This study provides a beginning point to establishing a framework for creating supports and addressing barriers to participation for adults with intellectual disability and dementia based on direct input from potential service consumers and their caregivers. People with intellectual disabilities and dementia provide valuable insights into their experiences through engagement in accessible research. Source: Emerald
- [Intellectual Disability Service Providers Want to Protect Clients. The State Isn’t Telling Them How](https://healthmattersprogram.org/2020/11/05/intellectual-disability-service-providers-want-to-protect-clients-the-state-isnt-telling-them-how/) - Bars, restaurants, nursing homes and assisted living facilities have closed or are practicing social distancing in Arizona. But group homes and other programs have received little guidance, putting people with intellectual disabilities at risk. by Amy Silverman, Arizona Daily Star, April 2, 2020 This article was produced in partnership with the Arizona Daily Star, which is
- [People with Developmental Disabilities Were Promised Help. Instead, They Face Delays and Denials.](https://healthmattersprogram.org/2020/11/05/people-with-developmental-disabilities-were-promised-help-instead-they-face-delays-and-denials/) - Left to right: Kyra Wade, Drew Bolender, Emory Webster, Eric Nunn, Jaden Ruiz and Mike Lundergan are all Arizonans with intellectual or developmental disabilities. Though they don’t know each other, each has struggled to receive care from the state’s Division of Developmental Disabilities agency. (Tyrone Weedon/Make Studio for ProPublica) Source: ProPublica Arizona is known as the
- [Nutrition](https://healthmattersprogram.org/2020/11/04/nutrition/) - Nutrition is vital to the healthy development and well-being of infants, children, youth, and adults, including those with special health care needs. MCHB’s programs promote the nutritional well-being of maternal and child populations across the lifespan. Learn more about HRSA's initiatives to support healthy nutrition for families. Source: Maternal and Child Health Bureau Nutrition is
- [People with Disabilities Describe Features of Mobile Health Apps that Would Increase Accessibility](https://healthmattersprogram.org/2020/11/04/people-with-disabilities-describe-features-of-mobile-health-apps-that-would-increase-accessibility/) - Developers of mHealth apps may wish to incorporate adaptations such as haptic feedback, speech-to-text or text-to-speech conversion, and fitness advice designed for people with physical disabilities. In addition, symptom management apps may be an under-utilized resource for people with chronic conditions such as diabetes. Targeted marketing efforts may assist in promoting adoption of these apps
- [New public health policy statements adopted at APHA 2020](https://healthmattersprogram.org/2020/10/26/new-public-health-policy-statements-adopted-at-apha-2020/) - Source: New public health policy statements adopted at APHA 2020 Date: Oct 25 2020 FOR IMMEDIATE RELEASE Contact: Media Relations The American Public Health Association’s Governing Council adopted 19 new policy statements at its 2020 Annual Meeting and Expo yesterday, covering topics such as e-cigarettes, children’s vision care and the separation of immigrant families. (Disclaimer: These brief
- [Cause of death in adults with intellectual disability in the United States - Landes](https://healthmattersprogram.org/2020/10/23/cause-of-death-in-adults-with-intellectual-disability-in-the-united-states-landes/) - The leading cause of death for adults with and without ID indicated on their death certificate was heart disease. Adults with ID, regardless of the severity of the disability, had substantially higher risk of death from pneumonitis, influenza/pneumonia and choking. Adults with mild/moderate ID also had higher risk of death from diabetes mellitus. Source: Journal
- [Working Resources List on Dementia Care Management and Intellectual Disability](https://healthmattersprogram.org/2020/10/13/working-resources-list-on-dementia-care-management-and-intellectual-disability/) - Preparing Community Agencies for Adults Affected by DementiaDownload PCAD Project (v.19f) University of Illinois at Chicago, Department of Disability and Human Development (MC 626) 1640 W. Roosevelt Road Chicago, IL 60608 USA email: mjanicki@uic.edu
- [NEW National Healthy Brain Initiative for People with Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2020/07/27/new-national-healthy-brain-initiative-for-people-with-intellectual-and-developmental-disabilities/) - Healthy Brain Initiative for People with Intellectual and Developmental Disabilities (IDD) project through the HealthMatters Program in partnership with the National Task Group on Intellectual Disabilities and Dementia is one of the Component B projects with the CDC's National Healthy Brain Initiative (CDC-RFA-DP20-2003). As a Component B recipient, we aim to support people with IDD
- [How The Deaf Community Challenged The White House—And Won](https://healthmattersprogram.org/2020/10/10/how-the-deaf-community-challenged-the-white-house-and-won/) - Like 48 million other deaf and hard of hearing people in the United States, Debra Fleetwood spent the first six months of the pandemic watching White House briefings without an ASL interpreter. A recent ruling will ensure that won't happen again. Source: ForbesWomen - Allison Norlian "...a historic win stemming from a lawsuit filed in
- [Summit Virtual Meeting Series: 2020 National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers](https://healthmattersprogram.org/2020/10/09/summit-virtual-meeting-series-2020-national-research-summit-on-care-services-and-supports-for-persons-with-dementia-and-their-caregivers/) - Identifying Research Gaps and Opportunities to Improve the Care, Services, and Support of Persons with Dementia and Their Caregivers Source: National Institute on Aging The goal of the summit, which was held as a virtual series on July 10, July 21, and August 13, 2020, was to bring together individuals with a variety of backgrounds
- [The INCLUDE Project Research Plan](https://healthmattersprogram.org/2020/10/09/the-include-project-research-plan/) - Down syndrome is the most common genetic cause of intellectual disability, the most common autosomal trisomy, and one of the most visible and universally recognized genetic syndromes. Each year there Source:National Institutes of Health (NIH) With additional funding, this directive provided NIH with the opportunity to expand its current efforts on Down syndrome and commonly
- [HealthMessages™ Program Kit](https://healthmattersprogram.org/2019/10/14/healthmessages-program-kit/) - By Beth Marks, RN, PhD, Jasmina Sisirak, PhD, MPH, Joan Medlen, MEd, RD, & Erika Magallanes, MEd Kit is used by people with DD and their Mentors to learn about physical activity and water, discover HealthMessages, become Healthy Lifestyle Coach, and teach their peers about health. Includes enough materials to run a class for 10
- [The association between medication use and gait in adults with intellectual disabilities - Maas - 2020](https://healthmattersprogram.org/2020/10/02/the-association-between-medication-use-and-gait-in-adults-with-intellectual-disabilities-maas-2020/) - Source: Journal of Intellectual Disability Research - Wiley Online Library Abstract Background Adults with intellectual disabilities (ID) often have polypharmacy and often use antipsychotics. Both polypharmacy and antipsychotics have a negative effect on gait in the general population, but this has not been studied in adults with ID. These negative effects may add to pre‐existing
- [The use of online support by people with intellectual disabilities living independently during COVID‐19 - Zaagsma - 2020](https://healthmattersprogram.org/2020/10/02/the-use-of-online-support-by-people-with-intellectual-disabilities-living-independently-during-covid‐19-zaagsma-2020-journal-of-intellectual-disability-research-wiley-online-library/) - Source: Journal of Intellectual Disability Research - Wiley Online Library Abstract Background During the COVID‐19 outbreak, service providers in the Netherlands had to switch towards providing remote support for people with intellectual disabilities living independently. This study aims to provide insight into the use of online support during the outbreak. Methods We analysed quantitative data
- [DOING RESEARCH INCLUSIVELY: Guidelines for Co-Producing Research with People with Disability | Disability Innovation Institute](https://healthmattersprogram.org/2020/10/02/doing-research-inclusively-guidelines-for-co-producing-research-with-people-with-disability-disability-innovation-institute/) - Improving & transforming the lives of people with disability through innovative interdisciplinary inclusive research. Source: DOING RESEARCH INCLUSIVELY: Guidelines for Co-Producing Research with People with Disability | Disability Innovation Institute The Guidelines set out key benefits, principles and strategies that underpin the DIIU and UNSW’s approach to co-producing research with people with disability. The content
- [RCS Connects | RCS Empowers, Inc.](https://healthmattersprogram.org/2020/10/02/rcs-connects-rcs-empowers-inc/) - If we cannot be together physically we can still join one another and be connected through RCS Connects! Source: RCS Connects | RCS Empowers, Inc.
- [COVID-19 Living Well COVID-19 Toolkit](https://healthmattersprogram.org/2020/09/02/covid-19-living-well-covid-19-toolkit/) - Source: COVID-19 | Wisconsin Board for People with Developmental Disabilities Developmental Disability Councils play a powerful role in response to COVID-19 in ensuring that people with disabilities, their families and their support networks are not left behind. Wisconsin’s Board for People with Developmental Disabilities has fluidly shifted much of our work to shape COVID-19 related
- [The legacy of the American Disabilities Act 30 years later | COMMENTARY - Baltimore Sun](https://healthmattersprogram.org/2020/07/29/the-legacy-of-the-american-disabilities-act-30-years-later-commentary-baltimore-sun/) - The American Disabilities Act was adopted 30 years ago this month resulting in more inclusion of people with disabilities in society as the landmark legislation facilitated their exit from the shadows of isolation and exclusion into the sunlight of public and community life. Source: The legacy of the American Disabilities Act 30 years later |
- [COVID-19 Health Resources](https://healthmattersprogram.org/2020/06/30/covid-19-health-resources/) - Source: COVID-19 Resources The National Center on Advancing Person- Centered Practices and Systems (NCAPPS) is an initiative from the Administration for Community Living and the Centers for Medicare & Medicaid Services that helps States, Tribes, and Territories implement person-centered thinking, planning, and practice in line with U.S. Department of Health and Human Services policy. Health
- [Health Screenings](https://healthmattersprogram.org/2020/06/10/health-screenings/) - Health-Guidelines-and-ScreeningsDownload Hearing-ScreeningDownload Visual-ScreeningDownload
- [Virtual Coach: HealthMatters Google Classroom to Support Frontline Staff to Protect People with IDD During and After the COVID-19 Pandemic](https://healthmattersprogram.org/2020/06/08/virtual-coach-healthmatters-google-classroom-to-support-frontline-staff-to-protect-people-with-idd-during-and-after-the-covid-19-pandemic/) - Jasmina Sisirak and Beth Marks with the HealthMatters Program and Matthew Janicki with the National Task Group on Intellectual Disabilities and Dementia Practices awarded a grant from the UIC Center for Clinical and Translational Science COVID-19 Pilot Grant Program for their project " Virtual Coach: HealthMatters Google Classroom to Support Frontline Staff to Protect People with IDD During and After the COVID-19 Pandemic." Many people
- [2017-2020 Project SEARCH and HealthMatters Program Webinar Series: Employment, Health, and Wellness](https://healthmattersprogram.org/2019/10/10/2019-2020-project-search-and-healthmatters-program-webinar-series-employment-health-and-wellness/) - Please mark your calendars for the upcoming webinars. Webinars will be recorded and archived. These webinars are open to anyone with an interest in employment, transition, health, and wellness for people with developmental disabilities. These webinars are hosted by the HealthMattersTM Program in partnership with Project SEARCH® and funded by the Ohio Developmental Disabilities Council, Grant # 17CH03FA19. View
- [“None of Us Want to Stand Still” Documentary](https://healthmattersprogram.org/2020/05/13/none-of-us-want-to-stand-still-documentary/) - None of Us Want to Stand Still" is a documentary made in partnership with Rush University Medical Center and Georgetown University Center for Excellence in Developmental Disabilities. The documentary shines a light onto the reality of how poorly people with intellectual and developmental disabilities are treated in the healthcare system. The film gives voice to
- [Eligio Velasquez Named 2020 Direct Support Professional of the Year](https://healthmattersprogram.org/2020/05/08/eligio-velasquez-named-2020-direct-support-professional-of-the-year/) - New Mexico professional joins 54 others being honored for inclusion, empowerment of people with intellectual & developmental disabilities! Source: ANCOR ALEXANDRIA, VIRGINIA APRIL 16, 2020 This morning, the American Network of Community Options and Resources (ANCOR) announced that Eligio Velasquez, direct support professional (DSP) for Albuquerque, New Mexico-based ARCA, has been named the 2020 Direct
- [How Can Health Systems Help Older Adults Address Social Isolation and Loneliness? A Conversation with The John A. Hartford Foundation’s Terry Fulmer](https://healthmattersprogram.org/2020/04/21/how-can-health-systems-help-older-adults-address-social-isolation-and-loneliness-a-conversation-with-the-john-a-hartford-foundations-terry-fulmer/) - This blog post features a conversation with Terry Fulmer, president of the John A. Hartford Foundation, who explores the NASEM report findings and discuss potential solutions for older adults experiencing social isolation and loneliness — both during and after the COVID-19 pandemic. Source: Playbook April 9, 2020 By Logan Kelly, Center for Health Care Strategies
- [Multi-morbidity in older people with intellectual disability](https://healthmattersprogram.org/2020/04/21/multi-morbidity-in-older-people-with-intellectual-disability/) - Rafat Hussain, Stuart Wark, Matthew P. Janicki, Trevor Parmenter, & Marie Knox Source: Journal of Applied Research in Intellectual Disabilities - Wiley Online Library 20 April 2020 (https://doi.org/10.1111/jar.12743) Abstract Background There is paucity of research from Australia about comorbidity in older people with intellectual disability (PwID). This paper examines the burden of chronic diseases and
- [Preparing Individuals with Intellectual/Developmental Disabilities for Medical Treatment at Hospitals](https://healthmattersprogram.org/2020/04/10/preparing-individuals-with-intellectual-developmental-disabilities-for-medical-treatment-at-hospitals/) - Source: Disability COVID-19 Forms Click on the name of your state below to download a COVID-19 Disability Form to complete online and print. Alabama Alaska Arizona Arkansas California Colorado Connecticut Delaware Florida
- [Potential Impacts of COVID-19 on Individuals with Intellectual and Developmental Disability: A Call for Accurate Cause of Death Reporting](https://healthmattersprogram.org/2020/04/16/potential-impacts-of-covid-19-on-individuals-with-intellectual-and-developmental-disability-a-call-for-accurate-cause-of-death-reporting/) - COVID-19 deaths will likely be more prevalent among those with intellectual and developmental disability (IDD).Death rates from pneumonia are between 2.2 times and 5.8 times higher among individuals with an IDD than among those without IDD, giving us a clear warning of the severity of COVID-19 among people with IDD.Underestimation of COVID-19 deaths is potentially
- [Walmart Reserves Daily Pickup Hour for Those Most At-Risk](https://healthmattersprogram.org/2020/04/16/walmart-reserves-daily-pickup-hour-for-those-most-at-risk/) - BENTONVILLE, Ark., April 14, 2020 — Walmart is launching a Pickup hour for people most at-risk for COVID-19. Each day at select pickup store locations, the hour from 7 to 8 a.m. will be reserved for customers over the age of 60, as well as first responders, customers with disabilities and anyone designated high-risk by
- [OSHA Guidance on Preparing the Workplace for COVID-19 (2020)](https://healthmattersprogram.org/2020/04/15/osha-guidance-on-preparing-the-workplace-for-covid-19-2020/) - 2020 guidance on preparing the workplace for coronavirus disease 2019 (COVID-19) by the Occupational Safety and Health Administration (OSHA) Source: OSHA This is a quick summary of the guidelines without analysis or commentary. For more information, go directly to the guidelines by clicking the link in the reference. Occupational Safety and Health Administration (OSHA) has
- [Applying HHS's Guidance for States and Health Care Providers on Avoiding Disability-Based Discrimination in Treatment Rationing - Disability Rights Education & Defense Fund](https://healthmattersprogram.org/2020/04/08/applying-hhss-guidance-for-states-and-health-care-providers-on-avoiding-disability-based-discrimination-in-treatment-rationing-disability-rights-education-defense-fund/) - Persons with disabilities…should not be put at the end of the line for health services during emergencies. Download document Source: Disability Rights Education & Defense Fund On March 28, 2020, the U.S. Department of Health and Human Services issued a Bulletin entitled "Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19)," stating "HHS is committed
- [Q&A on COVID-19 and Down Syndrome](https://healthmattersprogram.org/2020/04/05/qa-on-covid-19-and-down-syndrome/) - The NTG is proud to have been a contributor to the attached Q&As on COVID-19 and DS. The collaboration with a number of our national and international organization colleagues was very productive. 2020-COVID19-DS-QA-Abbreviated-03-27-20Download 2020-COVID19-DS-QA-Expanded-03-27-20Download PR-sobre-COVID-19-y-el-Síndrome-de-Down-Versión-Abreviada-04-03-20Download PR-sobre-COVID-19-y-el-Síndrome-de-Down-Versión-Ampliada-04-03-20Download
- [The Direct Support Professional and COVID-19](https://healthmattersprogram.org/2020/04/01/the-direct-support-professional-and-covid-19/) - Source: NADSP With the coronavirus (COVID-19) global pandemic, there is a constant barrage of information being shared. Things are changing almost hourly across the country. The National Alliance for Direct Support Professionals (NADSP) is committed to sharing resources for Direct Support Professionals. We understand that given this global crisis, Direct Support Professionals are still working
- [COVID-19 Resources](https://healthmattersprogram.org/2020/04/01/covid-19-resources/) - People with intellectual and developmental disabilities (I/DD) can serve their communities in many ways. Learn more about Inclusive volunteering! Source: The Arc The Arc is greatly concerned about the threat of COVID-19 to people with disabilities, their families, and the workforce that supports them. We are compiling resources to help people with intellectual and /or
- [State Data and Policy Actions to Address Coronavirus](https://healthmattersprogram.org/2020/03/30/state-data-and-policy-actions-to-address-coronavirus/) - States are taking aggressive action to slow down the spread of the novel coronavirus and prepare their health care systems for dealing with those who become ill with COVID-19, the disease the virus… Source: The Henry J. Kaiser Family Foundation In late 2019, a new strain of coronavirus emerged in China. With the number of
- [COVID-19 Resources for the Disability Community](https://healthmattersprogram.org/2020/03/30/covid-19-resources-for-the-disability-community/) - Access Living will be maintaining a list of resources for the disability community during the COVID-19 pandemic. Source: Access Living In light of developments in the outbreak of COVID-19 across the country, Access Living will continue to support our community in a multitude of ways, including creating and maintaining the below list of resources. Please
- [Tips for First Responders: Healthcare Professionals and Emergency Responders](https://healthmattersprogram.org/2020/03/25/tips-for-first-responders-healthcare-professionals-and-emergency-responders/) - Tips for First Responders on the Frontline Health Care Professionals Who are Working with People with Disabilities Source: Center for Development and Disability | The University of New Mexico Many first responders have requested quick, easy-to-use procedures for assisting persons with disabilities in an emergency. These tip sheets provide information about many types of disabilities
- [Is fatness or fitness key for survival in older adults with intellectual disabilities?](https://healthmattersprogram.org/2020/03/25/is-fatness-or-fitness-key-for-survival-in-older-adults-with-intellectual-disabilities/) - Source: Journal of Applied Research in Intellectual Disabilities Open Access to Full Text: https://doi.org/10.1111/jar.12724 by Alyt Oppewal and Thessa I. M. Hilgenkamp First published:13 March 2020 What is already know about this subject Obesity and low physical fitness levels are highly prevalent in older adults with intellectual disabilities. In the general population fatness and fitness are
- [Proper Hand Washing Techniques](https://healthmattersprogram.org/2020/03/24/proper-hand-washing-techniques/) - Source: Proper Hand Washing Techniques With the outbreak of the coronavirus, Special Olympics wants you to stay safe. Washing your hands properly is just one way to help do that. In the Expert Tip video series, Special Olympics athletes share their know-how on a range of helpful and popular topics. For Global Handwashing Day, October 15, Nyasha Derere, a Health
- [Coronavirus Outbreak: What You Need to Know](https://healthmattersprogram.org/2020/03/24/coronavirus-outbreak-what-you-need-to-know/) - With the help of Special Olympics athletes and Program staff, we have developed a 30 minute eLearning course for our Special Olympics community about coronavirus COVID-19. This course is designed to cover some basic information: what is the coronavirus, what are the symptoms, how does it spread, and how you can protect yourself. We encourage
- [Sproutflix - Custom Design Your Own Film Festival](https://healthmattersprogram.org/2020/03/19/sproutflix-custom-design-your-own-film-festival/) - Homepage Source: Sproutflix Sproutflix hosts the largest and most diverse assortment of films featuring people with I/DD on the marketplace. An ever growing select collection of over 250 artistic and personal films that entertain, enlighten and touch the heart. Sproutflix is programmed and supported by Sprout, a NYC-based nonprofit organization founded in 1979, dedicated to bringing innovative programming
- [COVID-19 Information By and For People with Disabilities](https://healthmattersprogram.org/2020/03/18/covid-19-information-by-and-for-people-with-disabilities/) - Plain Language Booklets on COVID-19 created by Green Mountain Self-Advocates Source: COVID-19 Information By and For People with Disabilities - Green Mountain Support Services Thank you to Green Mountain Self-Advocates for creating this booklet about COVID-19. It was created by people with disabilities, for people with disabilities. Thank you also to the California DD Council for translating it into Spanish.
- [Alzheimer's Association > ISTAART > PIA > Down Syndrome and Alzheimer's Disease](https://healthmattersprogram.org/2020/03/17/alzheimers-association-istaart-pia-down-syndrome-and-alzheimers-disease/) - Source: Alzheimer's Association > Membership > ISTAART > PIA > Down Syndrome and Alzheimer's Disease Matthew P. Janicki, PhD has joined the governing committee for the ISTAART DSAD PIA. Individuals with Down syndrome develop Alzheimer's disease (AD) neuropathology with near conformity in their 4th to 5th decade, and are at a much higher risk of
- [Characteristics and Health Status of Informal Unpaid Caregivers — 44 States, District of Columbia, and Puerto Rico, 2015–2017 | MMWR](https://healthmattersprogram.org/2020/03/12/characteristics-and-health-status-of-informal-unpaid-caregivers-44-states-district-of-columbia-and-puerto-rico-2015-2017-mmwr/) - Informal, unpaid caregivers provide important support to family members, friends, and the health care system and might compromise their own health to provide this support. Source: Characteristics and Health Status of Informal Unpaid Caregivers — 44 States, District of Columbia, and Puerto Rico, 2015–2017 Summary What is already known about this topic? Informal, unpaid caregivers
- [The ADA and Religious Institutions](https://healthmattersprogram.org/2020/03/11/the-ada-and-religious-institutions/) - Source: The ADA and Religious Institutions: Great Lakes ADA Center The ADA and Religious Institutions Wednesday, March 18, 2020 2:00 PM Eastern Time Zone Register for Session Description Religious organizations are largely exempt from the Americans with Disabilities Act (ADA). But what about places of public accommodation or programs that are controlled by these
- [Disability in Focus: Training for Healthcare Providers Improves Disability Competence](https://healthmattersprogram.org/2020/02/27/disability-in-focus-training-for-healthcare-providers-improves-disability-competence/) - Source: Disability in Focus: January 2020 | Institute on Disability/UCED Training for Healthcare Providers Improves Disability Competence After taking Responsive Practice: Providing Health Care & Screenings to Individuals with Disabilities, healthcare providers' ideas about disability shifted away from a medical-model to a more social-model view of disability. In the medical model, disability is seen as a
- [Universal Design - 7 Principles of UD Video Series](https://healthmattersprogram.org/2020/02/12/universal-design-7-principles-of-ud-video-series/) - This video series explores the 7 Principles of Universal Design and how they can be applied to products, interfaces and spaces. The series will cover each principle individually and offer examples to those wishing to learn more about the UD Principles. The NIDILRR-funded Rehabilitation Engineering Research Center to Support Aging-in-Place for People with Long-Term Disabilities and the Disability
- [The JAN Workplace Accommodation Toolkit](https://healthmattersprogram.org/2020/02/06/the-jan-workplace-accommodation-toolkit/) - Source: The JAN Workplace Accommodation Toolkit JAN’s Workplace Accommodation Toolkit is a free, comprehensive online resource for employers seeking to move beyond basic compliance with the Americans with Disabilities Act (ADA) in order to create more disability-inclusive workplaces. The Toolkit provides guidance and resources for developing or updating accommodation policies and processes while leveraging the best
- [TennesseeWorks and Transition Tennessee host Knoxville Think Employment! Summit](https://healthmattersprogram.org/2020/02/04/tennesseeworks-and-transition-tennessee-host-knoxville-think-employment-summit/) - TennesseeWorks, Transition Tennessee, and the UT Center on Literacy, Education and Employment held the first Regional Think Employment! Summit in Knoxville on December 3, 2019. East Tennessee educators, service providers, vocational rehabilitation staff, families, employers, partners Source: TennesseeWorks and Transition Tennessee host Knoxville Think Employment! Summit Author: Elizabeth Turner January 31, 2020 TennesseeWorks, Transition Tennessee, and
- [Collaborative project aims to address, prevent health care discrimination against individuals with disabilities](https://healthmattersprogram.org/2020/02/04/collaborative-project-aims-to-address-prevent-health-care-discrimination-against-individuals-with-disabilities/) - Projects Source: Collaborative project aims to address, prevent health care discrimination against individuals with disabilities - Notables Author: Courtney Taylor January 31, 2020 The Vanderbilt Kennedy Center has joined seven national partners and stakeholders on a new project to address the health disparities of Americans with disabilities that result from inequities in care across the lifespan. Led
- [Age-Friendly Public Health](https://healthmattersprogram.org/2020/01/30/age-friendly-public-health/) - Source: Age-Friendly Public Health - Trust for America’s Health TFAH is partnering with the Florida Department of Health to implement a public health framework to improve the health and well-being of older adults. There is growing momentum for public health to contribute to programs, policies, and innovative interventions to promote health and well-being for people
- [Home-Based Primary Care: Helping Homebound Older Adults Achieve Better Outcomes - The John A. Hartford Foundation](https://healthmattersprogram.org/2020/01/23/home-based-primary-care-helping-homebound-older-adults-achieve-better-outcomes-the-john-a-hartford-foundation/) - Source: Home-Based Primary Care: Helping Homebound Older Adults Achieve Better Outcomes - The John A. Hartford Foundation Identifying and creating treatment plans that reflect what matters to older adults and their families is a foundational element of age-friendly care. It requires open and honest conversations in which people feel safe, heard, and in control. For many
- [Newly Approved Evidence-Based Programs to Help Expand Your Programming and Reach | NCOA](https://healthmattersprogram.org/2020/01/21/newly-approved-evidence-based-programs-to-help-expand-your-programming-and-reach-ncoa/) - Thinking about expanding your evidence-based program offerings? This webinar will provide an overview of the four programs that were recently approved for the Older Americans Act Title III-D evidence-based program pre-approved list. Source: Newly Approved Evidence-Based Programs to Help Expand Your Programming and Reach | NCOA Join us to learn about how these programs could
- [Community Health Workers – Recognizing and Sustaining Their Value](https://healthmattersprogram.org/2020/01/16/community-health-workers-recognizing-and-sustaining-their-value/) - Source: California Health Care Foundation Community Health Workers – Recognizing and Sustaining Their ValueCommunity health workers and promotores (CHW/Ps) can play a key role in the health care system by supporting health care organizations’ efforts to care for a broad range of patients. This brief, made possible by the California Health Care Foundation, explores how
- [Supporting Individuals with Intellectual and Developmental Disabilities (I/DD) as they Age | Resources for Integrated Care](https://healthmattersprogram.org/2020/01/15/supporting-individuals-with-intellectual-and-developmental-disabilities-i-dd-as-they-age-resources-for-integrated-care/) - Source: Supporting Individuals with Intellectual and Developmental Disabilities (I/DD) as they Age | Resources for Integrated Care Live Webinar Air Date: Wednesday, December 18, 2019 - 12:30pm to 1:45pm Description: Nationally, the number of adults with intellectual and developmental disabilities (I/DD) over the age of 60 is steadily increasing and by 2030, the number of adults with I/DD
- [New Therapies Help Patients With Dementia Cope With Depression - The New York Times](https://healthmattersprogram.org/2019/12/17/new-therapies-help-patients-with-dementia-cope-with-depression-the-new-york-times/) - Many patients with cognitive impairment have anxiety or depression, but standard treatments are difficult for people with memory issues. Source: New Therapies Help Patients With Dementia Cope With Depression - The New York Times By Andrea Petersen (Dec. 8, 2019) Anne Firmender, 74, was working with her psychologist to come up with a list of
- [Deprescribing: How to Be on Less Medication for Healthy Aging](https://healthmattersprogram.org/2019/12/16/deprescribing-how-to-be-on-less-medication-for-healthy-aging-2/) - Learn how deprescribing works, & how aging adults can safely reduce their medications. Plus 7 types of medication that seniors should avoid or reduce. Source: Deprescribing: How to Be on Less Medication for Healthy Aging Why is deprescribing especially important for older adults? Deprescribing is especially important to address in older adults because: People tend
- [Cognitive Impairment in Aging: 10 Causes & What the Doctor Should Check](https://healthmattersprogram.org/2019/12/16/cognitive-impairment-in-aging-10-causes-what-the-doctor-should-check/) - 10 common causes of confusion, memory, or thinking problems in older adults, plus 10 things doctors should check during an assessment for cognitive decline. Source: Cognitive Impairment in Aging: 10 Causes & What the Doctor Should Check Cognitive impairment, like many problems in older adults, is often “multifactorial.” This means that the difficulties with memory,
- [Family Caregiving Report Highlights Need for Collective Action](https://healthmattersprogram.org/2019/12/03/family-caregiving-report-highlights-need-for-collective-action/) - The value of unpaid family care is huge. Although policy change is underway, more robust action is needed to support caregiving families. Source: Family Caregiving Report Highlights Need for Collective Action The aging of the population and its impact on families have implications for all sectors of our nation and can no longer be viewed
- [Google Seeks Help From People With Down Syndrome](https://healthmattersprogram.org/2019/12/03/google-seeks-help-from-people-with-down-syndrome/) - From Siri to Alexa, voice assistants are everywhere, but the technology tends to miss every third word that people with Down syndrome say. Now a new effort is underway to change that. Read More...Google Seeks Help From People With Down Syndrome - Disability Scoop
- [A school-based mentoring program developing healthy behaviors of adolescents with intellectual and developmental disabilities: A pilot feasibility study](https://healthmattersprogram.org/2019/11/25/a-school-based-mentoring-program-developing-healthy-behaviors-of-adolescents-with-intellectual-and-developmental-disabilities-a-pilot-feasibility-study/) - Studies have reported that adolescents with intellectual and developmental disabilities (IDD) have a higher prevalence of obesity due to medication in… Source: ScienceDirect Abstract Background Studies have reported that adolescents with intellectual and developmental disabilities (IDD) have a higher prevalence of obesity due to medication intake, poor diet, and physical inactivity. More importantly, they lack
- [Feedback and Strategies From People With Intellectual Disability Completing a Personalized Online Weight Loss Intervention: A Qualitative Analysis](https://healthmattersprogram.org/2019/11/25/feedback-and-strategies-from-people-with-intellectual-disability-completing-a-personalized-online-weight-loss-intervention-a-qualitative-analysis/) - Article Citation: Nichole Guerra, William H. Neumeier, Lauren Breslin, Betty Geer, Mohanraj Thirumalai, David A. Ervin, and James H. Rimmer (2019) Feedback and Strategies From People With Intellectual Disability Completing a Personalized Online Weight Loss Intervention: A Qualitative Analysis. Intellectual and Developmental Disabilities: December 2019, Vol. 57, No. 6, pp. 527-544. https://doi.org/10.1352/1934-9556-57.6.527 Source: Intellectual and
- [What are the perspectives of adolescents with Down syndrome about their quality of life? A scoping review](https://healthmattersprogram.org/2019/11/25/what-are-the-perspectives-of-adolescents-with-down-syndrome-about-their-quality-of-life-a-scoping-review/) - Source: British Journal of Learning Disabilities-Wiley Online Library This study looked for information about the quality of life of adolescents with Down syndrome. We found two studies about quality of life that included the voice of the adolescent with Down syndrome. Most of the research includes parents’ voices. Parents’ views are important, but we need
- [Better Health by Health Education & Sustained Employment](https://healthmattersprogram.org/2017/09/19/health-by-health-education-sustained-employment/) - Play Recording (53 min) Download Transcript Download PDF and PowerPoint Slides Date and time: Thursday, September 28, 2017 2:00-3:00 pm (Eastern Time) Duration: 1 hour Description: Abstract The critical relationship between employment status and health is well established. Health education can enrich a Project SEARCH experience and increase the likelihood of sustained employment for Project SEARCH interns through
- [Home Safety — Safety in Dementia](https://healthmattersprogram.org/2019/11/14/home-safety-safety-in-dementia/) - Making the home safe can be overwhelming. This section can help you think about many different ways to make the home a safe place, for both you and the person with dementia. Source: Home Safety — Safety in Dementia "Taking care of someone who has dementia can be hard. While it doesn’t necessarily mean that
- [RAISE Family Caregiver Resource and Dissemination Center](https://healthmattersprogram.org/2019/11/14/raise-family-caregiver-resource-and-dissemination-center/) - Across the nation, state health programs depend on caregivers who provide critical support to help relatives, friends, and neighbors age in place while contributing about $470 billion in unpaid health care services. Source: The RAISE Family Caregiver Resource and Dissemination Center – The National Academy for State Health Policy The RAISE Act Family Caregiver Resource
- [Aging Policy and Programs](https://healthmattersprogram.org/2019/11/13/aging-policy-and-programs/) - ADvancing States has resources available to assist state aging and disability agencies operate, administer, and oversee their Older Americans Act (OAA) and other state-funded aging programs. Source: Aging Policy and Programs | advancingstates.org Aging Policy and Programs With the launch of this new section of the ADvancing States website, we have also released a new
- [RRTCDD and The Arc 2018 Health and Wellness Webinar Series](https://healthmattersprogram.org/2018/01/09/rrtcdd-and-the-arc-2018-health-and-wellness-series-webinar/) - Introducing six new webinars hosted by The Arc and made possible through The Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). RRTCDD has made significant contributions to advance research and practice across the lifespan for people with intellectual and developmental disabilities (IDD) and their families. We hope these webinars will give attendees useful
- [<B>Partnering to Transform Healthcare with People with IDD<BR><font color="black">Tamar Heller, PhD and Sarah Ailey, PhD, RN, CDDN, APHN-BC<BR>March 15th, 2018</font color="black"></B>](https://healthmattersprogram.org/2018/01/09/partnering-to-transform-healthcare-with-people-with-intellectual-and-developmental-disabilitiestamar-heller-phd-and-sarah-ailey-phd-rn-cddn-aphn-bcmarch-15th-2018/) - Webinar 3: Partnering to Transform Healthcare with People with Intellectual and Developmental Disabilities Thursday, March 15, 2018 Play recording (1 hr 1 min) Handout: Tackling Health Disparities Video: Daphne Ron: Good and Bad Experiences with Health Care Presenters: Tamar Heller, PhD (theller@uic.edu) and Sarah Ailey, PhD, RN, CDDN, APHN-BC (Sarah_H_Ailey@rush.edu) Abstract: Disparities in treatment of people with
- [Webinar: The Power of Social Connection: Memory Cafés and Tête-à-Tête](https://healthmattersprogram.org/2019/11/08/webinar-the-power-of-social-connection-memory-cafes-and-tete-a-tete/) - The National Alzheimer’s and Dementia Resource Center (NADRC) is holding a webinar on November 20, "The Power of Social Connection: Memory Cafés and Tête-à-Tête." Source: The Power of Social Connection: Memory Cafés and Tête-à-Tête | American Society on Aging The webinar will describe the key features of the Memory Café model; discuss five operational factors that
- [Intellectual and Developmental Disabilities | Resources for Integrated Care](https://healthmattersprogram.org/2019/11/08/intellectual-and-developmental-disabilities-resources-for-integrated-care/) - Approximately 8% of individuals dually eligible for Medicare and Medicaid under the age of 65 have an intellectual disability or related condition. Source: Intellectual and Developmental Disabilities | Resources for Integrated Care Intellectual And Developmental Disabilities Approximately 8% of individuals dually eligible for Medicare and Medicaid under the age of 65 have an intellectual disability
- [Resources for Integrated Care: Direct Care Workforce Briefs](https://healthmattersprogram.org/2019/11/07/resources-for-integrated-care-direct-care-workforce-briefs-the-john-a-hartford-foundation/) - Source: Resources for Integrated Care: Direct Care Workforce Briefs - Hartford Foundation Resources for Integrated Care (RIC) has published a series of briefs to help long-term services and support (LTSS) providers, administrators, and other stakeholders, support a diverse direct care workforce that can meet the cultural needs and preferences of dually eligible beneficiaries. The briefs are: Organizational
- [Better Health Care for Older Americans - Our Current System Fails Us As We Age](https://healthmattersprogram.org/2019/11/07/new-york-daily-news-op-ed-better-health-care-for-older-americans-our-current-system-fails-us-as-we-age-the-john-a-hartford-foundation/) - Source: New York Daily News Op-Ed: Better Health Care for Older Americans - Our Current System Fails Us As We Age - The John A. Hartford Foundation New York Daily News has published an op-ed by JAHF President Terry Fulmer, PhD, RN, FAAN, on "Better Health Care for Older Americans: Our Current System Fails Us As We
- [Widow with Down syndrome shows the power of love after husband's death](https://healthmattersprogram.org/2019/11/03/widow-with-down-syndrome-shows-the-power-of-love-after-husbands-death/) - Kris and Paul met in 1993 and eventually became one of the first couples in the world with Down syndrome to get married Source: Widow with Down syndrome shows the power of love after husband's death - CBS News Deep in New York's Adirondack Mountains, family and friends gathered to help 59-year-old Kris Scharoun-DeForge pay
- [Age-Friendly Health Care for the Future](https://healthmattersprogram.org/2019/10/30/age-friendly-health-care/) - Americans are living longer, which means our health care system has to meet the needs of an increasing number of older adults. Check out WebMD's survey of those 65 years and older and their caregivers. Source: Age-Friendly Health Care Click to Download and Print PDF Care of older adults is mired in misinformation, with most
- [Feasibility of a school‐based exercise intervention for children with intellectual disability to reduce cardio‐metabolic risk](https://healthmattersprogram.org/2019/10/24/feasibility-of-a-school‐based-exercise-intervention-for-children-with-intellectual-disability-to-reduce-cardio‐metabolic-risk-bellamy-journal-of-intellectual-disability-research/) - Source: Feasibility of a school‐based exercise intervention for children with intellectual disability to reduce cardio‐metabolic risk - Bellamy - Journal of Intellectual Disability Research Abstract Background People with intellectual disabilities (ID) are at increased risk of secondary health conditions, reduced quality of life and life expectancy. Children with ID demonstrate low levels of physical activity
- [Epidemiology of Dementia and Alzheimer Disease in Individuals With Down Syndrome](https://healthmattersprogram.org/2019/10/29/epidemiology-of-dementia-and-alzheimer-disease-in-individuals-with-down-syndrome/) - This cohort study uses Medicare data to examine the incidence and prevalence of Alzheimer disease and all forms of dementia in individuals with Down syndrome. Source: Epidemiology of Dementia and Alzheimer Disease in Individuals With Down Syndrome | Congenital Defects | JAMA Neurology | JAMA Network Eric Rubenstein, PhD1,2; Sigan Hartley, PhD1,3; Lauren Bishop, PhD1,4 Author Affiliations Article Information JAMA Neurol. Published online October 28,
- [EARN’s Mental Health Toolkit](https://healthmattersprogram.org/2019/10/28/earns-mental-health-toolkit-2/) - Source: EARN’s Mental Health Toolkit Not all disabilities are visible to the eye. Among those that are often non-apparent are mental health conditions. According to the National Alliance on Mental Illness (NAMI), one in five American adults experiences a mental health condition each year. For many of these individuals, work is a key part of their
- [CDC: Reported importance and access to health care providers who understand or share cultural characteristics with their patients among adults, by race and ethnicity](https://healthmattersprogram.org/2019/10/18/cdc-reported-importance-and-access-to-health-care-providers-who-understand-or-share-cultural-characteristics-with-their-patients-among-adults-by-race-and-ethnicity/) - Source: CDC Emily P. Terlizzi, M.P.H., Eric M. Connor, Carla E. Zelaya, Ph.D., Alissa M. Ji, National Center for Health Statistics; and Alexis D. Bakos, Ph.D. Office of the Assistant Secretary for Health, Office of Minority Health Abstract Objective—This report examines racial and ethnic differences in the reported importance and frequency of seeing culturally competent
- [Institute for Healthcare Improvement: What Is an Age-Friendly Health System?](https://healthmattersprogram.org/2019/10/17/institute-for-healthcare-improvement-what-is-an-age-friendly-health-system/) - Older adults in the US deserve safe, effective, and patient-centered care in the settings in which they receive their care. The Age-Friendly Health Systems initiative aims to develop an age-friendly health system model and rapidly spread the model to 20% of US hospitals and health systems by 2020. Source: Institute for Healthcare Improvement: What Is
- [Panel: The Age-Friendly Health Systems Movement - The John A. Hartford Foundation](https://healthmattersprogram.org/2019/10/17/panel-the-age-friendly-health-systems-movement-the-john-a-hartford-foundation/) - 4Ms Framework Source: Panel: The Age-Friendly Health Systems Movement - The John A. Hartford Foundation WebMD and The John A. Hartford Foundation invite you to join an October 29th event about the Age-Friendly Health Systems movement, featuring the release of a new consumer survey and a powerhouse panel discussion. RSVP here. The evening discussion will highlight findings from Driving
- [Halsan Spelar Roll "Up and Running" in Sweden!](https://healthmattersprogram.org/2019/10/17/halsan-spelar-roll-up-and-running-in-sweden/) - Source: News - HealthMatters Sweden In the last few weeks, 36 course leaders have attended three web seminars and are now trained to hold the course Health plays a role. Work on Health plays a role based on the Academic Primary Care Center (APC) in the Stockholm region. Eva Flygare Wallén, Med Dr is project manager and Elinor
- [Effectiveness of a HealthMessages Peer-to-Peer Program for People With Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2019/10/15/effectiveness-of-a-healthmessages-peer-to-peer-program-for-people-with-intellectual-and-developmental-disabilities/) - Effectiveness of a HealthMessages Peer-to-Peer Program for People With Intellectual and Developmental Disabilities (2019). Beth Marks, Jasmina Sisirak, Rubia Magallanes, Kristin Krok, & Dina Donohue-Chase. Intellectual and Developmental Disabilities. 2019 June 57(3):242-258. doi: 10.1352/1934-9556-57.3.242. Abstract: Effective strategies to improve health education, food choices, and physical activity are vital for people with intellectual and developmental disabilities (IDD), as their
- [Impact of the HealthMatters Train-the-Trainer Program on the Health and Health Behaviors of Staff Supporting Adults With Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2019/10/15/impact-of-the-healthmatters-train-the-trainer-program-on-the-health-and-health-behaviors-of-staff-supporting-adults-with-intellectual-and-developmental-disabilities/) - Impact of the HealthMatters Train-the-Trainer Program on the Health and Health Behaviors of Staff Supporting Adults With Intellectual and Developmental Disabilities (2019). Beth Marks, Jasmina Sisirak, Yen-Ching Chang, and Ryan Murphy Abstract The health status and health behaviors among support staff providing daily support for people with intellectual and developmental disabilities (IDD-SS) in community-based organizations (CBOs) have not
- [Efficacy of the HealthMatters Program Train-the-Trainer Model](https://healthmattersprogram.org/2013/08/08/efficacy-of-the-healthmatters-program-train-the-trainer-model/) - Efficacy of the HealthMatters Program Train-the-Trainer ModelMarks B, Sisirak J, Chang YC. (2013). Journal of Applied Research in Intellectual Disabilities, 26, 319-334. Article Link AbstractBACKGROUND: This study examines the efficacy of a staff-led, health promotion intervention entitled HealthMatters Program: Train-the-Trainer Model to improve health among adults with intellectual disabilities. While data support the benefits of health
- [Deprescribing: How to Be on Less Medication for Healthy Aging](https://healthmattersprogram.org/2019/10/15/deprescribing-how-to-be-on-less-medication-for-healthy-aging/) - Learn how deprescribing works, & how aging adults can safely reduce their medications. Plus 7 types of medication that seniors should avoid or reduce.Source: Deprescribing: How to Be on Less Medication for Healthy Agingby Leslie Kernisan, MD MPHHave you ever wondered whether you — or your older relative — might be taking too many medications?You’re certainly
- [Using the Health Matters Curriculum with the Project SEARCH® Program Model](https://healthmattersprogram.org/2017/09/19/using-the-health-matters-curriculum-with-the-project-search-program-model/) - Source: YouTube Video: Using the Health Matters Curriculum with the Project SEARCH® Program Model Play recording (54 min) Download Transcript and PDF Description: Project SEARCH is committed to supporting health and fitness education during the transition to employment. Accordingly, Project SEARCH partnered with UnitedHealthcare last year to provide Project SEARCH sites with Health Matters: The
- [Health Matters for People with Developmental Disabilities: Creating a Sustainable Health Promotion Program](https://healthmattersprogram.org/2019/10/14/health-matters-for-people-with-developmental-disabilitiescreating-a-sustainable-health-promotion-program/) - Health Matters for People with Developmental DisabilitiesCreating a Sustainable Health Promotion ProgramBy Beth Marks, RN, PhD, Jasmina Sisirak, PhD, MPH, & Tamar Heller, PhD The ideal complement to the proven Health Matters health education curriculum, this highly accessible program development guide will help service providers ensure better health—and better lives—for people with a wide range of disabilities.
- [HealthMatters™ Program YouTube Playlist](https://healthmattersprogram.org/2019/10/14/healthmatters-program-youtube-playlist/) - Visit HealthMatters™ Program YouTube Playlist for presentations and videos related to health and wellness for people with IDD.
- [Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities](https://healthmattersprogram.org/2019/10/14/health-mattersthe-exercise-and-nutrition-health-education-curriculum-for-people-with-developmental-disabilities/) - Health MattersThe Exercise and Nutrition Health Education Curriculum for People with Developmental DisabilitiesBy Beth Marks, RN, PhD, Jasmina Sisirak, PhD, MPH, & Tamar Heller, PhD This evidence-based curriculum includes everything community based organizations need to run successful health promotion program: complete instructions on running the program, adaptable instructor scripts for each lesson, weekly newsletter templates
- [National Task Group on Intellectual Disabilities and Dementia Practices (NTG)](https://healthmattersprogram.org/2019/10/13/national-task-group-on-intellectual-disabilities-and-dementia-practices-ntg/) - What is the NTG? The National Task Group on Intellectual Disabilities and Dementia Practices (the ‘NTG’) is a coalition of interested persons and organizations working toward ensuring that the needs and interests of adults with intellectual and developmental disabilities who are affected by Alzheimer’s disease and related dementia – as well as their families and
- [Awkward Moments with Jason Benetti, Episode 1 - YouTube](https://healthmattersprogram.org/2019/10/13/awkward-moments-with-jason-benetti-episode-1-youtube/)
- [2019 Project SEARCH and HealthMatters Program Webinar Series: Employment, Health, and Wellness](https://healthmattersprogram.org/2018/12/19/project-search-and-healthmatters-program-2019-employment-health-and-wellness-webinar-series/) - Webinars were recorded and archived. These webinars are open to anyone with an interest in employment, transition, health, and wellness for people with developmental disabilities. These webinars were hosted by the HealthMatters TM Program in partnership with Project SEARCH® and funded by The Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). The RRTCDD
- [Project SEARCH and HealthMatters Program 2017-2018 Employment, Health, and Wellness Webinar Series](https://healthmattersprogram.org/2017/09/20/project-search-and-healthmatters-program-2017-2018-employment-health-and-wellness-webinar-series/) - Better Health by Health Education & Sustained Employment September 28, 2017 Promoting Health and Leadership in Project SEARCH® Programs October 12, 2017 Integrating Technology to Increase Student Interns' Health, Fitness, and Personal Responsibilities October, 26, 2017 Using the Health Matters Curriculum with the Project SEARCH® Program Model January, 18, 2018 Mindfulness: Strategies for Building Success and
- [Mindfulness: Strategies for Building Success and Wellness in the 21st Century Workforce](https://healthmattersprogram.org/2017/09/19/mindfulness-strategies-for-building-success-and-wellness-in-the-21st-century-workforce/) - Webinar Recording Play recording (58 min) Download Mindfulness Webinar_Project SEARCH HealthMatters Date and time: Thursday, February 15, 2018 2:00-3:00 pm (Eastern Time) Description: This webinar will discuss the use of mindfulness strategies for building success and wellness among people with intellectual and developmental disabilities (IDD) within their worksites. "Mindfulness tools" will be reviewed for participants to
- [Emotional Support Animal versus Service Animal Service Animals in Clinical Settings](https://healthmattersprogram.org/2019/09/27/emotional-support-animal-versus-service-animal-service-animals-in-clinical-settings/) - Resources for Service Animals versus Emotional Support Animals in clinical settings. Where are they allowed and under what conditions? (https://adata.org/publication/service-animals-booklet)Understanding How to Accommodate Service Animals in Healthcare Facilities (https://www.phe.gov/Preparedness/planning/abc/Pages/service-animals.aspx)Service Animals in Health Care Settings (http://www.adanowonline.org/winter2018article9.html)See Spot in the clinic: Service animals in clinical rotations - Disability Compliance For Higher Education (https://onlinelibrary.wiley.com/doi/pdf/10.1002/dhe.30300)Frequently Asked Questions about Service Animals and the ADA (https://www.ada.gov/regs2010/service_animal_qa.pdf)Service
- [Research in Focus: A Weekly Digest of New Research from the NIDILRR Community](https://healthmattersprogram.org/2019/09/18/research-in-focus-a-weekly-digest-of-new-research-from-the-nidilrr-community/) - Peer to Peer- Training Peer Health Coaches to Lead a Health Messages Program for Their Peers with Intellectual and Developmental Disabilities A study funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). Source: National Rehabilitation Information Center (NARIC) Download PDF in English and Spanish Compañero a Compañero Capacitación de Entrenadores de
- [Promoting Healthy Choices and Community Changes](https://healthmattersprogram.org/2019/09/12/promoting-healthy-choices-and-community-changes/) - A free, online educational program designed for promotores de salud and community health workers. About This Program As community health workers, our work helps people enjoy good health. Promoting Healthy Choices and Community Changes will teach you how to promote individual-level and community-level changes toward good health. This free e-learning program helps build the capacity
- [The Move to Managed Care for Intellectual and Developmental Disability Services: Guidance for State Medicaid and DD Directors, and Payers](https://healthmattersprogram.org/2019/08/30/the-move-to-managed-care-for-intellectual-and-developmental-disability-services-guidance-for-state-medicaid-and-dd-directors-and-payers/) - Source: The Move to Managed Care for Intellectual and Developmental Disability Services: Guidance for State Medicaid and DD Directors, and Payers A report issued in July 2019 by CQL-The Council on Quality and Leadership, The Institute on Public Policy for People with Disabilities, and Mosaic offers practical steps for pursuing the ideal service system for
- [<B>Health Promotion in Community Based Organizations: Understanding the Needs and Capacity<BR><font color="black">Jasmina Sisirak, PhD, MPH and Beth Marks, PhD, RN, FAAN<BR>May 17th, 2018</font color="black"></B>](https://healthmattersprogram.org/2018/01/09/health-promotion-in-community-based-organizations-understanding-the-needs-and-capacityjasmina-sisirak-phd-mph-and-beth-marks-phd-rn-faanmarch-15th-2018/) - Webinar 5: Health Promotion in Community Based Organizations: Understanding the Needs and Capacity 3:00 pm, Eastern Standard Time Register for Webinar Presenters: Jasmina Sisirak, PhD, MPH (jsisirak@uic.edu) and Beth Marks, PhD, RN (bmarks1@uic.edu) Abstract: Focusing only on motivating individuals with intellectual disabilities (ID) to change their behaviors oftentimes results in many people returning to unhealthy
- [States are testing innovative strategies to help at-risk workers stay employed | Urban Institute](https://healthmattersprogram.org/2019/01/25/states-are-testing-innovative-strategies-to-help-at-risk-workers-stay-employed-urban-institute/) - RETAIN is a major development in the movement to help disabled workers stay connected to the workforce, but it is only the beginning. Though musculoskeletal conditions are an important issue, many other health conditions, like mental illness, also cause workers to drop out of the workforce. Source: States are testing innovative strategies to help at-risk
- [Technical Standards for Nursing Education Programs in the 21st Century.](https://healthmattersprogram.org/2017/01/18/technical-standards-for-nursing-education-programs-in-the-21st-century/) - Ailey, S. H. & Marks, B. (2016). Technical Standards for Nursing Education Programs in the 21st Century. Rehabilitation Nursing. doi: 10.1002/rnj.278 Abstract Purpose The Institute of Medicine (IOM, 2000; 2002) exposed serious safety problems in the health system and called for total qualitative system change. The IOM (2011; 2015) also calls for improving the education
- [White Paper on Inclusion of Students with Disabilities in Nursing Educational  Programs for the California Committee on Employment of  People with Disabilities (CCEPD)](https://healthmattersprogram.org/2015/10/05/white-paper-on-inclusion-of-students-with-disabilities-in-nursing-educational-programs-for-the-california-committee-on-employment-of-people-with-disabilities-ccepd/) - Marks, B. & Ailey, S. (2014). White Paper on Inclusion of Students with Disabilities in Nursing Educational Programs for the California Committee on the Employment of People with Disabilities. Chicago, IL. Featured on The American Association of Colleges of Nursing (AACN) website: Accommodating Students with Disabilities (https://tinyurl.com/ov6tlec). A White Paper on Inclusion of Students with
- [Health Care Professionals with Disabilities Career Trends, Best Practices, & Call-to-Action Policy Roundtable](https://healthmattersprogram.org/2014/03/26/health-care-professionals-with-disabilities-career-trends-best-practices-call-to-action-policy-roundtable/) - March 18, 2014Advancing Inclusion in Health CareNOND ODEP Alliance Roundtable Final Reporthttp://www.dol.gov/odep/alliances/nond.htmMore than 40 employers, federal and state policymakers, researchers and nursing school administrators convened at the U.S. Access Board on March 18 for a policy roundtable hosted by the Office of Disability Employment Policy in collaboration with the National Organization of Nurses with Disabilities.
- [The Changes Life Brings](https://healthmattersprogram.org/2010/09/13/the-changes-life-brings/) - The Changes Life Brings!by Tewanna R. Cleveland Johnson, R.N.Growing up in a small country town, as a military dependent, I loved children. I did not have to hold down a job because I babysat a lot. By my sophomore year in high school, I decided to become a nurse. I loved learning about the body
- [New EEOC Publication Addresses Employment of Health Care Workers with Disabilities](https://healthmattersprogram.org/2007/02/26/new-eeoc-publication-addresses-employment-of-health-care-workers-with-disabilities-2/) - New EEOC Publication Addresses Employment of Health Care Workers with Disabilities Latest Q&A Fact Sheet Explains How Americans with Disabilities Act Applies to Employment in the Health Care Industry WASHINGTON - Naomi C. Earp, Chair of the U.S. Equal Employment Opportunity Commission (EEOC), today announced the issuance of a new question-and-answer (Q&A) fact sheet on
- [To Disclose or Not to Disclose?](https://healthmattersprogram.org/2012/03/31/to-disclose-or-not-to-disclose/) - To Disclose or Not to Disclose?by Karen McCulloh and Beth MarksDo you homework before deciding to disclose. The decision of whether to disclose is entirely up to you.If you need an accommodation you must disclose. This is true for both higher education and employment. So the choice to disclose or not is contingent upon the need
- [Can I Use a Calculator in Clinical Practice](https://healthmattersprogram.org/2012/04/13/can-i-use-a-calculator-in-clinical-practice/) - I Have Dyscalculia: Can I Use a Calculator in School and in Clinical Practice?by Robin Jones, Director, Great Lakes ADA Centerwww.adagreatlakes.orgI think that you have to go back to the analysis of what is being asked: Use of a calculator What is the question: Does the use of a calculator create a fundamental alteration in
- [Common Challenges for Nursing Students with Disabilities: Where to Start?Common Challenges for Nursing Students with Disabilities: Where to Start?](https://healthmattersprogram.org/2012/05/04/common-challenges-for-nursing-students-with-disabilities-where-to-startcommon-challenges-for-nursing-students-with-disabilities-where-to-start/) - Common Challenges for Nursing Students with Disabilities: Where to Start?by Beth MarksSome common challenges for student nurses that we have seen relate to the following: limited information about accommodations; uncomfortable asking for accommodations; not aware of disability student (DS) services or the school has no DS Office; lack of role models; no mentors who share
- [Are Private Schools Subject to the ADA?](https://healthmattersprogram.org/2012/05/05/are-private-schools-subject-to-the-ada/) - Are private schools subject to the ADA?by Bronwynne EvansYes, Title III of the ADA prohibits discrimination in public accommodations. Private schools must eliminate unnecessary eligibility standards that deny access to individuals with disabilities, and make reasonable modifications in policies, practices, and procedures that deny access unless a fundamental alteration in the nature of the program
- [I Think I've Experienced Discrimination: Where Can I File?](https://healthmattersprogram.org/2012/05/05/i-think-ive-experienced-discrimination-where-can-i-file/) - I Think I've Experienced Discrimination: Where Can I File?If the school is private, a complaint can be filed with the U.S. Department of Justice (DOJ), Disability Rights Section. If the school is a state institution, a complaint can be filed with the U.S. Department of Education’s Office of Civil Rights (OCR), as state-run higher ed
- [Do I Have to be Academically Qualified to Enter a Nursing Program, Even if I Have a Disability?](https://healthmattersprogram.org/2012/05/19/do-i-have-to-be-academically-qualified-to-enter-a-nursing-program-even-if-i-have-a-disability/) - Do I Have to be Academically Qualified to Enter a Nursing Program, Even if I Have a Disability?Yes, you must be academically qualified. Nursing requires a solid foundation in the humanities, social sciences, and biological sciences, among others, and you will need to come to your nursing program well-prepared in these areas. If you have
- [What Do I Do if I Have Test Anxiety?](https://healthmattersprogram.org/2012/05/19/what-do-i-do-if-i-have-test-anxiety/) - What Do I Do if I Have Test Anxiety?Remember that you must document your disability with your school’s Disability Services Office in order to receive accommodations. You will work with the Disability Services Office and faculty to identify helpful accommodations such as additional time or a separate test-taking environment. The American with Disabilities Act is
- [How Can I Understand my Legal Rights as a Person with a Disability?](https://healthmattersprogram.org/2012/05/19/how-can-i-understand-my-legal-rights-as-a-person-with-a-disability/) - How Can I Understand my Legal Rights as a Person with a Disability?The first step to understanding your legal rights is to do your homework. You can start by exploring our website for resources in regard to education, advocacy, and work. Information from the U.S. Department of Justice, Civil Rights Division, can be found at
- [What Steps Do I Take When I Need Help with Disability Questions?](https://healthmattersprogram.org/2012/05/20/what-steps-do-i-take-when-i-need-help-with-disability-questions/) - What Steps Do I Take When I Need Help with Disability Questions?If you’re reading this FAQ, you already know about NOND, the “voice of disability in nursing.” You can start by exploring our website for resources in regard to education, advocacy, and work. NOND board members welcome the opportunity to speak with you if you
- [How do I Advocate for Myself as a Person with a Disability?](https://healthmattersprogram.org/2012/05/20/how-do-i-advocate-for-myself-as-a-person-with-a-disability/) - How do I Advocate for Myself as a Person with a Disability?Learning how to be your own advocate is a crucial skill. You can start by exploring our website for resources in regard to education, advocacy, and work. You also will want to contact these resources, according to your specific needs:For protection, advocacy, and legal
- [How Can I Access Accommodations For My Disability?](https://healthmattersprogram.org/2012/05/20/how-can-i-access-accommodations-for-my-disability/) - How Can I Access Accommodations For My Disability? Please explore our website for resources in regard to education, advocacy, and work. Also, the story of one nursing student’s accommodations in a baccalaureate nursing program may be of interest to you: Open the Door, Get 'Em a Locker. In addition, you also need to access your
- [What Happens if My Request for Accommodation is Denied?](https://healthmattersprogram.org/2012/05/20/what-happens-if-my-request-for-accommodation-is-denied/) - What Happens if My Request for Accommodation is Denied? Please explore our website for resources in regard to education, advocacy, and work. For protection, advocacy, and legal assistance, contact your state National Disability Rights Network. Be sure to click on your state so that you get relevant and timely information.For assistance with the ADA, contact
- [What Do I Do if I Feel I Have Been Discriminated Against Because of My Disability?](https://healthmattersprogram.org/2012/05/20/what-do-i-do-if-i-feel-i-have-been-discriminated-against-because-of-my-disability/) - What Do I Do if I Feel I Have Been Discriminated Against Because of My Disability? Please explore our website for resources in regard to education, advocacy, and work. For protection, advocacy, and legal assistance, contact your state National Disability Rights Network. Be sure to click on your state so that you get relevant and
- [If I Use a Wheelchair, How Can I Care for Patients with Contact Precautions?](https://healthmattersprogram.org/2012/05/20/if-i-use-a-wheelchair-how-can-i-care-for-patients-with-contact-precautions-2/) - If I Use a Wheelchair, How Can I Care for Patients with Contact Precautions? If you are a student, is the nursing program willing to accept your theoretical knowledge of the skill and a learning laboratory demonstration of your competence, in lieu of actually carrying out the skill in the clinical setting? For many students,
- [Meeting the Demands of an Expanding Health Care Workforce](https://healthmattersprogram.org/2014/04/21/meeting-the-demands-of-an-expanding-health-care-workforce/) - Meeting the Demands of an Expanding Health Care WorkforceIf you’ve ever seen the “Because” public service announcement from the Office of Disability Employment Policy, you’ve seen Kayla Woolridge swim. While filming the PSA, Kayla, who has spina bifida and uses a wheelchair, got to chatting with my staff about her career goals. Although still a
- [What Happens if I Am Asked to Sign a Document Stating that I Have No Disabilities?](https://healthmattersprogram.org/2012/05/20/what-happens-if-i-am-asked-to-sign-a-document-stating-that-i-have-no-disabilities/) - What Happens if I Am Asked to Sign a Document Stating that I Have No Disabilities? Please explore our website for resources in regard to education, advocacy, and work. For assistance with the ADA, contact the Americans with Disabilities Act Technical Assistance Centers. Learning about the ADA Amendments Act of 2008 will help you to understand
- [If I Have a Disability, Can I Be a Certified Nursing Assistant (CNA)?](https://healthmattersprogram.org/2012/05/20/if-i-have-a-disability-can-i-be-a-certified-nursing-assistant-cna/) - If I Have a Disability, Can I Be a Certified Nursing Assistant (CNA)?Please explore our website for resources in regard to education, advocacy, and work. First, it depends on whether you are qualified and on your disability. For example, if you need to take a blood pressure but can't hear it, you can achieve the
- [What Should I Do if Have a Disability that May Prevent Me from Becoming a CNA but a Nursing Program Requires that I Earn that Certification Before I Can Enter their Program?](https://healthmattersprogram.org/2012/05/20/what-should-i-do-if-have-a-disability-that-may-prevent-me-from-becoming-a-cna-but-a-nursing-program-requires-that-i-earn-that-certification-before-i-can-enter-their-program/) - What Should I Do if Have a Disability that May Prevent Me from Becoming a CNA but a Nursing Program Requires that I Earn that Certification Before I Can Enter their Program?Please explore our website for resources in regard to education, advocacy, and work. For assistance with the ADA, contact the Americans with Disabilities Act
- [If my school allows me to repeat an exam because I did not receive adequate accommodations for a learning disability, does this set a precedent so that all other students must get the same consideration?](https://healthmattersprogram.org/2012/05/20/if-my-school-allows-me-to-repeat-an-exam-because-i-did-not-receive-adequate-accommodations-for-a-learning-disability-does-this-set-a-precedent-so-that-all-other-students-must-get-the-same-considerati/) - If my school allows me to repeat an exam because I did not receive adequate accommodations for a learning disability, does this set a precedent so that all other students must get the same consideration? Explore our website for resources in regard to education, advocacy, and work.For protection, advocacy, and legal assistance, contact your state
- [What Jobs in Nursing Can I do if I Have Physical Limitations?](https://healthmattersprogram.org/2012/05/20/what-jobs-in-nursing-can-i-do-if-i-have-physical-limitations/) - What Jobs in Nursing Can I do if I Have Physical Limitations? Please explore our website for resources in regard to education, advocacy, and work.For information about how to get a job or get through school, contact your State Vocational Rehabilitation Program. and Job Accommodation Network. There are more and more nursing jobs for people
- [How Can I Master Clinical Skills if I Have Impaired Vision?](https://healthmattersprogram.org/2012/05/20/how-can-i-master-clinical-skills-if-i-have-impaired-vision/) - How Can I Master Clinical Skills if I Have Impaired Vision? Please explore our website for resources in regard to education, advocacy, and work. You may already know about national organizations providing assistance for people with impaired vision nfb.org/state-and-local-organizations and “Shedding Light on Nurses with Vision Loss.”The ADA Amendments specify that mitigating measures or devices
- [How Can I Perform Cardiopulmonary Resuscitation (CPR) if I Have Limited Mobility?](https://healthmattersprogram.org/2012/05/20/how-can-i-perform-cardiopulmonary-resuscitation-cpr-if-i-have-limited-mobility/) - How Can I Perform Cardiopulmonary Resuscitation (CPR) if I Have Limited Mobility? Please explore our website for resources in regard to education, advocacy, and work. For assistance with the ADA, contact the Americans with Disabilities Act Technical Assistance Centers. Learning about the ADA Amendments Act of 2008 will help you to understand how the ADAAA
- [Can Employers Require Pre-Employment Physicals?](https://healthmattersprogram.org/2012/05/20/can-employers-require-pre-employment-physicals/) - Can Employers Require Pre-Employment Physicals? What do I do if I feel I have been discriminated against as a result of the physical?Please explore our website for resources in regard to education, advocacy, and work. For assistance with the ADA, contact the Americans with Disabilities Act Technical Assistance Centers. Learning about the ADA Amendments Act
- [How Can I Find a Nursing Job if I Stutter?](https://healthmattersprogram.org/2012/05/20/how-can-i-find-a-nursing-job-if-i-stutter-2/) - How Can I Find a Nursing Job if I Stutter? Please explore our website for resources: For protection, advocacy, and legal assistance, contact your state National Disability Rights Network. Be sure to click on your state so that you get relevant and timely information. Also check out your rights under Section 504 of the Rehabilitation
- [I Can No Longer Physically Complete the Clinical Portion of a Refresher Course?](https://healthmattersprogram.org/2012/05/20/i-can-no-longer-physically-complete-the-clinical-portion-of-a-refresher-course-2/) - I Can No Longer Physically Complete the Clinical Portion of a Refresher Course? Work with your refresher program and the Disability Services Officer to look for clinical settings where you could display your skill proficiency, taking into account that you need accommodations. In addition, here are some specific suggestions on organizations and resources to increase
- [What if I Need Assistance with Personal Needs when I am at School or Work in the Clinical Setting?](https://healthmattersprogram.org/2012/05/20/what-if-i-need-assistance-with-personal-needs-when-i-am-at-school-or-work-in-the-clinical-setting-2/) - What if I Need Assistance with Personal Needs when I am at School or Work in the Clinical Setting? This may be a personal assistant issue and not your school’s or employer's responsibility.Below are some specific suggestions on organizations and resources to increase your awareness about your rights and responsibilities:For protection, advocacy, and legal assistance,
- [End the Disability Debate in Nursing: Quality Care is Fact](https://healthmattersprogram.org/2013/04/17/end-the-disability-debate-in-nursing-quality-care-is-fact/) - End the Disability Debate in Nursing: Quality Care is FactBy Leslie Neal-BoylanMisconceptions abound regarding the abilities of people with disabilities and this holds true in the nursing profession, as well. While nurses with experience and expertise are often denied jobs or lose their jobs because of a physical disability, research shows appropriate accommodations can be
- [Several Million Healthcare Workers Needed by 2020](https://healthmattersprogram.org/2012/07/13/several-million-healthcare-workers-needed-by-2020-2/) - Several Million Healthcare Workers Needed by 2020 Regardless of the fate of the Affordable Care Act, the United States will need 5.6 million new healthcare workers by 2020, according to a study. The study, by researchers at Georgetown University’s Center on Education and Workforce, also found that 4.6 million of those new workers will need
- [For people with disabilities doctors are not always healers](https://healthmattersprogram.org/2014/11/06/for-people-with-disabilities-doctors-are-not-always-healers/) - Washington PostIt was midnight in the emergency department of my hospital, and the chief resident was on a roll. Clad in green scrubs — two sizes too small for his body, they emphasized his muscular physique — he dashed between the ambulance bay and the critical care rooms.“Wen!” he barked at me, the medical intern.
- [Physical Limits on CPR Quality and Methods for Quality Improvement](https://healthmattersprogram.org/2015/03/04/physical-limits-on-cpr-quality-and-methodsforqualityimprovement/) - Physical Limits on CPR Quality and Methods for Quality ImprovementThis is interesting research suggesting that many people are not able to perform effective CPR because of the amount of force required. This researcher is working on this with the hope that the American Heart Association will start teaching people to do compressions with their foot, which is more
- [The Voice of Disability in Nursing](https://healthmattersprogram.org/2015/03/18/the-voice-of-disability-in-nursing-2/) - The Voice of Disability in Nursing by Holly Clayton, RN, MSN New Hampshire Nursing News www.NHNurses.org Recently, I represented NHNA in a monthly American Nurses Association’s Nursing Practice & Work Environment (NP&WE) conference call. With the goal of “promoting the health, safety, and wellness of the nurse and the nursing profession,” this call served to
- [Lessons in Increasing Access to Care: Symposium at Rush brings together disability and health care leaders](https://healthmattersprogram.org/2015/11/20/lessons-in-increasing-access-to-care-symposium-at-rush-brings-together-disability-and-health-care-leaders/) - https://www.rush.edu/news/lessons-increasing-access-care By Kevin McKeough, Anne Burgeson and Kathleen Ziemer Illinois Attorney General Lisa Madigan observed that “at almost any moment, any of us could be living with a disability, whether through our life circumstances or as we age. This is an issue that is personal to all of us, whether we realize it our not.”
- [Lessons in Increasing Access to Care: Symposium at Rush brings together disability and health care leaders](https://healthmattersprogram.org/2015/11/20/lessons-in-increasing-access-to-care-symposium-at-rush-brings-together-disability-and-health-care-leaders-2/) - https://www.rush.edu/news/lessons-increasing-access-care By Kevin McKeough, Anne Burgeson & Kathleen Ziemer Illinois Attorney General Lisa Madigan observed that “at almost any moment, any of us could be living with a disability, whether through our life circumstances or as we age. This is an issue that is personal to all of us, whether we realize it our not.” Madigan
- [MU medical students' complaints describe humiliation, discrimination | Higher Education | columbiamissourian.com](https://healthmattersprogram.org/2017/03/05/mu-medical-students-complaints-describe-humiliation-discrimination-higher-education-columbiamissourian-com/) - MU medical students' complaints describe humiliation, discrimination Source: MU medical students' complaints describe humiliation, discrimination | Higher Education | columbiamissourian.com COLUMBIA — Matt Darrough didn’t take a traditional path to the MU School of Medicine. When he applied in November 2013, he was 43 and working full time as a lawyer. He was also preparing
- [Health Professionals with Disabilities: Motivating Inclusiveness and Representation, Oct 16 - AMA Journal of Ethics](https://healthmattersprogram.org/2017/03/05/health-professionals-with-disabilities-motivating-inclusiveness-and-representation-oct-16-ama-journal-of-ethics/) - Introduction to the October 2016 issue on health professionals with disabilities. AMA Journal of Ethics is a monthly bioethics journal published by the American Medical Association. Source: Health Professionals with Disabilities: Motivating Inclusiveness and Representation, Oct 16 - AMA Journal of Ethics Health Professionals with Disabilities: Motivating Inclusiveness and Representation Medical schools seeking to increase
- [Why Increasing Numbers of Physicians with Disability Could Improve Care for Patients with Disability, Oct 16 - AMA Journal of Ethics](https://healthmattersprogram.org/2017/03/05/why-increasing-numbers-of-physicians-with-disability-could-improve-care-for-patients-with-disability-oct-16-ama-journal-of-ethics/) - Expanding the numbers of physicians with disabilities would facilitate patient-centered care for those who need similar accommodations. AMA Journal of Ethics is a monthly bioethics journal published by the American Medical Association. Source: Why Increasing Numbers of Physicians with Disability Could Improve Care for Patients with Disability, Oct 16 - AMA Journal of Ethics Lisa
- [Just and Realistic Expectations for Persons with Disabilities Practicing Nursing, Oct 16 - AMA Journal of Ethics](https://healthmattersprogram.org/2017/03/05/just-and-realistic-expectations-for-persons-with-disabilities-practicing-nursing-oct-16-ama-journal-of-ethics/) - The nursing profession can become more inclusive by fostering a supportive culture, resilience, and realistic expectations for people with disabilities. AMA Journal of Ethics is a monthly bioethics journal published by the American Medical Association. Source: Just and Realistic Expectations for Persons with Disabilities Practicing Nursing, Oct 16 - AMA Journal of Ethics Patricia M.
- [Disability Healthcare Training - Nisonger Center](https://healthmattersprogram.org/2018/01/13/disability-healthcare-training-nisonger-center/) - Access two courses that are approved for continuing education by the Centers for Disease Control and Prevention for physicians, nurses, certified health education specialists and other health professionals. Source: Disability Healthcare Training - Nisonger Center The Ohio Disability and Health Program has developed online training modules that are designed to increase the capacity of health
- [National League for Nursing Convenes Innovative Think Tank on Expanding Diversity in Nurse Educator Workforce](https://healthmattersprogram.org/2008/02/04/national-league-for-nursing-convenes-innovative-think-tank-on-expanding-diversity-in-nurse-educator-workforce-2/) - Providing the rationale and context for the NLN's decision to spearhead the think tank, NLN CEO Beverly Malone, RN, PhD, FAAN asserted, "Among NLN's stated core values is the understanding that a culture of diversity moves beyond simple tolerance to embracing and celebrating the richness of each individual, recognizing that while diversity can be about
- [Danielle, a Nurse with a Disability](https://healthmattersprogram.org/2008/04/06/danielle-a-nurse-with-a-disability/) - Danielle, a Nurse with a Disability Born missing a limb from her elbow, Danielle found ways to succeed in nursing school, graduate and land a job as a pediatric nurse.
- [Labor & Delivery Nurse](https://healthmattersprogram.org/2009/01/14/labor-delivery-nurse/) - Labor & Delivery Nurse by Leora Heifetz My name is Leora Heifetz and I have had a visual disability since birth. I work as a registered nurse (RN) on a labor and delivery unit in a level three hospital in the Chicago Metropolitan area and on a daily basis I am engaged in directly caring
- [Nurses with Disabilities Find On-the-Job Support](https://healthmattersprogram.org/2009/02/01/nurses-with-disabilities-find-on-the-job-support/) - by Linda ChildersMonster.comWhile working as a nurse in today’s healthcare world can be stressful enough, nurses with disabilities can face additional on-the-job challenges, including colleagues who may not feel they are capable of doing the work and needing assistance in a job that often requires strength and stamina. However, by making some adjustments, nurses with
- [Like Missing an Arm Should Stop Me Being a Nurse!](https://healthmattersprogram.org/2010/10/15/like-missing-an-arm-should-stop-me-being-a-nurse/) - Like Missing an Arm Should Stop Me Being a Nurse!by Liz Perkins ABD, RNMHWhen I left high school I was like so many others – unsure of what I really wanted to be when I grew up. All through my school years I had never felt any different from my peers. But I was different
- [Nurses With Disabilities: Another Minority Group](https://healthmattersprogram.org/2011/12/28/nurses-with-disabilities-another-minority-group/) - by Ruth CarolMinorityNursePeople with disabilities are one of the most underrepresented voices in nursing. But like nurses of color, they have a lot to say about overcoming discrimination and barriers to take their rightful place in the profession.Some people who dream of nursing careers are told they will never make it through nursing school. Some
- [JAN Accommodation and Compliance Series: Nurses with Disabilities](https://healthmattersprogram.org/2012/04/01/jan-accommodation-and-compliance-series-nurses-with-disabilities/) - Occupation and Industry Series: Accommodating Nurses with DisabilitiesJAN's Occupation and Industry Series is designed to help employers determine effective accommodations for their employees with disabilities and comply with title I of the Americans with Disabilities Act (ADA). Each publication in the series addresses a specific occupation or industry and provides information about that occupation or
- [JAN Accommodation and Compliance Series: Nurses with Disabilities](https://healthmattersprogram.org/2012/04/01/jan-accommodation-and-compliance-series-nurses-with-disabilities-2/) - JAN's Occupation and Industry Series is designed to help employers determine effective accommodations for their employees with disabilities and comply with title I of the Americans with Disabilities Act (ADA).
- [If I Have a Disability, Can I Become a Practical or a Registered Nurse?](https://healthmattersprogram.org/2012/05/06/if-i-have-a-disability-can-i-become-a-practical-or-a-registered-nurse/) - If I Have a Disability, can I Become a Practical or a Registered Nurse? See our website on Advocacy Strategies for School. For information about the 2008 amendments to the ADA that broadens coverage for many individuals, see http://www.eeoc.gov/laws/statutes/adaaa_info.cfm. Contact the ADA Center for information on the ADA. Also, the Open the Door, Get 'Em
- [Working as a Nurse With a Disability](https://healthmattersprogram.org/2012/05/10/working-as-a-nurse-with-a-disability/) - Working as a Nurse With a Disabilityby Elisabeth Greenbaum KassonWhat are your options if you aspire to be a nurse and are disabled? What would you do if you were already working as a nurse and became disabled? Whether you are living with obvious disabilities such as limb differences or paralysis, or less visible ones
- [U.S. Labor Department’s Office of Disability Employment Policy Signs Alliance Agreement with National Organization of Nurses with Disabilities](https://healthmattersprogram.org/2012/05/10/u-s-labor-departments-office-of-disability-employment-policy-signs-alliance-agreement-with-national-organization-of-nurses-with-disabilities/) - News ReleaseODEP News Release: [05/07/2012]Contact Name: Bennett GamblePhone Number: (202) 693-4661Release Number: 12-0889-NATAgreement supports increased hiring of individuals with disabilities in health care industryWASHINGTON — Assistant Secretary of Labor for Disability Employment Policy Kathleen Martinez and National Organization of Nurses with Disabilities President Beth Marks have signed an alliance agreement during National Nurses Week to
- [ODEP and National Organization of Nurses with Disabilities (NOND) Alliance](https://healthmattersprogram.org/2012/05/10/odep-and-national-organization-of-nurses-with-disabilities-nond-alliance/) - ODEP and National Organization of Nurses with Disabilities (NOND) AllianceODEP and NOND recognize the value of establishing a collaborative relationship to promote the employment of people with disabilities in the healthcare industry. ODEP and NOND hereby form an Alliance to conduct outreach, education and technical assistance activities that promote the recruitment, hiring, retention and advancement
- [Working as a Nurse With a Disability](https://healthmattersprogram.org/2012/05/10/working-as-a-nurse-with-a-disability-2/) - Whether you are living with obvious disabilities such as limb differences or paralysis, or less visible ones such as a chronic illness, sensory impairment or post-traumatic stress disorder, there are few reasons that would prevent you from successfully completing a nursing program, or continuing your career.
- [U.S. Labor Department’s Office of Disability Employment Policy Signs Alliance Agreement with National Organization of Nurses with Disabilities](https://healthmattersprogram.org/2012/05/10/u-s-labor-departments-office-of-disability-employment-policy-signs-alliance-agreement-with-national-organization-of-nurses-with-disabilities-2/) - WASHINGTON — Assistant Secretary of Labor for Disability Employment Policy Kathleen Martinez and National Organization of Nurses with Disabilities President Beth Marks have signed an alliance agreement during National Nurses Week to promote the employment of individuals with disabilities in the health care industry.
- [ODEP and National Organization of Nurses with Disabilities (NOND) Alliance](https://healthmattersprogram.org/2012/05/10/odep-and-national-organization-of-nurses-with-disabilities-nond-alliance-2/) - ODEP and NOND hereby form an Alliance to conduct outreach, education and technical assistance activities that promote the recruitment, hiring, retention and advancement of individuals with disabilities, including veterans with disabilities, in the healthcare sector.
- [WISER's New Report Highlights Effective Financial Education Project For Nurses		](https://healthmattersprogram.org/2012/05/15/wisers-new-report-highlights-effective-financial-education-project-for-nurses/) - In honor of National Nurses Week, WISER is pleased to release the final report from our Nurses’ Investor Education Project, a multi-year financial education initiative aiming to improve nurses’ financial security using educational tools, resources and peer-to-peer training and workshops. Read the report and press release.A new report from the Women’s Institute for a Secure
- [Where can I find information about financial resources for a nursing student or a nurse with a disability?](https://healthmattersprogram.org/2012/05/19/where-can-i-find-information-about-financial-resources-for-a-nursing-student-or-a-nurse-with-a-disability/) - Where can I find information about financial resources for a nursing student or a nurse with a disability?Please explore our site for resources in regard to education, advocacy, and employment www.nond.org/Self_Advocacy/Education.html. For information about how to get a job or get assistance with funding for school, contact your State Vocational Rehabilitation Programs.Disclaimer: The National Organization
- [Can I Be a Nurse if I am Person of Small Stature?](https://healthmattersprogram.org/2012/05/20/can-i-be-a-nurse-if-i-am-person-of-small-stature/) - Can I Be a Nurse if I am Person of Small Stature? Absolutely, you can be a nurse if you are a person of small stature. You can start by exploring our website for resources in regard to education, advocacy, and work. You also could contact Little People of America and discuss the situation. They
- [How Can I Find Other Nurses or Nursing Students with Disabilities to Gain Advice and Support?](https://healthmattersprogram.org/2012/05/20/how-can-i-find-other-nurses-or-nursing-students-with-disabilities-to-gain-advice-and-support/) - How Can I Find Other Nurses or Nursing Students with Disabilities to Gain Advice and Support? Please explore our website for resources in regard to education, advocacy, and work. For connections with people with disabilities in your community, contact your local Center for Independent Living.Many nurses contact NOND for this information. We may be able
- [Can I Be a Nurse if I Have a Learning Disability?](https://healthmattersprogram.org/2012/05/20/can-i-be-a-nurse-if-i-have-a-learning-disability/) - Can I Be a Nurse if I Have a Learning Disability? Please explore our website for resources in regard to education, advocacy, and work. For assistance with the ADA, contact the Americans with Disabilities Act Technical Assistance Centers. Learning about the ADA Amendments Act of 2008 will help you to understand how the ADAAA broadens coverage
- [Can I Be a Nurse if I Have a Chronic Condition that Affects My Life Activities?](https://healthmattersprogram.org/2012/05/20/can-i-be-a-nurse-if-i-have-a-chronic-condition-that-affects-my-life-activities/) - Can I Be a Nurse if I Have a Chronic Condition that Affects My Life Activities? Please explore our website for resources in regard to education, advocacy, and work. For assistance with the ADA, contact the Americans with Disabilities Act Technical Assistance Centers. Learning about the ADA Amendments Act of 2008 will help you to understand
- [Can I Be a Nurse if I Have Intermittent Conditions?](https://healthmattersprogram.org/2012/05/20/can-i-be-a-nurse-if-i-have-intermittent-conditions/) - Can I Be a Nurse if I Have Intermittent Conditions? Absolutely, you can be a nurse if you have a chronic, intermittent health condition. If you have an episodic (intermittent) condition such as epilepsy, migraines, or fibromyalgia, you would be considered to have a disability if any of your major life activities are impaired when
- [Can I Be a Nurse if I Have Concerns with Manual Dexterity or Have only One Hand?](https://healthmattersprogram.org/2012/05/20/can-i-be-a-nurse-if-i-have-concerns-with-manual-dexterity-or-have-only-one-hand/) - Can I Be a Nurse if I Have Concerns with Manual Dexterity or Have One Hand? Absolutely! NOND has contact with nurses who have practiced as a nurse with one hand for over 25 years. Use the resources below and work with your college’s or university’s Disability Services Officer to request accommodations. Be creative when
- [Can I Be a Nurse if I Have a Hearing Loss?](https://healthmattersprogram.org/2012/05/20/can-i-be-a-nurse-if-i-have-a-hearing-loss/) - Can I Be a Nurse if I Have a Hearing Loss? Absolutely! The ADA Amendments specify that mitigating measures or devices such as hearing aids cannot be considered in determining whether a person has an impairment that substantially limits a major life activity (the criterion for protection under the ADA). This means that your hearing
- [Can I Be a Nurse if My Vision is Impaired?](https://healthmattersprogram.org/2012/05/20/can-i-be-a-nurse-if-my-vision-is-impaired-2/) - Can I Be a Nurse if My Vision is Impaired? Absolutely, you can be a nurse if you have a visual disability. You may have been told that you could not be a nurse, but NOND has Board members with visual impairments who are successful nurses. After you look at the resources on our website,
- [Supporting Nurses and Nursing Students with Disabilities](https://healthmattersprogram.org/2015/09/30/supporting-nurses-and-nursing-students-with-disabilities/) - Supporting Nurses and Nursing Students with DisabilitiesNeal-Boylan, Leslie PhD, RN, APRN, CRRN, FAAN; Marks, Beth PhD, RN; McCulloh, Karen J. BSN, RNAJN, American Journal of Nursing: October 2015 - Volume 115 - Issue 10 - p 11Federal agencies and nursing organizations say it's high time to put aside preconceptions.Nursing students and nurses with disabilities face
- [Can I Be a Nurse if I Have a Mental Health Condition?](https://healthmattersprogram.org/2012/05/20/can-i-be-a-nurse-if-i-have-a-mental-health-condition-2/) - Can I Be a Nurse if I Have a Mental Health Condition? Yes, the ADA Amendments specify that mitigating measures such as medications cannot be considered in determining whether a person has an impairment that substantially limits a major life activity (the criterion for protection under the ADA). This means that your medications that help
- [Can I Be a Nurse if I Have a History of Chemical Dependency (Drugs or Alcohol)?](https://healthmattersprogram.org/2012/05/20/can-i-be-a-nurse-if-i-have-a-history-of-chemical-dependency-drugs-or-alcohol-2/) - Can I Be a Nurse if I Have a History of Chemical Dependency (Drugs or Alcohol)? If you no longer actively use drugs or alcohol, you may qualify as disabled. Below are some specific suggestions on organizations and resources to increase your awareness about your rights and responsibilities: For protection, advocacy, and legal assistance, contact
- [As a Nurse or Nursing Student Using a Wheelchair, How Can I Perform a "Head-to-Toe" Physical Exam?](https://healthmattersprogram.org/2012/05/20/as-a-nurse-or-nursing-student-using-a-wheelchair-how-can-i-perform-a-head-to-toe-physical-exam-2/) - As a Nurse or Nursing Student Using a Wheelchair, How Can I Perform a "Head-to-Toe" Physical Exam? You also may ask your patient to sit in a chair or non-rolling stool for part of the exam, lower the table or bed so that you can reach your patient more easily. Remember that many nurses complete
- [Game Changers: Nurses With Disabilities Work to Dispel Bias in Health Care](https://healthmattersprogram.org/2013/04/17/game-changers-nurses-with-disabilities-work-to-dispel-bias-in-health-care/) - Game Changers: Nurses With Disabilities Work to Dispel Bias in Health CareBy Janet Edwards As an avid climber, crawling high into trees didn’t seem like such a risky proposition to Michelle Kephart, RN, MSN. However, midway through her nursing program, Kephart fell 25 feet from a tree, injuring her spinal cord. Returning to nursing school
- [Nurses With Disabilities: Professional Issues and Job Retention](https://healthmattersprogram.org/2013/04/18/nurses-with-disabilities-professional-issues-and-job-retention/) - Nurses With Disabilities: Professional Issues and Job Retention Leslie Neal-Boylan, PhD, RN, CRRN, APRN, FNP-BCKey Features:Provides solutions regarding professional issues faced by nurses with disabilitiesHelps nurse recruiters and administrators clarify and strengthen retention strategiesFeatures the voices of nurses with disabilities, nurse leaders, recruitment specialists, and patientsButtressed by four research studies and written by the leading
- [Give Nurses in Wheelchairs a Chance](https://healthmattersprogram.org/2013/12/12/give-nurses-in-wheelchairs-a-chance/) - Give Nurses in Wheelchairs a Chance Alexandra Wilson Pecci, for HealthLeaders Media , December 10, 2013 Although some nurse leaders cling to the rigid requirements of the profession, others are making accommodations for nurses in wheelchairs, sending a powerful message to patients in the process. A "walking interview" is one of the questionable—to say the least—tactics
- [IDFPR, Nurses Associations Convene Historic Meeting](https://healthmattersprogram.org/2015/10/21/idfpr-nurses-associations-convene-historic-meeting/) - Chicago, October 14, 2015NOND participates in a meeting convened by the Illinois Center for Nursing for Illinois nurses associations to meet with Secretary Bryan Schneider and Professional Regulation Director Jay Stewart of the Illinois Department of Financial and Professional Regulation (IDFPR).
- [EEOC Settles with Hospital that Refused Job Accommodation for Nurse with Cancer](https://healthmattersprogram.org/2014/11/26/eeoc-settles-with-hospital-that-refused-job-accommodation-for-nurse-with-cancer/) - Angel Medical Center to Pay $85,000 to Settle EEOC Disability Discrimination SuitThe U.S. Equal Employment Opportunity Commission (EEOC) has settled a disability discrimination lawsuit with Angel Medical Center, Inc. of Franklin, NC. The hospital was charged with violating the Americans with Disabilities Act (ADA) by denying an employee an accommodation that would have allowed her to get cancer treatments while working full time.
- [Attitudes of staff nurse preceptors related to the education of nurses with learning disabilities in clinical settings](https://healthmattersprogram.org/2015/02/11/attitudes-of-staff-nurse-preceptors-related-to-the-education-of-nurses-with-learning-disabilities-in-clinical-settings/) - by L'Ecuyer, Kristine Marie, Ph.D., SAINT LOUIS UNIVERSITY, 2014, 212 pages; 3624082Abstract:This dissertation presents a quantitative study of the attitudes of staff nurse preceptors toward nursing students with learning disabilities. There are an increased number of nursing students with learning disabilities. These students may have additional challenges in clinical settings, particularly if clinical settings do
- [Registered Nurses With Disabilities: Legal Rights and Responsibilities](https://healthmattersprogram.org/2015/03/27/registered-nurses-with-disabilities-legal-rights-and-responsibilities/) - Registered Nurses With Disabilities: Legal Rights and ResponsibilitiesLeslie Neal-Boylan, PhD, APRN, CRRN, FAAN& Michelle D. Miller, JD, MPH, RNAbstractPurpose: The purpose of this legal case review and analysis was to determine what kinds of cases involving nurses with disabilities are typically brought to attorneys, which cases tend to be successful, and how and when a
- [Nontraditional Careers in Nursing: Options for Nurses](https://healthmattersprogram.org/2017/03/21/nontraditional-careers-in-nursing-options-for-nurses/) - History of Nontraditional Careers Source: Nontraditional Careers in Nursing: Options for Nurses Susan E. Lowey, PhD, RN, CHPN |March 15, 2017 The Nursing Workforce and Changing Demographics While a majority of nurses currently work in the hospital setting, the nontraditional (nonhospital) nursing sector is growing.[1] There are currently over 2.7 million registered nurses in the United States.[1]
- [Success for Students and Nurses with Disabilities: A Call to Action for Nurse Educators](https://healthmattersprogram.org/2017/03/30/success-for-students-and-nurses-with-disabilities-a-call-to-action-for-nurse-educators/) - Marks, B. & McCulloh, K. (2016). Success for Students and Nurses with Disabilities: A Call to Action for Nurse Educators, Nurse Educator, 41(1), 9-12. doi: 10.1097/NNE.0000000000000212. This article presents a ‘‘call to action’’ for nurse educators to identify and implement best practices supporting the success of students with disabilities given recent federal legislative changes. Best
- [Nurse Suicide: Breaking the Silence - National Academy of Medicine](https://healthmattersprogram.org/2018/01/16/nurse-suicide-breaking-the-silence-national-academy-of-medicine/) - Source: Nurse Suicide: Breaking the Silence - National Academy of Medicine | National Academy of Medicine ABSTRACT | The purpose of this paper is to raise awareness of and begin to build an open dialogue regarding nurse suicide. Recent exposure to nurse suicide raised our awareness and concern, but it was disarming to find no organization-specific, local,
- [Exclusive: Nurses with disabilities face discrimination in workplace](https://healthmattersprogram.org/2018/03/08/exclusive-nurses-with-disabilities-face-discrimination-in-workplace/) - Source: Exclusive: Nurses with disabilities face discrimination in workplace | News | Nursing Times Nurses with disabilities regularly face discrimination in the NHS, despite ongoing efforts to boost equality, an investigation by Nursing Times has found. One nurse with a lifelong condition described how she had been told by colleagues she was a danger to herself and
- [The U.S. Health Workforce: State Profiles | Bureau of Health Workforce](https://healthmattersprogram.org/2019/02/22/the-u-s-health-workforce-state-profiles-bureau-of-health-workforce/) - The U.S. Health Workforce: State Profiles The State Profiles provide data on 34 types of health occupations - from physicians, nurses, and dentists to counselors, physical therapists, medical assistants, and others. They are companion documents to the U.S. Health Workforce Chartbook and were developed to make data on the U.S. health workforce more readily available
- [RRTCADD Research Projects Summary (2008-2013)](https://healthmattersprogram.org/2017/01/28/rrtcadd-research-projects-summary-2008-2013/) - The RRTCADD's Research Activities include the following topics: Community Based Health Promotion Improving Health and Function Neurodevelopmental Conditions and Aging Consumer Directed Services Health Promotion for Latino and African-American Mothers Healthy Homes and Communities Health Status Measurement 2011 RRTCDD State of the Science Conference Research Outcomes are targeted at: Improving the health and function of
- [New York's 'BSN in 10' Law And The Push For 80% Of Nurses To Hold BSN By 2020 | Nurse.org](https://healthmattersprogram.org/2019/02/11/new-yorks-bsn-in-10-law-and-the-push-for-80-of-nurses-to-hold-bsn-by-2020-nurse-org/) - Update: 12/30/2017 at 9:12pm PST After nearly 14 years of lobbying, New York State finally passed their "BSN in 10" law. The state now requires all nurses to obtain a Baccalaureate Degree in Nursing within 10 years of receiving their initial RN license. New York state may be the first state to actually pass the
- [Spotlight: Food for Health: Nutrition Research across the Lifespan](https://healthmattersprogram.org/2019/03/01/spotlight-food-for-health-nutrition-research-across-the-lifespan/) - Nutrition is vital to health, growth, and development through all stages of life. Poor nutrition causes health problems and can contribute to heart disease, high blood pressure, diabetes, stroke, cancer, and other diseases. NIH recently released a draft of its first-ever Strategic Plan for NIH Nutrition Research to focus efforts in advancing the scientific understanding
- [Opportunities for Complex Care Programs to Address the Social Determinants of Health - Center for Health Care Strategies](https://healthmattersprogram.org/2019/03/01/opportunities-for-complex-care-programs-to-address-the-social-determinants-of-health-center-for-health-care-strategies/) - Source: Opportunities for Complex Care Programs to Address the Social Determinants of Health - Center for Health Care Strategies This brief explores opportunities to better address patients’ non-medical needs, including: (1) identifying patients’ non-medical needs; (2) employing non-traditional workers; (3) partnering with community-based organizations and social service agencies; (4) testing new uses for technology to
- [Addressing Social Determinants and Its Impact On Healthcare - Watson Health Perspectives](https://healthmattersprogram.org/2019/03/01/addressing-social-determinants-and-its-impact-on-healthcare-watson-health-perspectives/) - Source: Addressing Social Determinants and Its Impact On Healthcare - Watson Health Perspectives This executive overview paper examines the many factors that are driving change in the healthcare industry.2 It covers the social determinants of health and introduces a smarter approach to care that enables healthcare providers to personalize programs, services and treatments based on
- [Nation's First Institute to Prepare Nurses to Care for People with Developmental Disabilities to Open at St. John Fisher College in Rochester, NY](https://healthmattersprogram.org/2019/03/01/nations-first-institute-to-prepare-nurses-to-care-for-people-with-developmental-disabilities-to-open-at-st-john-fisher-college-in-rochester-ny/) - Source: Nation's First Institute to Prepare Nurses to Care for People with Developmental Disabilities to Open at St. John Fisher College in Rochester, NY PITTSFORD, N.Y., Oct. 30, 2018 /PRNewswire/ -- Earlier today, St. John Fisher College, Tom Golisano, and the Golisano Foundation announced the creation of the Golisano Institute for Developmental Disability Nursing thanks to a $5.8 million gift, $5 million from Tom Golisano and $800,000 from
- [Dentists No Longer Permitted To Turn Away Patients Due To Disabilities - Disability Scoop](https://healthmattersprogram.org/2019/03/06/dentists-no-longer-permitted-to-turn-away-patients-due-to-disabilities-disability-scoop/) - People with developmental disabilities may find it easier to get dental care after a national board changed its ethics policy to be more inclusive. The American Dental Association recently revised its code of conduct to prohibit denial of care to patients with physical, developmental or intellectual disabilities. In cases where a dentist does not have
- [The DSP Crisis: Reimbursement Rates, Retention, and Research](https://healthmattersprogram.org/2019/03/07/the-dsp-crisis-reimbursement-rates-retention-and-research/) - Source: The DSP Crisis: Reimbursement Rates, Retention, and Research | The Council on Quality and Leadership Direct Support Professionals (DSPs) are critical for the community integration of people with intellectual and developmental disabilities (IDD). Not only are DSPs important to quality supports of millions of people in the United States, but a lack of staff can
- [Campaign for Disability Employment PSA Download Center](https://healthmattersprogram.org/2019/03/07/campaign-for-disability-employment-psa-download-center/) - Source: Campaign for Disability Employment PSA Download Center Looking for downloadable versions of the Campaign for Disability Employment’s television PSAs? You’ve come to the right place. This page features links to various lengths and versions of our videos, including accessible versions that are captioned and/or audio introduced, and Spanish language versions.
- [Behavioral Health Workforce Projections | Bureau of Health Workforce](https://healthmattersprogram.org/2019/03/07/behavioral-health-workforce-projections-bureau-of-health-workforce/) - We estimated the number of new entrants into the behavioral health workforce between 2016 and 2021. Source: Behavioral Health Workforce Projections | Bureau of Health Workforce We also generated state-level projections of supply and demand for behavioral health occupations from 2016 to 2030. State-Level Estimates of Behavioral Health Workforce (PDF – 1.5 MB) We estimated the
- [123s: By the Numbers | Access Better Coverage](https://healthmattersprogram.org/2019/03/21/123s-by-the-numbers-access-better-coverage/) - Access to different health care treatments and services may vary. Check out the latest research on plans in health insurance exchanges. Get the facts on coverage and access hurdles in your state. Source: 123s: By the Numbers | Access Better Coverage 123s: By the Numbers Comprehensive reports on coverage and access Learn more about how access
- [Home - Self Advocacy Info](https://healthmattersprogram.org/2019/03/21/home-self-advocacy-info/) - Your one-stop resource for organizing and supporting self advocacy groups How can we help your self advocacy group? FEATURED RESOURCES The mission of Self Advocacy Resource and Technical Assistance Center (SARTAC) is to strengthen the self-advocacy movement by supporting self advocacy organizations to grow in diversity and leadership. Source: Home - Self Advocacy Info The
- [Life Expectancy: Where You Live Affects How Long You Live - RWJF](https://healthmattersprogram.org/2019/04/01/life-expectancy-where-you-live-affects-how-long-you-live-rwjf/) - Source: Life Expectancy: Where You Live Affects How Long You Live - RWJF People living just a few blocks apart may have vastly different opportunities to live a long life in part because of their neighborhood. Unfortunately, significant gaps in life expectancy persist across many United States cities, towns, ZIP codes and neighborhoods. The latest
- [USAFacts | Non-partisan Government Data](https://healthmattersprogram.org/2019/04/08/usafacts-non-partisan-government-data/) - USAFacts is a new data-driven portrait of the American population, our government’s finances, and government’s impact on society. We are a non-partisan, not-for-profit civic initiative and have no political agenda or commercial motive. We provide this information as a free public service and are committed to maintaining and expanding it in the future. Source: USAFacts
- [Active People Healthy Nation](https://healthmattersprogram.org/2019/04/11/active-people-healthy-nation/) - Source: Active People Healthy Nation This initiative seeks to highlight the importance of physical activity in improving the health of all Americans. In order to meet a goal of 27 million Americans becoming physically active by 2027, the CDC Division of Nutrition, Physical Activity, and Obesity has developed five action steps that encourage states and communities to
- [EARN’s Mental Health Toolkit](https://healthmattersprogram.org/2019/04/11/earns-mental-health-toolkit/) - According to the National Alliance on Mental Illness (NAMI), one in five American adults experiences a mental health condition each year. For many of these individuals, work is a key part of their health and identity, contributing to their sense of purpose and wellbeing. Source: EARN’s Mental Health Toolkit That’s why it’s important for employers
- [No Equity Without Everyone: Philanthropy Must Fully Include People With Disabilities (Opinion) - The Chronicle of Philanthropy](https://healthmattersprogram.org/2019/04/14/no-equity-without-everyone-philanthropy-must-fully-include-people-with-disabilities-opinion-the-chronicle-of-philanthropy/) - RWJF and Ford Foundation are leading an effort to “mainstream” disability in philanthropy. Source: No Equity Without Everyone: Philanthropy Must Fully Include People With Disabilities (Opinion) - The Chronicle of Philanthropy This year, the United States will celebrate 29 years of civil-rights progress under the Americans With Disabilities Act. And yet the more than 56
- [American Hospital Association's Age-Friendly Health Systems Action Community - The John A. Hartford Foundation](https://healthmattersprogram.org/2019/07/22/american-hospital-associations-age-friendly-health-systems-action-community-the-john-a-hartford-foundation/) - Source: American Hospital Association's Age-Friendly Health Systems Action Community - The John A. Hartford Foundation The American Hospital Association (AHA) will be running an Age-Friendly Health Systems Action Community starting in September 2019. Health systems interested in improving care for older adults at their organization can learn how you can implement the 4Ms Framework for Age-Friendly care,
- [Report: Medication Overload - America’s Other Drug Problem - The John A. Hartford Foundation](https://healthmattersprogram.org/2019/07/22/report-medication-overload-americas-other-drug-problem-the-john-a-hartford-foundation/) - A report from the Lown Institute, Medication Overload: America’s Other Drug Problem, documents a steep rise in the number of medications taken by older Americans, and a parallel rise in serious adverse drug events (ADEs) that can lead to loss of mobility, falls, hospitalization, and in some cases, death. Among the most telling statistics, the
- [News Article: Nursing Researchers to Enhance Age-Friendly Care for Older Adults in Rural PA - The John A. Hartford Foundation](https://healthmattersprogram.org/2019/07/22/news-article-nursing-researchers-to-enhance-age-friendly-care-for-older-adults-in-rural-pa-the-john-a-hartford-foundation/) - Penn State has released a news article, "Nursing Researchers to Enhance Age-Friendly Care for Older Adults in Rural PA," announcing it's funding award to support medically underserved regions throughout rural Pennsylvania. "With the funding support of the Health Resources and Services Administration (HRSA), researchers from the College of Nursing in collaboration with the College of
- [So Much Yellow](https://healthmattersprogram.org/2019/08/07/so-much-yellow-on-vimeo/) - Set in Northern California in the late sixties, So Much Yellow is a short, dramatic film about a young girl and the family road trip that changes her life forever. Inspired by true stories, this film depicts the difficult decision one family makes to institutionalize their young son who has Down syndrome.TRIGGER WARNING: this film
- [The Electronic Health Record Problem | Commonwealth Fund](https://healthmattersprogram.org/2018/12/19/the-electronic-health-record-problem-commonwealth-fund/) - EHRs have one critical performance requirement: generating clinical revenues. In the fee-for-service world Source: The Electronic Health Record Problem | Commonwealth Fund December 13, 2018 David Blumenthal, M.D. It’s no secret that many physicians are unhappy with their electronic health records (EHRs). They say they spend too much time keying in data and too little
- [How the Future of Work May Impact Our Wellbeing - RWJF](https://healthmattersprogram.org/2018/12/20/how-the-future-of-work-may-impact-our-wellbeing-rwjf/) - Work is a powerful determinant of health. As these stories about taxi, care, and cleaning work from a new report show, it is a central organizing feature of our lives, our families, our neighborhoods, and our cities. And work—its schedules, demands, benefits, and pay—all formally and informally shape our opportunities to be healthy. Source: How
- [Work-Life Balance & Disability](https://healthmattersprogram.org/2018/05/17/work-life-balance-disability/) - Source: http://work-life-disability.org/#home The NIDILRR-funded project on Getting and Keeping People with Disabilities in the Workforce: Negotiating Work, Life, and Disability recently debuted a new web resource, Work-Life Balance & Disability, resulting from the project’s exploration of individual and organizational factors that support effective work-life management among employed people with disabilities. The site includes personal stories, plain
- [Integrating Technology to Increase Student Interns' Health, Fitness, and Personal Responsibilities](https://healthmattersprogram.org/2017/09/19/integrating-technology-to-increase-student-interns-health-fitness-and-personal-responsibilities/) - Play recording (51 min) Download Transcipt Download PDF and PowerPoint Slides Resources: Getting Fit with FitBits in Physical Education Health Matters Curriculum MapMyWalk App 101 Ways to Teach Children Social Skills Potential Funders: Health Care Foundation of Greater Kansas Impact 100 Chicago The Prudential Foundation Grant Guidelines The Wallace Foundation Webinar Handouts: Employment Planning- Student
- [Promoting Health and Leadership in Project SEARCH® Programs](https://healthmattersprogram.org/2017/09/19/promoting-health-and-leadership-in-project-search-programs/) - Play recording (51 min) Download Transcript Download PDF and PowerPoint Slides Date and time: Thursday, October 12, 2017 2:00-3:00 pm (EST) Duration: 1 hour Description: For people with intellectual/developmental disabilities, maintaining health and wellness is essential to achieving and maintaining independence, participating in society, and preventing the onset of secondary health conditions. Yet, people with disabilities
- [Consensus statement of the international summit on intellectual disability and Dementia related to post-diagnostic support](https://healthmattersprogram.org/2019/02/06/consensus-statement-of-the-international-summit-on-intellectual-disability-and-dementia-related-to-post-diagnostic-support-2/) - Karen Dodd, Karen Watchman, Matthew P. Janicki, Antonia Coppus, Claudia Gaertner, Juan Fortea, Flavia H. Santosi, Seth M. Keller, and Andre Strydom Aging & Mental Health, 22:11, 1406-1415. DOI: 10.1080/13607863.2017.1373065 ABSTRACT Objectives: Post diagnostic support (PDS) has varied definitions within mainstream dementia services and different health and social care organizations, encompassing a range of supports that are offered
- [Perspectives about support challenges facing health workers assisting older adults with and without intellectual disability in rural versus urban settings in Australia](https://healthmattersprogram.org/2017/07/13/perspectives-about-support-challenges-facing-health-workers-assisting-older-adults-with-and-without-intellectual-disability-in-rural-versus-urban-settings-in-australia/) - Rafat Hussain , Matthew P. Janicki , Marie Knox, Stuart Wark & Trevor Parmenter (2017): Perspectives about support challenges facing health workers assisting older adults with and without intellectual disability in rural versus urban settings in Australia, Journal of Intellectual & Developmental Disability, DOI: 10.3109/13668250.2017.1326589 Source: Journal of Intellectual & Developmental Disability ABSTRACT Aims: Life
- [Opportunity Insights](https://healthmattersprogram.org/2018/10/16/opportunity-insights/) - Source: Opportunity Insights The Opportunity Atlas: Mapping the Childhood Roots of Social Mobility The Opportunity Atlas Which neighborhoods in America offer children the best chance to rise out of poverty? The Opportunity Atlas answers this question using anonymous data following 20 million Americans from childhood to their mid-30s. Now you can trace the roots of
- [Office of Disability Employment Policy Publications](https://healthmattersprogram.org/2018/10/10/office-of-disability-employment-policy-publications/) - Source: Office of Disability Employment Policy Publications | Pueblo.gpo.gov Disability Employment Publications Order FREE disability employment guides for employers, job-seekers, educators, and employment service providers. Employers can find information to help recruit, hire, and retain employees with disabilities. Job-seekers with disabilities can find information to develop their skills and find the support they need to get a
- [“America’s Workforce: Empowering All” ](https://healthmattersprogram.org/2018/10/10/americas-workforce-empowering-all/) - Source: NDEAM 2018 | “America’s Workforce: Empowering All” | Office of Special Education and Rehabilitative Services Blog Note: October is National Disability Employment Awareness Month National Disability Employment Awareness Month (NDEAM), observed each October, celebrates the contributions of workers with disabilities and promotes the value of a workforce inclusive of their skills and talents. Reflecting a
- [Health Care Coverage and Access in Your State](https://healthmattersprogram.org/2018/10/03/health-care-coverage-and-access-in-your-state/) - October 2, 2018 Health care is top of mind for a lot of voters going into this November’s mid-term elections, with many concerned about the costs of care and about funding for Medicare and Medicaid. To provide an overview of health care coverage and access around the U.S. in the years since the Affordable Care Act
- [Highlights from the International Summit on Intellectual Disability and Dementia: Implications for Brazil](https://healthmattersprogram.org/2018/09/19/highlights-from-the-international-summit-on-intellectual-disability-and-dementia-implications-for-brazil/) - Conditionally accepted by the Dementia & Neuropsychologia journal. Matthew P. Janicki, Ph.D.
- [Main conclusions agreed during the Summit  on Intellectual Disability and Dementia](https://healthmattersprogram.org/2018/07/23/main-conclusions-agreed-during-the-summit-on-intellectual-disability-and-dementia/) - PRINCIPALES CONCLUSIONES ACORDADAS DURANTE LA CUMBRE SOBRE DISCAPACIDAD INTELECTUAL YDEMENCIA ISSN: 0210-1696 DOI: http:/ /dx.doi.org/10.14201/scero2018492115122 Matthew P. JANICKI University of Illinois at Chicago, USA Karen WATCHMAN University of Stirling, Scotland, UK Juan FORTEA ORMAECHEA Centro Medico de Down de la Fundaci Catalana de Sindrome de Down (FCSD) y Servicio de Neurologia def Hospital de la Santa
- [Disability Rights Consortium At Equip For Equality - Immigration And Disability](https://healthmattersprogram.org/2017/03/22/disability-rights-consortium-at-equip-for-equality-immigration-and-disability/) - Host: Equip for Equality When Wednesday, March 22, 2017 - 9:30am to 11:00am Where Equip for Equality 20 North Michigan Avenue, Suite 300 Chicago, IL60602 Description Lisa Palumbo and Audra Passinault from LAF will be our featured speakers to discuss the intersection between immigration and disability. Specifically, they will address the recent Executive Orders and
- [Health indicators in intellectual developmental disorders: The key findings of the POMONA‐ESP project](https://healthmattersprogram.org/2018/07/02/health-indicators-in-intellectual-developmental-disorders-the-key-findings-of-the-pomona‐esp-project/) - Source: Health indicators in intellectual developmental disorders: The key findings of the POMONA‐ESP project - Folch - - Journal of Applied Research in Intellectual Disabilities - Wiley Online Library Annabel Folch, Luis Salvador‐Carulla, Paloma Vicens, Maria José Cortés, Marcia Irazábal, Silvia Muñoz, Lluís Rovira, Carmen Orejuela, Juan A. González, Rafael Martínez‐Leal Abstract Background The aim
- [Using Social Media to Enhance Community Participation](https://healthmattersprogram.org/2018/06/30/using-social-media-to-enhance-community-participation/) - Using Social Media to Enhance Community Participation Source: Temple Collaborative on Community Inclusion https://bit.ly/2Kgri55 Looking for ways to be more active in your community? This manual examines ways in which individuals with mental illnesses can use social media networks to enhance community participation. Social media features and functions are examined as well as specific networks
- [Mathematica Policy Research: Transition Strategies for Youth with Disabilities](https://healthmattersprogram.org/2018/06/21/mathematica-policy-research-transition-strategies-for-youth-with-disabilities/) - Transition Transition Strategies for Youth with Disabilities Mathematica Policy Research has released three new reports on how transition services are being used for youth with disabilities. The goal of these services is to help youth with disabilities-particularly those receiving Supplemental Security Income (SSI)- find employment and earn higher wages. Mathematica's reports focus on which services are the most promising
- [Guided Group Discovery: Online Participant Workbook for Employment](https://healthmattersprogram.org/2018/06/21/guided-group-discovery-online-participant-workbook-for-employment/) - Employment Online Participant Workbook Guided Group Discovery assists job seekers who face barriers to employment in identifying jobs that would be a good fit for them and an employer. The LEAD Center released the Guided Group Discovery Online Participant Workbook to help these job seekers in their search. This user-friendly tool allows youth and adults
- [Securing rights and nutritional health for persons with intellectual disabilities – a pressing challenge | Food & Nutrition Research](https://healthmattersprogram.org/2018/06/11/securing-rights-and-nutritional-health-for-persons-with-intellectual-disabilities-a-pressing-challenge-food-nutrition-research/) - Source: Securing rights and nutritional health for persons with intellectual disabilities – a pressing challenge | Food & Nutrition Research Svein Olav Kolset Sigrun Hope Kjetil Retterstøl Marianne Nordstrøm Per Ole Iversen DOI: https://doi.org/10.29219/fnr.v62.1268 Download Article Abstract Persons with intellectual disabilities (ID) are dependent on nutritional policies that have so far not been addressed in
- [Community Support Services | Recipe Collections](https://healthmattersprogram.org/2018/06/11/community-support-services-recipe-collections/) - Source: Community Support Services | Recipe Collections Community Support Services, Inc. provides services to individuals with autism in Montgomery County in Maryland
- [Introducing Active Engagement: A new program for teaching cooking skills to individuals with IDD - Webinar](https://healthmattersprogram.org/2018/06/11/introducing-active-engagement-a-new-program-for-teaching-cooking-skills-to-individuals-with-idd-webinar/) - Source: Introducing Active Engagement: A new program for teaching cooking skills to individuals with IDD Presented by Janice Goldschmidt, MS, RD, LDN Content Overview: This presentation will launch a book that will be published by AAIDD in June. The title is Active Engagement: Teaching Authentic Cooking Skills to Adults with Intellectual and Developmental Disabilities. Janice
- [State Employment First Policies: Research to Practice State](https://healthmattersprogram.org/2018/06/11/state-employment-first-policies-research-to-practice-state/) - This brief is the first in a series focusing on Employment First implementation as it relates to one of the seven elements within the High-Performing States in Integrated Employment model1. It examines the background of circumstances under which Employment First efforts began in seven states, and introduces each state’s values, mission, and goals around increasing
- [Promoting Better Health Beyond Health Care](https://healthmattersprogram.org/2018/06/11/promoting-better-health-beyond-health-care/) - State-level multi-sector actions for addressing the social, economic, and environmental factors that impact health May 2018 As part of their Better Health Beyond Health Care initiative, the Center for Health Care Strategies (CHCS) conducted a national analysis on innovative ways to promote health. This report discusses the resulting findings and summarizes information from thirty key
- [Mental Health-related Physician Office Visits by Adults Aged 18 and Over: United States, 2012–2014](https://healthmattersprogram.org/2018/06/11/mental-health-related-physician-office-visits-by-adults-aged-18-and-over-united-states-2012-2014/) - Source: Products - Data Briefs - Number 311 - June 2018 Key findings Data from the National Ambulatory Medical Care Survey Among adults aged 18 and over, the rate of mental health-related physician office visits to psychiatrists (693 per 10,000 adults) was higher compared with the rate to primary care physicians overall (397 per 10,000
- [Family Leisure Toolkit | Parents with Mental Illnesses](https://healthmattersprogram.org/2018/06/11/family-leisure-toolkit-parents-with-mental-illnesses/) - Leisure participation is important for the development of healthy family relationships. Source: Family Leisure Toolkit | Parents with Mental Illnesses Leisure Education Toolkit for Parents with Mental Illnesses This toolkit is an evidence-based guide that will help parents better understand the importance of family leisure and develop strategies to participate in meaningful family leisure.
- [Health Matters | The Arc of San Antonio](https://healthmattersprogram.org/2018/06/05/health-matters-the-arc-of-san-antonio/) - Amerigroup is proud to support The Arc of San Antonio Source: Health Matters | The Arc of San Antonio San Antonio, TX – According to the Centers for Disease Control, adults with disabilities have an almost 60 percent higher rate of obesity than adults without disabilities. The Arc of San Antonio is thrilled to announce that
- [Supporting advanced dementia in people with Down syndrome and other intellectual disability: consensus statement of the International Summit on Intellectual Disability and Dementia](https://healthmattersprogram.org/2018/06/01/supporting-advanced-dementia-in-people-with-down-syndrome-and-other-intellectual-disability-consensus-statement-of-the-international-summit-on-intellectual-disability-and-dementia/) - M. McCarron,1 P. McCallion,2 A. Coppus,3 J. Fortea,4 S. Stemp,5 M. Janicki6 & K. Watchman7 1School of Nursing and Midwifery Studies, Trinity College Dublin, Dublin, Ireland 2 College of Public Health, Temple University, Philadelphia, PA, USA 3 University Medical Center, Radboud Universiteit, Nijmegen, Gelderland, The Netherlands 4 Fundacio Catalana per a la Recerca i la
- [2017 National Research Summit on Dementia Care, Services and Supports for Persons with Dementia and their Caregivers: Final Report](https://healthmattersprogram.org/2018/06/01/2017-national-research-summit-on-dementia-care-services-and-supports-for-persons-with-dementia-and-their-caregivers-final-report/) - The final report from the 2017 National Research Summit on Dementia Care, Services and Supports for Persons with Dementia and their Caregivers has been released. Download Summit Final Recommendations 5-17-18 and the Summit Final Report 5-17-18. The RRTCDD and the National Task Group on Intellectual Disabilities and Dementia Practice developed one of the pre-summit reports and presented
- [The relationship between employment and health and health care among working-age adults with and without disabilities in the United States](https://healthmattersprogram.org/2018/06/01/the-relationship-between-employment-and-health-and-health-care-among-working-age-adults-with-and-without-disabilities-in-the-united-states/) - The relationship between employment and health and health care among working-age adults with and without disabilities in the United States Source: The relationship between employment and health and health care among working-age adults with and without disabilities in the United States: Disability and Rehabilitation: Vol 0, No 0 Amanda Reichard,Michelle Stransky,Debra Brucker &Andrew Houtenville Received 08
- [Mobile Accommodation Solution](https://healthmattersprogram.org/2018/06/01/jan-training-downloads/) - The free Mobile Accommodation Solution (MAS) app is designed to streamline the disability accommodation process. The MAS app serves as a first-generation mobile case management tool to help employers, service providers, and individuals effectively address accommodation requests in the workplace. Source: JAN Training Downloads The app will support talent management, human resources, and/or accommodation staff
- [County-Level Disability Prevalence and Employment Statistics Compendium | Now Available](https://healthmattersprogram.org/2018/06/01/county-level-disability-prevalence-and-employment-statistics-compendium-now-available/) - These reports complement and provide greater depth to the topics found in the Annual Disability Statistics Compendium and Annual Disability Statistics Supplement. Each report provides statistics on the prevalence and employment of people with and without disabilities for each county in any given state in the US. Reports include a background and interpretive text specific
- [Y Living Center - YMCA of Greater San Antonio](https://healthmattersprogram.org/2018/06/01/y-living-center-ymca-of-greater-san-antonio/) - Source: Y Living Center - YMCA of Greater San Antonio In partnership with The ARC of San Antonio, Health Matters™ is a program designed for adults with intellectual and developmental disabilities and their caregivers who want to become better informed about their own health, nutrition, and fitness. 12-week program that will meet three times a
- [The Arc Awarded Grant from Anthem Foundation for Health and Fitness for All Project](https://healthmattersprogram.org/2018/06/01/the-arc-awarded-grant-from-anthem-foundation-for-health-and-fitness-for-all-project/) - Source: The Arc Awarded Grant from Anthem Foundation for Health and Fitness for All Project | The Arc Blog Posted on December 7, 2017 by The Arc Grant will support programming in Kentucky, Texas and Wisconsin Washington, DC – The Arc is pleased to announce it has received nearly $88,000 of funding from the Anthem Foundation, the philanthropic
- [Early death and causes of death of people with Down syndrome: A systematic review - O'Leary - JARID](https://healthmattersprogram.org/2018/06/01/early-death-and-causes-of-death-of-people-with-down-syndrome-a-systematic-review-oleary-jarid/) - Early death and causes of death of people with Down syndrome: A systematic review Source: Early death and causes of death of people with Down syndrome: A systematic review - O'Leary -Journal of Applied Research in Intellectual Disabilities - Wiley Online Library
- [Bike Share Intervention: Improving Wellness & Community Access](https://healthmattersprogram.org/2018/06/01/bike-share-intervention-improving-wellness-community-access/) - Source: Temple Collaborative on Community Inclusion | Apr 16, 2018 Download Bike Share Program Manual At The Collaborative, we love biking! Many of us are active cyclists who peddle our path to fun and fitness. As biking grows in popularity, we want to do our part to encourage consumers to give it a try. In this effort, The
- [Know the Science](https://healthmattersprogram.org/2018/06/01/know-the-science/) - Source: National Center for Complementary and Integrative Health (NCCIH) - Know the Science Why is it important to know the science of health? Simply put, because there is a lot of misinformation out there—from anecdotes disguised as evidence to excessive claims made by supplement manufacturers to TV doctors touting the latest "miracle cure." On this
- [City Health Dashboard](https://healthmattersprogram.org/2018/05/18/city-health-dashboard/) - Empowering cities to create thriving communities: Explore health in your city Source: https://www.cityhealthdashboard.com/ Learn how other communities have successfully woven health into their decision-making around issues such as education, access to affordable housing, and unemployment. This section includes new articles on how cities are using the Dashboard, posts from the City Health Dashboard team, and feature
- [NTG Caregiver Newsletter May June 2018](https://healthmattersprogram.org/2018/05/17/ntg-caregiver-newsletter-may-june-2018/) - NATIONAL TASK GROUP ON INTELLECTUAL DISABILITIES AND DEMENTIA PRACTICES Volume 2 Issue 3 NTG Caregiver News May—June 2018 Download (PDF) the NTG Caregiver Newsletter for May June, 2018. If you have any questions or comments please email ntgfamilyadvocate@gmail.com.
- [National Center on Educational Outcomes Brief 15: Students with Disabilities and Chronic Absenteeism](https://healthmattersprogram.org/2018/05/17/national-center-on-educational-outcomes-brief-15-students-with-disabilities-and-chronic-absenteeism/) - Students with Disabilities National Center on Educational Outcomes Brief 15: Students with Disabilities and Chronic Absenteeism https://bit.ly/2Ke9Mdi This brief provides information about chronic absenteeism and possible implications for students with disabilities when a state selects it as a measure of school quality or student success. The brief highlights both the benefits and potential risks in
- [MLTSS for People for Intellectual and Developmental Disabilities: Strategies for Success](https://healthmattersprogram.org/2018/05/17/mltss-for-people-for-intellectual-and-developmental-disabilities-strategies-for-success/) - Managed Long-term Services and Supports (MLTSS) MLTSS for People for Intellectual and Developmental Disabilities: Strategies for Success https://bit.ly/2L8obcg The National Association of States United for Aging and Disabilities (NASUAD), along with the National Association of State Directors of Developmental Disabilities Services (NASDDDS) and Ari Ne'eman of Mysupport.com are the authors of this important report MLTSS for
- [Opportunities for Improving Programs and Services for Children with Disabilities ](https://healthmattersprogram.org/2018/05/17/opportunities-for-improving-programs-and-services-for-children-with-disabilities/) - Health Services Opportunities for Improving Programs and Services for Children with Disabilities Source: https://bit.ly/2k3LxDF While a variety of services and programs exist to support the needs of children with disabilities and their families, a focus on achieving specific near- and long-term goals that help prepare for adulthood and coordination of care within and across service
- [Responsive Practice | Institute on Disability/UCED](https://healthmattersprogram.org/2018/05/10/responsive-practice-institute-on-disabilityuced/) - "Responsive Practice builds on knowledge that providers already have and identifies opportunities to maximize wellness for individuals with disabilities," explains Kimberly Phillips, DPH Principal Investigator and co-author of the training." Source: Responsive Practice | Institute on Disability/UCED Responsive Practice Responsive Practice: Providing Health Care & Screenings to Individuals with Disabilities https://bit.ly/2ryQ30t The New Hampshire Disability
- [Activity for All Children | CDC](https://healthmattersprogram.org/2018/05/10/activity-for-all-children-features-cdc/) - Everybody needs physical activity for good health. However, most children do not participate in any organized physical activity during non-school hours. See how inclusive after-school programs can help increase physical activity among children of all abilities. Source: Activity for All Children | Features | CDC Children and adolescents ages 6 years and older should perform
- [Home | All Of Us Art Experience](https://healthmattersprogram.org/2018/05/04/home-all-of-us-art-experience/) - Source: Home | All Of Us Art Experience Join us for the official launch of the All of UsResearch Program. Help us advance precision medicine. Watch live on Sunday, May 6, 2018. SPEAKERS INCLUDE Francis Collins,M.D., Ph.D. Dara Richardson-Heron, M.D. Eric Dishman
- [May is Mental Health Month](https://healthmattersprogram.org/2018/05/03/may-is-mental-health-month/) - Since 1949, Mental Health America and our affiliates across the country have led the observance of May is Mental Health Month by reaching millions of people through the media, local events and screenings. We welcome other organizations to join us in spreading the word that mental health is something everyone should care about by using
- [Responsive Practice Providing Health Care & Screenings to Individuals with Disabilities](https://healthmattersprogram.org/2018/05/02/responsive-practice-providing-health-care-screenings-to-individuals-with-disabilities/) - The Responsive Practice training is online, on-demand, free for a limited time, and eligible for continuing education & continuing medical education credits. Responsive Practice enhances health care providers’ ability to deliver culturally competent, accessible care to people with intellectual, mobility, and other disabilities. Learning objectives: Describe disparities in health experienced by people with disabilities compared to
- [Let’s Talk Employment A Guide for Family Members of Individuals in Mental Health Recovery](https://healthmattersprogram.org/2018/05/02/lets-talk-employment-a-guide-for-family-members-of-individuals-in-mental-health-recovery/) - Center for Psychiatric Rehabilitation Here are ten individuals who would like to tell you what work has meant to them. “We Can Work.” New York Association for Psychiatric Rehabilitation Services (NYAPRS), https://www.youtube.com/watch?v=dC4FQpn0Fko. Download Let's Talk Employment Guide
- [Perspectives on family caregiving of people aging with intellectual disability affected by dementia: Commentary from the International Summit on Intellectual Disability and Dementia](https://healthmattersprogram.org/2018/03/07/perspectives-on-family-caregiving-of-people-aging-with-intellectual-disability-affected-by-dementia-commentary-from-the-international-summit-on-intellectual-disability-and-dementia/) - Journal of Gerontological Social Work (JGSW) 61(4) 411-431. Nancy Jokinen is the senior author. A number of Summit members, representing various nationalities, participated in the writing of this article [Nancy Jokinen, Tiziano Gomiero, Karen Watchman, Matthew P. Janicki, Mary Hogan, Frode Larsen, Anna Beránková, Flávia Heloísa Santos, Kathy Service, & Jim Crowe] Abstract: This article, an
- [Health conditions, functional status and health care utilization in adults with cerebral palsy](https://healthmattersprogram.org/2018/04/27/health-conditions-functional-status-and-health-care-utilization-in-adults-with-cerebral-palsy/) - Family Practice, 2018, 1–10 doi:10.1093/fampra/cmy027 Robert J Fortuna1,*, Ashley Holub2, Margaret A Turk3, Jon Meccarello4 and Philip W Davidson4 1 Departments of Internal Medicine and Pediatrics and 2 Department of Public Health Sciences, University of Rochester, Rochester, NY, USA, 3 Department of Pediatrics and Physical Medicine and Rehabilitation, State University of New York Upstate Medical
- [Health services use and costs for Americans with intellectual and developmental disabilities: A national analysis](https://healthmattersprogram.org/2018/04/05/health-services-use-and-costs-for-americans-with-intellectual-and-developmental-disabilities-a-national-analysis/) - Fujiura, G. T.,Li, H., & Magana, S. (2018) Health services use and costs for Americans with intellectual and developmental disabilities: A national analysis. Intellectual and Developmental Disabilities. 56, (2) p. 101–118. DOI: 10.1352/1934-9556-56.2.101 Abstract Health services and associated costs for adults with intellectual and developmental disabilities (IDD) were nationally profiled and the predictors of high
- [Impact of Medicaid Managed Care on Illinois’s acute health services expenditures for adults with intellectual and developmental disabilities](https://healthmattersprogram.org/2018/04/05/impact-of-medicaid-managed-care-on-illinoiss-acute-health-services-expenditures-for-adults-with-intellectual-and-developmental-disabilities/) - Yamaki, K., Wing, C., Mitchell, D., Owen, R. & Heller, T. (2018) Impact of Medicaid Managed Care on Illinois’s acute health services expenditures for adults with intellectual and developmental disabilities, Intellectual and Developmental Disabilities, 56 (2), p. 133–146. DOI: 10.1352/1934-9556-56.2.133 Abstract States have increasingly transitioned Medicaid enrollees with disabilities from fee-for-service (FFS)to Medicaid Managed Care
- [Inclusive Innovation in Parks and Recreation - News & Media | Health.gov](https://healthmattersprogram.org/2018/04/03/inclusive-innovation-in-parks-and-recreation-news-media-health-gov/) - Inclusive Innovation in Parks and Recreation Source: Inclusive Innovation in Parks and Recreation - News & Media | Health.gov By Allison Tubbs, Project Coordinator, National Center on Health, Physical Activity and Disability and Maureen Acquino, Program Specialist, National Recreation and Park Association Park and recreation agencies are leading the way to inclusive communities across the country. Since the
- [New Hampshire Adults with Disabilities Are Motivated to Quit Smoking](https://healthmattersprogram.org/2018/04/03/new-hampshire-adults-with-disabilities-are-motivated-to-quit-smoking/) - The New Hampshire (NH) Disability & Public Health Project created a new data brief entitled, “New Hampshire Adults with Disabilities Are Motivated to Quit Smoking”. To better understand smoking trends and attempts to quit among people with disabilities in NH, the NH Disability and Public Health Project (DPH) worked with the NH Tobacco Prevention and
- [Removing Barriers and Facilitating Access: Increasing the Number of Physicians With Disabilities](https://healthmattersprogram.org/2018/03/31/removing-barriers-and-facilitating-access-increasing-the-number-of-physicians-with-disabilities/) - Source: Removing Barriers and Facilitating Access: Increasing the Number of Physicians With Disabilities: Academic Medicine Meeks, Lisa, M.; Herzer, Kurt; Jain, Neera, R. Download PDF ABSTRACT Nearly one-fifth of the U.S. population has a disability, and many of these Americans experience disparities in the health care they receive. In part, these health care disparities result
- [Paving the Way for Medical Students, Physicians With Disabilities](https://healthmattersprogram.org/2018/03/31/paving-the-way-for-medical-students-physicians-with-disabilities/) - Source: Paving the Way for Medical Students, Physicians With Disabilities Tuesday, March 13, 2018 |by Stacy Weiner, Senior Writer A new report explores the experiences of students and residents with disabilities and outlines promising practices for medical schools and teaching hospitals. Medical schools and teaching hospitals are striving to support learners with disabilities, yet they often
- [Mayo Clinic Alumni Association | ‘It can be done:’ Mayo Clinic School of Medicine evolves, accommodating a student’s disabilities](https://healthmattersprogram.org/2018/02/22/mayo-clinic-alumni-association-it-can-be-done-mayo-clinic-school-of-medicine-evolves-accommodating-a-students-disabilities/) - Source: Mayo Clinic Alumni Association | ‘It can be done:’ Mayo Clinic School of Medicine evolves, accommodating a student’s disabilities When Leah Grengs Thompson, M.D. (MED ’17), was 6 years old, the Americans with Disabilities Act (ADA) became law. The ADA prohibits discrimination against individuals with disabilities in all areas of public life including jobs,
- [Loneliness in people with intellectual and developmental disorders across the lifespan: A systematic review of prevalence and interventions - Alexandra - 2018 - JARID](https://healthmattersprogram.org/2018/02/20/loneliness-in-people-with-intellectual-and-developmental-disorders-across-the-lifespan-a-systematic-review-of-prevalence-and-interventions-alexandra-2018-jarid/) - The aim of the study was to conduct the first systematic review investigating the prevalence of loneliness in people with intellectual developmental disabilities (IDD) and the interventions targeting loneliness. Source: Loneliness in people with intellectual and developmental disorders across the lifespan: A systematic review of prevalence and interventions - Alexandra - 2018 - Journal of
- [Embedding routine health checks for adults with intellectual disabilities in primary care: practice nurse perceptions - Macdonald - 2018 - JIDR](https://healthmattersprogram.org/2018/02/20/embedding-routine-health-checks-for-adults-with-intellectual-disabilities-in-primary-care-practice-nurse-perceptions-macdonald-2018-jidr/) - Qualitative study in General Practices located in NHS Greater Glasgow and Clyde, Scotland, UK.MethodEleven practice nurses from 11 intervention practices participated in a semi-structured interview. Analysis was guided by a framework approach. Source: Embedding routine health checks for adults with intellectual disabilities in primary care: practice nurse perceptions - Macdonald - 2018 - Journal of
- [2016 Disability Status Report](https://healthmattersprogram.org/2018/02/19/2016-disability-status-report/) - Disability Statistics 2016 Disability Status Report http://bit.ly/2GfvPhN This annual report from Cornell University provides a summary of the most recent demographic and economic statistics on the non-institutionalized population with disabilities. The report includes information about the population size and disability prevalence for various demographic subpopulations. Statistics related to employment, earnings, household income, veterans' service-connected disability
- [PCPID Releases Report on Direct Support Workforce | Administration for Community Living](https://healthmattersprogram.org/2018/02/19/pcpid-releases-report-on-direct-support-workforce-administration-for-community-living/) - February 14, 2018 The President’s Committee for People with Intellectual Disabilities (PCPID) has released its 2017 report, America’s Direct Support Workforce Crisis: Effects on People with Intellectual Disabilities, Families, Communities and the U.S. Economy. Source: PCPID Releases Report on Direct Support Workforce | ACL Administration for Community Living Direct support professionals (DSPs) provide services and
- [<B>Beyond Care Coordination: Cross-Systems Care Integration for Adults with IDD<br><font color="black"> Betty Geer, DNP, RN, CPNP · Brystal Karber, BA · Nichole Guerra, DBA <br>February 15th, 2018</font color="black"></B>](https://healthmattersprogram.org/2018/01/09/beyond-care-coordination-cross-systems-care-integration-for-adults-with-idd-nichole-guerra-and-betty-geer-february-15th-2018/) - RRTCDD and The Arc 2018 Health and Wellness Webinar Series Webinar 2: Beyond Care Coordination: Cross-Systems Care Integration for Adults with Intellectual and Developmental Disabilities 3:00 pm, Eastern Standard Time PLAY RECORDING (1 hr 6 min) Download Presentation Slides Abstract: This presentation will define a new experimental role known as the Care Integration Specialist and explain
- [Healthy Relationships and Healthy Sexuality for People with Developmental Disability](https://healthmattersprogram.org/2018/02/13/healthy-relationships-and-healthy-sexuality-for-people-with-developmental-disability/) - RRTCDD 2016/17 Fall/Winter Health and Wellness Series Presenter: Susan Kahan, MA, LCPC (skahan@uic.edu) Play recording (1 hr 4 min) Download Sexuality and Healthy Relationships PowerPoint Presentation Thursday, January 19, 2017 3:00pm | Eastern Daylight Time Presenter Biosketch: Susan is the clinical staff at the University of Illinois at Chicago Developmental Disability Family Clinics, Susan, provides individual and
- [Missouri AAIDD](https://healthmattersprogram.org/2018/02/12/missouri-aaidd/) - 2018 SPRING WORKSHOPS FEATURING Jasmina Sisirak, PhD, MPH and Beth Marks, PhD, RN, FAAN Developers of the HealthMatters Program Download 2018-Spring-Conference-Health-Matters flyer for more information.
- [Smoking Among Ohioans with Disabilities](https://healthmattersprogram.org/2018/02/12/smoking-among-ohioans-with-disabilities/) - The Ohio Disability and Health Program has developed a fact sheet to raise awareness regarding smoking disparities faced by Ohioans with disabilities. http://go.osu.edu/ODHPsmokingfacts2018 or download ODHP_Smoking-Factsheet-2018. For further information, please contact Ann Robinson, Program Coordinator, Ohio Disability and Health Program. Overview Smoking accounts for half a million deaths every year and is of particular concern among
- [At the intersection of chronic disease, disability and health services research: A scoping literature review](https://healthmattersprogram.org/2018/01/17/at-the-intersection-of-chronic-disease-disability-and-health-services-research-a-scoping-literature-review/) - https://doi.org/10.1016/j.dhjo.2017.12.012 Abstract Background There is a concerted effort underway to evaluate and reform our nation’s approach to the health of people with ongoing or elevated needs for care, particularly persons with chronic conditions and/or disabilities. Objective This literature review characterizes the current state of knowledge on the measurement of chronic disease and disability in population-based
- [Health care expenditures of overweight and obese U.S. adults with intellectual and developmental disabilities](https://healthmattersprogram.org/2018/02/07/health-care-expenditures-of-overweight-and-obese-u-s-adults-with-intellectual-and-developmental-disabilities/) - Henan Lia,a, Glenn Fujiura,b, Sandra Magaña,c, Susan Parish,d a Lurie Institute for Disability Policy, The Heller School for Social Policy and Management, Brandeis University, USA b Department of Disability and Human Development, The University of Illinois at Chicago, USA c Steve Hicks School of Social Work, University of Texas at Austin, USA d Bouvé College
- [CDC - NIOSH Total Worker Health Webinar Series](https://healthmattersprogram.org/2018/01/25/cdc-niosh-total-worker-health-webinar-series/) - NIOSH Total Worker Health® program Source: CDC - NIOSH Total Worker Health Webinar Series Webinar Series Recognizing the complex, often interlinked hazards affecting the health, safety, and well-being of today’s workforce, the NIOSH Total Worker Health® program is excited to present a free webinar series aimed at providing the latest research and case studies for protecting
- [Broad PCORI Funding Announcements - Cycle 1 2018 (for Addressing Disparities, Assessment of Options, Communication and Dissemination Research, Improving Healthcare Systems) | PCORI](https://healthmattersprogram.org/2018/01/25/broad-pcori-funding-announcements-cycle-1-2018-for-addressing-disparities-assessment-of-options-communication-and-dissemination-research-improving-healthcare-systems-pcori/) - Source: Broad PCORI Funding Announcements - Cycle 1 2018 (for Addressing Disparities, Assessment of Options, Communication and Dissemination Research, Improving Healthcare Systems) | PCORI Letters of Intent are due Tuesday, February 13, 2018, by 5:00 p.m. ET. Those selected to submit a full application will be notified by Wednesday, March 14, 2018. Full applications are
- [Deborah Munroe Noonan Memorial Research Fund - Health Resource in Action](https://healthmattersprogram.org/2018/01/25/deborah-munroe-noonan-memorial-research-fund-health-resource-in-action/) - Source: Deborah Munroe Noonan Memorial Research Fund - Health Resource in Action The Deborah Munroe Noonan Memorial Research Fund, established in 1947 by Frank M. Noonan in memory of his mother, continues its proud tradition of supporting improvements in the quality of life for children with disabilities with one-year grants up to $80,000 (inclusive of
- [Compounded Disparities: Health Equity at the Intersection of Disability, Race, and Ethnicity](https://healthmattersprogram.org/2018/01/24/compounded-disparities-health-equity-at-the-intersection-of-disability-race-and-ethnicity/) - Source: Compounded Disparities: Health Equity at the Intersection of Disability, Race, and Ethnicity - NEW : Health and Medicine Division DOWNLOAD PDF: Compounded Disparities - Intersection of Disabilities Race and Ethnicity AUTHORS: Silvia Yee, LL.B., M.A., Mary Lou Breslin, M.A., Tawara D. Goode, M.A., Susan M. Havercamp, Ph.D., FAAIDD, Willi Horner-Johnson, Ph.D., Lisa I. Iezzoni, M.D.,
- [<b>Health of Parents with Disabilities<BR><font color="black">Susan Parish, PhD, MSW<BR>January, 18th, 2018</font color="black"></b>](https://healthmattersprogram.org/2018/01/09/health-of-parents-with-disabilities/) - Webinar 1: Health of Parents with Disabilities Play recording (57 min) View Health of Parents with Disabilities Presentation Handouts Compendium of Health Data Sources for Parents with Disabilities in the United States Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children Presenter: Susan Parish, PhD, MSW (s.parish@northeastern.edu) Abstract: The health of
- [The Guide to Community Preventive Services and Disability Inclusion](https://healthmattersprogram.org/2018/01/16/the-guide-to-community-preventive-services-and-disability-inclusion/) - Source: The Guide to Community Preventive Services and Disability Inclusion - ScienceDirect Why is this important? One in five adults in the United States have some type of disability (CDC, 2017). Adults with disabilities are more likely to be obese, smoke, have high blood pressure, and be physically inactive than adults without disabilities(CDC, 2017). Increased
- [I Use a Wheelchair. And Yes, I’m Your Doctor. - The New York Times](https://healthmattersprogram.org/2018/01/13/i-use-a-wheelchair-and-yes-im-your-doctor-the-new-york-times/) - When I was in the third year of my medical residency, I was asked to evaluate a new state-of-the-art, fully accessible exam table that would be used in doctors’ offices to better provide care for patients with mobility-related disabilities. The table could go as low as 18 inches off the ground to enable easier transfers
- [Abused And Betrayed: People With Intellectual Disabilities And An Epidemic Of Sexual Assault : NPR](https://healthmattersprogram.org/2018/01/13/abused-and-betrayed-people-with-intellectual-disabilities-and-an-epidemic-of-sexual-assault-npr/) - Source: Abused And Betrayed: People With Intellectual Disabilities And An Epidemic Of Sexual Assault : NPR NPR Special Series: Abused and Betrayed: People with Intellectual Disabilities and an Epidemic of Sexual Assault https://www.npr.org/series/575502633/abused-and-betrayed At a moment of reckoning in the United States about sexual harassment and sexual assault, a yearlong NPR investigation finds that there's
- [Diversity & Inclusion Toolkit](https://healthmattersprogram.org/2018/01/13/diversity-inclusion-toolkit/) - Source: Toolkit | Home The Diversity & Inclusion Toolkit is one way AUCD provides resources and strategies to, “champion and model diversity, equity and inclusion.” AUCD is continually searching for resources to make available at the Diversity & Inclusion website. In December, 10 recently added resources are highlighted. The focus of these resources includes health
- [Disability Stigma and Your Patients | Rehabilitation Research and Training Center on Aging With Physical Disabilities](https://healthmattersprogram.org/2018/01/12/disability-stigma-and-your-patients-rehabilitation-research-and-training-center-on-aging-with-physical-disabilities-2/) - Source: Disability Stigma and Your Patients | Rehabilitation Research and Training Center on Aging With Physical Disabilities Download Document on Aging Stigma For people with disabilities, stigma can be a major barrier to participation. Stigmatizing attitudes about disabilities can also affect relationships between patients and providers. However, health care providers can be allies with their patients
- [Health Care for People with Intellectual and Developmental Disabilities across the Lifespan](https://healthmattersprogram.org/2018/01/12/health-care-for-people-with-intellectual-and-developmental-disabilities-across-the-lifespan-2/) - Source: Health Care for People with Intellectual and Developmental | I. Leslie Rubin | Springer Offers an unique lifespan approach on Health Care for People with Intellectual and Developmental Disabilities Addresses the Clinical as well as the Systems of Delivery of Health Care Provides a practical approach to dealing with health and well-being of people
- [<B>Anxiety and Depression in Adults with IDD: Prevalence, Risk Factors, and Applications<BR><font color="black">Kelly Hsieh, PhD and Haleigh Scott, PhD<BR>April 19th, 2018</font color="black"></B>](https://healthmattersprogram.org/2018/01/09/anxiety-and-depression-in-adults-with-idd-prevalence-risk-factors-and-applicationskelly-hsieh-phd-and-haleigh-scott-phdmarch-15th-2018/) - Webinar 4: Anxiety and Depression in Adults with IDD: Prevalence, Risk Factors, and Applications 3:00 pm, Eastern Standard Time Register for Webinar Presenters: Kelly Hsieh, PhD (hsieh@uic.edu) and Haleigh Scott, PhD (hscott8@uic.edu) Abstract: Depression and anxiety are the most frequent mental disorders in adults with intellectual and developmental disabilities (IDD). People with IDD may experience more
- ['It's Not Easy': School Nurse Pain Assessment Practices for Students with Special Needs](https://healthmattersprogram.org/2018/01/05/its-not-easy-school-nurse-pain-assessment-practices-for-students-with-special-needs/) - Brenna L. Quinn PhD, RN, NCSN Assistant Professor, Susan & Alan Solomont School of Nursing, Email: Brenna_Quinn@uml.edu Abstract Assessing pain in children with special needs presents unique challenges for school nurses, as no evidence-based or clinical standards to guide practices have been established for use in the school setting. Additionally, school nurse staffing has not
- [Reported gum disease as a cardiovascular risk factor in adults with intellectual disabilities](https://healthmattersprogram.org/2017/12/06/reported-gum-disease-as-a-cardiovascular-risk-factor-in-adults-with-intellectual-disabilities/) - Hsieh, K., Murthy, S., Heller, T., Rimmer, J., Yen, G. (2017). Reported gum disease as a cardiovascular risk factor in adults with intellectual disabilities. Journal of Intellectual Disability Research, DOI: 10.1111/jir.12438 http://onlinelibrary.wiley.com/doi/10.1111/jir.12438/abstract ABSTRACT Background Several risk factors for cardiovascular disease (CVD) have been identified among adults with intellectual disabilities (ID). Periodontitis has been reported to
- [Low Levels of Physical Activity and Sedentary Behavior in Adults with Intellectual Disabilities](https://healthmattersprogram.org/2017/12/05/low-levels-of-physical-activity-and-sedentary-behavior-in-adults-with-intellectual-disabilities/) - Int. J. Environ. Res. Public Health 2017, 14(12), 1503; doi:10.3390/ijerph14121503 Kelly Hsieh 1,* , Thessa I. M. Hilgenkamp 2, Sumithra Murthy 1, Tamar Heller 1 and James H. Rimmer 3 1 Department of Disability and Human Development, University of Illinois at Chicago, Chicago, IL 60609, USA 2 Department of Kinesiology and Nutrition, University of Illinois
- [Blind Spot: Understanding a disabled son’s vulnerability as a state of grace](https://healthmattersprogram.org/2017/12/04/blind-spot-understanding-a-disabled-sons-vulnerability-as-a-state-of-grace/) - American Journal of Nursing Blind Spot: Understanding a disabled son’s vulnerability as a state of grace by Diane Stonecipher, BSN, RN "His IQ may have been devastated, but his EQ has not. He has lived 25 years on this earth and his experiences are valuable and visceral to him." Diane Stonecipher is a nurse living and
- [National Council for Aging Care's Comprehensive Guide on Exercising for Seniors](https://healthmattersprogram.org/2017/12/04/national-council-for-aging-cares-comprehensive-guide-on-exercising-for-seniors/) - Comprehensive Guide on Exercising for Seniors When people think about their later years, they usually imagine a life freed from work or career commitments. They hope, too, that this new freedom will allow them to give their full attention to family, friends, and the activities they feel most passionate about. Making this dream a reality,
- [Principales conclusiones acordadas durante la Cumbre sobre discapacidad intelectual y demencia](https://healthmattersprogram.org/2017/11/30/principales-conclusiones-acordadas-durante-la-cumbre-sobre-discapacidad-intelectual-y-demencia/) - Matthew P. Janicki†, Karen Watchman*, Juan Fortea Ormaechea# and the members of the International Summit on Intellectual Disability and Dementia http://www.who.int/mental_health/neurology/dementia/action_plan_consultation/en/ † University of Illinois at Chicago, USA * University of Stirling, Scotland, UK # Fundació Catalana de Síndrome de Down (FCSD), Barcelona, España y Unidad de Memoria, Departamento de Neurología, Hospital de la Santa
- [National task group early detection screen for dementia](https://healthmattersprogram.org/2017/11/07/national-task-group-early-detection-screen-for-dementia/) - Esralew, L., Janicki, M.P.., & Keller, S M. (2017). National task group early detection screen for dementia (NTG-EDSD) [Chapter 11]. In V.P. Prasher (Ed.), Neurological assessments of dementia in Down syndrome and intelectual disabilities (pp. 197-213, Appendix I). Basel, Switzerland: Springer. DOI 10.1007/978-3-319-61720-6_11
- [The Intersection of Intellectual Disability and Dementia: Report of The International Summit on Intellectual Disability and Dementia](https://healthmattersprogram.org/2017/11/02/the-intersection-of-intellectual-disability-and-dementia-report-of-the-international-summit-on-intellectual-disability-and-dementia/) - Karen Watchman, PhD and Matthew P Janicki, PhD (Members of the International Summit on Intellectual Disability and Dementia) The Gerontologist, gnx160, https://doi.org/10.1093/geront/gnx160 Published: 02 November 2017 Abstract An International Summit on Intellectual Disability and Dementia, held in Glasgow, Scotland (October 13–14, 2016), drew individuals and representatives of numerous international and national organizations and universities with a stake in
- [Congressional Testimony on Aging - Tamar Heller](https://healthmattersprogram.org/2017/11/01/congressional-testimony/) - Tamar Heller, RRTCDD director, gave testimony before the United States Senate Special Committee on Aging on October 25, 2017. Her testimony addressed a number of issues facing older adults with intellectual and developmental disabilities including changes in health and health promotion, support for family caregivers, and retirement options. Download Full Testimony. For a video of
- [Working and Training with a Disability Just How Far Have Attitudes Evolved: Neurology Today](https://healthmattersprogram.org/2017/10/20/professionalism-working-and-training-with-a-disability-just-neurology-today/) - Professionalism: Working and Training with a Disability Just How Far Have Attitudes Evolved? Source: Working and Training with a Disability Just How Far Have Attitudes Evolved: Neurology Today Professionalism: Working and Training with a Disability Just How Far Have Attitudes Evolved? Hurley, Dan Neurology Today: October 19, 2017 - Volume 17 - Issue 20 - p
- [AdvocacyDenver Partners with Comcast to Air Two Public Service Announcements](https://healthmattersprogram.org/2017/03/24/2913/) - AdvocacyDenver’s Public Service Announcements are airing on COMCAST to celebrate our HealthMatters Program and Yoga 4All Abilities classes. Many thanks to the COMCAST production team, the Dahlia Campus for Health and Well-Being, Mudra Yoga Studio, and our “star” students! Watch the videos below: HealthMatters Program YouTube Channel AdvocacyDenver Webinars and Videos
- [Consensus Statement of the International Summit on Intellectual Disability and Dementia Related to Nomenclature](https://healthmattersprogram.org/2017/10/05/consensus-statement-of-the-international-summit-on-intellectual-disability-and-dementia-related-to-nomenclature-2/) - Article Citation: Matthew P. Janicki, Philip McCallion, Michael Splaine, Flavvia H. Santos, Seth M. Keller, and Karen Watchman (2017) Consensus Statement of the International Summit on Intellectual Disability and Dementia Related to Nomenclature. Intellectual and Developmental Disabilities: October 2017, Vol. 55, No. 5, pp. 338-346. https://doi.org/10.1352/1934-9556-55.5.338 Source: Consensus Statement of the International Summit on Intellectual
- [Beginning with Disability: A Primer (Paperback) - Routledge](https://healthmattersprogram.org/2017/10/02/beginning-with-disability-a-primer-paperback-routledge/) - While there are many introductions to disability and disability studies, most presume an advanced academic knowledge of a range of subjects. Beginning with Disability is the first introductory primer for disability studies aimed at first year students in two- and four-year colleges. This volume of essays across disciplines—including education, sociology, communications, psychology, social sciences, and
- [XCEL Training](https://healthmattersprogram.org/2017/09/27/xcel-training/) - XCEL is designed to give quick tips in an entertaining way to reception/support staff who interact with people with developmental disabilities in healthcare settings. It comprises of a 7 minute animated video, a fact sheet, and highlights other resources that are helpful. Source: Florida Center for Inclusive Communities (FCIC) XCEL Training
- [Obesity and Individuals with Intellectual and Developmental Disabilities A Research to Policy Brief](https://healthmattersprogram.org/2017/09/27/obesity-and-individuals-with-intellectual-and-developmental-disabilities-a-research-to-policy-brief/) - William H. Neumeier1, Christine Grosso2, James H. Rimmer1 1 University of Alabama at Birmingham and Lakeshore Foundation Research Collaborative 2 Association of University Centers on Disabilities Obesity is an increasingly common condition that is characterized by an increase in the number and size of fat cells in the body. Obesity is most commonly measured by
- [Disability Studies DVP Chat: Future of Disability Studies (with tweets) · Storify](https://healthmattersprogram.org/2017/09/26/disability-studies-dvp-chat-future-of-disability-studies-with-tweets-·-storify/) - On September 24, 2017, the Disability Visibility Project hosted a Twitter chat on the future of disability studies with guest hosts Lisa Diedrich, Anjali J. Forber-Pratt, Angel Miles, Adam P. Newman, Hailee Yoshizaki-Gibbons. Questions listed at the top. Source: #DisStudiesDVP chat: Future of Disability Studies (with tweets) · SFdirewolf · Storify
- [Prospects for an Impact Evaluation of Project SEARCH: An Evaluability Assessment](https://healthmattersprogram.org/2017/08/02/prospects-for-an-impact-evaluation-of-project-search-an-evaluability-assessment/) - Source: Prospects for an Impact Evaluation of Project SEARCH: An Evaluability Assessment Authors: Arif A. Mamun, Lori Timmins, and David C. Stapleton Download Report Project SEARCH has emerged as a promising program to address the challenges related to improving employment outcomes of youth with disabilities. It is a high school to work transition program that integrates
- [Link Checkers and Basic Accessibility Testers for Websites](https://healthmattersprogram.org/2017/09/14/link-checkers-and-basic-accessibility-testers-for-websites/) - Source: LiveWell RERC Leighanne Davis, B.S. Introduction Ensuring website optimization and ease of use are goals of any developer. This holds especially true for organizations disseminating a lot of information to a variety of users from different backgrounds and with different ability levels. Broken links or missing alt text can be frustrating for some people with
- [Consensus statement of the international summit on intellectual disability and Dementia related to post-diagnostic support](https://healthmattersprogram.org/2017/09/11/consensus-statement-of-the-international-summit-on-intellectual-disability-and-dementia-related-to-post-diagnostic-support/) - Karen Dodd-a, Karen Watchman-b, Matthew P. Janicki-c, Antonia Coppus-d,e, Claudia Gaertner-f, Juan Forteag-h, Flavia H. Santos-i,j, Seth M. Keller-k and Andre Strydom-l a-Department of Psychology, Surrey and Borders Partnership NHS Foundation Trust, Leatherhead, UK; b-University of Stirling, Scotland; c-University of Illinois at Chicago, USA; d Radboudumc, Nijmegen, The Netherlands; e Dichterbij Centre of the Intellectual
- [Medication and supplement use in older people with and without intellectual disability: An observational, cross-sectional study](https://healthmattersprogram.org/2017/09/11/medication-and-supplement-use-in-older-people-with-and-without-intellectual-disability-an-observational-cross-sectional-study/) - 1 Faculty of Pharmacy, University of Ljubljana, Ljubljana, Slovenia, 2 School of Pharmacy and Pharmaceutical Sciences, Trinity College Dublin, Dublin, Ireland, 3 IDS-TILDA School of Nursing and Midwifery, Trinity College Dublin, Dublin, Ireland, 4 Dean of the Faculty of Health Sciences, Trinity College Dublin, Dublin, Ireland, 5 School of Social Work, Temple University, Philadelphia, Pennsylvania,
- [Early Childhood Technical Assistance Center: Improving Systems, Practices and Outcomes for Young Children with Disabilities and their Families](https://healthmattersprogram.org/2017/09/14/early-childhood-technical-assistance-center-improving-systems-practices-and-outcomes-for-young-children-with-disabilities-and-their-families/) - Source: ECTACenter.org : The Early Childhood Technical Assistance Center : Improving Systems, Practices and Outcomes for Young Children with Disabilities and their Families Most recent additions to this page: National Child Traumatic Stress Network (2017) - established to improve access to care, treatment, and services for traumatized children and adolescents exposed to traumatic events. This resource
- [State Community Health Worker Models - NASHP](https://healthmattersprogram.org/2017/09/14/state-community-health-worker-models-nashp/) - As states transform their health systems many are turning to Community Health Workers (CHWs) to tackle some of the most challenging aspects of health improvement, such as facilitating care coordination, enhancing access to community-based services, and addressing social determinants of health. Source: State Community Health Worker Models - NASHP While state definitions vary, CHWs are
- [Big Data and the Americans with Disabilities Act](https://healthmattersprogram.org/2017/09/11/big-data-and-the-americans-with-disabilities-act/) - Source: Hastings Law Journal Sharona Hoffman Case Western Reserve University School of Law 68 Hastings Law Journal 777 (2017) Case Legal Studies Research Paper No. 2016-33 Date Written: 2017 Abstract While big data offers society many potential benefits, it also comes with serious risks. This Essay focuses on the concern that big data will lead to
- [Self-identifying as disabled and developing pride in disability aid overall well-being](https://healthmattersprogram.org/2017/09/11/self-identifying-as-disabled-and-developing-pride-in-disability-aid-overall-well-being/) - Date: August 28, 2017 Source: Oregon State University Summary: Experiencing stigma, the severity of a disability and a person's age and income level help determine whether someone with an impairment considers themselves to be a person with a disability, and experiencing stigma predicts whether those individuals will ultimately develop disability pride, new research shows. Experiencing
- [Caregiving and IDD and Dementia: Report of the Pre-Summit Workgroup on Caregiving and IDD](https://healthmattersprogram.org/2017/08/11/caregiving-and-intellectual-and-developmental-disabilities-and-dementia-report-of-the-pre-summit-workgroup-on-caregiving-and-idd/) - This report summarizes the findings and recommendations from a pre-summit activity for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers. The report was developed by a working group of experts in caregiving, dementia, and intellectual and developmental disabilities (IDD) and organized by the National Task Group on Intellectual
- [Publications and Papers from the International Summit on Intellectual Disability and Dementia](https://healthmattersprogram.org/2017/09/11/publications-and-papers-from-the-international-summit-on-intellectual-disability-and-dementia/) - (Glasgow, Scotland – October 13-14, 2016) DOWNLOAD Publications and Papers from the International Summit on Intellectual Disability and Dementia International Summit Consensus Statement: Intellectual Disability Inclusion in National Dementia Plan Abstract: The WHO has called for the development and adoption of national plans or strategies to guide public policy and set goals for services, supports,
- [Where All Bodies Are Exquisite](https://healthmattersprogram.org/2017/08/10/where-all-bodies-are-exquisite/) - Source: The New York Times It’s 2009, and I’m in Philadelphia to deliver a talk at a conference. During a long break, I decide to visit the Mutter Museum. I teach anatomy, and the Mutter houses a collection of so-called medical curiosities. I examine the wall of skulls, the cases full of skeletons, and go
- [New NACCHO Fact Sheet: Five Steps for Inclusive Health Promotion | Healthy People, Healthy Places](https://healthmattersprogram.org/2017/08/10/new-naccho-fact-sheet-five-steps-for-inclusive-health-promotion-healthy-people-healthy-places/) - NACCHO’s Health and Disability program recently released a new fact sheet, titled “Five Steps for Inclusive Promotion,” now available via the NACCHO Health and Disability webpage. Source: NACCHO’s Health and Disability Program This four-page resource provides health department staff with five action steps for the development and delivery of inclusive health promotion programs and activities. Each action step provides
- [2017 Direct Support Professional (DSP) Recognition Week is September 10-16!](https://healthmattersprogram.org/2017/08/09/2017-direct-support-professional-dsp-recognition-week-is-september-10-16/) - Plan Your DSP Recognition Week Celebration Source: American Network of Community Options and Resources Celebrate DSP Recognition Week! Join ANCOR in recognizing the dedication and accomplishments of outstanding Direct Support Professionals and expressing our appreciation for their vital contribution to communities across the country. We're already preparing for a big week of celebration for these
- [Safety of People with Intellectual Disabilities in Hospital. What Can the Hospital Pharmacist Do to Improve Quality of Care?](https://healthmattersprogram.org/2017/08/08/pharmacy-free-full-text-safety-of-people-with-intellectual-disabilities-in-hospital-what-can-the-hospital-pharmacist-do-to-improve-quality-of-care/) - How can pharmacists can contribute to safety by improving health outcomes and reducing health inequalities for people with intellectual disabilities? Source: Pharmacy | Free Full-Text Author: Bernadette Flood Abstract People with intellectual disabilities are vulnerable in healthcare environments. They experience health and healthcare inequalities, and when admitted to general hospitals are at a greater risk of
- [Attitudes towards people with physical or intellectual disabilities among nursing, social work and medical students (2017)](https://healthmattersprogram.org/2017/08/08/attitudes-towards-people-with-physical-or-intellectual-disabilities-among-nursing-social-work-and-medical-students-2017/) - Source: Wiley Online Library Journal of Clinical Nursing Authors: Kritsotakis, Galanis, Papastefanakis, Meidani, Philalithis, Kalokairinou, & Sourtzi Abstract Aims and objectives To examine and compare undergraduate healthcare students’ attitudes toward people with physical or intellectual disabilities in Greece. Background The experience that people with disabilities have with health care is a complex interaction between their
- [Include “Low-Tech” Options to Share Health Information with People with Disabilities](https://healthmattersprogram.org/2017/08/04/include-low-tech-options-to-share-health-information-with-people-with-disabilities-2/) - Source: New Hampshire Disability & Public Health Project (DPH) Data Briefs & Reports Health and medical information is commonly shared via web sites, social media, smart phone apps, and even text messaging. However, these high tech options are not accessible to all people. Adults with disabilities in New Hampshire (NH) are significantly less likely than adults
- [Include “Low-Tech” Options to Share Health Information with People with Disabilities](https://healthmattersprogram.org/2017/06/15/include-low-tech-options-to-share-health-information-with-people-with-disabilities/) - Source: University of New Hampshire, Disability and Public Health Project (NH UCEDD) Adults with disabilities in New Hampshire (NH) are significantly less likely than adults without disabilities to have access to information electronically. This can affect access to: Online communities that encourage healthy behaviors; Electronic health records & appointment reminders; Knowledge & strategies to maintain &
- [New Hampshire Adults with Disabilities Need Better Diabetes Prevention Care](https://healthmattersprogram.org/2017/08/04/new-hampshire-adults-with-disabilities-need-better-diabetes-prevention-care/) - Source: New Hampshire Disability & Public Health Project (DPH) Data Briefs & Reports In New Hampshire, adults with mobility and cognitive limitations are significantly more likely to experience diabetes (26%) than adults with no disability (9%).1 The disparity in diabetes prevalence results in higher costs to Medicaid programs and poorer health outcomes and quality of
- [New Health & Disability E-learning Module for Health Department Staff](https://healthmattersprogram.org/2017/08/02/new-health-disability-e-learning-module-for-health-department-staff/) - Source: NACCHO’s Health and Disability Program NACCHO’s Health and Disability Program is proud to announce a new online e-learning module titled, “Health and Disability 101: Training for Health Department Employees.” The purpose of this training is to educate health department staff about the benefits of including people with disabilities in all public health programs, products and
- [Pain and pain assessment in people with intellectual disability: Issues and challenges in practice](https://healthmattersprogram.org/2017/08/02/pain-and-pain-assessment-in-people-with-intellectual-disability-issues-and-challenges-in-practice/) - Source: 2017 - British Journal of Learning Disabilities - Wiley Online Library Authors: Owen Doody, Maria E. Bailey Abstract Accessible summary Pain is difficult to identify when people cannot communicate. If pain is not identified, it cannot be managed and causes stress. Pain assessment is essential in order to identify pain. Pain assessment requires a combination
- [“Tell me what they do to my body”: A survey to find out what information people with learning disabilities want with their medications](https://healthmattersprogram.org/2017/08/02/tell-me-what-they-do-to-my-body-a-survey-to-find-out-what-information-people-with-learning-disabilities-want-with-their-medications/) - Fifty-eight people completed the questionnaire. Many of them said they did not get enough information about their medicine. Most people wanted easy-read leaflets and pictures. Authors: Rebecca Fish, Chris Hatton, Umesh Chauhan Source: British Journal of Learning Disabilities - 2017 - Wiley Online Library Abstract Accessible summary We gave a questionnaire to self-advocates who were attending
- [Internet and cell phone usage patterns among young adults with intellectual disabilities](https://healthmattersprogram.org/2017/08/02/internet-and-cell-phone-usage-patterns-among-young-adults-with-intellectual-disabilities/) - Source: JARID Authors Cristina Jenaro, Noelia Flores, Maribel Cruz, Ma Carmen Pérez, Vanessa Vega, Víctor A Torres First published: 24 July 2017 Abstract Background The risks and opportunities associated with the use of technologies are of growing research interest. Patterns of technology usage illuminate these opportunities and risks. However, no studies have assessed the usage
- [Management and prevalence of long-term conditions in primary health care for adults with intellectual disabilities compared with the general population: A population-based cohort study](https://healthmattersprogram.org/2017/08/02/management-and-prevalence-of-long-term-conditions-in-primary-health-care-for-adults-with-intellectual-disabilities-compared-with-the-general-population-a-population-based-cohort-study/) - Source: JARID Sally-Ann Cooper, Laura Hughes-McCormack, Nicola Greenlaw, Alex McConnachie, Linda Allan, Marion Baltzer, Laura McArthur, Angela Henderson, Craig Melville, Paula McSkimming, Jill Morrison First published: 20 July 2017 Abstract Background In the UK, general practitioners/family physicians receive pay for performance on management of long-term conditions, according to best-practice indicators. Method Management of long-term conditions
- [What Effect Does Transition Have on Health and Well-Being in Young People with Intellectual Disabilities? A Systematic Review](https://healthmattersprogram.org/2017/08/02/3718/) - Source: JARID Background Transition to adulthood might be a risk period for poor health in people with intellectual disabilities. However, the present authors could find no synthesis of evidence on health and well-being outcomes during transition in this population. This review aimed to answer this question. MethodPRISMA/MOOSE guidelines were followed. Search terms were defined, electronic searches of
- [How I bridge 2 worlds as a deaf medical student](https://healthmattersprogram.org/2017/08/01/how-i-bridge-2-worlds-as-a-deaf-medical-student/) - Growing up as a deaf person has given me unique insights into patient care, which I hope to incorporate into my practice when I'm a physician. Source: How I bridge 2 worlds as a deaf medical student By VICTORIA MACPHERSON, OMS II MONDAY, FEB. 13, 2017 I was born profoundly deaf in both ears, which means
- [The Peter and Elizabeth C. Tower Foundation | Intellectual Disabilities](https://healthmattersprogram.org/2017/08/02/the-peter-and-elizabeth-c-tower-foundation-intellectual-disabilities/) - To be eligible for funding, organizations must be located in or primarily serve residents in one of the following geographic areas: Barnstable, Dukes, Essex, and Nantucket Counties of Massachusetts; Erie and Niagara Counties of New York. Source: The Peter and Elizabeth C. Tower Foundation | Intellectual Disabilities The Tower Foundation will now offer three opportunities per year to
- [2017 National Research Summit on Care, Services and Supports for Persons with Dementia and Their Caregivers](https://healthmattersprogram.org/2017/08/02/2017-national-research-summit-on-care-services-and-supports-for-persons-with-dementia-and-their-caregivers/) - The National Research Summit on Care, Services and Supports for Persons with Dementia and Their Caregivers is two-day meeting of researchers, service providers, persons with dementia, family caregivers, and other stakeholder groups. Source: 2017 National Research Summit on Care, Services and Supports for Persons with Dementia and Their Caregivers Registration is open for the 2017 National
- [Intellectual Disability and Dementia: A Caregiver’s Resource Guide for Rhode Islanders](https://healthmattersprogram.org/2017/07/20/intellectual-disability-and-dementia-a-caregivers-resource-guide-for-rhode-islanders/) - Source: The National Task Group on Intellectual Disabilities and Dementia Practices Citation: Seven Hills Rhode Island. (2017). Intellectual Disability and Dementia: A Caregiver’s Resource Guide for Rhode Islanders. Woonsocket, Rhode Island: Seven Hills Rhode Island and the National Task Group on Intellectual Disabilities and Dementia Practices. For print copies contact: Seven Hills Rhode Island, 30 Cumberland
- [Developing a medical picture book for reducing venipuncture distress in preschool-aged children](https://healthmattersprogram.org/2017/07/20/developing-a-medical-picture-book-for-reducing-venipuncture-distress-in-preschool-aged-children/) - Source: International Journal of Nursing Practice Ying Tsao, Hui-Chen Kuo, Hsui-Chuan Lee and Shuenn-Jiun Yiin Version of Record online: 20 JUL 2017 | DOI: 10.1111/ijn.12569 Abstract Aim Distress associated with needle-related procedures is a major concern in preschool-aged children nursing. This study developed a medical picture book for supporting preschool-aged children facing a venipuncture and determined the effectiveness
- [Advocacy Skill Building Toolkit - Rural RTC](https://healthmattersprogram.org/2017/07/19/advocacy-skill-building-toolkit-rtcrural/) - Advocacy Skill Building Toolkit Source: Advocacy Skill Building Toolkit - RTC:Rural This toolkit is a guide for Centers for Independent Living and others to conduct interactive and engaging workshops to facilitate the development of advocacy skills of emerging Independent Living leaders and youth with disabilities. It describes how to introduce advocacy through the facilitation of
- [Crisis Trends - Crisis Text Line](https://healthmattersprogram.org/2017/07/19/crisis-trends-crisis-text-line/) - Crisis Trends aims to empower journalists, researchers, school administrators, parents and all citizens to understand the crises Americans face so we can work together to prevent future crises from happening. Source: Crisis Trends - Crisis Text Line Explore trends across texter conversations across all states in the U.S. http://crisistrends.org/ Crisis Text Line: Text 741-741 from anywhere in
- [Crime Against Persons with Disabilities, 2009-2015](https://healthmattersprogram.org/2017/07/19/crime-against-persons-with-disabilities-2009-2015/) - ...for each age group measured except persons age 65 or older, the rate of violent victimization against persons with disabilities was at least 2.5 times the unadjusted rate for those without disabilities. ...persons with cognitive disabilities had the highest victimization rate among the disability types measured for total violent crime... Source: Bureau of Justice Statistics
- [Mirror, Mirror 2017: International Comparison Reflects Flaws and Opportunities for Better U.S. Health Care](https://healthmattersprogram.org/2017/07/18/mirror-mirror-2017-international-comparison-reflects-flaws-and-opportunities-for-better-u-s-health-care/) - In the United States—more than in 11 other wealthy countries—the health care you receive varies with your level of income, according to a new Commonwealth Fund report. Source: Mirror, Mirror 2017: International Comparison Reflects Flaws and Opportunities for Better U.S. Health Care The United States Health System Falls Short The United States spends far more
- [Dying well with an intellectual disability and dementia](https://healthmattersprogram.org/2017/06/15/dying-well-with-an-intellectual-disability-and-dementia/) - Source: The Journal of Dementia Care July/August 2017 Vol 25 No 4 As more people with intellectual disabilities live into old age, the prevalence of dementia in this group is increasing. Kathryn Service and colleagues examine the challenges to dementia practice presented by intellectual disability. Download Dying well with an intellectual disability & dementia
- [How to Make Healthcare Accessible for All](https://healthmattersprogram.org/2017/07/14/how-to-make-healthcare-accessible-for-all/) - Source: University of Washington, Healthy Aging RRTC Healthcare access is important for all individuals, especially for people with disabilities. However, people with disabilities don’t always receive the healthcare they need. Several barriers can make it harder for them to access critical healthcare services or build optimal working relationships with their providers. Fortunately, by being aware of
- [Is PDF an Accessible Format for Health Information?](https://healthmattersprogram.org/2017/07/13/is-pdf-an-accessible-format-for-health-information/) - Source: PEAT Visit the www.peatworks.org/ for more great resources to ensure access to all! PDF Accessibility Principles Accessibility Requirements Considering accessibility is important both when creating a PDF and when publishing a PDF on the internet. PDF Requirements Requirements for PDF accessibility include, but are not limited to: PDFs should always have an accessible alternative, such as HTML,
- [Employers, looking for a roadmap to make your workplace is accessible to all?](https://healthmattersprogram.org/2017/07/13/employers-looking-for-a-roadmap-to-make-your-workplace-is-accessible-to-all/) - Source: Accessible Technology Action Steps: A Guide for Employers Looking for a roadmap to ensure that the technology in your workplace is accessible to all employees and job applicants? Visit: Partnership on Employment & Accessible Technology (PEAT) Whether you're just getting started on accessible technology or looking for more advanced guidance, PEAT offers resources that can
- [BUILDing Strong Foundations Farm to Early Care and Education: Working to Equalize Health and Education Outcomes](https://healthmattersprogram.org/2017/07/13/building-strong-foundations-farm-to-early-care-and-education-working-to-equalize-health-and-education-outcomes/) - Source: BUILD Initiative By Lacy Stephens, Farm to Early Care and Education Associate, National Farm to School Network Good nutrition and good educational outcomes for young children are inextricably linked. Yet, there is little consistency in terms of the quality of the food that is offered in early care settings. Given that approximately 60 percent
- [The Community Guide to Adult Oral Health Program Implementation](https://healthmattersprogram.org/2017/07/13/the-community-guide-to-adult-oral-health-program-implementation/) - Source: The Oral Health Website Download Oral Health Guide The Community Guide to Adult Oral Health Program Implementation (Oral Health Guide), along with the corresponding online database of community-based oral health programs, aims to help groups at the state and local levels start or enhance their own oral health programs for older adults. Here, community-based entities
- [Health, United States, 2016](https://healthmattersprogram.org/2017/07/13/health-united-states-2016/) - Source: CDC.gov Download Health, United States, 2016: Chartbook on Longterm Trends in Health Health, United States, 2016 is the 40th report on the health status of the nation and is submitted by the Secretary of the Department of Health and Human Services to the President and the Congress of the United States in compliance with
- [Centers Serving High Percentages of Young Hispanic Children Compare Favorably to Other Centers on Key Predictors of Quality](https://healthmattersprogram.org/2017/07/13/centers-serving-high-percentages-of-young-hispanic-children-compare-favorably-to-other-centers-on-key-predictors-of-quality/) - Source: Child Trends Julia Mendez, Danielle Crosby, Lina Guzman, and Michael López (June 2017) Download Predictors-of-Quality Why research on low-income Hispanic children and families matters Hispanic or Latino children currently make up roughly 1 in 4 of all children in the United States, and by 2050 are projected to make up 1 in 3, similar to the
- [Increasing the number of doctors with disabilities would improve health care.](https://healthmattersprogram.org/2017/07/10/increasing-the-number-of-doctors-with-disabilities-would-improve-health-care/) - Increasing the number of doctors with disabilities would improve medical care, not weaken it Source: Increasing the number of doctors with disabilities would improve health care. We Need More Doctors With Disabilities One-fifth of all Americans have a disability, but less than 1 percent of doctors do. That’s slowly starting to change—to the benefit of
- [Doctors With Disabilities: Why They’re Important - The New York Times](https://healthmattersprogram.org/2017/07/12/doctors-with-disabilities-why-theyre-important-the-new-york-times/) - There’s good reason to believe a more diverse work force — one that includes doctors with disabilities — would be good for patients and doctors. Patients of various backgrounds tend to feel more comfortable with physicians like them, and that’s true for people with disabilities as well. Source: Doctors With Disabilities: Why They’re Important -
- [ Safety@Work and Return2Work](https://healthmattersprogram.org/2017/07/07/safetywork-and-return2work/) - S@W/R2W Research & State Demonstration Projects Source: U.S. Department of Labor -- ODEP - Office of Disability Employment Policy Millions of American workers leave the workforce each year after experiencing an injury or illness.1 Hundreds of thousands of these workers go on to receive State or Federal disability benefits.2 Keeping even some of these workers in the
- [Opioid Prescribing: Where you live matters](https://healthmattersprogram.org/2017/07/07/opioid-prescribing-where-you-live-matters/) - Source: Opioid Prescribing: Where you live matters Download Opioid Factsheet The amount of opioids prescribed in the US peaked in 2010 and then decreased each year through 2015. However, prescribing remains high and vary widely from county to county. Healthcare providers began using opioids in the late 1990s to treat chronic pain (not related to cancer),
- [The Neglected Demographic: Faculty Members With Disabilities](https://healthmattersprogram.org/2017/06/28/the-neglected-demographic-faculty-members-with-disabilities/) - Source: The Chronicle of Higher Education By Joseph Grigely JUNE 27, 2017 More than 25 years after the passage of the Americans With Disabilities Act, the situation for students with disabilities has vastly improved. Most colleges now have offices for disability-related accommodations, and students are using these services in exponential numbers: At the School of
- [Celebrate the ADA: Toolkit for 2017 Themes](https://healthmattersprogram.org/2017/06/28/celebrate-the-ada-toolkit-for-2017-themes/) - Source: Project of the ADA National Network/ Celebrate the ADA Throughout the year, celebrate the Americans with Disabilities Act (ADA) and the ADA Anniversary (July 26) in your workplaces, schools and communities. While much progress has been made, much remains to be done. This Tool Kit is a project of the ADA National Network and its
- [Going to College: A Resource for Teens with Disabilities](https://healthmattersprogram.org/2011/02/01/going-to-college-a-resource-for-teens-with-disabilities-2/) - Source: Going to College: A Resource for Teens with Disabilities Modules include activities that will help students explore more about themselves, learn what to expect from college, and equip them with important considerations and tasks to complete when planning for college. What’s in it for you? ThisWeb site contains information about living college life with
- [Going to College: A Resource for Teens with Disabilities](https://healthmattersprogram.org/2011/02/01/going-to-college-a-resource-for-teens-with-disabilities/) - Going to College: A Resource for Teens with Disabilities Going to College: A Resource for Teens with Disabilities Website contains information about living college life with a disability. It is designed for high school students. The site provides video clips, activities, and resources that can help them get a head start in planning for college. Video
- [Rachel Maddow tells the history of ADAPT and the activism of disabled Americans](https://healthmattersprogram.org/2017/06/23/rachel-maddow-tells-the-history-of-adapt-and-the-activism-of-disabled-americans/) - Source: MSNBC Rachel Maddow tells the history of ADAPT and the activism of disabled Americans and points out the leadership role these activists have taken in challenging the new plan to take Medicaid away from millions.Duration: 21:09
- [Counties at Risk of Having No Insurer on the Marketplace (Exchange) in 2018](https://healthmattersprogram.org/2017/06/23/counties-at-risk-of-having-no-insurer-on-the-marketplace-exchange-in-2018-the-henry-j-kaiser-family-foundation/) - This map shows the counties at risk of having no insurer on the marketplace (exchange), created by the Affordable Care Act, in 2018, based on a Kaiser Family Foundation analysis of insurer rate filings and news reports Source: Counties at Risk of Having No Insurer on the Marketplace (Exchange) in 2018 | The Henry J.
- [The State of the Science of Health and Wellness for Adults With Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2017/03/17/the-state-of-the-science-of-health-and-wellness-for-adults-with-intellectual-and-developmental-disabilities/) - Historically, people with intellectual and developmental disabilities (IDD) have experienced health disparities related to several factors including: a lack of access to high quality medical care, inadequate preparation of health care providers to meet their needs, the social determinants of health (e.g., poverty, race and gender), and the failure to include people with IDD in
- [FDA announced its intention to extend the compliance date for the Nutrition Facts Label final rules](https://healthmattersprogram.org/2017/06/21/fda-announced-its-intention-to-extend-the-compliance-date-for-the-nutrition-facts-label-final-rules/) - FDA announced its intention to extend the compliance date for the Nutrition Facts Label final rules Source: Labeling & Nutrition > Changes to the Nutrition Facts Label Original vs. New Format - Infographics to Help Understand the Changes (New Food Label Side by Side & Comparacion Paralela) Compliance Date On June 13, 2017, the FDA announced its
- [Above-normal blood sugar linked to dementia - Harvard Health Blog - Harvard Health Publications](https://healthmattersprogram.org/2017/06/20/above-normal-blood-sugar-linked-to-dementia-harvard-health-blog-harvard-health-publications/) - There are many reasons to keep your blood sugar under control: protecting your arteries and nerves are two of them. Here's another biggie: preventing dementia, the loss of memory and thinking skills that afflicts millions of older Americans. A study published in the New England Journal of Medicine shows that even in people without diabetes,
- [Embedding Cultural Diversity and Cultural and Linguistic Competence: A Guide for UCEDD Curricula and Training Activities](https://healthmattersprogram.org/2017/06/19/embedding-cultural-diversity-and-cultural-and-linguistic-competence-a-guide-for-ucedd-curricula-and-training-activities/) - Source: UCEDDs at Georgetown, Georgia State, and Children's Hospital Los Angeles, and in collaboration with AUCD A new project and website from the UCEDDs at Georgetown, Georgia State, and Children's Hospital Los Angeles, and in collaboration with AUCD. This project is designed to research, develop, and disseminate a set or resources for the national network of
- [The 30 Best Workplaces in Healthcare, According to Employees](https://healthmattersprogram.org/2017/04/14/the-30-best-workplaces-in-healthcare-according-to-employees/) - The 30 Best Workplaces in Healthcare, According to Employees Marcia Frellick April 13, 2017 Great Place to Work, which partnered with Fortune magazine, has released its Best Workplaces in Health Care 2017 rankings after tallying employee-generated points. Employees of qualifying companies – those that self-identified as being in the healthcare industry ― answered 58 questions about how
- [Let's talk about dental inequality in America](https://healthmattersprogram.org/2017/06/08/lets-talk-about-dental-inequality-in-america/) - Source: The Week (Excerpted from an article that originally appeared in The Washington Post) Mary Jordan and Kevin Sullivan Two hours before sunrise, Dee Matello joined the line outside the Wicomico Civic Center in Salisbury, Maryland, where hundreds of people in hoodies, heavy coats, and wool blankets braced against the wind. Inside, reclining dental chairs were
- [Small Steps, Big Leaps: Healthy Vending in Your Organization](https://healthmattersprogram.org/2017/03/02/small-steps-big-leaps-healthy-vending-in-your-organization/) - 2017/04/06 2:00 to 3:00 pm CST This presentation provides strategies for healthier vending options through the following: (i) steps to developing healthy vending machine initiative; (ii) using tools to survey vending machines and implementing new guidelines; and, (iii) integrating examples and links to resources related to healthy vending machine for your initiative. Audience: Providers who provide
- [Healthy People 2020 Health Disparities Data Widget](https://healthmattersprogram.org/2017/06/15/healthy-people-2020-health-disparities-data-widget/) - Source: Office of Minority Health The Office of Disease Prevention and Health Promotion (ODPHP) and the Office of Minority Health (OMH) are pleased to announce the release of a new HealthyPeople.gov data search function. The Health Disparities widget is a new way for you to access this health disparities information. The new widget provides an
- [A Roadmap to Success in LTSS](https://healthmattersprogram.org/2017/06/15/a-roadmap-to-success-in-ltss/) - Source: National Committee for Quality Assurance (NCQA) States and managed care organizations need assurance that their partners can coordinate care effectively across medical, behavioral and social services and help keep people in their preferred setting—often, their home and community. NCQA has released Roadmap to Success in LTSS, a compilation of resources to guide organizations through
- [Women with Disabilities Need Better Access to Preventive Cancer Screening](https://healthmattersprogram.org/2017/06/15/women-with-disabilities-need-better-access-to-preventive-cancer-screening/) - Source: University of New Hampshire, Disability and Public Health Project (NH UCEDD) In NH, women with disabilities are significantly less likely than the general population to comply with breast and cervical cancer screening recommendations of the U.S. Preventive Services Task Force. Preventive screenings are especially challenging for women with disabilities due to barriers, such as: Lack
- [Adults with Disabilities Need Better Diabetes Prevention Care](https://healthmattersprogram.org/2017/06/15/adults-with-disabilities-need-better-diabetes-prevention-care/) - Source: University of New Hampshire, Disability and Public Health Project (NH UCEDD) In New Hampshire, adults with mobility and cognitive limitations are significantly more likely to experience diabetes (26%) than adults with no disability (9%).1 The disparity in diabetes prevalence results in higher costs to Medicaid programs and poorer health outcomes and quality of life for
- [Ensuring Accessibility of Health Care Facilities and Providers](https://healthmattersprogram.org/2017/06/15/ensuring-accessibility-of-health-care-facilities-and-providers/) - Source: CMS.Gov & Florida Disability and Health Program The CMS Office of Minority Health Issue Briefs offer insight and examination into a variety of health and health disparity topics. The briefs are a concise summary of a particular issue and examine policies that impact the quality of and access to health care for minority and disadvantaged populations. Issue
- [Resources | Protect Our Care IL](https://healthmattersprogram.org/2017/06/15/resources-protect-our-care-il/) - Source: Resources | Protect Our Care IL Protect Our Care – Illinois is a statewide coalition of health care advocates, providers, consumers, and workers, joining together to prevent the repeal of the Affordable Care Act (ACA), prevent disastrous changes to Medicaid, and protect and expand access to quality affordable health care. We know the crusade
- [6 Steps to Creating a Culture of Person and Family Engagement in Health Care](https://healthmattersprogram.org/2017/05/05/6-steps-to-creating-a-culture-of-person-and-family-engagement-in-health-care/) - Source: 6 Steps to Creating a Culture of Person and Family Engagement in Health Care This Planetree PFE Culture Change Toolkit is designed for health care practices participating in the Transforming Clinical Practice Initiative, but will be of value to any practice seeking strategies to improve person and family engagement. It provides guidance on creating
- [Outcomes of “Partnering to Transform Healthcare with People with Disabilities” (PATH-PWD) conference](https://healthmattersprogram.org/2017/03/03/partnering-to-transform-healthcare-with-people-with-disabllities-path-pwd-improving-acute-primary-and-transitional-health-care-with-people-with-disabilities-rush-university/) - Research Team Sarah H. Ailey Principal Investigator Rush CON Molly Bathje Co-Investigator Rush CHS Tamar Heller Co-Investigator University of Illinois Award Period 6/1/16 – 5/31/17 Funding Source Agency for Healthcare Research and Quality (AHRQ) R13 Conference grant Source: Partnering to Transform Healthcare with People with Disabllities (PATH-PWD) - Improving Acute, Primary and Transitional Health care
- [Is Your Sunscreen Living Up To Its Promise?](https://healthmattersprogram.org/2017/06/09/is-your-sunscreen-living-up-to-its-promise/) - Source: Science Friday 6/9/17 Sunscreen use is on the rise, but so are cases of skin cancer. That’s because a poor-quality sunscreen might keep you from getting a sunburn, but it won’t shield skin from UVA rays that cause melanoma. Recently, scientists with the Environmental Working Group tested almost 1,500 sunscreens, moisturizers, and lip balms
- [Med student fills the gap in disability training](https://healthmattersprogram.org/2017/06/09/med-student-fills-the-gap-in-disability-training/) - Source: theSOURCE Class Acts-Human Health: Gallin develops curriculum aimed at improving care for patients with disabilities By Kristina Sauerwein May 5, 2017 During her first year at Washington University School of Medicine in St. Louis, Hilary Gallin studied racial and gender disparities in health care. She learned about various physicians’ approaches to community and global medicine.
- [Women in the U.S. with physical &/or sensory disabilities more likely to be sterilized than women without disabilities](https://healthmattersprogram.org/2017/06/08/female-sterilization-is-more-common-among-women-with-physical-andor-sensory-disabilities-than-women-without-disabilities-in-the-united-states/) - Source: Disability and Health Journal Abstract Background Female sterilization accounts for 50% of all contraceptive use in the U.S. The extent to which U.S. women with physical and/or sensory disabilities have undergone female sterilization is unknown. Objective Our primary objective was to determine the prevalence of sterilization for women with physical/sensory disabilities, and compare this
- [“They just said inappropriate contact.” What do service users hear when staff talk about sex and relationships?](https://healthmattersprogram.org/2017/06/08/they-just-said-inappropriate-contact-what-do-service-users-hear-when-staff-talk-about-sex-and-relationships/) - Source: JARID Abstract Background Research into how people with intellectual disabilities (ID) pursue intimate relationships in care settings presents some contradictory findings; despite increasingly liberal staff views, service users experience significant restrictions. This study attempts to explore this gap within a secure hospital, examining service user's representations of staff discourses about sexuality and intimate relationships.
- [Good Food Great Kids-Making Practice and Policy Work for Farm to Early Childcare & Education](https://healthmattersprogram.org/2017/06/08/good-food-great-kids-making-practice-and-policy-work-for-farm-to-early-childcare-education/) - Source: PFC social impact advisors Good Food Great Kids-Making Practice and Policy Work for Farm to Early Childcare & Education According to Harvard University’s Center on the Developing Child, “The science of child development now helps us to see healthy development as a causal chain— policies and programs across the public and private sectors affect
- [Pain and pain assessment in people with ID](https://healthmattersprogram.org/2017/05/11/pain-and-pain-assessment-in-people-with-intellectual-disability-issues-and-challenges-in-practice-doody-2017-british-journal-of-learning-disabilities-wiley-online-library/) - Pain and pain assessment in people with intellectual disability: Issues and challenges in practice Source: Pain and pain assessment in people with intellectual disability: Issues and challenges in practice - Doody - 2017 - British Journal of Learning Disabilities - Wiley Online Library Accessible summary Pain is difficult to identify when people cannot communicate. If
- [Knowledge and expectations of direct support professionals towards effects of psychotropic drug use in people with ID](https://healthmattersprogram.org/2017/05/11/knowledge-and-expectations-of-direct-support-professionals-towards-effects-of-psychotropic-drug-use-in-people-with-id/) - To achieve sufficient collaboration of intellectual disability support professionals in reducing inappropriate psychotropic drug use of clients, vocational educational training is needed. Source: Knowledge and expectations of direct support professionals towards effects of psychotropic drug use in people with intellectual disabilities - Kuijper - 2017 - Journal of Applied Research in Intellectual Disabilities - Wiley
- [Waiting for health equity: A graphic novel](https://healthmattersprogram.org/2017/05/11/waiting-for-health-equity-a-graphic-novel/) - Source: Center for Health Progress Waiting for Health Equity NOTA: Ahora disponible en español About the Project Today, we can accurately predict a Coloradan’s health outcomes and access to health care based on factors like their race, income, or ZIP code. This is unacceptable, because it means that people of color, Coloradans with less economic
- [The Role of Families As Caregivers & Guides for Whole Health & Wellness](https://healthmattersprogram.org/2017/05/11/the-role-of-families-as-caregivers-guides-for-whole-health-wellness/) - Health care providers often focus on serving either children or adults. While this focus may mean more tailored approaches to care for the individual patient, it may be a missed opportunity to address the role of family on health outcomes. Source: Multi-Generational Approach to Care Overview Taking a multi-generational approach involves changing the focus of how
- [ASAN Releases Plain-Language Medicaid Toolkit](https://healthmattersprogram.org/2017/05/11/asan-releases-plain-language-medicaid-toolkit/) - A Self-Advocate’s Guide to Medicaid Medicaid is the biggest health care program in the country. It’s an important part of the United States health care system. But a lot of the information out there about Medicaid and attempts to change it can be difficult to understand and navigate. That’s why ASAN is proud to announce
- [Factors associated with meeting physical activity guidelines by adults with intellectual and developmental disabilities](https://healthmattersprogram.org/2017/05/10/factors-associated-with-meeting-physical-activity-guidelines-by-adults-with-intellectual-and-developmental-disabilities/) - Adults with intellectual and developmental disabilities may face challenges to staying physically active. Rate for adults with IDD meeting PA guidelines (13.5%) was less than half that of the general population (30.8%). Source: Factors associated with meeting physical activity guidelines by adults with intellectual and developmental disabilities Abstract Background Many individuals with intellectual and developmental
- [Consensus statement of the International Summit on  Intellectual Disability and Dementia related to end-of-life care  in advanced dementia](https://healthmattersprogram.org/2017/05/10/consensus-statement-of-the-international-summit-on-intellectual-disability-and-dementia-related-to-end-of-life-care-in-advanced-dementia-2/) - Philip McCallion1 | Mary Hogan2 | Flavia H Santos3 | Mary McCarron4 | Kathryn Service5 | Sandy Stemp6 | Seth Keller7 | Juan Fortea8 | Kathleen Bishop9 | Karen Watchman10 | Matthew P Janicki11 | and the Working Group of the International Summit on Intellectual Disability and Dementia End-of-life (McCallion et al 2017) J Appl Res
- [Improving Your Person and Family Engagement Metrics in TCPI | Patient-Centered Primary Care Collaborative](https://healthmattersprogram.org/2017/05/02/improving-your-person-and-family-engagement-metrics-in-tcpi-patient-centered-primary-care-collaborative/) - Source: Improving Your Person and Family Engagement Metrics in TCPI | Patient-Centered Primary Care Collaborative The Patient Centered Primary Care Collaborative Support and Alignment Network (PCPCC SAN) was created to assist staff and leaders in Practice Transformation Networks, along with enrolled clinicians, to successfully transform their practices to deliver person and family centered care. In
- [Plan Your Lifespan](https://healthmattersprogram.org/2017/05/09/3442/) - Source: http://www.planyourlifespan.org People are living longer. Are you prepared to turn 80, 90, or 100? This website will help you plan for health events such as hospitalizations, falls, and memory loss that may happen as people get older. This planning differs from end of life care and wills. Do you know... What your rehabilitation options are
- [The Impact of Health Reform Repeal on Employment](https://healthmattersprogram.org/2017/05/05/the-impact-of-health-reform-repeal-on-employment-the-commonwealth-fund/) - Use this interactive map to see the state-by-state impact of repeal of federal health reform on jobs. Source: The Impact of Health Reform Repeal on Employment - The Commonwealth Fund Contrary to a common misconception that health reform law has been a “job killer,” this study shows that repeal of these policies may cause major job losses and
- [Obesity: Meal and Fruit and Vegetable Snack Interventions to Increase Healthier Foods and Beverages Provided by Schools](https://healthmattersprogram.org/2017/05/05/obesity-meal-and-fruit-and-vegetable-snack-interventions-to-increase-healthier-foods-and-beverages-provided-by-schools/) - Source: Obesity: Meal and Fruit and Vegetable Snack Interventions to Increase Healthier Foods and Beverages Provided by Schools Summary of Task Force Finding The Community Preventive Services Task Force recommends meal interventions and fruit and vegetable snack interventions to increase the availability of healthier foods and beverages provided by schools. This finding is based on evidence
- [Health Equity, Social Determinants | The Community Guide](https://healthmattersprogram.org/2017/05/05/health-equity-social-determinants-the-community-guide/) - Source: Health Equity, Social Determinants | The Community Guide Health equity exists when individuals have equal opportunities to be healthy. The ability to be healthy is often associated with factors such as social position, race, ethnicity, gender, religion, sexual identity, or disability. When these factors limit a person's ability to be healthy it can lead
- [Promoting Good Nutrition | The Community Guide](https://healthmattersprogram.org/2017/05/05/promoting-good-nutrition-the-community-guide/) - Source: Promoting Good Nutrition | The Community Guide Healthy eating is associated with lower risk for: Chronic diseases, such as Type 2 diabetes, hypertension, heart disease and certain cancers Overweight and obesity Micronutrient deficiencies Fewer than 25% of Americans eat fruits and vegetables 5 or more times per day (CDC). See Task Force Findings
- [JAN Blog » Accommodations, Accessibility, and the ADA](https://healthmattersprogram.org/2017/05/05/jan-blog-accommodations-accessibility-and-the-ada/) - Accommodations, Accessibility, and the ADA Source: JAN Blog » Accommodations, Accessibility, and the ADA By: Matthew McCord, Consultant – Motor Team Back in 2014, Elisabeth Simpson wrote a Blog post on low cost accommodation solutions. Three years have passed since then, and I think it is time to revisit this subject and provide you all
- [Strong at the Broken Places](https://healthmattersprogram.org/2017/05/05/nccp-strong-at-the-broken-places/) - Decades of research have shown that children living in poverty are significantly more likely to develop internalizing and externalizing problems than are their peers who are not poor, with the magnitude of the differential increasing with longer exposure to impoverished conditions. Many of these children are labeled as “at risk” – of academic difficulties, school
- [Promoting Worksite Health | The Community Guide](https://healthmattersprogram.org/2017/05/05/promoting-worksite-health-the-community-guide/) - Worksite policies and programs may help employees reduce health risks and improve their quality of life. Source: Promoting Worksite Health | The Community Guide Worksite interventions can be delivered: At the worksite (e.g., signs to encourage stair use, health education classes) At other locations (e.g., gym membership discounts, weight management counseling) Through the employee health
- [National Physical Fitness & Sports Month - May 2017](https://healthmattersprogram.org/2017/05/05/national-physical-fitness-sports-month-may-2017-hhs-gov/) - It’s National Physical Fitness & Sports Month! The President’s Council on Fitness, Sports & Nutrition is excited to keep the journey from #0to60 going by encouraging everyone to #MoveInMay. This May, stay motivated with the President's Council's Presidential Champions and Presidential Active Lifestyle Award (PALA+) programs! Each program allows you to track your daily physical
- [Have you heard of the Soft Skills Curriculum?](https://healthmattersprogram.org/2012/06/02/have-you-heard-of-the-soft-skills-curriculum-2/) - Soft Skills to Pay the Bills — Mastering Soft Skills for Workplace Success? Published on May 17, 2012 by US Department of Labor "Skills to Pay the Bills: Mastering Soft Skills for Workplace Success," is a curriculum developed by ODEP focused on teaching "soft" or workforce readiness skills to youth, including youth with disabilities. The
- [Physical Activity: Family-Based Interventions](https://healthmattersprogram.org/2017/05/05/physical-activity-family-based-interventions/) - Source: Physical Activity: Family-Based Interventions Summary of Task Force Finding The Community Preventive Services Task Force recommends family-based interventions to increase physical activity among children. Intervention Family-based interventions combine activities to build family support with health education to increase physical activity among children. Interventions include one or more of the following: Goal-setting tools and skills
- [Obesity: Meals and Snacks Provided by Schools | The Community Guide](https://healthmattersprogram.org/2017/05/05/obesity-meals-and-snacks-provided-by-schools-the-community-guide/) - Source: Obesity: Meals and Snacks Provided by Schools | The Community Guide Summary of Task Force Finding The Community Preventive Services Task Force recommends meal interventions and fruit and vegetable snack interventions to increase the availability of healthier foods and beverages provided by schools. This finding is based on evidence that they increase fruit and
- [Fitness facilities still lack accessibility for people with disabilities](https://healthmattersprogram.org/2017/05/04/fitness-facilities-still-lack-accessibility-for-people-with-disabilities/) - Fitness facilities have potential to serve as places of ‘health enhancement’ for many underserved populations, particularly among people with physical/mobility disabilities where walking outdoors to meet recommendations for regular physical activity is not an option due to mobility or safety issues. Source: Fitness facilities still lack accessibility for people with disabilities - Disability and Health
- [2016 Community Rankings for Healthy Eating - Gallup-Sharecare](https://healthmattersprogram.org/2017/05/03/2016-community-rankings-for-healthy-eating-gallup-sharecare/) - Source: Gallup-Sharecare Well-Being Index This report, part of the Gallup-Sharecare State of American Well-Being series, examines healthy eating across the nation, ranking 189 communities based on the question ‘Did you eat healthy all day yesterday?’ The rankings show a wide range of results – with the highest communities having more than three quarters of their citizens
- [Baltimore hospital settles allegations of disability discrimination with $180,000 payment | Legal Newsline](https://healthmattersprogram.org/2017/05/03/baltimore-hospital-settles-allegations-of-disability-discrimination-with-180000-payment-legal-newsline/) - BALTIMORE (Legal Newsline) — The U.S. Equal Employment Opportunity Commission (EEOC) announced April 27 that Harbor Hospital Inc., trading as MedStar Hospital, will pay $179,576 after allegations of federal disability discrimination. Source: Baltimore hospital settles allegations of disability discrimination with $180,000 payment | Legal Newsline "Health care providers, like all employers, must be mindful of
- [Daphne Ron: Good and Bad Experiences with Health Care](https://healthmattersprogram.org/2017/05/02/daphne-ron-good-and-bad-experiences-with-health-care/) - Watch Daphne Ron's Presentation Good and Bad Experiences with Health Care TRANSCRIPT: Daphne Ron Presentation Good and Bad Experiences with Health Care Self advocate Daphne Ron discusses the good and bad experiences she has had with health care during the "Partnering to Transform Healthcare with People with Disabilities (PATH-PWD) - Improving Acute, Primary and Transitional Health care
- [Racial Disparities in Age-Specific Mortality Among Blacks or African Americans — United States, 1999–2015 | MMWR](https://healthmattersprogram.org/2017/05/02/vital-signs-racial-disparities-in-age-specific-mortality-among-blacks-or-african-americans-united-states-1999-2015-mmwr/) - Racial Disparities in Age-Specific Mortality Among Blacks or African Americans — United States, 1999–2015 Source: Vital Signs: Racial Disparities in Age-Specific Mortality Among Blacks or African Americans — United States, 1999–2015 | MMWR Abstract Background: Although the overall life expectancy at birth has increased for both blacks and whites and the gap between these populations
- [Questions to ask your doctor about patient-centered care](https://healthmattersprogram.org/2017/05/02/questions-to-ask-your-doctor-about-patient-centered-care/) - Source: Planetree.org Patient-Centered Primary Care Collaborative (PCPCC) Questions to ask your doctor about patient-centered care Sample questions: What type of information will you provide to me about my condition and treatment options? Will you provide me with decision aids that will help me to make the best individualized care decisions? Am I able to access a
- [Lessons from High Performing Hospitals: Achieving Patient and Family-Centered Care](https://healthmattersprogram.org/2017/05/02/lessons-from-high-performing-hospitals-achieving-patient-and-family-centered-care/) - Source: Lessons from High Performing Hospitals Lessons from High Performing Hospitals: Achieving Patient and Family-Centered Care Patient-Centered Care In A Nutshell Providers partner with patients to anticipate and satisfy the full range of patient needs and preferences Hospitals support staff in achieving their professional aspirations and personal goals A Consistent Finding: It’s All About Culture
- [“Bite Sized” Exercises and Discussion Prompts to Reinforce Culture](https://healthmattersprogram.org/2017/05/02/bite-sized-exercises-and-discussion-prompts-to-reinforce-culture/) - Source: Planetree.org “Bite Sized” Exercises and Discussion Prompts to Reinforce Culture Below is a collection of discussion prompts and exercises designed to engage the hearts and minds of all members of the team in the practice patient-centered transformation effort. These exercises are designed to be concise enough to be incorporated into brief huddles or team meetings.
- [What Would Happen If Health Care in Your State Improved? - The Commonwealth Fund](https://healthmattersprogram.org/2017/04/26/what-would-happen-if-health-care-in-your-state-improved-the-commonwealth-fund/) - This interactive tool shows the health care gains your state could achieve by improving its performance on measures of access, quality, and health outcomes. The tool draws on data from the 2015 Commonwealth Fund Scorecard on State Health System Performance. Source: What Would Happen If Health Care in Your State Improved? - The Commonwealth Fund
- [CDC’s Built Environment & Health Initiative Saves Lives & Money](https://healthmattersprogram.org/2017/04/25/cdcs-built-environment-health-initiative-saves-lives-money/) - The way we design & build our communities affects our health. CDC works with local & state partners to create healthy communities that provide safe & convenient opportunities for people to walk, bike, & use public transit. View Built Environment & Health Initiative Saves Infographic Poorly designed communities are dangerous & costly. Healthy community design
- [Increasing physical activity among adults with disabilities](https://healthmattersprogram.org/2017/04/27/increasing-physical-activity-among-adults-with-disabilities/) - Doctors and other health professionals can use these steps in the Infographic for Increasing Physical Activity among Adults with Disabilities to recommend aerobic physical activity options that match each person’s specific abilities and connect him or her to resources that can help each person be physically active.
- [Eugene Washington PCORI Engagement Awards](https://healthmattersprogram.org/2017/04/26/eugene-washington-pcori-engagement-awards/) - The healthcare research process traditionally includes only scientists and other research-related professionals. PCORI believes that engagement of nontraditional stakeholders—from topic selection through design and conduct of research to dissemination of results—can influence research to be more patient centered, useful, and trustworthy, and ultimately lead to greater use of research results by patients and the broader
- [RWJF Health Data for Action](https://healthmattersprogram.org/2017/04/25/rwjf-health-data-for-action/) - RWJF Health Data for Action - The HD4A program will fund innovative research that uses the available data to answer important research questions. Applicants under this Call for Proposals (CFP) will write a proposal for a research study using data from either the Health Care Cost Institute (HCCI) or athenahealth. Successful applicants will be provided with access to these data, which
- [NICHD Exploratory/Developmental Research Grant (R21)](https://healthmattersprogram.org/2017/04/25/nichd-exploratorydevelopmental-research-grant-r21/) - PA-17-259 The NICHD Exploratory/Developmental Grant program supports exploratory and developmental research projects that fall within the NICHD mission by providing support for the early and conceptual stages of these projects. These studies may involve considerable risk but may lead to a breakthrough in a particular area, or to the development of novel techniques, agents, methodologies,
- [Social Support Networks of Aging Persons with Intellectual Disabilities](https://healthmattersprogram.org/2017/04/25/social-support-networks-of-aging-persons-with-intellectual-disabilities-2/) - Download Presentation (PDF): Social Support Networks of Aging Persons with Intellectual Disabilities Play Recording Presented by: Lieke van Heumen, PhD This webinar will discuss emerging research and practice in supporting social networks of adults aging with intellectual disabilities. After a brief introduction on aging in this population, the webinar will discuss the role of social relations
- [Great Big Story : How a Doctor Without Legs Treats Patients in Her Mountain Village](https://healthmattersprogram.org/2017/04/24/great-big-story-how-a-doctor-without-legs-treats-patients-in-her-mountain-village/) - Since she was a young girl, Li Juhong dreamed of becoming a doctor. Then, at 4 years old, she lost her legs in a tragic and painful accident. But that experience didn’t weaken Juhong's resolve; rather, it drove her to help others in pain. Now, the 38-year-old is one of two doctors responsible for around
- [Atlas on the Primary Care of Adults with Developmental Disabilities in Ontario](https://healthmattersprogram.org/2017/04/21/atlas-on-the-primary-care-of-adults-with-developmental-disabilities-in-ontario/) - Download: Atlas on the Primary Care of Adults with Developmental Disabilities in Ontario Source: ICES Lunsky Y, Klein-Geltink JE, Yates EA, editors. December 2013 The Issue Ontario’s Action Plan for Health Care focuses on becoming healthier, with improved access to integrated family/primary care and a major emphasis on the provision of the right care at the right time
- [Revised ACA Repeal and Replace Bill Likely to Increase the Uninsured Rate and Health Insurance Costs for Many](https://healthmattersprogram.org/2017/04/21/revised-aca-repeal-and-replace-bill-likely-to-increase-the-uninsured-rate-and-health-insurance-costs-for-many/) - House Republicans are close to agreeing on an amended version of the American Health Care Act, their proposed repeal and replacement of the Affordable Care Act. David Blumenthal, M.D., and Sara Collins say that, based on the summaries circulated by the media, the revised bill will significantly increase the numbers of uninsured Americans while raising
- [CompareMaine](https://healthmattersprogram.org/2017/04/20/comparemaine/) - CompareMaine shows the average cost of common healthcare procedures at different facilities in Maine. You can also see patient experience ratings and how Maine hospitals compare on patient safety. Source: CompareMaine more information. better decisions. Compare Costs of Healthcare Procedures and Quality of Care Across Maine The Maine Health Data Organization, in collaboration with the
- [Breaking Stereotypes: Spotlight on Male Family Caregivers](https://healthmattersprogram.org/2017/04/20/breaking-stereotypes-spotlight-on-male-family-caregivers/) - In the United States, family caregivers are the backbone for the delivery of supportive services for individuals with a chronic, disabling, or serious health condition. 40 percent of family caregivers of adults are men—which equates to 16 million male family caregivers in the United States. Source: Breaking Stereotypes: Spotlight on Male Family Caregivers They identify, arrange,
- [Research Brief: Family Caregiver Support for People with IDD](https://healthmattersprogram.org/2017/04/20/research-brief-family-caregiver-support-for-people-with-idd/) - The 2010 Family and Individual Needs for Disability Support Survey (FINDS) conducted by The Arc (2011) shows that family caregivers play a critical role in providing supports to individuals with intellectual and developmental disabilities (IDD). Source: Research Brief: Family Caregiver Support for People with IDD | Family Support Research and Training Center This databrief describes
- [Primary health care for people with an ID: an exploration of consultations, problems identified, and their management in Australia](https://healthmattersprogram.org/2017/04/19/primary-health-care-for-people-with-an-id-an-exploration-of-consultations-problems-identified-and-their-management-in-australia/) - Source: Primary health care for people with an intellectual disability: an exploration of consultations, problems identified, and their management in Australia Abstract Background People with an intellectual disability (ID) have more complex and different patterns of health care needs than the general population. They experience a greater burden of multi-morbidity, high levels of undetected and
- [Improving diabetes care for people with ID: a qualitative study exploring the perceptions and experiences of professionals in diabetes and ID services](https://healthmattersprogram.org/2017/04/19/improving-diabetes-care-for-people-with-id-a-qualitative-study-exploring-the-perceptions-and-experiences-of-professionals-in-diabetes-and-id-services/) - Source: Brown - 2017 - Journal of Intellectual Disability Research - Wiley Online Library Abstract Background Globally, diabetes is increasing with concerns about the impact on outcomes, including premature death and the costs associated with managing the condition. Research indicates that adults with intellectual disabilities (ID) are two to three times more likely to develop
- [Mainstream health professionals' stigmatising attitudes towards people with ID: a systematic review](https://healthmattersprogram.org/2017/04/19/mainstream-health-professionals-stigmatising-attitudes-towards-people-with-id-a-systematic-review/) - Source: Pelleboer-Gunnink - 2017 - Journal of Intellectual Disability Research - Wiley Online Library Abstract Background Equal access to mainstream healthcare services for people with intellectual disabilities (ID) still requires attention. Although recent studies suggest that health professionals hold positive attitudes towards people with ID, stigmatising attitudes may influence their efforts to serve people with
- [Robert Wood Johnson Foundation Program to Increase Diversity Across Its Programming](https://healthmattersprogram.org/2017/04/19/robert-wood-johnson-foundation-program-to-increase-diversity-across-its-programming/) - Robert Wood Johnson Foundation Program to Increase Diversity Across Its Programming Deadline: May 16, 2017 Award Ceiling: $50,000 http://rwjf.ws/2ojDzXq The Robert Wood Johnson Foundation has issued a Request for Proposals for an annual initiative to increase diversity across its research network and programming. Now in its eleventh year, New Connections: Increasing Diversity of RWJF Programming, a career development
- [International Summit Consensus Statement: Intellectual Disability Inclusion in National Dementia Plans](https://healthmattersprogram.org/2017/04/18/international-summit-consensus-statement-intellectual-disability-inclusion-in-national-dementia-plans/) - Karen Watchman, PhD, Matthew P. Janicki, PhD, Michael Splaine, MA, Frode K. Larsen, MPH, Tiziano Gomiero, PhD, and Ronald Lucchino, PhD Source: ID in National Plans Abstract The World Health Organization (WHO) has called for the development and adoption of national plans or strategies to guide public policy and set goals for services, supports, and
- [Healthy Communities: What you can do](https://healthmattersprogram.org/2017/04/17/healthy-communities-what-you-can-do/) - Source: What you can do A new survey shows 94 percent of Americans are willing to take positive action to make their community a healthier place, according to research conducted by the Aetna Foundation. You can play a role in creating more healthy days where you live! Don't wait! Start the Healthiest Cities & Counties
- [Healthiest Cities & Counties: The Challenge](https://healthmattersprogram.org/2017/04/17/healthiest-cities-counties-the-challenge/) - Source: Welcome to the Challenge We believe a healthy city/county is economically competitive, inclusive and equitable. That's why we've called on cities and counties across the country to join the Healthiest Cities & Counties Challenge. The Challenge is a partnership between the Aetna Foundation, the American Public Health Association and the National Association of Counties
- [High Physician Turnover May Partly Explain ACOs' Limited Success](https://healthmattersprogram.org/2017/04/17/physician-turnover-beneficiary-churn-medicare-aco-the-commonwealth-fund/) - Substantial Physician Turnover and Beneficiary “Churn” in a Large Medicare Pioneer ACO Source: Physician Turnover Beneficiary Churn Medicare ACO - The Commonwealth Fund Synopsis A study of one of the nation’s largest Medicare accountable care organizations (ACOs) found that participating physicians see a relatively small number of patients who are actually part of the ACO
- [Who Gains Under Expanded Health Savings Accounts? - The Commonwealth Fund](https://healthmattersprogram.org/2017/04/17/who-gains-under-expanded-health-savings-accounts-the-commonwealth-fund/) - The U.S. House of Representatives leadership’s bill to repeal and replace the Affordable Care Act (ACA) would have significantly expanded the use of health savings accounts (HSAs), which people can use to save tax-free money to pay for certain medical expenses. This effort isn’t new and it’s not likely to go away just because a
- [A theory-informed qualitative exploration of social and environmental determinants of physical activity and dietary choices in adolescents with intellectual disabilities in their final year of school - Stevens -](https://healthmattersprogram.org/2017/04/14/a-theory-informed-qualitative-exploration-of-social-and-environmental-determinants-of-physical-activity-and-dietary-choices-in-adolescents-with-intellectual-disabilities-in-their-final-year-of-school/) - Source: A theory-informed qualitative exploration of social and environmental determinants of physical activity and dietary choices in adolescents with intellectual disabilities in their final year of school - Stevens - 2017 - Journal of Applied Research in Intellectual Disabilities - Wiley Online Library Abstract Background The prevalence of obesity is higher in those with intellectual
- [There’s a Disability Rights Treaty. The United States Still Hasn’t Ratified it.](https://healthmattersprogram.org/2017/04/14/theres-a-disability-rights-treaty-the-united-states-still-hasnt-ratified-it/) - It opened for signature a decade ago. It’s time for the U.S. Senate to act. Source: There’s a Disability Rights Treaty. The United States Still Hasn’t Ratified it. On a Friday afternoon in July 2009, President Obama gave remarks in the East Room of the White House about the signing of an international human rights treaty
- [Physical and psychological health of family carers co-residing with an adult relative with an ID - Grey](https://healthmattersprogram.org/2017/04/14/physical-and-psychological-health-of-family-carers-co-residing-with-an-adult-relative-with-an-intellectual-disability-grey-2017-journal-of-applied-research-in-intellectual-disabilities-wiley-o/) - Source: Physical and psychological health of family carers co-residing with an adult relative with an intellectual disability - Grey - 2017 - Journal of Applied Research in Intellectual Disabilities - Wiley Online Library Abstract Background Providing long-term care to an adult relative with intellectual disability can impact negatively on caregivers’ health and well-being. Methods Data
- [“I'm still here”: Exploring what matters to people with intellectual disability during advance care planning - McKenzie](https://healthmattersprogram.org/2017/04/14/im-still-here-exploring-what-matters-to-people-with-intellectual-disability-during-advance-care-planning-mckenzie-2017-journal-of-applied-research-in-intellectual-disabiliti/) - Source: “I'm still here”: Exploring what matters to people with intellectual disability during advance care planning - McKenzie - 2017 - Journal of Applied Research in Intellectual Disabilities - Wiley Online Library Abstract Background This study sought to identify, from the perspective of people with intellectual disabilities and life limiting conditions, the factors that strengthened
- [The Effects of Medicaid Expansion under the ACA: Updated Findings from a Literature Review | The Henry J. Kaiser Family Foundation](https://healthmattersprogram.org/2017/04/13/the-effects-of-medicaid-expansion-under-the-aca-updated-findings-from-a-literature-review-the-henry-j-kaiser-family-foundation/) - Coverage: Studies show that Medicaid expansion results in significant coverage gains and reductions in uninsured rates, both among the low-income population broadly and within specific vulnerable populations. Access to care, utilization, affordability, and health outcomes: Most research demonstrates that Medicaid expansion positively impacts access to care, utilization of services, the affordability of care, and financial
- [What's Cooking? USDA Mixing Bowl](https://healthmattersprogram.org/2017/04/13/whats-cooking-usda-mixing-bowl/) - Source: What's Cooking? USDA Mixing Bowl What’s Cooking recipe site can help with healthy meal planning, cooking & grocery shopping!
- [Crip for a Day - New research shows role-playing disability promotes distress, discomfort and disinterest ](https://healthmattersprogram.org/2017/04/13/new-research-shows-role-playing-disability-promotes-distress-discomfort-and-disinterest/) - Source: New research shows role-playing disability promotes distress, discomfort and disinterest https://www.ncbi.nlm.nih.gov/pubmed/28287757 Professionals in the fields of education and rehabilitation psychology have long used disability simulations to try to promote understanding and improve attitudes about persons with disabilities. To simulate blindness, for instance, participants might complete tasks while wearing blindfolds or goggles. Others use earplugs
- [Improving hospital care of patients with intellectual and developmental disabilities - Disability and Health Journal](https://healthmattersprogram.org/2017/04/11/improving-hospital-care-of-patients-with-intellectual-and-developmental-disabilities-disability-and-health-journal/) - People with intellectual disabilities and developmental disabilities (IDD) face poorer care and outcomes when hospitalized than patients without IDD. A panel discussion "Hospital care for individuals with IDD: The Issues and Challenges" was held at the Annual Conference of the American Academy of Developmental Medicine and Dentistry, held in Chicago July 8–10, 2016. Among the
- [Guidelines: How to Write and Report About People with Disabilities](https://healthmattersprogram.org/2017/04/13/guidelines-how-to-write-and-report-about-people-with-disabilities/) - Guidelines: How to Write and Report About People with Disabilities (Download PDF) Your Words, Our Image Writers, editors, reporters and other communicators strive to use the most accurate terminology about people with disabilities. However, inaccurate, archaic and offensive expressions are still commonly used, perpetuating negative stereotypes and beliefs about people with disabilities. For example, a person
- [County Health Rankings & Roadmaps](https://healthmattersprogram.org/2017/04/07/county-health-rankings-roadmaps/) - Source: County Health Rankings & Roadmaps The annual Rankings provide a revealing snapshot of how health is influenced by where we live, learn, work and play. They provide a starting point for change in communities. Choose a state from the map to begin. The County Health Rankings & Roadmaps program helps communities identify and implement
- [Rights in mind: Thinking differently about dementia and disability](https://healthmattersprogram.org/2017/04/12/rights-in-mind-thinking-differently-about-dementia-and-disability/) - Tom Shakespeare -University of East Anglia, UK, Hannah Zeilig - University of the Arts London, UK, & Peter Mittler - University of Manchester, UK Download Rights in Mind (2017) Abstract The aim of this paper is to argue for the utility of a relational model of disability, as a way of conceptualizing dementia. We explore whether dementia should
- [The Unique Challenges of Surveying U.S. Latinos | Pew Research Center](https://healthmattersprogram.org/2017/04/12/the-unique-challenges-of-surveying-u-s-latinos-pew-research-center/) - As the U.S. Hispanic population grows, reaching nearly 57 million in 2015 and making up 18% of the nation’s population, it is becoming increasingly important to represent Hispanics in surveys of the U.S. population and to understand their opinions and behavior. But surveying Hispanics is complicated for many reasons – language barriers, sampling issues and
- [Fitness facilities still lack accessibility for people with disabilities - Disability and Health Journal](https://healthmattersprogram.org/2017/04/11/fitness-facilities-still-lack-accessibility-for-people-with-disabilities-disability-and-health-journal/) - James H. Rimmer, PhD, Sangeetha Padalabalanarayanan, Laurie A. Malone, PhD, Laurie A. Malone, Tapan Mehta Source: Fitness facilities still lack accessibility for people with disabilities - Disability and Health Journal Abstract Background Fitness facilities have potential to serve as places of ‘health enhancement’ for many underserved populations, particularly among people with physical/mobility disabilities where walking
- [Trinity Services, Sertoma, Sparc Testify About Issues Illinois Disability Service Providers Face](https://healthmattersprogram.org/2017/04/11/trinity-services-sertoma-sparc-testify-about-issues-illinois-disability-service-providers-face-youtube/) - Trinity Services Executive Director Art Dykstra; Sertoma Centre, Inc. Executive Director Gus van de Brink; and Sparc CEO Greg O’Connor discuss the issues Trinity Services and other disability service providers in Illinois are facing because of a lack of appropriate funding from the State. Video courtesy of Blue Room Stream/Advanced Digital Media, Inc.
- [What is a “Person Month” & How Do I Calculate It? | NIH Extramural Nexus](https://healthmattersprogram.org/2017/04/11/what-is-a-person-month-how-do-i-calculate-it-nih-extramural-nexus/) - A “person month” is the metric for expressing the effort (amount of time) principal investigators (PIs), faculty and other senior personnel devote to a specific project. The effort is based on the type of appointment of the individual with the organization; e.g., calendar year (CY), academic year (AY), and/or summer term (SM); and the organization’s
- [Data-Driven, Cross-Sector, and Community-Led Transformation: Place-based Population Health](https://healthmattersprogram.org/2017/04/07/toward-data-driven-cross-sector-and-community-led-transformation-executive-summary-academy-health/) - Toward Data-Driven, Cross-Sector, and Community-Led Transformation: Academy Health provides an overview of the findings including the who, the what and the how. Download Publication The Community Health Peer Learning Program (CHP), a partnership of AcademyHealth and the Office of the National Coordinator for Health Information Technology (ONC), conducted an environmental scan of multisector initiatives driving toward
- [DSP Crisis is Profound: New Report on the Impact of Quality Services for People with IDD](https://healthmattersprogram.org/2017/04/07/ancor-announces-the-release-of-its-workforce-paper-ancor-american-network-of-community-options-and-resources/) - ANCOR Announces the Release of Its Workforce Paper Source: ANCOR Announces the Release of Its Workforce Paper | ANCOR | American Network of Community Options and Resources Community-based services to people with intellectual and developmental disabilities are facing one of the most major and growing workforce crises in the United States labor market. Which is
- [How to Bounce Back – Aging with a Disability Factsheet Series](https://healthmattersprogram.org/2017/04/07/how-to-bounce-back-rehabilitation-research-and-training-center-on-aging-with-physical-disabilities/) - Source: How to Bounce Back | Rehabilitation Research and Training Center on Aging With Physical Disabilities How to Bounce Back - Aging with a Disability Factsheet Series Jump to Section: What Is Resilience? How Do People Cope with Disabilities as They Age? What Makes Us Resilient? How Can You Build up Your Resilience? Resources and References
- [Preparing for Life After High School: Characteristics and Experiences of Youth in Special Education](https://healthmattersprogram.org/2017/04/07/preparing-for-life-after-high-school-the-characteristics-and-experiences-of-youth-in-special-education-findings-from-the-national-longitudinal-transition-study-2012-volume-1-comparisons-with-other/) - Findings from the National Longitudinal Transition Study 2012. Volume 1: Comparisons with Other Youth (Full Report) Key Findings: Youth with an IEP are more likely than their peers to be socioeconomically disadvantaged and to face problems with health, communication, and completing typical tasks independently. The vast majority of youth with and without an IEP feel
- [YouthBuild: Goal Planning Tool](https://healthmattersprogram.org/2017/04/07/youthbuild-goal-planning-tool/) - Goal Planning Tool Author(s): YouthBuild USA This goal planning tool was designed to engage staff across each program components and the young person in the goal planning and assessment process. This process should be introduced very early in the program year, ideally towards the end of mental toughness or shortly after the completion of mental
- [No Wrong Door No Wrong Door Systems (Aging and Disability Resource Centers)](https://healthmattersprogram.org/2017/04/07/no-wrong-door/) - No Wrong Door Source: No Wrong Door This paper provides concrete examples of how seven No Wrong Door Systems—sometimes called Aging and Disability Resource Centers—are promoting person- and family-centered practice. No Wrong Door Systems involve an array of organizations including Area Agencies on Aging, Centers for Independent Living, and state agencies such as Medicaid agencies
- [Knowledge Translation Case Book](https://healthmattersprogram.org/2017/04/07/kt-casebook/) - Knowledge Translation Case Book Source: KT Casebook The Center on Knowledge Translation for Disability and Rehabilitation Research (KTDRR) has developed the Knowledge Translation (KT) Casebook to highlight what NIDILRR grantees are doing in the area of knowledge translation. Many grantees have indicated that they feel the development of a casebook of KT activities and accomplishments
- [New 2017 Transition Coding and Reimbursement Tip Sheet Available](https://healthmattersprogram.org/2017/04/03/3076/) - Got Transition and the American Academy of Pediatrics released a new 2017 Transition Coding and Reimbursement Tipsheet 2017 to support the delivery of recommended transition services in pediatric and adult primary and specialty care settings. The new tip sheet includes a list of updated transition-related CPT codes, including the new code for transition readiness assessment,
- [Waivers of Medicaid Requirements - A Quick Review](https://healthmattersprogram.org/2017/04/07/waivers-of-medicaid-requirements-a-quick-review/) - By: Jane Perkins , Mara Youdelman on April 04, 2017 Waivers of Medicaid Requirements - A Quick Review Executive Summary In a companion piece to Background to Medicaid and Section 1115 of the Social Security Act, Legal Director Jane Perkins and Managing Attorney of the DC office Mara Youdelman provide a brief review of how certain
- [Defending Medicaid](https://healthmattersprogram.org/2017/04/07/defending-medicaid/) - Medicaid’s guaranteed-enrollment for those who meet eligibility requirements makes the program vulnerable to attacks at both the federal and state levels. NHeLP actively defends Medicaid against these threats, protects the rights of beneficiaries to receive the services to which to which they are legally entitled and works to ensure that states meet their obligations under
- [A Young Person's Guide to Health Care Transition | NCWD/Youth](https://healthmattersprogram.org/2017/04/03/a-young-persons-guide-to-health-care-transition-ncwdyouth/) - Source: A Young Person's Guide to Health Care Transition | NCWD/Youth A Young-Persons-Guide-to-Health-Care-Transition is about making the transition from pediatric to adult health care. This brief will review topics youth should consider around transitioning to adult health care, living a healthy lifestyle, and paying for health care. Youth need to be a part of conversations about health care. Most youth rely
- [National Center on Improving Literacy](https://healthmattersprogram.org/2017/03/31/national-center-on-improving-literacy/) - Evidence-based resources for improving outcomes for students with literacy-related disabilities, including dyslexia. About Us The National Center on Improving Literacy is a partnership among literacy experts, university researchers, and technical assistance providers, with funding from the United States Department of Education. Our Mission To increase access to, and use of, evidence-based approaches to screen, identify,
- [Developing Culturally Responsive Approaches to Serving Diverse Populations: A Resource Guide for Community-Based Organizations](https://healthmattersprogram.org/2017/03/31/developing-culturally-responsive-approaches-to-serving-diverse-populations-a-resource-guide-for-community-based-organizations/) - Michael López, Kerry Hofer, Erin Bumgarner, and Djaniele Taylor Cultural-Competence-Guide A changing population According to 2013 U.S. Census data: • 48 percent of children under the age of 18 were members of racial/ethnic groups other than nonHispanic white. • Of this group, Hispanics represented the largest racial/ethnic group (24 percent), followed by nonHispanic blacks (14
- [Addressing the Disability Services Workforce Crisis of the 21st Century](https://healthmattersprogram.org/2017/03/31/addressing-the-disability-services-workforce-crisis-of-the-21st-century/) - American Network of Community Options and Resources 2017 2015 Median Annual Cost of Care In: Nursing Facilities:$91,250 Home Services*: $45,760 Adult Day Care*: $17,940 *Fall under the community services umbrella. Source: Kaiser Family Foundation Executive Summary Intellectual and developmental disabilities (IDD) services are contending with external market disruptions which severely affect workforce retention and recruitment and are
- [Health Services in Schools: Medicaid and Special Education Services](https://healthmattersprogram.org/2017/03/31/health-services-in-schools-medicaid-and-special-education-services/) - Executive Summary This NHeLP fact sheet provides information about health services for children, under age of 21, in schools. Many of the services are provided in schools, and some these services are provided Medicaid and/or the Individuals with Disabilities Education Act, or IDEA. DOWNLOAD PUBLICATION (IDEA - Health Services in Schools - 1 Pager) Source: Health
- [Ten Ways the Affordable Care Act Helps Older Adults and People with Disabilities](https://healthmattersprogram.org/2017/03/31/ten-ways-the-affordable-care-act-helps-older-adults-and-people-with-disabilities/) - Source: Ten Ways the Affordable Care Act Helps Older Adults and People with Disabilities Executive Summary Ten Ways ACA Helps Older Adults NHeLP Senior Policy Analyst David Machledt provides a succinct examination of the ways the Affordable Care Act is improving the lives of older adults and people with disabilities. For example, the ACA bars health
- [EPSDT - A Guide for States: Coverage in the Medicaid Benefit for Children and Adolescents](https://healthmattersprogram.org/2017/03/31/epsdt-a-guide-for-states-coverage-in-the-medicaid-benefit-for-children-and-adolescents/) - JUNE 2014 Early and Periodic Screening, Diagnostic and Treatment (EPSDT) Available at http://www.medicaid.gov/Medicaid-CHIP-Program-Information/By-Topics/Benefits/Early-and-Periodic-Screening-Diagnostic-and-Treatment.html Produced in collaboration with the National Health Law Program under subcontract to NORC at the University of Chicago www.NORC.org EPSDT’s goal is to assure that individual children get the health care they need when they need it – the right care to the
- [Disability Rights - National Health Law Program](https://healthmattersprogram.org/2017/03/31/disability-rights-national-health-law-program/) - Medicaid provides health coverage and protections for persons with physical, intellectual and developmental disabilities. NHeLP works with state health advocates and litigates when necessary to protect the rights of vulnerable persons, making sure persons with disabilities receive the care they need and are legally entitled to, as well as protecting their rights when care is
- [What Makes Medicaid, Medicaid? -- Access](https://healthmattersprogram.org/2017/03/31/what-makes-medicaid-medicaid-access/) - By Abbi Coursolle, David Machledt, Wayne Turner Executive Summary In the fourth paper in our "What Makes Medicaid, Medicaid?" series, NHeLP experts explain the provisions and protections that ensure Medicaid beneficiaries gain access to quality health care services. Senior Attorney Abigail Coursolle, Senior Policy Analyst David Machledt, and Senior Attorney Wayne Turner write, "Medicaid is
- [Health Promotion for People with Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2014/01/19/health-promotion-for-people-with-intellectual-and-developmental-disabilities-2/) - Laurence Taggart and Wendy Cousins About the book http://mcgraw-hill.co.uk/html/033524694X.html People with learning disabilities are affected by significantly more health problems than the general population and are much more likely to have significant health risks. Yet evidence suggests they are not receiving the same level of health education and health promotion opportunities as other members of
- [Cultural Competence Revisited: Nursing Students with Disabilities](https://healthmattersprogram.org/2007/01/01/cultural-competence-revisited-nursing-students-with-disabilities/) - Cultural Competence Revisited: Nursing Students with Disabilities (2007). Marks, B. Journal of Nursing Education, 46(2). The demographic profile of students in nursing schools is changing in relation to many different cultural backgrounds. Despite the potential for students with disabilities to enrich the nursing profession, nurse educators may be perpetuating historical attitudes, values, and practices that
- [HealthMatters for People with Intellectual and Developmental Disabilities: Building Communities of Practice for Health](https://healthmattersprogram.org/2017/01/18/healthmatters-for-people-with-intellectual-and-developmental-disabilities-building-communities-of-practice-for-health/) - HealthMatters for People with Intellectual and Developmental Disabilities: Building Communities of Practice for Health A Research to Policy Brief from AUCD and UIC's RRTCDD (November 14, 2016) Abstract The emergence of accessible health promotion initiatives for people with intellectual and developmental disabilities (IDD) over the past 20 years demonstrates great promise for improving their health
- [HealthMatters Alert Newsletter Volume 2, Issue 1 (January/February 2017)](https://healthmattersprogram.org/2017/03/30/healthmatters-alert-newsletter-volume-2-issue-1-januaryfebruary-2017/) - Project SEARCH at Cincinnati Children's Awarded Grant from Ohio DD Council to Incorporate Health Matters Curriculum Cincinnati, OH - Cincinnati Children’s has been awarded a $100,000 grant from the Ohio Developmental Disabilities Council to study Healthy Lifestyles for People with Disabilities. The goal of the project is to incorporate Health Matters Curriculum, a health education
- [Promoting sexuality across the life span for individuals with IDD](https://healthmattersprogram.org/2017/03/30/promoting-sexuality-across-the-life-span-for-individuals-with-idd/) - Ailey, SA, Marks, B, Crisp, C, Hahn, JE. (2003). Promoting sexuality across the life span for individuals with intellectual and developmental disabilities, Nurs Clin N Am 38, 229–252. "No group in this country faces the sort of sexual and reproductive restrictions disabled people do: we are frequently prevented from marrying, bearing and/or rearing children, learning about sexuality, having
- [Nursing Care Resources for Individuals With Intellectual and Developmental Disabilities Across the Life Span](https://healthmattersprogram.org/2003/01/01/nursing-care-resources-for-individuals-with-intellectual-and-developmental-disabilities-across-the-life-span/) - Nursing Care Resources for Individuals With Intellectual and Developmental Disabilities Across the Life Span (2003). Marks, B.A., Brown, A., Hahn, J.E. & Heller, T. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 373-393. The resources encourage individuals with intellectual and developmental disabilities (I/DD), along with their parents/families or caregivers to learn about
- [Study finds $200 billion in avoidable health care costs | American Pharmacists Association](https://healthmattersprogram.org/2017/03/28/study-finds-200-billion-in-avoidable-health-care-costs-american-pharmacists-association/) - Source: Study finds $200 billion in avoidable health care costs | American Pharmacists Association June 21, 2013 Medication misuse, non-adherence, errors contribute to wasteful spending Health care costs caused by improper and unnecessary use of medications exceeded $200 billion in 2012, amounting to an estimated 10 million hospital admissions, 78 million outpatient treatments, 246 million
- [Medicaid Restructuring Under the American Health Care Act and Nonelderly Adults with Disabilities | The Henry J. Kaiser Family Foundation](https://healthmattersprogram.org/2017/03/28/medicaid-restructuring-under-the-american-health-care-act-and-nonelderly-adults-with-disabilities-the-henry-j-kaiser-family-foundation/) - Medicaid covers more than three in 10 non-elderly adults with disabilities, providing a broad range of medical and long-term care services that enable people with disabilities to live and work in the community. Source: Medicaid Restructuring Under the American Health Care Act and Nonelderly Adults with Disabilities | The Henry J. Kaiser Family Foundation Key
- [Flourishing From the Start: What Is It and How Can It Be Measured?](https://healthmattersprogram.org/2017/03/28/flourishing-from-the-start-what-is-it-and-how-can-it-be-measured/) - Many practical challenges remain in specifying such measures, and in gaining widespread agreement on their use. Nevertheless, culturally responsive, brief, clear, and reliable measures that could replace those that traditionally have required lengthy surveys, observational assessments, and specialized training would be welcome. Even so, nearly all constructs require that data be collected directly from children
- [Well-being of Young Children after Experiencing Homelessness](https://healthmattersprogram.org/2017/03/28/well-being-of-young-children-after-experiencing-homelessness/) - "Compared to national norms, young children who have stayed in shelter have higher risk for developmental delays and higher rates of behavioral challenges" Using data from the U.S. Department of Housing and Urban Development's Family Options Study, Well-being of Young Children after Experiencing Homelessness (2017, OPRE Report No. 2017-06), examines the well-being of young children 20 months
- [Draft Principles for a Person-Centered Approach to Serious or Advanced Illness](https://healthmattersprogram.org/2017/03/28/draft-principles-for-a-person-centered-approach-to-serious-or-advanced-illness/) - Deadline: May 12, 2017 http://ltcombudsman.org/uploads/files/support/acl-person-centered-principles.pdf ACL, in consultation with stakeholders from the aging and disability communities, has drafted a set of principles to guide their work, and to enhance existing programs and services related to serious or advanced illness for older adults and people with disabilities. ACL is now seeking input from the people they
- [Breaking the Stigma — A Physician’s Perspective on Self-Care and Recovery](https://healthmattersprogram.org/2017/03/27/breaking-the-stigma-a-physicians-perspective-on-self-care-and-recovery/) - Adam B. Hill, M.D. N Engl J Med 2017; 376:1103-1105 March 23, 2017 DOI: 10.1056/NEJMp1615974 http://www.nejm.org/doi/full/10.1056/NEJMp1615974 My name is Adam. I am a human being, a husband, a father, a pediatric palliative care physician, and an associate residency director. I have a history of depression and suicidal ideation and am a recovering alcoholic. Several years ago,
- [NTG Caregivers Newsletter on ID and Dementia Practices (Volume 1, Issue 1)](https://healthmattersprogram.org/2017/03/27/ntg-caregivers-newsletter-on-id-and-dementia-practices-volume-1-issue-1/) - Welcome to the first issue of the NTG Caregiver News (Volume 1 Issue 1) March 2017. This publication has grown out of the NTG’s Family Caregiver Online Support Group for those who are caring for, or have cared for, loved ones with Alzheimer’s and intellectual disabilities. Once each month, we open the airwaves to share
- [Women's Refugee Commission - Maternal & Newborn Health and Disability](https://healthmattersprogram.org/2017/03/22/womens-refugee-commission-maternal-newborn-health/) - Source: Women's Refugee Commission - Maternal & Newborn Health Worldwide, more than 350,000 women die every year from complications related to pregnancy and childbirth—that’s nearly one every minute. For women affected by conflict or disaster, who are displaced from their homes and communities, the risk of maternal death or injury is especially high. In fact,
- [Women's Refugee Commission - Disabilities](https://healthmattersprogram.org/2017/03/22/womens-refugee-commission-disabilities/) - Source: Women's Refugee Commission - Disabilities As many as 7.7 million of the world's 51 million people displaced by conflict have disabilities. People with disabilities are among the most hidden and neglected of all displaced people, excluded from or unable to access most aid programs because of physical and social barriers or because of negative
- [Women's Refugee Commission - Disability Inclusion: Policy to Practice](https://healthmattersprogram.org/2017/03/22/womens-refugee-commission-disability-inclusion-policy-to-practice/) - Source: Women's Refugee Commission - Disability Inclusion: Policy to Practice Executive Summary English | French | Arabic | Word Format Full Report English | French | Arabic | Word Format Fact Sheet: Refugees with Disabilities English | French | Arabic | Word Format | Easy Read Discussion Tool for Field Workers: Increasing Inclusion, Building Community English |
- [Medicaid Work Requirements - Legally Suspect](https://healthmattersprogram.org/2017/03/22/medicaid-work-requirements-legally-suspect/) - DOWNLOAD PUBLICATION Source: Medicaid Work Requirements - Legally Suspect Executive Summary Legal Director Jane Perkins, and Policy Analyst Ian McDonald detail why adding a work requirement to Medicaid is "legally suspect." They explain that currently the Medicaid Act has four requirements that an individual must meet that do not include a mandatory work requirement. "A number
- [Medicaid Work Requirements - Not a Healthy Choice](https://healthmattersprogram.org/2017/03/22/medicaid-work-requirements-not-a-healthy-choice/) - Executive SummaryIn an effort to win conservative members' support for the Affordable Care Care Act repeal bill, House Republicans have added a work requirement for Medicaid to the measure. In this issue brief, NHeLP Managing Attorney of the DC office Mara Youdelman, Legal Director Jane Perkins, and Policy Analyst Ian McDonald detail why such work requirements
- [Policies for Action: Policy and Law Research to Build a Culture of Health](https://healthmattersprogram.org/2017/02/03/policies-for-action-policy-and-law-research-to-build-a-culture-of-health/) - 2017 Call for Proposals Purpose Policies for Action: Policy and Law Research to Build a Culture of Health (P4A) was created to help build the evidence base for policies that can help build a Culture of Health. P4A seeks to engage long-standing health care, mental and behavioral health, and public health researchers, as well as
- [Disability and Rehabilitation Research Projects (DRRP) Program: Center on Knowledge Translation for Disability and Rehabilitation Research](https://healthmattersprogram.org/2017/03/14/disability-and-rehabilitation-research-projects-drrp-program-center-on-knowledge-translation-for-disability-and-rehabilitation-research/) - Deadline: May 9, 2017 Award Ceiling: $750,000 DRRP: Knowledge Translation The purpose of NIDILRR's Disability and Rehabilitation Research Projects (DRRP) which are funded through the Disability and Rehabilitation Research Projects and Centers Program, is to plan and conduct research, demonstration projects, training, and related activities, including international activities, to develop methods, procedures, and rehabilitation technology
- [Fact Sheets « Disability Policy Seminar](https://healthmattersprogram.org/2017/03/21/fact-sheets-disability-policy-seminar/) - Source: Fact Sheets « Disability Policy Seminar The 2017 Disability Policy Seminar is underway! If you were not able to make it, you can access the fact sheets here. Follow live coverage from the event on social media with the hashtag #DPS2017. FACT SHEETS Federal Funding Health Care Medicaid and LTSS Social Security and SSI
- [Grants | Refugee Health Promotion](https://healthmattersprogram.org/2017/03/20/grants-administration-for-children-and-families/) - Source: Grants | Administration for Children and Families Summary Funding Oppportunity Title: Refugee Health Promotion Funding Opportunity Number: HHS-2017-ACF-ORR-RX-1222 Program Office: Office of Refugee Resettlement Funding Type: Discretionary Funding Instrument Type: Grant Announcement Type: Initial CFDA: 93.576 Post Date: 03/14/2017 Application Due Date: 05/15/2017 Description The Office of Refugee Resettlement (ORR) within the Administration for
- [With all Eyes on AHCA, House Advances 3 Bills that Could Reduce Benefits, Raise Costs for People in Employer-Based Coverage - Center on Health Insurance Reforms](https://healthmattersprogram.org/2017/03/20/with-all-eyes-on-ahca-house-advances-3-bills-that-could-reduce-benefits-raise-costs-for-people-in-employer-based-coverage-center-on-health-insurance-reforms/) - With all Eyes on AHCA, House Advances 3 Bills that Could Reduce Benefits, Raise Costs for People in Employer-Based Coverage Source: With all Eyes on AHCA, House Advances 3 Bills that Could Reduce Benefits, Raise Costs for People in Employer-Based Coverage - Center on Health Insurance Reforms The week of March 6 was a busy
- [Top 10 Changes to Medicaid Under House Republicans' ACA Repeal Bill](https://healthmattersprogram.org/2017/03/20/top-10-changes-to-medicaid-under-house-republicans-aca-repeal-bill/) - Source: Top 10 Changes to Medicaid Under House Republicans' ACA Repeal Bill Executive Summary Following the CBO score that found the House Republicans' so-called "American Health Care Act" would cause 24 million people to lose health care coverage, NHeLP managing attorneys examine the bill's "draconian changes" planned for Medicaid. Managing Attorney of the DC Office
- [Compare Proposals to Replace The Affordable Care Act | The Henry J. Kaiser Family Foundation](https://healthmattersprogram.org/2017/03/20/compare-proposals-to-replace-the-affordable-care-act-the-henry-j-kaiser-family-foundation-2/) - President Donald Trump and Republicans in Congress have committed to repealing and replacing the Affordable Care Act (ACA). How do their replacement proposals compare to the ACA? How do they compare to each other?Plans available for comparison:The American Health Care Act as introduced by the House Republican leadership, March 6, 2017 (PDF)The Affordable Care Act,
- [Bring Down the Barriers—Seen and Unseen By Rachel Adams](https://healthmattersprogram.org/2011/11/10/bring-down-the-barriers-seen-and-unseen-by-rachel-adams/) - The Chronicle A colleague in a wheelchair goes into an underground passage connecting two campus buildings. Once the entrance locks behind him, he discovers that the door at the other end refuses to open with his swipe card. Although he is a vigorous man of middle age, the maintenance worker who comes to his rescue
- [SUNspot – Wireless Device Ownership by People with Disabilities](https://healthmattersprogram.org/2017/03/20/sunspot-wireless-device-ownership-by-people-with-disabilities/) - Wireless Inclusive Technologies RERC This SUNspot addresses the following question related to ownership of wireless devices by adults with disabilities: Do people with disabilities own wireless devices (regular phones, smartphones and tablets) at the same rates as the general population? Comparison of the results from the SUN and the Pew Research Center show that people
- [Faculty Training Modules: Working with students with disabilities](https://healthmattersprogram.org/2017/03/20/2828/) - UCSF Medical Student Disability Services (MSDS) and UCSF Student Disability Services (SDS) in partnership with colleagues from around the country (Case Western Reserve University, Duke University, Northwestern University, Rush University College of Medicine, Stanford University School of Medicine, The University of Washington, and Weill Cornell Medicine and Samuel Merritt University), developed The UCSF Faculty Training
- [Nurses’ experience of caring for people with intellectual disability and dementia](https://healthmattersprogram.org/2017/03/17/nurses-experience-of-caring-for-people-with-intellectual-disability-and-dementia/) - Josephine Cleary and Owen Doody Aims and objectives. To explore nurses’ experiences of caring for older people with intellectual disability and dementia. Background. Ageing and dementia prevalence is increasing along with the life expectancy of people with intellectual disability. As a population group, people with intellectual disability have a high prevalence of dementia, which is
- [National Resource Center on Nutrition and Aging](https://healthmattersprogram.org/2017/03/17/national-resource-center-on-nutrition-and-aging/) - Source: National Resource Center on Nutrition and Aging The NRCNA is designed to assist the national aging network, including local nutrition programs as well as national associations and state and regional agencies involved with aging, in the implementation of the nutrition portions of the Older Americans Act.
- [New Issue Brief Available: Opportunities to Improve Nutrition for Older Adults and Reduce Risk of Poor Health Outcomes](https://healthmattersprogram.org/2017/03/16/new-issue-brief-available-opportunities-to-improve-nutrition-for-older-adults-and-reduce-risk-of-poor-health-outcomes/) - http://bit.ly/2mJpAdx http://nutritionandaging.org/ A new Issue Brief is now available that addresses opportunities to improve nutrition for older adults and also reduce the risk of poor health outcomes. During National Nutrition Month we focus time on the issue of nutrition, because as people age, they may experience malnutrition. Appetite and the body’s ability to process food
- [International Summit Consensus Statement: Intellectual Disability Inclusion in National Dementia Plans](https://healthmattersprogram.org/2017/03/16/international-summit-consensus-statement-intellectual-disability-inclusion-in-national-dementia-plans-2/) - Karen Watchman, PhD1, Matthew P. Janicki, PhD2, Michael Splaine, MA3, Frode K. Larsen4, Tiziano Gomiero, PhD5 and Ronald Lucchino, PhD6 1 University of Stirling, Scotland, UK 2 University of Illinois at Chicago, USA 3 Splaine Consulting, Columbia, Maryland USA 4 Norwegian National Advisory Unit on Ageing and Health, Oslo, Norway 5 ANFFAS Trentino Onlus, Trento,
- [Tax Credits under the Affordable Care Act vs. the American Health Care Act: An Interactive Map](https://healthmattersprogram.org/2017/03/15/tax-credits-under-the-affordable-care-act-vs-the-american-health-care-act-an-interactive-map/) - The Kaiser Family Foundation website provides in-depth information on key health policy issues including Medicaid, Medicare, health reform, global health, HIV/AIDS, health insurance, the uninsured and much more. Source: Tax Credits under the Affordable Care Act vs. the American Health Care Act: An Interactive Map
- [nTIDE February 2017 Jobs Report: Americans with Disabilities Continue to Contribute to Job Gains](https://healthmattersprogram.org/2017/03/15/ntide-february-2017-jobs-report-americans-with-disabilities-continue-to-contribute-to-job-gains/) - nTIDE February 2017 Jobs Report: Americans with Disabilities Continue to Contribute to Job Gains Source: nTIDE February 2017 Jobs Report: Americans with Disabilities Continue to Contribute to Job Gains by Anna Brennan-Curry | Mar 10, 2017 Kessler Foundation and University of New Hampshire release nTIDE Report – Monthly Update Durham, NH – Employment continues to
- [Self-Directed Care May Help People with Serious Mental Illness Take an Active Role in Their Recovery](https://healthmattersprogram.org/2017/03/15/national-rehabilitation-information-center-information-for-independence-2/) - Source: National Rehabilitation Information Center | Information for Independence Serious mental illnesses (SMI) are conditions like schizophrenia, bipolar disorder, or depression. People with serious mental illness often receive traditional mental health services funded by Medicaid, such as medications or psychotherapy. These services may help reduce SMI symptoms, but they may not be effective enough to
- [Kessler Foundation Signature Employment Grants](https://healthmattersprogram.org/2017/03/14/kessler-foundation-signature-employment-grants/) - Kessler Foundation Signature Employment Grants yearly to support non-traditional solutions that increase employment outcomes for individuals with disabilities. Our success is in stimulating ideas from the field that spark new models that are adaptable to replication and scalability, and may be models for policy change. Kessler Foundation’s flexible funding dollars encourage organizations to pursue promising
- [Rehabilitation Engineering Research Centers (RERCs) Program: RERC on Health, Exercise, and Recreation](https://healthmattersprogram.org/2017/01/31/rehabilitation-engineering-research-centers-rercs-program-rerc-on-health-exercise-and-recreation/) - Deadline: April 6, 2017 Award Ceiling: $925,000 http://bit.ly/2kcq5f3 Purpose of Program: The purpose of the RERC program is to improve the effectiveness of services authorized under the Rehabilitation Act by conducting advanced engineering research on and development of innovative technologies that are designed to solve particular rehabilitation problems or to remove environmental barriers. RERCs also demonstrate
- [Limited PCORI Funding Announcement: Dissemination and Implementation of PCORI](https://healthmattersprogram.org/2017/02/02/limited-pcori-funding-announcement-dissemination-and-implementation-of-pcori/) - Research Dissemination and Implementation Award Letter of Intent (LOI) Deadline February 14, 2017 Application Deadline May 17, 2017 Total Direct Costs $350,000 This Notice encourages PCORI awardees and their patient and stakeholder partners with strategic plans for disseminating and implementing the research results of their PCORI comparative, clinical effectiveness research (CER) awards to consider applying
- [Dissemination and Implementation Research in Health (R01)](https://healthmattersprogram.org/2017/02/02/dissemination-and-implementation-research-in-health-r01/) - R01 Research Project Grant June 5, 2017 This Funding Opportunity Announcement (FOA) encourages investigators to submit research grant applications that will identify, develop, test, evaluate and/or refine strategies to disseminate and implement evidence-based practices (e.g. behavioral interventions; prevention, early detection, diagnostic, treatment and disease management interventions; quality improvement programs) into public health, clinical practice, and
- [Community Partnerships to Advance Research (CPAR) (R01)](https://healthmattersprogram.org/2017/02/03/community-partnerships-to-advance-research-cpar-r01/) - http://www.grants.gov/web/grants/search-grants.html?keywords=PA-14-142 https://grants.nih.gov/grants/guide/pa-files/PA-14-142.html Current Closing Date for Applications: May 07, 2017 Requests of $500,000 or more for direct costs in any year This funding opportunity announcement addresses the need for researchers to partner with communities using Community Engaged Research (CEnR) methodologies that will enhance relationships leading to better interventions and positive health outcomes. Partnership is defined
- [AHRQ Health Services Research Demonstration and Dissemination Grants (R18)](https://healthmattersprogram.org/2017/02/02/ahrq-health-services-research-demonstration-and-dissemination-grants-r18/) - R18 Research Demonstration and Disseminations Projects May 25, 2017 The Research Demonstration and Dissemination Grant (R18) is an award made by AHRQ to an institution/organization to support a discrete, specified health services research project. The project will be performed by the named investigator and study team. The R18 research plan proposed by the applicant institution/organization
- [Community Partnerships to Advance Research (CPAR) (R15)](https://healthmattersprogram.org/2017/02/03/community-partnerships-to-advance-research-cpar-r15/) - https://grants.nih.gov/grants/guide/pa-files/PA-14-140.html https://www.nichd.nih.gov/grants-funding/opportunities-mechanisms/mechanisms-types/comparison-mechanisms/Pages/default.aspx Current Closing Date for Applications: May 07, 2017 Applicants may request up to $300,000 in direct costs plus applicable Facilities & Administrative (F&A)/indirect costs for the entire project period of up to 3 years. This funding opportunity announcement addresses the need for researchers to partner with communities using Community Engaged Research (CEnR) methodologies
- [Translational Research to Help Older Adults Maintain Their Health and Independence in the Community (R21)](https://healthmattersprogram.org/2017/02/06/translational-research-to-help-older-adults-maintain-their-health-and-independence-in-the-community-r21/) - This Funding Opportunity Announcement (FOA) invites applications using the R21 award mechanism for translational research that moves evidence-based research findings toward the development of new interventions, programs,policies, practices, and tools that can be used by organizations in the community to help older adults remain healthy and independent, productively engaged, and living in their own homes
- [Reaching People in Multiple Languages](https://healthmattersprogram.org/2017/03/10/reaching-people-in-multiple-languages/) - Source: Reaching People in Multiple Languages The National Institute on Minority Health and Health Disparities (NIMHD) envisions an America in which all populations will have an equal opportunity to live long, healthy, and productive lives. NIMHD is committed to supporting research and communications efforts to improve cultural competency and health literacy. We offer this portal
- [National Rehabilitation Information Center | Information for Independence](https://healthmattersprogram.org/2017/03/10/national-rehabilitation-information-center-information-for-independence/) - People with disabilities may have more complex healthcare needs than people without disabilities. Receiving regular healthcare can help people with disabilities avoid preventable health problems, but they may have difficulty getting necessary medical or dental care. Their health insurance may not cover all of their needs, or they may encounter other barriers such as a
- [Civic Engagement Toolbox For Self-Advocates | Autistic Self Advocacy Network](https://healthmattersprogram.org/2017/03/10/civic-engagement-toolbox-for-self-advocates-autistic-self-advocacy-network/) - Right now, many people are getting involved in political advocacy for the first time. People are going to town hall meetings and making phone calls to their members of Congress. They’re writing letters and using social media to organize advocacy groups.This new wave of political advocacy is incredible. And people with disabilities need to be
- [MDABLE: MARYLAND ABLE (Achieving a Better Life Experience)](https://healthmattersprogram.org/2017/03/10/mdable/) - ABLE (Achieving a Better Life Experience) makes it easier than ever to save money for all of your disability-related needs. More independence, greater financial security and a better quality of life – that’s the future Maryland ABLE is building. MD ABLE accounts are a new way to help individuals with disabilities save money and pay
- [Human Development Institute: H+W - HealthMatters](https://healthmattersprogram.org/2017/03/10/hw-healthmatters/) - Source: H+W - HealthMatters The Health & Wellness Initiative at the Human Development Institute at the University of Kentucky has partnered with the authors of HealthMatters curriculum from the University of Illinois at Chicago to provide a statewide roll out of online based training for staff around the state to become instructors within their community
- [Supporting Student Success through Connecting Activities: An Info Brief Series for Community Colleges | NCWD/Youth](https://healthmattersprogram.org/2017/03/03/supporting-student-success-through-connecting-activities-an-info-brief-series-for-community-colleges-ncwdyouth/) - Source: Supporting Student Success through Connecting Activities: An Info Brief Series for Community Colleges | NCWD/Youth Community college leaders are increasingly concerned with finding ways to better support and engage students in an effort to improve college completion rates. In order to increase their persistence and completion, many students need assistance connecting to services, activities, programs,
- [Resubmissions Revisited: Funded Resubmission Applications and Their Initial Peer Review Scores](https://healthmattersprogram.org/2017/03/10/resubmissions-revisited-funded-resubmission-applications-and-their-initial-peer-review-scores-nih-extramural-nexus/) - “My first submission got an overall impact score of 30. Is that good enough? What’s the likelihood I’ll eventually get this funded?”, or, “My first submission was not even discussed. Now what? Does anyone with an undiscussed grant bother to resubmit? And what’s the likelihood I’ll eventually get this funded?” In a past blog we
- [AUCD Welcomes John Tschida as Associate Executive Director for Research and Policy](https://healthmattersprogram.org/2017/03/08/2694/) - AUCD Welcomes John Tschida as Associate Executive Director for Research and Policy The Executive Director of the Association of University Centers on Disabilities, Andrew Imparato, announced today that John Tschida has been hired as the Associate Executive Director for Research and Policy. Mr. Tschida was most recently the director of the National Institute on Disability,
- [Doctor’s care is a balance of skill, empathy for Virginia Tech Carilion School of Medicine student : Augusta Free Press](https://healthmattersprogram.org/2016/10/28/doctors-care-is-a-balance-of-skill-empathy-for-virginia-tech-carilion-school-of-medicine-student-augusta-free-press/) - Source: Doctor’s care is a balance of skill, empathy for Virginia Tech Carilion School of Medicine student : Augusta Free Press Alyssa Savelli has wanted to be a doctor for as long as she can remember. “When I was 5, I would just sit and watch Discovery Health Channel and watch open heart surgery.” A
- [Technical Standards and Deaf and Hard of Hearing Medical School Applicants and Students: Interrogating Sensory Capacity and Practice Capacity, Oct 16 - AMA Journal of Ethics](https://healthmattersprogram.org/2017/03/05/technical-standards-and-deaf-and-hard-of-hearing-medical-school-applicants-and-students-interrogating-sensory-capacity-and-practice-capacity-oct-16-ama-journal-of-ethics/) - Medical school technical standards should be revised to be more inclusive of applicants with disabilities to diversify the physician workforce. AMA Journal of Ethics is a monthly bioethics journal published by the American Medical Association. Source: Technical Standards and Deaf and Hard of Hearing Medical School Applicants and Students: Interrogating Sensory Capacity and Practice Capacity,
- [Bad Hospital Design Is Making Us Sicker - The New York Times](https://healthmattersprogram.org/2017/03/03/bad-hospital-design-is-making-us-sicker-the-new-york-times/) - Evidence-based medical care needs evidence-based design. Source: Bad Hospital Design Is Making Us Sicker - The New York Times As a medical resident working 30-hour shifts, I quickly came to cherish those rare moments when I could duck out of the bustling and brightly lit hospital corridors and lay my head on a pillow. Granted,
- [Federal Register: Administration on Intellectual and Developmental Disabilities, President's Committee for People With Intellectual Disabilities](https://healthmattersprogram.org/2017/03/06/federal-register-administration-on-intellectual-and-developmental-disabilities-presidents-committee-for-people-with-intellectual-disabilities/) - Source: Federal Register: Administration on Intellectual and Developmental Disabilities, President's Committee for People With Intellectual Disabilities AGENCY: Administration for Community Living, HHS. ACTION: Notice. DATES: Thursday, March 23, 2017 from 8:30 a.m. to 5:00 p.m.; and Friday, March 24, 2017 from 9:00 a.m. to 3:00 p.m. These meetings will be open to the general public.
- [Health Access for Independent Living (HAIL): Developing a Health Promotion Assistance Tool](https://healthmattersprogram.org/2017/03/03/rtc-projects-r7-research-training-center-on-independent-living/) - Health Access for Independent Living (HAIL): Developing a Health Promotion Assistance Tool To learn more, see the HAIL feature story. This project is one of five interventions designed to improve community living opportunities for people with disabilities. Source: RTC Projects: R7 | Research & Training Center on Independent Living
- [NPs Promoting Physical Activity: People with Intellectual and Developmental Disabilities.](https://healthmattersprogram.org/2017/01/18/nps-promoting-physical-activity-people-with-intellectual-and-developmental-disabilities/) - Marks, B. & Sisirak, J. (2017). NPs Promoting Physical Activity: People with Intellectual and Developmental Disabilities. The Journal for Nurse Practitioners, 13(1), e1–e5. DOI: 10.1016/j.nurpra.2016.10.023 Abstract People with intellectual and developmental disabilities (IDD) are not residing in large congregate care centers due to legislative, attitudinal, and treatment changes, and they are living longer than their
- [Consensus Statement of the International Summit on Intellectual Disability and Dementia Related to Nomenclature](https://healthmattersprogram.org/2017/01/27/consensus-statement-of-the-international-summit-on-intellectual-disability-and-dementia-related-to-nomenclature/) - Janicki, M.P.1, McCallion. P.2, Splaine, M.3, Santos, F.H.4, Keller, S.M.5, Watchman, K.6. (October 2017). Consensus Statement of the International Summit on Intellectual Disability and Dementia Related to Nomenclature. American Association on Intellectual and Developmental Disabilities (AAIDD). 1 University of Illinois at Chicago, USA 2 University at Albany, New York USA 3 Splaine Consulting, Columbia, Maryland
- [Impact: Feature Issue on Supporting Wellness for Adults with Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2015/09/11/impact-feature-issue-on-supporting-wellness-for-adults-with-intellectual-and-developmental-disabilities-2/) - Advocating for herself, others with disabilitiesChristy Levy September 8, 2015 Self-advocacy specialist Tia Nelis at the steps of her portrait on the stairs of the National Museum of American History, on display in July.Tia Nelis has spent more than two decades advocating for herself. In the process, she’s spoken up for many others.Nelis wasn’t completely
- [Benefits of Forging Partnerships with Academic Institutions: Putting the Pieces Together](https://healthmattersprogram.org/2013/01/08/benefits-of-forging-partnerships-with-academic-institutions-putting-the-pieces-together/) - February 09, 2012Chicago, IllinoisHealthMatters CAP Team (Dina Donohue-Chase, Kristin Krok, and Beth Marks) was invited by Easter Seals to present on experiences in forging collaborations between community-based organizations and academic institutions. The focus of the webinar was on creating community academic partnerships and building capacity among community based organizations to develop infrastructure for culturally relevant
- [Building Capacity Among Pediatric Residents to Promote Health Advocacy Among Persons with Developmental Disabilities](https://healthmattersprogram.org/2009/01/01/building-capacity-among-pediatric-residents-to-promote-health-advocacy-among-persons-with-developmental-disabilities/) - Building Capacity Among Pediatric Residents to Promote Health Advocacy Among Persons with Developmental Disabilities (2009). Marks, B., Sisirak, J., Heller, T. & Cutler, A.This Health Advocacy Curriculum was developed for the two hour Health Advocacy Workshop to improve access to quality health care for adolescents and young adults with developmental disabilities/special health care needs (DD)
- [Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities](https://healthmattersprogram.org/2010/01/01/health-matters-the-exercise-and-nutrition-health-education-curriculum-for-people-with-developmental-disabilities/) - Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities (2010). Marks, B., Sisirak, J. & Heller, T. Baltimore: Paul H. Brookes Publishing Co. The HealthMatters Program is a research-based, field-tested program that's already made a dramatic difference in the lives of participants with disabilities, this proven curriculum shows professionals how
- [Disability Through the Life Course](https://healthmattersprogram.org/2011/01/01/disability-through-the-life-course-2/) - Disability Through the Life Course (2011) Heller, T. & Parker Harris, S.: SAGE Publications, Thousand Oaks, CA.
- [Why do we need national guidelines for adults with intellectual disability and dementia?](https://healthmattersprogram.org/2015/09/02/why-do-we-need-national-guidelines-for-adults-with-intellectual-disability-and-dementia/) - New Article Highlights Need for National Practice Guidelines for Adults with ID and Dementia Matthew P. Janicki and Seth M. Keller The NIDILRR-funded Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD) recently published an article, Why do we need national guidelines for adults with intellectual disability (ID) and dementia? in the open access
- [Measuring HCBS Quality in MLTSS Programs](https://healthmattersprogram.org/2013/09/27/measuring-hcbs-quality-in-mltss-programs-2/) - Webinar Presented by RRTCDD researchers Tamar Heller and Randall Owen September 27, 2013. Sponsored by the Friday Morning Collaborative.
- [International Congress: Perspectives on Aging with Intellectual Disability](https://healthmattersprogram.org/2014/01/17/international-congress-perspectives-on-aging-with-intellectual-disability-2/) - Dortmund University, Germany March 21 and 22, 2014 RRTCADD presenters include Tamar Heller, speaking on "Siblings and other family members as supports" and Matthew Janicki, speaking on "Optimal physical and social living conditions for people with intellectual disability and dementia" . For more information and registration: http://www.zhb.tu-dortmund.de/PerspektivenDesAlterns
- [Impact of Adulthood Stage and Social-Environmental Context on Body Mass Index and Physical Activity of Individuals With Intellectual Disability](https://healthmattersprogram.org/2015/04/13/impact-of-adulthood-stage-and-social-environmental-context-on-body-mass-index-and-physical-activity-of-individuals-with-intellectual-disability/) - Kelly Hsieh, Tamar Heller, Julie Bershadsky, and Sarah TaubIntellectual and Developmental Disability 2015, Vol. 53, No. 2, 100–113Individuals with intellectual disability (ID) are at risk for obesity and physical inactivity. We analyzed a subset of 2009–2010 National Core Indicators (NCI) database to examine (1) the impact of three adulthood stages– younger (20–39 years), middle (40–59
- [About the Contributors, Oct 16 - AMA Journal of Ethics](https://healthmattersprogram.org/2017/03/05/about-the-contributors-oct-16-ama-journal-of-ethics/) - AMA Journal of Ethics Health Professionals with Disabilities Theme issue: Health Professionals with Disabilities. AMA Journal of Ethics is a monthly bioethics journal published by the American Medical Association. Source: About the Contributors, Oct 16 - AMA Journal of Ethics
- [Prevalence of Self-Disclosed Disability in US Allopathic Medical Students | Medical Education and Training | JAMA | The JAMA Network](https://healthmattersprogram.org/2017/03/05/prevalence-of-self-disclosed-disability-in-us-allopathic-medical-students-medical-education-and-training-jama-the-jama-network/) - Studying the performance of medical students with disabilities requires a better understanding of the prevalence and categories of disabilities represented.1- 4 It remains unclear how many medical students have disabilities; prior estimates are out-of-date and psychological, learning, and chronic health disabilities have not been evaluated.5 This study assessed the prevalence of all disabilities and the accommodations
- [Empowering medical students with disabilities: The student perspective - Herzer - 2016 - Disability Compliance for Higher Education - Wiley Online Library](https://healthmattersprogram.org/2017/03/05/empowering-medical-students-with-disabilities-the-student-perspective-herzer-2016-disability-compliance-for-higher-education-wiley-online-library/) - Source: Empowering medical students with disabilities: The student perspective - Herzer - 2016 - Disability Compliance for Higher Education - Wiley Online Library Medical school can be a stressful and high-stakes experience. For medical students with disabilities, that experience may be even more stressful as students navigate the accommodations process, worry about possible discrimination if
- [Moving From Disability to Possibility | Humanities | JAMA | The JAMA Network](https://healthmattersprogram.org/2017/03/05/moving-from-disability-to-possibility-humanities-jama-the-jama-network/) - Source: Moving From Disability to Possibility | Humanities | JAMA | The JAMA Network When I was in the first grade, an astute teacher noticed that I had trouble seeing the blackboard. This finding was quickly confirmed by a vision test. Formal evaluation by an ophthalmologist revealed that I had a rare degenerative retinal disease.
- [Events | Managing Work, Life, and Disability: Considerations for Individuals and Employers](https://healthmattersprogram.org/2017/03/05/events-yang-tan-institute/) - Source: Events | Yang Tan Institute Managing Work, Life, and Disability: Considerations for Individuals and Employers Thursday, March 16, 2017 from 10:00 AM to 11:15 AM This session will be jointly presented by LaWanda Cook of Cornell University’s Yang-Tan Institute on Employment and Disability (YTI), Michael Murray of the American Association of People with Disabilities
- [An Ordinary, Extraordinary Day](https://healthmattersprogram.org/2016/03/04/an-ordinary-extraordinary-day-2/) - OFCCP Director Blogs About Updated Veteran/People with a Disability Regulations - See more at: http://outsolve.com/blog/ofccp-director-blogs-about-updated-veteran-people-with-a-disability-regulations#sthash.tvtBwib0.dpuf Karla wrote for her daughter, a high school student with cerebral palsy who, her mom points out, “will be as qualified as anyone else” when she enters the workforce. Gerald wrote to make sure we didn’t forget the continuing barriers
- [CareerCast.com Reports Best Jobs for People with Disabilities](https://healthmattersprogram.org/2012/09/13/careercast-com-reports-best-jobs-for-people-with-disabilities-3/) - The U.S. Equal Employment Opportunity Commission Introduction The Americans with Disabilities Act (ADA) is a federal law that prohibits discrimination against individuals with disabilities. Title I of the ADA covers employment by private employers with 15 or more employees as well as state and local government employers of the same size. Section 501 of the
- [Demonstration of 1-Handed Injection](https://healthmattersprogram.org/2015/06/27/demonstration-of-1-handed-injection-2/) - NOND Board Director Eileen Quinn, RN demonstrates how to give a subcutaneous injection and an intramuscular injection with one hand.
- [choosenursing.com](https://healthmattersprogram.org/2015/03/18/choosenursing-com-2/) - Why Go to College? A nursing education could mean the difference between a minimum-wage job and a career that pays well and has lots of opportunities. California Institute for Nursing & Health Care
- [National League for Nursing Publishes Vision for Achieving Meaningful Inclusion in Nursing Education](https://healthmattersprogram.org/2016/02/17/national-league-for-nursing-publishes-vision-for-achieving-meaningful-inclusion-in-nursing-education-2/) - National League for Nursing Publishes Vision for Achieving Meaningful Inclusion in Nursing Education Calls on Nursing Education Community to Lead Efforts to Expand Diversity Among Faculty and Students Achieving Diversity and Meaningful Inclusion in Nursing Education A Living Document from the National League for Nursing Download PDF February 2016
- [Medical and Allied Health Careers: Technical Standards and Individuals who are Deaf or Hard of Hearing](https://healthmattersprogram.org/2016/02/17/medical-and-allied-health-careers-technical-standards-and-individuals-who-are-deaf-or-hard-of-hearing-2/) - October 2015 PepNet 2 put out a “fast facts” document about technical standards and deaf and hard of hearing students studying medical and allied health professions.
- [Disclosure of Disabilities by Medical Students](https://healthmattersprogram.org/2016/03/04/disclosure-of-disabilities-by-medical-students/) - Source: Disclosure of Disabilities by Medical Students In Reply Ms Schwartz emphasizes the importance of disclosure as it relates to providing opportunities to medical students with disabilities. Although disclosure is important, if not necessary, for receiving accommodations from an institution, disclosure alone is unlikely to change the broader attitudes and cultural norms that limit access
- [Moving From Disability to Possibility](https://healthmattersprogram.org/2015/03/04/2406/) - When I was in the first grade, an astute teacher noticed that I had trouble seeing the blackboard. This finding was quickly confirmed by a vision test. Formal evaluation by an ophthalmologist revealed that I had a rare degenerative retinal disease. Worse than that diagnosis was the ophthalmologist’s devastating prognosis for my life: attending college
- [A Strong Workforce is an Inclusive Workforce: What Can YOU Do?](https://healthmattersprogram.org/2012/05/19/a-strong-workforce-is-an-inclusive-workforce-what-can-you-do-2/) - A Strong Workforce is an Inclusive Workforce: What Can YOU Do? Donna Martinez May 19, 2012 And apparently the US District Court in Oregon is in agreement! From NDRN: Breaking News Yesterday, the U.S. District Court in Oregon issued a 16-page Opinion and Order in the case Lane v. Kiltzhaber, 3:12-cv-00138-ST. The Lane complaint claims
- [Job Accommodation Network Releases Publication on Monitoring Reasonable Accommodations](https://healthmattersprogram.org/2016/03/04/job-accommodation-network-releases-publication-on-monitoring-reasonable-accommodations-2/) - Accommodations can stop being effective for various reasons, such as: the employee's limitations change, workplace equipment changes, the job changes, the workplace itself changes, or the accommodation becomes an undue hardship for the employer to continue to provide. http://askjan.org/media/monitoring.html
- [Building an Inclusive Workforce: A Four-Step Reference Guide to Recruiting, Hiring, and Retaining Employees with Disabilities](https://healthmattersprogram.org/2012/03/31/building-an-inclusive-workforce-a-four-step-reference-guide-to-recruiting-hiring-and-retaining-employees-with-disabilities-2/) - This colorful resource includes examples of inclusive workplaces and links to many different resources for employers and those who encourage inclusive employment.
- [Why Is Disability Missing From the Discourse on Diversity? By Lennard J. Davis](https://healthmattersprogram.org/2011/09/25/why-is-disability-missing-from-the-discourse-on-diversity-by-lennard-j-davis-2/) - That position still remains a hope, but I am beginning to think that this opening up of the inner sanctum of diversity to admit the abject may well never happen—not because scholars or administrators are mean or ignorant, but because diversity as an ideological paradigm and a course of study is structurally related to the
- [PAC Mate Enables Blind Medical Student to Achieve her Ultimate Goal](https://healthmattersprogram.org/2010/02/01/pac-mate-enables-blind-medical-student-to-achieve-her-ultimate-goal-2/) - Cooke, who at 40 is completing her last months’ studies at the National College of Naturopathic Medicine in Portland, chose naturopathy as her specialty because, “Naturopathy combines the prescription of (standard manufactured) drugs with natural remedies and emphasizes general diagnosis, the use of natural therapeutics and traditional medicine, and we work with diet, nutrition, life
- [Making the Most of College Visits](https://healthmattersprogram.org/2012/04/16/making-the-most-of-college-visits-2/) - For many of you, spring break is your chance to sleep in, hang out with friends, or take a vacation with your family; however, for juniors just starting their college search and for seniors making their final selection, spring is the prime time for visiting college campuses.
- [Incorporate Reasonable Accommodation Practices into your Onboarding Process](https://healthmattersprogram.org/2012/05/05/incorporate-reasonable-accommodation-practices-into-your-onboarding-process-2/) - Certainly not all of these accommodations need to be in place for the first day of work, but an awareness of the potential need and a willingness to implement accommodations as part of your company culture will help any employer successfully onboard new employees.
- [The Future of Disability in America](https://healthmattersprogram.org/2012/05/06/the-future-of-disability-in-america-2/) - Our conclusions, as detailed in this report, entitled The Future of Disability in America, document the sobering reality that far too little progress has been made in the last two decades to prepare for the aging of the baby boom generation and to remove the obstacles that limit what too many people with physical and
- [Being Bullied Tied to Anxiety, Depression in Special-Needs Kids](https://healthmattersprogram.org/2012/04/29/being-bullied-tied-to-anxiety-depression-in-special-needs-kids-2/) - "What is notable about these findings is that despite all the many challenges these children face in relation to their chronic medical or developmental diagnosis, being bullied or excluded by their peers were the factors most likely to predict whether or not they reported symptoms of depression," study leader Dr. Margaret Ellis McKenna, a senior
- [Recruitment: Workers with Disabilities: Where Can Employers Find Qualified Applicants with Disabilities?](https://healthmattersprogram.org/2012/03/21/recruitment-workers-with-disabilities-where-can-employers-find-qualified-applicants-with-disabilities-2/) - Comprehensive information for employers about recruiting and hiring qualified applicants with disabilities is available in the Recruitment and Retention section of Office of Disability Employment Policy (ODEP) website.
- [Health Care Providers Settle with Justice Department Over Complaints of HIV Discrimination](https://healthmattersprogram.org/2012/05/12/health-care-providers-settle-with-justice-department-over-complaints-of-hiv-discrimination-2/) - Those interested in finding out more about these settlements or the obligations of public accommodations under the ADA may call the Justice Department’s toll-free ADA information line at 800-514-0301 or 800-514-0383 (TDD), or access its ADA website at www.ada.gov.
- [US Labor Department’s Office of Disability Employment Policy announces 2012 theme for National Disability Employment Awareness Month](https://healthmattersprogram.org/2012/06/02/us-labor-departments-office-of-disability-employment-policy-announces-2012-theme-for-national-disability-employment-awareness-month-2/) - "Employers who ensure that inclusive workplace policies and practices are woven into the fabric and culture of the organization create an environment that encourages all workers — including those of us with disabilities — to work to their full capacity and contribute fully to the organization's success," said Kathy Martinez, assistant secretary of labor for
- [Court Agrees that Americans with Disabilities Act Applies to Employment](https://healthmattersprogram.org/2012/06/02/court-agrees-that-americans-with-disabilities-act-applies-to-employment-2/) - Department of Justice also told the court it supports the Plaintiffs’ case, making clear that it interprets the Title II integration mandate of the ADA to prohibit the unnecessary provision of employment-related services to persons with disabilities in segregated sheltered workshops, in which persons with disabilities have little to no opportunity to interact with non-disabled
- [Do Workers with Disabilities Cost More?](https://healthmattersprogram.org/2012/05/15/do-workers-with-disabilities-cost-more-2/) - Employers in the U.S. hospitality industry are often reluctant to hire people with disabilities because of preconceived notions that they cannot do the jobs and are more costly to employ than people without disabilities, according to University of New Hampshire researchers.
- [OFCCP Publishes Proposal to Improve Job Opportunities for Individuals with Disabilities](https://healthmattersprogram.org/2012/07/01/ofccp-publishes-proposal-to-improve-job-opportunities-for-individuals-with-disabilities-2/) - • Data Collection: Improve collection of data on employment of people with disabilities by modifying the invitation for workers to self-identify by requiring that contractors invite all applicants to voluntarily self-identify as an “individual with a disability” at the pre-offer stage of the hiring process.
- [Health Care Professionals with Disabilities Career Trends, Best Practices, & Call-to-Action Policy Roundtable](https://healthmattersprogram.org/2014/03/27/health-care-professionals-with-disabilities-career-trends-best-practices-call-to-action-policy-roundtable-2/) - "We know that health-care occupations dominate the list of jobs predicted to be in most demand in coming years," said Assistant Secretary of Labor Kathy Martinez, who heads ODEP, as she welcomed attendees.
- [MySkills MyFutures](https://healthmattersprogram.org/2014/03/18/myskills-myfutures-2/) - http://www.myskillsmyfuture.org/
- [CareerOneStop](https://healthmattersprogram.org/2014/03/18/careeronestop-2/) - Tools to help job seekers, students, businesses, and career professionals Sponsored by the U.S.
- [For people with disabilities, doctors are not always healers](https://healthmattersprogram.org/2014/11/07/for-people-with-disabilities-doctors-are-not-always-healers-2/) - As we talked, I told James what it was like to go through medical training as a person who stutters and how I saw firsthand the ignorance and prejudice some health-care providers harbor toward patients with disabilities.
- [Meeting the Demands of an Expanding Health Care Workforce](https://healthmattersprogram.org/2014/04/21/meeting-the-demands-of-an-expanding-health-care-workforce-2/) - One fact surfaced repeatedly throughout the discussion: People with disabilities not only represent an untapped talent pool that can help respond to looming labor shortages in nursing and other health care occupations, but they also offer significant value and insight that can improve care for patients and their families.
- [Major law change: Section 503 to Hire People with Disabilities to take Effect on Monday, March 24](https://healthmattersprogram.org/2014/03/27/major-law-change-section-503-to-hire-people-with-disabilities-to-take-effect-on-monday-march-24-2/) - 3) Median household income for a person reporting a disability was $25,420, compared to $59,411 for someone without a disability“ These numbers remain unchanged over the past 40 years despite dramatic improvements in access to physical workplaces, technology, and policy,” says attorney David Newburger, co-director of Starkloff Disability Institute.
- [Disability Rights and Accommodations: Setting A Standard of Care](https://healthmattersprogram.org/2014/11/19/disability-rights-and-accommodations-setting-a-standard-of-care-2/) - In 1991, Rush University Medical Center (RUMC) chartered the ADA Task Force with a charge to implement policies for individuals with disabilities, champion inclusion, and educate people on how working with and hiring persons with disabilities enriches our global village.
- [Standardized Patients with Disabilities' Perceptions of Working with Undergraduate Nursing Students](https://healthmattersprogram.org/2014/11/19/standardized-patients-with-disabilities-perceptions-of-working-with-undergraduate-nursing-students-2/) - Importantly, they identified the need for the new state-of-the-art college building to be assessed by people with disability limitations for accessibility for people with disabilities as they identified several problems that could and should be easily remedied.
- [Physical Limits on CPR Quality and Methods for Quality Improvement](https://healthmattersprogram.org/2015/03/04/physical-limits-on-cpr-quality-and-methods-for-quality-improvement/) - This researcher is working on this with the hope that the American Heart Association will start teaching people to do compressions with their foot, which is more effective and less exhausting.
- [Disability Employment Policy — What Are We Missing?](https://healthmattersprogram.org/2012/05/02/disability-employment-policy-what-are-we-missing-2/) - Disability Employment Policy — What Are We Missing? by Guest Blogger Paul Hippolitus, Director, Disabled Students’ Program, Equity & Inclusion, University of California, Berkeley Watch a YouTube video of Paul Hippolitus discussing UC Berkeley’s ”Professional Development and Disability” course. As a longtime advocate and professional working in support of the employment of people with disabilities, I was
- [Deaf Student Denied Interpreter by Medical School](https://healthmattersprogram.org/2013/08/23/deaf-student-denied-interpreter-by-medical-school-2/) - Deaf Student Denied Interpreter by Medical School Deaf Student, Denied Interpreter by Medical School, Draws Focus of Advocates By JOHN ELIGON Speaking with the parents of a sick infant, Michael Argenyi, a medical student, could not understand why the child was hospitalized. During another clinical training session, he missed most of what a patient with
- [Deaf Medical Student Wins ADA Case Against Creighton](https://healthmattersprogram.org/2013/09/11/deaf-medical-student-wins-ada-case-against-creighton-2/) - Deaf Medical Student Wins ADA Case Against Creighton On September 4, 2013, Michael Argenyi, a deaf medical student, represented by the National Association of the Deaf (NAD), the law firm of Stein & Vargas and Disability Rights Nebraska, won a jury trial against Creighton University in the United States District Court for the District of
- [Think College](https://healthmattersprogram.org/2014/04/21/think-college-2/) - ThinkCollege.net Think College is a national organization dedicated to developing, expanding, and improving inclusive higher education options for people with intellectual disability. With a commitment to equity and excellence, Think College supports evidence-based and student centered research and practice by generating and sharing knowledge, guiding institutional change, informing public policy, and engaging with students, professionals
- [The Americans with Disabilities Act and Afterwards: Disabilities in Medical Education and Practice](https://healthmattersprogram.org/1998/01/07/the-americans-with-disabilities-act-and-afterwards-disabilities-in-medical-education-and-practice/) - Disabilities-in-Medical-Education-and-Practice-Disabilities--Looking-Back-and-Looking-Ahead Disabilities: Looking Back and Looking Ahead Sue Sun Yom, MA, University of Pennsylvania School of Medicine Neither numbers nor definitions come easily when considering disabilities. Although 35 to 49 million Americans are formally classified as disabled,1 many more disabilities may be unreported or undiagnosed. Disabilities differ in kind and degree of functional impairment and
- [Study Finds Medical Procedures Violating the Civil Rights of People with Disabilities: Stunting Growth, Removing Body Parts with No Judicial Review](https://healthmattersprogram.org/2012/06/02/study-finds-medical-procedures-violating-the-civil-rights-of-people-with-disabilities-stunting-growth-removing-body-parts-with-no-judicial-review-2/) - Study Finds Medical Procedures Violating the Civil Rights of People with Disabilities: Stunting Growth, Removing Body Parts with No Judicial Review Washington, DC – In a first of its kind study, the National Disability Rights Network (NDRN) determined that performing certain medical procedures or withholding life sustaining treatment in non-terminal situations without judicial review violates
- [Open the Door, Get 'Em a Locker: Educating Nursing Students with Disabilities](https://healthmattersprogram.org/2009/12/01/open-the-door-get-em-a-locker-educating-nursing-students-with-disabilities-2/) - This documentary film produced by Bronwynne Evans, RN, PhD and Beth Marks, RN, PhD chronicles the experience of a nursing student who entered a baccalaureate program using a wheelchair. The 23 minute film provides a forum for the voices of nursing students, faculty, administrators, and agency nursing staff to discuss trials and triumphs encountered during
- [“What can YOU do?” Video Contest 2012 Winners Announced](https://healthmattersprogram.org/2012/06/02/what-can-you-do-video-contest-2012-winners-announced-2/) - “What can YOU do?” Video Contest 2012 Winners Announced Campaign for Disability Employment (CDE) The Campaign for Disability Employment’s 2012 “What can YOU do?” Video Contest challenged the general public, youth, and employers to produce disability employment awareness videos that reflect the diversity of skills people with disabilities offer, challenge common misconceptions about disability and
- [Additional Federal Attention Needed to Help Protect Access for Students with Disabilities](https://healthmattersprogram.org/2012/06/04/additional-federal-attention-needed-to-help-protect-access-for-students-with-disabilities-2/) - Charter schools enrolled a lower percentage of students with disabilities than traditional public schools, but little is known about the factors contributing to these differences. In school year 2009-2010, which was the most recent data available at the time of our review, approximately 11 percent of students enrolled in traditional public schools were students with
- [Americans with disabilities may be the best workers no one’s hiring](https://healthmattersprogram.org/2013/08/23/americans-with-disabilities-may-be-the-best-workers-no-ones-hiring-2/) - Americans with disabilities may be the best workers no one’s hiring Walgreens actually prefers disabled employees because they're more efficient workers, explains a new report BY THE MONITOR'S EDITORIAL BOARD Walgreens and now a report by the National Governors Association show businesses can benefit by seeing disabled workers not as charity cases but employees with uncommon
- [Accommodating the Communication Needs of Deaf-Blind Employees](https://healthmattersprogram.org/2012/05/04/accommodating-the-communication-needs-of-deaf-blind-employees-2/) - Accommodating the Communication Needs of Deaf-Blind Employees by Teresa Goddard and Elisabeth Simpson, Job Accommodation Network, Volume 10, Issue 2, Second Quarter, 2012 When you think of an individual who is deaf-blind (also known as deaf-blindness, blind-deaf, dual sensory impaired, or combined vision and hearing loss), do you think of someone who is fully deaf
- [Diversity among doctors: Students with disabilities are finding their place in medical schools—and beyond](https://healthmattersprogram.org/2015/09/30/diversity-among-doctors-students-with-disabilities-are-finding-their-place-in-medical-schools-and-beyond-2/) - Diversity among doctors: Students with disabilities are finding their place in medical schools—and beyond Cathy Gulli September 25, 2015 For Jessica Dunkley, getting into medical school was no ordinary childhood dream. Deaf since the day she was born, Dunkley aspired to become a doctor when, at age 10, her aunt gave her a plastic human
- [Top 10 CIO Strategies For Implementing Section 508](https://healthmattersprogram.org/2012/06/02/top-10-cio-strategies-for-implementing-section-508/) - Top 10 CIO Strategies For Implementing Section 508Last Updated: May 5, 20111. Adopt a Social Responsibility Perspective for AccessibilityAgencies unintentionally erect barriers to participation and inclusion for people with disabilities; however, a shift in perspective can fundamentally change their approach to accessibility (i.e., the staircase creates the barrier, not the wheelchair). Agencies that adopt a
- [Need Help Finding Support Services?](https://healthmattersprogram.org/2012/06/02/need-help-finding-support-services/) - Need Help Finding Support Services?View more than 100 organizations nationwide that provide emotional, practical, and financial support services for people with cancer and their families.Information from the National Cancer Institute (NCI) about support services for people living with cancer and their families. Get connected to more than 100 organizations nationwide that provide emotional, practical, and
- [How is “Disability" Is Defined Differently in Federal Laws for Children & Adults?](https://healthmattersprogram.org/2012/06/02/how-is-disability-is-defined-differently-in-federal-laws-for-children-adults/) - How is “Disability" Is Defined Differently in Federal Laws for Children & Adults?Pathways for Disabled Students to Tertiary Education and Employment: Country Report for the United StatesThis document is the Country Report produced by the United States in the context of the EDPC activity on Pathways for Disabled Students to Tertiary Education and Employment. It
- [Employer Strategies for Responding to an Aging Workforce](https://healthmattersprogram.org/2012/06/02/employer-strategies-for-responding-to-an-aging-workforce/) - Employer Strategies for Responding to an Aging Workforceby Francine M. Tishman, Sara Van Looy, and Susanne M. BruyèreExecutive SummaryAccording to a Government Accountability Office (GAO) report issued in 2006, the number of workers over age 55 is projected to increase significantly over the next 20 years, with this demographic group projected to comprise as much
- [Diversity among doctors: Students with disabilities are finding their place in medical schools—and beyond](https://healthmattersprogram.org/2015/09/30/diversity-among-doctors-students-with-disabilities-are-finding-their-place-in-medical-schools-and-beyond/) - < , who do not work with me directly, and they have assumptions.”That medical students and residents face stigma because of a health condition is ironic—but not so surprising. “There’s some deep psychological theory around how doctors in general may not necessarily accept their mortality,” says Vera Krejcik, president of the Canadian Association of Physicians
- [EEOC Sues Muskegon Family Care for Disability Discrimination](https://healthmattersprogram.org/2015/09/30/eeoc-sues-muskegon-family-care-for-disability-discrimination/) - Medical Provider Fired Employee with a Disability, Federal Agency ChargesDETROIT - Muskegon Family Care, a medical services provider located in Muskegon, Heights, MI, violated federal law by firing an employee due to a disability, the U.S. Equal Employment Opportunity Commission (EEOC) alleged in a lawsuit filed today.According to EEOC's suit, Avis Lane worked for Muskegon
- [La Familia: Latino Families Strong and Stable, Despite Limited Resources | Hispanic Center](https://healthmattersprogram.org/2017/03/03/la-familia-latino-families-strong-and-stable-despite-limited-resources-hispanic-center/) - The National Research Center on Hispanic Children & Families has just released a new brief series, “La Familia: Latino Families Strong and Stable, Despite Limited Resources.” The three briefs—including the first demographic portrait of Latino fathers—take a peek into Latino family life to examine how mothers, fathers, and boys are faring.These new studies come at
- [Expo Conference Materials](https://healthmattersprogram.org/2017/03/03/expo-conference-materials/) - 2016 KT Conference This section of the Expo features archived presentations and files from the 2016 KT Conference. These include captioned YouTube videos, edited transcripts, and downloadable copies of presentation files (PDF and text versions). This Conference Archive is pre-approved for 10 hours CRC-CEUs through 12-11-17. You must complete an evaluation to receive your verification
- [Developing Financial Capability Among Youth: How Families Can Help | NCWD/Youth](https://healthmattersprogram.org/2017/03/03/developing-financial-capability-among-youth-how-families-can-help-ncwdyouth/) - Developing financial capability is an important part of preparing for the transition to adulthood. Financial capability is “the capacity, based on knowledge, skills, and access, to manage financial resources effectively” (Department of the Treasury, 2010). In other words, it is the ability to make wise decisions about using and managing money. Families have an important
- [Community Outreach Collaboratives | National Disability Navigator Resource Collaborative](https://healthmattersprogram.org/2017/03/03/community-outreach-collaboratives-national-disability-navigator-resource-collaborative/) - Community Outreach Collaboratives The NDNRC has funded eighteen Community Outreach Collaboratives (COCs) for the third year of open enrollment – expanding on the eleven COCs who were funded in year two. The COCs will increase collaborations in the community, dissemination and outreach efforts and enrollment of people with disabilities in the ACA. The COCs have two primary
- [Disability Stigma and Your Patients | Rehabilitation Research and Training Center on Aging With Physical Disabilities](https://healthmattersprogram.org/2017/03/03/disability-stigma-and-your-patients-rehabilitation-research-and-training-center-on-aging-with-physical-disabilities/) - Source: Disability Stigma and Your Patients | Rehabilitation Research and Training Center on Aging With Physical Disabilities For people with disabilities, stigma can be a major barrier to participation. Stigmatizing attitudes about disabilities can also affect relationships between patients and providers. However, health care providers can be allies with their patients and help reduce the impact
- [National Disability Leadership Alliance (NDLA) Retreat in DC on June 6,2016](https://healthmattersprogram.org/2016/06/09/nond-board-directors-participate-in-national-disability-leadership-alliance-ndla-retreat-in-dc-on-june-62016/) - (null)
- [Compare Proposals to Replace The Affordable Care Act | The Henry J. Kaiser Family Foundation](https://healthmattersprogram.org/2017/03/03/compare-proposals-to-replace-the-affordable-care-act-the-henry-j-kaiser-family-foundation/) - President Donald Trump and Republicans in Congress have committed to repealing and replacing the Affordable Care Act (ACA). How do their replacement proposals compare to the ACA? How do they compare to each other? Includes proposals from Tom Price, Paul Ryan, Bill Cassidy, and Rand Paul Source: Compare Proposals to Replace The Affordable Care Act
- [Kaiser Brief Examines Tax Credits under ACA Replacement Plans | National Disability Navigator Resource Collaborative](https://healthmattersprogram.org/2017/03/03/kaiser-brief-examines-tax-credits-under-aca-replacement-plans-national-disability-navigator-resource-collaborative/) - Source: Kaiser Brief Examines Tax Credits under ACA Replacement Plans | National Disability Navigator Resource Collaborative
- [Job Accommodation Network Releases Publication on Monitoring Reasonable Accommodations](https://healthmattersprogram.org/2016/03/04/job-accommodation-network-releases-publication-on-monitoring-reasonable-accommodations/) - (null)
- [Aging and Dementia Care for People with Intellectual Disabilities](https://healthmattersprogram.org/2017/01/26/aging-and-dementia-care-for-people-with-intellectual-disabilities/) - Thursday, February 16, 2017 3:00pm | Eastern Daylight Time Presented by: Matthew Janicki, PhD Many organizations are seeing the aging of their clientele and their numbers increase, and concerns are growing about how to deal with age-associated effects evidenced with aging. One such age-associated condition, Alzheimer's disease (and related dementias), affects a significant number of adults
- [A Chance to See Disabilities as Assets](https://healthmattersprogram.org/2012/02/04/a-chance-to-see-disabilities-as-assets/) - A Chance to See Disabilities as AssetsBy PEGGY KLAUSNew York TimesPublished: February 4, 2012MANY people know of Berkeley, Calif., as the birthplace, in the 1960’s, of the Free Speech Movement. Fewer people know that Berkeley also played a major role in the disability rights movement. It was here, also in the ’60s, that Ed Roberts
- [Recruitment: Workers with Disabilities: Where Can Employers Find Qualified Applicants with Disabilities?](https://healthmattersprogram.org/2012/03/20/recruitment-workers-with-disabilities-where-can-employers-find-qualified-applicants-with-disabilities/) - Recruitment: Workers with Disabilities: Where Can Employers Find Qualified Applicants with Disabilities? 3/20/2012 Comprehensive information for employers about recruiting and hiring qualified applicants with disabilities is available in the Recruitment and Retention section of Office of Disability Employment Policy (ODEP) website.
- [Settlement: Disabled Must Be Included in Disaster Plans](https://healthmattersprogram.org/2012/04/25/settlement-disabled-must-be-included-in-disaster-plans/) - Settlement: Disabled Must Be Included in Disaster PlansBy Rick Orlov, Staff WriterPosted: 04/25/2012 08:41:57 PM PDTUpdated: 04/25/2012 08:45:42 PM PDT
- [The Future of Disability in America](https://healthmattersprogram.org/2012/05/06/the-future-of-disability-in-america/) - The Future of Disability in Americaby Committee on Disability in America, Marilyn J. Field and Alan M. Jette, EditorsThe 1991 Institute of Medicine (IOM) report Disability in America: Toward a National Agenda for Prevention identified disability as a significant social, public health, and moral issue that affects every individual, family, and community across America. This
- [Being Bullied Tied to Anxiety, Depression in Special-Needs Kids](https://healthmattersprogram.org/2012/04/29/being-bullied-tied-to-anxiety-depression-in-special-needs-kids/) - Being Bullied Tied to Anxiety, Depression in Special-Needs Kidsby American Academy of Pediatrics, news release, April 29, 2012More than chronic conditions themselves, maltreatment by peers added to mental distress in small study.SUNDAY, April 29 (HealthDay News) -- Special-needs youth with chronic medical conditions or developmental disabilities are at risk for anxiety and depression if they're
- [Making the Most of College Visits
](https://healthmattersprogram.org/2012/04/16/making-the-most-of-college-visits/) - Making the Most of College Visitsby Margie Hatch, NCWD Youth, Posted on April 16, 2012 Posted on April 16, 2012 by NCWD YouthToday’s blog provides guidance to youth about visiting colleges and other postsecondary institutions to help make informed decisions.For many of you, spring break is your chance to sleep in, hang out with friends,
- [Accommodating the Communication Needs of Deaf-Blind Employees](https://healthmattersprogram.org/2012/05/05/accommodating-the-communication-needs-of-deaf-blind-employees/) - Accommodating the Communication Needs of Deaf-Blind Employeesby Teresa Goddard and Elisabeth Simpson, Job Accommodation Network, Volume 10, Issue 2, Second Quarter, 2012When you think of an individual who is deaf-blind (also known as deaf-blindness, blind-deaf, dual sensory impaired, or combined vision and hearing loss), do you think of someone who is fully deaf and fully
- [Incorporate Reasonable Accommodation Practices into your Onboarding Process](https://healthmattersprogram.org/2012/05/05/incorporate-reasonable-accommodation-practices-into-your-onboarding-process/) - Incorporate Reasonable Accommodation Practices into your Onboarding Processby Ann Hirsh, Job Accommodations Network, Volume 10, Issue 2, Second Quarter, 2012Spring is in full swing and there are signs indicating an upcoming increase in the hiring of people with disabilities in both the Federal and private sectors. With Federal Executive Order 13548 - Increasing Federal Employment
- [Americans with Disabilities: Ready for the Global Workforce](https://healthmattersprogram.org/2006/05/22/americans-with-disabilities-ready-for-the-global-workforce/) - Americans with Disabilities: Ready for the Global Workforce U.S. Secretary of Labor Elaine L. Chao announced that "Americans with Disabilities: Ready for the Global Workforce" will be the official theme for October's National Disability Employment Awareness Month, which is celebrated nationwide."The 2006 theme — "Americans with Disabilities: Ready for the Global Workforce" — highlights the
- [New EEOC Publication Addresses Employment of Health Care Workers with Disabilities](https://healthmattersprogram.org/2007/02/26/new-eeoc-publication-addresses-employment-of-health-care-workers-with-disabilities/) - New EEOC Publication Addresses Employment of Health Care Workers with DisabilitiesLatest Q&A Fact Sheet Explains How Americans with Disabilities Act Applies to Employment in the Health Care IndustryWASHINGTON - Naomi C. Earp, Chair of the U.S. Equal Employment Opportunity Commission (EEOC), today announced the issuance of a new question-and-answer (Q&A) fact sheet on the application
- [Ricky Allen Steele, Former NOND Board Member](https://healthmattersprogram.org/2009/09/03/ricky-allen-steele-former-nond-board-member/) - Ricky Allen Steele, Former NOND Board Member died September 03, 2009 in Los Angeles, California. Rick was a most remarkable man with many talents and an incredible zest for life. He woke up every day whistling like Jiminy Cricket, ready to go, bringing a positive spirit to every situation and to each person he encountered.
- [PAC Mate Enables Blind Medical Student to Achieve her Ultimate Goal](https://healthmattersprogram.org/2010/02/01/pac-mate-enables-blind-medical-student-to-achieve-her-ultimate-goal/) - Portland, OregonIn a few months, the newest doctor – and one of the first doctors of her kind in the nation – will hang her shingle in the Portland, Oregon area. Chris L. Cooke will become one of the first totally blind doctors in the US with a specialty in naturopathic medicine.The new Dr. Cooke,
- [Why Is Disability Missing From the Discourse on Diversity? By Lennard J. Davis](https://healthmattersprogram.org/2011/09/25/why-is-disability-missing-from-the-discourse-on-diversity-by-lennard-j-davis/) - by Lennard J. DavisThe ChronicleIt has been more than 20 years since the Americans With Disabilities Act took effect, but while the law has changed some things in higher education, it hasn’t changed the way academic culture regards people with disabilities. While our current interest in diversity is laudable, colleges rarely think of disability when
- [Open the Door, Get 'Em a Locker: Educating Nursing Students with Disabilities](https://healthmattersprogram.org/2009/12/01/open-the-door-get-em-a-locker-educating-nursing-students-with-disabilities/) - Open the Door, Get 'Em a Locker: Educating Nursing Students with DisabilitiesOpen the Door Student PerspectiveOpen the Door Graduate ReflectionThis documentary film produced by Bronwynne Evans, RN, PhD and Beth Marks, RN, PhD chronicles the experience of a nursing student who entered a baccalaureate program using a wheelchair. The 23 minute film provides a forum
- [Bring Down the Barriers—Seen and Unseen By Rachel Adams](https://healthmattersprogram.org/2011/11/10/bring-down-the-barriersseen-and-unseen-by-rachel-adams/) - by Rachel AdamsThe ChronicleA colleague in a wheelchair goes into an underground passage connecting two campus buildings. Once the entrance locks behind him, he discovers that the door at the other end refuses to open with his swipe card. Although he is a vigorous man of middle age, the maintenance worker who comes to his
- [Building an Inclusive Workforce: A Four-Step Reference Guide to Recruiting, Hiring, and Retaining Employees with Disabilities](https://healthmattersprogram.org/2012/03/31/building-an-inclusive-workforce-a-four-step-reference-guide-to-recruiting-hiring-and-retaining-employees-with-disabilities/) - Office of Disability Employment Policy (ODEP), U.S. Department of Labor (DOL)The Office of Disability Employment Policy (ODEP), U.S. Department of Labor (DOL) has published this four-step reference guide to recruiting, hiring, and retaining employees with disabilities. This colorful resource includes examples of inclusive workplaces and links to many different resources for employers and those who
- [Medical and Allied Health Careers: Technical Standards and Individuals who are Deaf or Hard of Hearing](https://healthmattersprogram.org/2016/02/17/medical-and-allied-health-careers-technical-standards-and-individuals-who-are-deaf-or-hard-of-hearing/) - October 2015 PepNet 2 put out a “fast facts” document about technical standards and deaf and hard of hearing students studying medical and allied health professions. http://www.pepnet.org/sites/default/files/Medical-and-Allied-Health-Careers.pdfDownload PDF
- [National League for Nursing Publishes Vision for Achieving Meaningful Inclusion in Nursing Education](https://healthmattersprogram.org/2016/02/17/national-league-for-nursing-publishes-vision-for-achieving-meaningful-inclusion-in-nursing-education/) - National League for Nursing Publishes Vision for Achieving Meaningful Inclusion in Nursing Education Calls on Nursing Education Community to Lead Efforts to Expand Diversity Among Faculty and Students Achieving Diversity and Meaningful Inclusion in Nursing Education A Living Document from the National League for Nursing February 2016Download PDF
- [Attention-Deficit/Hyperactivity Disorder and Successful Completion of Anesthesia Residency: A Case Report
Attention-Deficit/Hyperactivity Disorder and Successful Completion of Anesthesia Residency: A Case Report
Attention-Deficit/Hyperactivity Disorder and Successful Completion of Anesthesia Residency: A Case Report
](https://healthmattersprogram.org/2015/08/24/attention-deficithyperactivity-disorder-and-successful-completion-of-anesthesia-residency-a-case-reportattention-deficithyperactivity-disorder-and-successful-completion-of-anesthesia-residency/) - Michael G. Fitzsimons, MD, Jason C. Brookman, MD, Sarah H. Arnholz, JD, and Keith Baker, MD, PhD AbstractCognitive and physical disabilities among anesthesia residents are not well studied. Cognitive disabilities may often go undiagnosed among trainees, and these trainees may struggle during their graduate medical education. Attention-deficit/hyperactivity disorder (ADHD) is an executive function disorder that
- [Demonstration of 1-Handed Injection](https://healthmattersprogram.org/2015/06/27/demonstration-of-1-handed-injection/) - NOND Board Director Eileen Quinn demonstrates how to give a subcutaneous injection and an intramuscular injection with one hand.
- [choosenursing.com](https://healthmattersprogram.org/2015/03/18/choosenursing-com/) - Why Go to College? A nursing education could mean the difference between a minimum-wage job and a career that pays well and has lots of opportunities. California Institute for Nursing & Health Care
- [Standardized Patients with Disabilities' Perceptions of Working with Undergraduate Nursing Students](https://healthmattersprogram.org/2014/11/19/standardized-patients-with-disabilities-perceptions-of-working-with-undergraduate-nursing-students/) - APHA 2014 Poster PresentationSuzanne C. Smeltzer, RN, EdD, FAAN, College of Nursing, Villanova University, Villanova, PABette Mariani, PhD, RN , College of Nursing, Villanova University, Villanova, PAElizabeth Petit de Mange, PhD, RN , College of Nursing, Villanova University, Villanova, PAColleen Meakim, RN, MSN , College of Nursing, Villanova University, VillanovaJennifer Ross, RN, PhD , College
- [Think College](https://healthmattersprogram.org/2014/04/21/think-college/) - ThinkCollege.netThink College is a national organization dedicated to developing, expanding, and improving inclusive higher education options for people with intellectual disability. With a commitment to equity and excellence, Think College supports evidence-based and student centered research and practice by generating and sharing knowledge, guiding institutional change, informing public policy, and engaging with students, professionals and
- [An Ordinary, Extraordinary Day](https://healthmattersprogram.org/2014/03/27/an-ordinary-extraordinary-day/) - http://social.dol.gov/blog/an-ordinary-extraordinary-day/An Ordinary, Extraordinary Day
- [Major law change: Section 503 to Hire People with Disabilities to take Effect on Monday, March 24](https://healthmattersprogram.org/2014/03/26/major-law-change-section-503-to-hire-people-with-disabilities-to-take-effect-on-monday-march-24/) - OFCCP Final Rule to Improve Job Opportunities for Individuals with DisabilitiesOFCCP 503 of the Rehabilitation Act of 1973 Final Rule Fact SheetBeginning Monday, March 24th, 2014, businesses that work with the Federal Government will be required to set goals to employ people with disabilities at a rate of 7 percent and in doing so, keep
- [Deaf Medical Student Wins ADA Case Against Creighton
](https://healthmattersprogram.org/2013/09/11/deaf-medical-student-wins-ada-case-against-creighton/) - Deaf Medical Student Wins ADA Case Against CreightonOn September 4, 2013, Michael Argenyi, a deaf medical student, represented by the National Association of the Deaf (NAD), the law firm of Stein & Vargas and Disability Rights Nebraska, won a jury trial against Creighton University in the United States District Court for the District of Nebraska.
- [Deaf Student Denied Interpreter by Medical School](https://healthmattersprogram.org/2013/08/23/deaf-student-denied-interpreter-by-medical-school/) - Deaf Student Denied Interpreter by Medical SchoolDeaf Student, Denied Interpreter by Medical School, Draws Focus of Advocates By JOHN ELIGON Speaking with the parents of a sick infant, Michael Argenyi, a medical student, could not understand why the child was hospitalized. During another clinical training session, he missed most of what a patient with a
- [Americans with disabilities may be the best workers no one’s hiring](https://healthmattersprogram.org/2013/08/23/americans-with-disabilities-may-be-the-best-workers-no-ones-hiring/) - Americans with disabilities may be the best workers no one’s hiringWalgreens actually prefers disabled employees because they're more efficient workers, explains a new report BY THE MONITOR'S EDITORIAL BOARDWalgreens and now a report by the National Governors Association show businesses can benefit by seeing disabled workers not as charity cases but employees with uncommon qualities
- [The Autoimmune Disabilities Guide for Moms](https://healthmattersprogram.org/2013/04/17/the-autoimmune-disabilities-guide-for-moms/) - The Autoimmune Disabilities Guide for MomsAutoimmuneMom.com was born out of a frustration with a lack of online information about autoimmune conditions beyond the surface-level articles and blog posts, even on the top health websites. Believing there must be a way to develop content that dug into current research and examined deeper questions, the planning for
- [CareerCast.com Reports Best Jobs for People with Disabilities](https://healthmattersprogram.org/2012/09/13/careercast-com-reports-best-jobs-for-people-with-disabilities-2/) - The U.S. Equal Employment Opportunity CommissionIntroductionThe Americans with Disabilities Act (ADA) is a federal law that prohibits discrimination against individuals with disabilities. Title I of the ADA covers employment by private employers with 15 or more employees as well as state and local government employers of the same size. Section 501 of the Rehabilitation Act
- [The Sea Glass Group](https://healthmattersprogram.org/2012/06/26/the-sea-glass-group/) - The Sea Glass GroupExpanding the Boundaries of Professional SearchSpecializing in the Recruitment of College and Advanced Degreed Professionals with Evident and Non-Evident DisabilitiesWhat is The Sea Glass Group? The Sea Glass Group is a privately held professional search firm headquartered in Chicago, IL and serving corporate clients across the country. We specialize in the sourcing
- [A Strong Workforce is an Inclusive Workforce: What Can YOU Do?](https://healthmattersprogram.org/2012/05/19/a-strong-workforce-is-an-inclusive-workforce-what-can-you-do/) - A Strong Workforce is an Inclusive Workforce: What Can YOU Do?Donna Martinez May 19, 2012And apparently the US District Court in Oregon is in agreement! From NDRN: Breaking NewsYesterday, the U.S. District Court in Oregon issued a 16-page Opinion and Order in the case Lane v. Kiltzhaber, 3:12-cv-00138-ST. The Lane complaint claims that failure to
- [HUD Makes Available $85 Million To Fund Housing For Extremely Low-Income Persons With Disabilities](https://healthmattersprogram.org/2012/06/02/hud-makes-available-85-million-to-fund-housing-for-extremely-low-income-persons-with-disabilities/) - HUD Makes Available $85 Million To Fund Housing For Extremely Low-Income Persons With Disabilities New Section 811 demonstration links state housing agencies with state Medicaid agenciesFOR RELEASETuesday, May 15, 2012WASHINGTON – Today, the U.S. Department of Housing and Urban Development makes $85 million available to state housing agencies to provide affordable supportive housing for extremely
- [US Labor Department’s Office of Disability Employment Policy announces 2012 theme for National Disability Employment Awareness Month](https://healthmattersprogram.org/2012/06/02/us-labor-departments-office-of-disability-employment-policy-announces-2012-theme-for-national-disability-employment-awareness-month/) - US Labor Department’s Office of Disability Employment Policy announces 2012 theme for National Disability Employment Awareness MonthWASHINGTON — The U.S. Department of Labor's Office of Disability Employment Policy today announced the official theme for October's National Disability Employment Awareness Month: "A Strong Workforce is an Inclusive Workforce: What Can YOU Do?" The theme promotes the
- [“What can YOU do?” Video Contest 2012 Winners Announced](https://healthmattersprogram.org/2012/06/02/what-can-you-do-video-contest-2012-winners-announced/) - “What can YOU do?” Video Contest 2012 Winners AnnouncedCampaign for Disability Employment (CDE)
- [Court Agrees that Americans with Disabilities Act Applies to Employment](https://healthmattersprogram.org/2012/06/02/court-agrees-that-americans-with-disabilities-act-applies-to-employment/) - Court Agrees that Americans with Disabilities Act Applies to EmploymentPress Release - May 18, 2012National Disability Rights Network (NDNR)WASHINGTON – In the first case of its kind, the U.S. District Court in Oregon validated the claim that people with disabilities have the right to work and receive employment-related services in integrated settings.
- [Study Finds Medical Procedures Violating the Civil Rights of People with Disabilities: Stunting Growth, Removing Body Parts with No Judicial Review](https://healthmattersprogram.org/2012/06/02/study-finds-medical-procedures-violating-the-civil-rights-of-people-with-disabilities-stunting-growth-removing-body-parts-with-no-judicial-review/) - Study Finds Medical Procedures Violating the Civil Rights of People with Disabilities: Stunting Growth, Removing Body Parts with No Judicial ReviewWashington, DC – In a first of its kind study, the National Disability Rights Network (NDRN) determined that performing certain medical procedures or withholding life sustaining treatment in non-terminal situations without judicial review violates the
- [Do Workers with Disabilities Cost More?](https://healthmattersprogram.org/2012/05/14/do-workers-with-disabilities-cost-more/) - Do Workers with Disabilities Cost More?Employers in the U.S. hospitality industry are often reluctant to hire people with disabilities because of preconceived notions that they cannot do the jobs and are more costly to employ than people without disabilities, according to University of New Hampshire researchers.
- [Health Care Providers Settle with Justice Department Over Complaints of HIV Discrimination](https://healthmattersprogram.org/2012/05/11/health-care-providers-settle-with-justice-department-over-complaints-of-hiv-discrimination/) - Health Care Providers Settle with Justice Department Over Complaints of HIV DiscriminationDepartment of JusticeOffice of Public AffairsFOR IMMEDIATE RELEASEFriday, May 11, 2012
- [CareerCast.com Reports Best Jobs for People with Disabilities](https://healthmattersprogram.org/2012/12/14/careercast-com-reports-best-jobs-for-people-with-disabilities/) - CareerCast.com Reports Best Jobs for People with Disabilitiesby CareerCast.comPublished: Tuesday, Dec. 11, 2012CARLSBAD, Calif., Dec. 11, 2012 -- /PRNewswire/ -- The three best professions for job seekers with disabilities are all in the field of health care: Pharmaceutical Sales, Pharmacy Technician and Physician's Assistant, according to a new report by CareerCast.com.
- [Donna Smith: Disability Services Counselor Making a Difference](https://healthmattersprogram.org/2014/12/01/donna-smith-disability-services-counselor-making-a-difference/) - Donna Glass Smith is a Disability Services Counselor at Northern Virginia Community College (NOVA). She is assigned to the Medical Education Campus in Springfield, Virginia. With the continued growth in enrollment of students with disabilities in postsecondary institutions, Ms. Smith believe that it is important for educators to champion efforts that will enhance learning environments
- [CareerOneStop](https://healthmattersprogram.org/2014/03/18/careeronestop/) - Your pathway to career success. Tools to help job seekers, students, businesses, and career professionals Sponsored by the U.S. Department of Laborhttps://www.servicelocator.org/
- [Disability Rights and Accommodations: Setting A Standard of Care](https://healthmattersprogram.org/2014/11/19/disability-rights-and-accommodations-setting-a-standard-of-care/) - APHA 2014 Poster PresentationTanya Friese, DNP(c), RN, CNL, Department of Community, Systems, and Mental Health Nursing, Rush University College of Nursing, Chicago, ILShelia Dugan, MD , Department of Neurosurgery and the Department of Preventive Medicine, Rush University Medical Center, Chicago, ILSarah Ailey, PhD, RN, CDDN, APHN-BC , College of Nursing, Community, Systems and Mental Health
- [MySkills MyFutures](https://healthmattersprogram.org/2014/03/18/myskills-myfutures/) - http://www.myskillsmyfuture.org/
- [LEAD Center partners with NOND](https://healthmattersprogram.org/2013/05/01/lead-center-partners-with-nond/) - LEAD Center partners with NONDThe LEAD Center mission is to advance sustainable individual and systems level change that results in improved, competitive integrated employment and economic self- sufficiency outcomes for individuals across the spectrum of disability. The LEAD Center seeks effective partnerships in the public workforce system including state workforce agencies, state and local workforce
- [A Room With A Grim View: The ‘Ambient Despair’ That Marks Life In Assisted Living](https://healthmattersprogram.org/2012/07/15/a-room-with-a-grim-view-the-ambient-despair-that-marks-life-in-assisted-living/) - A Room With A Grim View: The 'Ambient Despair' That Marks Life In Assisted LivingBy Martin BayneAfter entering an assisted living facility at age fifty-three because of young-onset Parkinson's, an observer-advocate contemplates the dire need for long-term care reform.Read: (http://content.healthaffairs.org/content/31/7/1633.full.pdf)Listen: (http://www.healthaffairs.org/Media/podcasts/narrativematters/aging/bayne_martin_aroomwithagrimview_2012_full.mp3)Download PDFThe essay appears in Health Affairs' July 2012 issue.Visit the free Narrative Matters essay
- [OFCCP Publishes Proposal to Improve Job Opportunities for Individuals with Disabilities](https://healthmattersprogram.org/2012/07/01/ofccp-publishes-proposal-to-improve-job-opportunities-for-individuals-with-disabilities/) - OFCCP Publishes Proposal to Improve Job Opportunities for Individuals with Disabilitieshttp://www.dol.gov/ofccp/503/The U.S. Department of Labor is proposing a new rule that would require federal contractors and subcontractors to set a hiring goal of having 7 percent of their workforces be people with disabilities, among other requirements. The department’s Office of Federal Contract Compliance Programs invites
- [Additional Federal Attention Needed to Help Protect Access for Students with Disabilities](https://healthmattersprogram.org/2012/06/06/additional-federal-attention-needed-to-help-protect-access-for-students-with-disabilities/) - Charter schools enrolled a lower percentage of students with disabilities than traditional public schools, but little is known about the factors contributing to these differences. In school year 2009-2010, which was the most recent data available at the time of our review, approximately 11 percent of students enrolled in traditional public schools were students with
- [Group home care for adults with intellectual disabilities and Alzheimer’s disease](https://healthmattersprogram.org/2016/03/14/group-home-care-for-adults-with-intellectual-disabilities-and-alzheimers-disease/) - Janicki, M.P. (2016). Stationäre Einrichtungen der Behindertenhilfe für Menschen mit geistiger Behinderung und dementieller Erkrankung [Group home care for adults with intellectual disabilities and Alzheimer’s disease]. In S.V. Müller and C. Gärtner (Eds.), Lebensqualität im Alter: Perspektiven für Menschen mit geistiger Behinderung und psychischen Erkrankungen [Quality of life in old age: prospects for people with
- [Life Course Studies of Siblings of Individuals with Developmental Disabilities](https://healthmattersprogram.org/2005/01/11/life-course-studies-of-siblings-of-individuals-with-developmental-disabilities/) - Life Course Studies of Siblings of Individuals with Developmental Disabilities (2005). Seltzer, M.M., Greenburg, J.S., Orsmond, G.I., & Lounds, J. Mental Retardation, 43(5), 354-359.
- [‘My Thinker’s Not Working’: A National Strategy Enabling Adults with Intellectual Disabilities Affected by Dementia to Remain in Their Community and Receive Quality Supports](https://healthmattersprogram.org/2012/01/01/my-thinkers-not-working-a-national-strategy-enabling-adults-with-intellectual-disabilities-affected-by-dementia-to-remain-in-their-community-and-receive-quality-supports/) - ‘My Thinker’s Not Working’: A National Strategy Enabling Adults with Intellectual Disabilities Affected by Dementia to Remain in Their Community and Receive Quality Supports (2012). Janicki, M. & Keller, S.This report was an outcome of the National Task Group on Intellectual Disabilities and Dementia Practices. It provides a summary of the challenges facing the nation as
- [Aging, Dementia, and Intellectual Disabilities Workshop](https://healthmattersprogram.org/2012/12/05/aging-dementia-and-intellectual-disabilities-workshop/) - Aging, Dementia, and Intellectual Disabilities Workshop PowerPoint presentations: Overview of Basic issues in Aging and Dementia Normal Aging in the General and Intellectual Disabilities Populations Adverse Drug Reactions in Adults with Down Syndrome Social Care issue and Strategies, and Program Options
- [Racial and Ethnic Disparities among Adults with Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2016/08/24/racial-and-ethnic-disparities-among-adults-with-intellectual-and-developmental-disabilities/) - January 5, 2016 This study investigated the extent of racial and ethnic disparities in the health of adults with intellectual and developmental disabilities. Analyzing data from the 2002-2011 Medical Expenditure Panel Survey and the 2000-2010 National Health Interview Survey, we found that Black and Latino adults with intellectual and developmental disabilities have markedly worse health
- [Policy to Practice: Falls in Adults with Intellectual Disabilities](https://healthmattersprogram.org/2016/08/24/policy-to-practice-falls-in-adults-with-intellectual-disabilities/) - August 3, 2016One out of every three adults aged 65 years or older in the general population falls at least once each year. For adults with intellectual disability (ID), the prevalence of falls is even higher with studies estimating a fall rate ranging from between 29% to 70%. Falls are a major cause of serious
- [Impact: Feature Issue on Supporting Wellness for Adults with Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2016/03/14/impact-feature-issue-on-supporting-wellness-for-adults-with-intellectual-and-developmental-disabilities/) - Impact: Feature Issue on Supporting Wellness for Adults with Intellectual and Developmental DisabilitiesVolume 29 · Number 1 • Winter 2016This issue is co-edited by Kelly Hsieh and includes articles about the HealthMatters study and intervention that is led by Jasmina Sisirak and Beth Marks and an article Tia Nelis.Online in PDF at https://ici.umn.edu/products/impact/291/291.pdf and http://rrtcadd.org/resources/Impact_29_1_-Winter_2016.pdf.
- [Racial and Ethnic Disparities among Adults with Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2015/12/11/racial-and-ethnic-disparities-among-adults-with-intellectual-and-developmental-disabilities-2/) - Sandra Magaña, Susan Parish, Miguel A. Morales, Henan Li and Glenn T. FujiuraOverviewThis study investigated the extent of racial and ethnic disparities in the health of adults with intellectual and developmental disabilities. Analyzing data from the 2002-2011 Medical Expenditure Panel Survey and the 2000-2010 National Health Interview Survey, we found that Black and Latino adults
- [Bridging Aging and Developmental Disabilities Service Networks: Challenges and Best Practices<](https://healthmattersprogram.org/2014/01/11/bridging-aging-and-developmental-disabilities-service-networks-challenges-and-best-practices/) - Bridging Aging and Developmental Disabilities Service Networks: Challenges and Best Practices
- [Bridging Aging and Developmental Disabilities Service Networks: Challenges and Best Practices](https://healthmattersprogram.org/2012/01/01/bridging-aging-and-developmental-disabilities-service-networks-challenges-and-best-practices-2/) - Bridging Aging and Developmental Disabilities Service Networks: Challenges and Best Practices (2012). Factor, A., Heller, T. & Janicki, M.This report identifies policy and service delivery issues pertaining to older adults with developmental disabilities and their families and recommends opportunities to enhance collaboration among the aging, disability, and long-term care networks. Key policy initiatives addressed include
- [Siblings: Long-Lasting Ties by Tamar Heller](https://healthmattersprogram.org/2015/01/11/siblings-long-lasting-ties-by-tamar-heller/) - Siblings: Long-Lasting Ties by Tamar Heller
- [Siblings: Long-Lasting Ties by Tamar Heller](https://healthmattersprogram.org/2014/01/17/siblings-long-lasting-ties-by-tamar-heller-2/) - Siblings: Long-Lasting Ties by Tamar Heller
- [State of the Science Conference on Lifespan Health and Function of Adults with Intellectual and Developmental Disabilities: Translating Research Into Practice](https://healthmattersprogram.org/2011/01/01/state-of-the-science-conference-on-lifespan-health-and-function-of-adults-with-intellectual-and-developmental-disabilities-translating-research-into-practice-2/) - State of the Science Conference on Lifespan Health and Function of Adults with Intellectual and Developmental Disabilities: Translating Research Into Practice (2011). Heller, T., Rimmer, J., Hsieh, K., Fujiura, G. & Behrens, C.
- [Impact: Feature Issue on Aging and People with Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2010/12/01/impact-feature-issue-on-aging-and-people-with-intellectual-and-developmental-disabilities/) - Impact: Feature Issue on Aging and People with Intellectual and Developmental Disabilities (Winter, 2010). Heller, T., Stafford, P.B., Davis, L.A. & Sedlezky, L. Institute on Community Integration (UCEDD) and the Research and Training Center on Community Living and Employment, College of Education and Human Development, University of Minnesota. Volume 23, Number 1.Offers fresh, practical, and
- [Health of Aging Family Caregivers in Illinois](https://healthmattersprogram.org/2010/02/01/health-of-aging-family-caregivers-in-illinois/) - Health of Aging Family Caregivers in Illinois (2010). Yamaki, K., Hsieh, K. & Heller T.This brief compares the rates of obesity between adults with and without I/DD from 1985 to 2000. It is based on an analysis of the National Health Interview Surveys.
- [The Health Matters Assessments V.1.0](https://healthmattersprogram.org/2009/01/01/the-health-matters-assessments-v-1-0/) - The Health Matters Assessments V.1.0 (HMA) can be completed by employees of community‐based day and residential organizations providing services for people with intellectual and developmental disabilities (I/DD). The HMA packet will help you evaluate organizational needs and capacity for developing a health promotion plan including programs, services, environmental support, resources, culture, and employee knowledge and
- [A Community Coming Together to Support Children and Adults with Developmental Disabilities and Their Families: Project for Family Support 360 Final Report](https://healthmattersprogram.org/2007/01/01/a-community-coming-together-to-support-children-and-adults-with-developmental-disabilities-and-their-families-project-for-family-support-360-final-report/) - A Community Coming Together to Support Children and Adults with Developmental Disabilities and Their Families: Project for Family Support 360 Final Report (2007). Heller,T., Connolly, K. & Lacey, B. Chicago: Institute on Disability and Human Development, University of Illinois at Chicago.This report describes the development and outcomes of a one-stop center that meets the information
- [Involvement of Adult Siblings of People with Developmental Disabilities in Future Planning](https://healthmattersprogram.org/2006/01/01/involvement-of-adult-siblings-of-people-with-developmental-disabilities-in-future-planning/) - Involvement of Adult Siblings of People with Developmental Disabilities in Future Planning (2006). Kramer, J. & Heller, T.Little is known about the role adult siblings play in planning for the future care of their sibling with a developmental disability. This research brief presents the results of a sibling survey to find out the extent siblings
- [RRTCADD Disability Research Brief: Body Weight Status of Adults with Intellectual Disabilities](https://healthmattersprogram.org/2006/01/01/rrtcadd-disability-research-brief-body-weight-status-of-adults-with-intellectual-disabilities/) - RRTCADD Disability Research Brief: Body Weight Status of Adults with Intellectual Disabilities (2006). Yamaki, K., Heller, T. & Rimmer, J.This brief compares the rates of obesity between adults with and without I/DD from 1985 to 2000. It is based on an analysis of the National Health Interview Surveys.Can be downloaded at no charge (doc file)
- [Use of State Institutions for People with Intellectual Disabilities in Illinois](https://healthmattersprogram.org/2006/01/01/use-of-state-institutions-for-people-with-intellectual-disabilities-in-illinois/) - Use of State Institutions for People with Intellectual Disabilities in Illinois (2006). Nelis, T. & Rizzolo, M.This brief describes residential services in Illinois. It reports the number of people with I/DD in different types of residential settings and compares the cost of institutional care to living in small homes in the community.
- [Sibling Leadership Network Update](https://healthmattersprogram.org/2007/01/01/sibling-leadership-network-update/) - Sibling Leadership Network Update (2007), Kramer, J., & Heller, T. Highlights of the RRTCADD's first Sibling Leadership Conference for siblings of people with disabilities held on November 9-10, 2007 at Washington, D.C. The conference featured over 80 brothers and sisters of individuals with intellectual disabilities.
- [Recommendations for Research, Advocacy and Supports Relating to Siblings of People with Developmental Disabilities](https://healthmattersprogram.org/2008/01/01/recommendations-for-research-advocacy-and-supports-relating-to-siblings-of-people-with-developmental-disabilities/) - Recommendations for Research, Advocacy and Supports Relating to Siblings of People with Developmental Disabilities (2008). Heller, T., Kaiser, A., Meyer, D., Fish, T., Kramer, J. & Dufresne, D. This white paper was developed by The Sibling Leadership Network (SLN), a national organization that provides adult siblings of individuals with disabilities the information, support, and tools
- [State of the Science Symposium on Aging and Developmental Disabilities](https://healthmattersprogram.org/2008/12/01/state-of-the-science-symposium-on-aging-and-developmental-disabilities/) - State of the Science Symposium on Aging and Developmental Disabilities (December 2008). Heller, T. Janicki. M.P., Marks, B., Hammel, J. & Factor, A.Brief report on the symposium State of the Science in Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living on May 21–22, 2007, in Atlanta, Georgia
- [Report on the State of Science on Health Risks and Aging in People with Intellectual Disabilities](https://healthmattersprogram.org/2009/01/11/report-on-the-state-of-science-on-health-risks-and-aging-in-people-with-intellectual-disabilities/) - Report on the State of Science on Health Risks and Aging in People with Intellectual Disabilities (2009). Haveman, M.J., Heller, T., Lee, L.A, Maaskant, M.A, Shooshtari, S., Strydom, A. IASSID Special Interest Research Group on Aging and Intellectual Disabilities/Faculty Rehabilitation Sciences, University of Dortmund. This paper summarizes a review of the scientific literature over the
- [Future Planning Resource Guide for Families and Adults with Developmental Disabilities in Illinois](https://healthmattersprogram.org/2006/01/01/future-planning-resource-guide-for-families-and-adults-with-developmental-disabilities-in-illinois/) - Future Planning Resource Guide for Families and Adults With Developmental Disabilities in Illinois (2006, rev.). Caldwell, J., Lopez, E., DeBrine, E., Factor, A., Heller, T. & Ennis, D. This updated guide helps families navigate the maze of adult services and supports for individuals with developmental disabilities. It responds to families' need for a centralized source
- [Sibling Connections Newsletter, Fall 2005](https://healthmattersprogram.org/2005/09/01/sibling-connections-newsletter-fall-2005/) - Sibling Connections Newsletter (Fall 2005). Kramer, J. & Heller, T. RRTC on Aging with Developmental Disabilities.Highlights of the RRTCADD’s first conference for siblings of people with disabilities held on October 29-30, 2004. The conference featured nationally known experts on the lifelong relationships of people with disabilities and their siblings and also provided siblings the chance
- [Disability Research Brief: Evaluation of a Consumer Directed Program: Illinois](https://healthmattersprogram.org/2004/01/01/disability-research-brief-evaluation-of-a-consumer-directed-program-illinois/) - Disability Research Brief: Evaluation of a Consumer Directed Program: Illinois (2004). Heller, T. & Caldwell, J. This research brief presents the outcomes of Illinois innovative consumer-directed Home Based Support Services Program for adults with developmental disabilities and their families. It compares participants and non-participants on service use and satisfaction, community involvement, and the need for out-of-home
- [Predictors of Use of Nursing Homes and State Institutions for Persons with DD](https://healthmattersprogram.org/2004/01/01/predictors-of-use-of-nursing-homes-and-state-institutions-for-persons-with-dd/) - Predictors of Use of Nursing Homes and State Institutions for Persons with DD (2004). Rizzolo, M.K. This RRTCADD research brief explains the wide variation in states' use of nursing homes and state institutions compared to community residential options for individuals with developmental disabilities. It also compares the health characteristics of nursing home residents with and without
- [Older Adults with Mental Retardation/Developmental Disabilities and Their Aging Family Caregivers](https://healthmattersprogram.org/2004/03/01/older-adults-with-mental-retardationdevelopmental-disabilities-and-their-aging-family-caregivers/) - Older Adults with Mental Retardation/Developmental Disabilities and Their Aging Family Caregivers (Rev. March, 2004). Heller, T., & Factor, A.This fact sheet uses a question-and-answer format to present frequently requested information about aging with mental retardation. It provides an overview of demographics, age-related changes, service and support needs for older adults and their families, and new
- [Aiding Older Caregivers of Persons with Intellectual and Developmental Disabilities: A Tool Kit for State and Local Aging Agencies](https://healthmattersprogram.org/2005/01/01/aiding-older-caregivers-of-persons-with-intellectual-and-developmental-disabilities-a-tool-kit-for-state-and-local-aging-agencies/) - Aiding Older Caregivers of Persons with Intellectual and Developmental Disabilities: A Tool Kit for State and Local Aging Agencies (2005). Baxley, D.L., Janicki, M.P., McCallion, P. & Zendell, A.This technical assistance manual explains how states can develop aging and developmental disability service network partnerships to better address the needs of older adults with I/DD and
- [Fact Sheets for Healthy Aging](https://healthmattersprogram.org/2005/01/01/fact-sheets-for-healthy-aging/) - Fact Sheets for Healthy Aging (2005). Pederson, E. & Nelis, T. The RRTCADD's Facts for Healthy Aging educates adults with disabilities about health conditions and impairments that typically occur in later life. Each fact sheet provides a concise and understandable explanation of the cause, symptoms and treatment of a specific health condition. These fact sheets
- [Use of State Institutions for People with Intellectual Disabilities in the United States](https://healthmattersprogram.org/2005/01/01/use-of-state-institutions-for-people-with-intellectual-disabilities-in-the-united-states/) - Use of State Institutions for People with Intellectual Disabilities in the United States (2005). Nelis, T. & Rizzolo, M.This brief reports the number of people with I/DD living in state-operated institutions in each state. It also reports the total number of people with I/DD living in different types of residential settings in the United States.
- [Aging with a Developmental Disability: 2005 White House Conference on Aging Listening Session Testimony](https://healthmattersprogram.org/2005/01/01/aging-with-a-developmental-disability-2005-white-house-conference-on-aging-listening-session-testimony/) - Aging with a Developmental Disability: 2005 White House Conference on Aging Listening Session Testimony (2005). Factor, A.This brief identifies the issues that aging adults with I/DD and their families face, indicating why their service and support needs should be included in the 2005 White House Conference on Aging Agenda.
- [Information About Preparing Community Agencies for Adults Affected by Dementia Project (PCAD Project)](https://healthmattersprogram.org/2005/01/01/information-about-preparing-community-agencies-for-adults-affected-by-dementia-project-pcad-project/) - Information About Preparing Community Agencies for Adults Affected by Dementia Project (PCAD Project) (2005). Janicki, M., Dalton, A., McCallion, P., Baxley, D., & Zendell, A.A preliminary report about the NIDRR funded research project on how community agencies adapt their services for adults with intellectual disabilities.
- [Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning](https://healthmattersprogram.org/2004/01/01/supporting-aging-caregivers-and-adults-with-developmental-disabilities-in-future-planning/) - Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning (2004). Heller, T., Caldwell, J. & Factor, A. This brief evaluates the outcomes of an innovative training curriculum that equips adults with disabilities and their families with the communication skills and information to jointly plan for the future with the support of peer mentors who
- [The Tampa Scientific Conference on Intellectual Disability, Aging, and Health: Final Report](https://healthmattersprogram.org/2003/01/01/the-tampa-scientific-conference-on-intellectual-disability-aging-and-health-final-report/) - The Tampa Scientific Conference on Intellectual Disability, Aging, and Health: Final Report (2003). Davidson, P.W., Heller, T., Janicki, M, P., & Hyer, K.This report identifies the gaps in knowledge about the health of older persons with intellectual and related developmental disabilities. It contains a research agenda for health and mental health outcomes based on the
- [Las experiencias compartidas de familias Latinas de adolescentes y adultos con autismo / Shared experiences of Latino families of adolescents and adults with autism](https://healthmattersprogram.org/2003/01/01/las-experiencias-compartidas-de-familias-latinas-de-adolescentes-y-adultos-con-autismo-shared-experiences-of-latino-families-of-adolescents-and-adults-with-autism/) - Las experiencias compartidas de familias Latinas de adolescentes y adultos con autismo / Shared experiences of Latino families of adolescents and adults with autism (Adolescentes y adultos con autismo un estudio de cuidado familiar proyecto Latino). (2003), Magana, S., Seltzer, M.M. & Krauss, M.W.This bilingual report presents the challenges and rewards of caregiving expressed by
- [Family Handbook on Future Planning](https://healthmattersprogram.org/2003/01/01/family-handbook-on-future-planning/) - Family Handbook on Future Planning (2003). Davis, Sharon, (Ed.). Produced by The Arc of the United States and the RRTC on Aging with Developmental Disabilities. This guide helps families take the initial steps to address the future personal, legal, and financial needs of their sons or daughters with intellectual and developmental disabilities. It teaches families
- [Coordinating systems serving carers of children and adults with developmental disabilities](https://healthmattersprogram.org/2002/01/01/coordinating-systems-serving-carers-of-children-and-adults-with-developmental-disabilities/) - Coordinating systems serving carers of children and adults with developmental disabilities (2002). Janicki, M.Aging adults with intellectual and developmental disabilities face many of the same challenges as other aging adults. Physical aging, social isolation, disengagement from work or activities and challenges of retirement are issues that must be faced by aging adults with cognitive disabilities
- [Grandparents raising grandchildren with developmental disabilities](https://healthmattersprogram.org/2002/01/01/grandparents-raising-grandchildren-with-developmental-disabilities/) - Grandparents raising grandchildren with developmental disabilities (2002). Heller, T., & Ganguly, R.This paper examines the demographics of grandparent caregivers of children and adults with developmental disabilities, their reasons for assuming this role, their needs, concerns and challenges. Additionally it reviews supportive interventions for this population and implications for the aging network in designing and coordinating
- [Adolescents and Adults With Autism, Report #1: A Book of Quotes: Shared Experiences of Families of Adolescents and Adults with Autism](https://healthmattersprogram.org/2002/01/01/adolescents-and-adults-with-autism-report-1-a-book-of-quotes-shared-experiences-of-families-of-adolescents-and-adults-with-autism/) - Adolescents and Adults With Autism, Report #1: A Book of Quotes: Shared Experiences of Families of Adolescents and Adults with Autism (2002). Seltzer, M.M., Krauss, M.W., Greenberg, J.S., Leavitt, L., Magana, S. & Orsmond, G.I.This report is based on interviews with more than 400 parents caring for a son or daughter with autism. This is
- [Adolescents and Adults with Autism, Report #2: A Profile of Adolescents and Adults With Autism Spectrum Disorders](https://healthmattersprogram.org/2002/01/01/adolescents-and-adults-with-autism-report-2-a-profile-of-adolescents-and-adults-with-autism-spectrum-disorders/) - Adolescents and Adults with Autism, Report #2: A Profile of Adolescents and Adults With Autism Spectrum Disorders (2002). Seltzer, M.M., Krauss, M.W., Greenberg, J.S., Leavitt, L., Magana, S. & Orsmond, G.I.This report presents the objectives, methodology, and initial findings of the first large-scale research study of 405 adolescents and adults with autism and spectrum disorders
- [Adolescents and Adults with Autism: Reflections From Adult Siblings Who Have a Brother or Sister With Autism Spectrum Disorder, Report #3](https://healthmattersprogram.org/2002/01/01/adolescents-and-adults-with-autism-reflections-from-adult-siblings-who-have-a-brother-or-sister-with-autism-spectrum-disorder-report-3/) - Adolescents and Adults with Autism: Reflections From Adult Siblings Who Have a Brother or Sister With Autism Spectrum Disorder, Report #3 (2002). Krauss, M.W., Seltzer, M.M., Greenberg, R., Orsmond, G.I. & Magana, S.This report presents siblings' perspectives on having a brother or sister with autism. It is based on a study of caregiving that included
- [Adolescents and Adults With Autism: Recommended Resources From Families, Report #4](https://healthmattersprogram.org/2002/01/01/adolescents-and-adults-with-autism-recommended-resources-from-families-report-4/) - Adolescents and Adults With Autism: Recommended Resources From Families, Report #4 (2002), Krauss, M.W., Seltzer, M.M., Greenberg, R., Orsmond, G.I. & Magana, S.This report contains the books, videos, and internet web sites that helped families learn more about their son or daughter's autism spectrum disorder. Families recommended these resources in a study of more than
- [Aging With Mental Retardation: Oral Health for Older Individuals With Disabilities](https://healthmattersprogram.org/2001/01/01/aging-with-mental-retardation-oral-health-for-older-individuals-with-disabilities/) - Aging With Mental Retardation: Oral Health for Older Individuals With Disabilities (2001). Farsai, P. & Calabrese, J.This brief discusses oral health care for older people with disabilities. It explains the conditions leading to oral health problems for people with disabilities and specifies what to look for in dental treatment and in choosing a dentist. The
- [Aging and Intellectual Disabilities: Improving Longevity and Promoting Healthy Aging](https://healthmattersprogram.org/2000/01/01/aging-and-intellectual-disabilities-improving-longevity-and-promoting-healthy-aging/) - Aging and Intellectual Disabilities: Improving Longevity and Promoting Healthy Aging (2000). Aging and Intellectual Disabilities Special Interest Research Group (SIRG) of The International Association for the Scientific Study of Intellectual Disability (IASSID).This series of reports is the outcome of an international initiative to promote the longevity and healthy aging of adults with intellectual disabilities that
- [Aging With Developmental Disabilities: Women's Health Issues](https://healthmattersprogram.org/1999/01/11/aging-with-developmental-disabilities-womens-health-issues/) - Aging With Developmental Disabilities: Women's Health Issues (1999). Brown, A. & Murphy, L.This brief provides information on age-related health issues for women with developmental disabilities based on the research to date. The fact sheet addresses the most commonly asked questions by women who are aging (e.g. menopause, osteoporosis, and heart disease) and how to stay
- [Hearing Changes in Aging People with Mental Retardation](https://healthmattersprogram.org/1999/01/01/hearing-changes-in-aging-people-with-mental-retardation/) - Hearing Changes in Aging People with Mental Retardation (1999). Bagley, M. & Mascia, J.This brief provides answers to frequently asked questions about age-related hearing loss, especially for people with developmental disabilities. It contains the information families and service providers need to identify possible hearing loss and to support older adults who have this condition.Can be
- [Aging, Mental Retardation and Physical Fitness](https://healthmattersprogram.org/1997/01/01/aging-mental-retardation-and-physical-fitness/) - Aging, Mental Retardation and Physical Fitness (1997). Rimmer, J.This brief provides an overview of what physical fitness is and how it relates to older people with mental retardation. It includes helpful guidelines for family members, support people, service providers and others interested in starting a program for older individuals with mental retardation.Can be downloaded at
- [Aging With Developmental Disabilities: Changes in Vision](https://healthmattersprogram.org/1996/01/01/aging-with-developmental-disabilities-changes-in-vision/) - Aging With Developmental Disabilities: Changes in Vision (1996). Flax, M.E.,& Luchterhand, C.This brief provides answers to the following questions: What are the typical changes in vision as people age? How will vision loss affect the adult with developmental disabilities? What can be done to make the best of the vision someone has? What information is
- [RRTCDD News Summer 2015](https://healthmattersprogram.org/2015/09/01/rrtcdd-news-summer-2015/) - RRTCDD News Summer 2015
- [RRTCDD News Spring 2015](https://healthmattersprogram.org/2015/05/11/rrtcdd-news-spring-2015/) - RRTCDD News Spring 2015
- [The Experience of and Outcomes for People with I/DD and Their Families in Managed Health Care: Lessons Learned](https://healthmattersprogram.org/2016/02/18/the-experience-of-and-outcomes-for-people-with-idd-and-their-families-in-managed-health-care-lessons-learned/) - The Experience of and Outcomes for People with I/DD and Their Families in Managed Health Care: Lessons LearnedPresenters: Tamar Heller, PhD and Randall Owen, PhDRRTCDD 2016 Health and Wellness Series WebinarWebEx recording is available for viewing "The Experience of and Outcomes for People with I/DD and Their Families in Managed Health Care: Lessons Learned" (Recording)
- [Health Care Costs for Americans with I/DD: A National Analysis of Access and Spending 2002-2011 Based on the MEPS/NHIS](https://healthmattersprogram.org/2016/03/18/health-care-costs-for-americans-with-idd-a-national-analysis-of-access-and-spending-2002-2011-based-on-the-mepsnhis/) - Health Care Costs for Americans with I/DD: A National Analysis of Access and Spending 2002-2011 Based on the MEPS/NHISPresenters: Glenn T Fujiura, Sandra Magaña, Henan Li, & Susan ParishRRTCDD 2016 Health and Wellness Series WebinarWebEx recording is available for viewing "Health Care Costs for Americans with I/DD: A National Analysis of Access and Spending 2002-2011
- [HealthMatters Program Team Consulting on Walmart Foundation Grant to AUCD “Nutrition is for Everyone”](https://healthmattersprogram.org/2016/06/09/healthmatters-program-team-consulting-on-walmart-foundation-grant-to-aucd-nutrition-is-for-everyone/) - Walmart Foundation Grant to AUCD Expands Nutrition Efforts for People with Disabilities in Four States SILVER SPRING, MD – The Association of University Centers on Disabilities (AUCD) is pleased to announce that the Walmart Foundation has granted AUCD and four of its member Centers $300,000 to launch the “Nutrition is for Everyone” project. This one-year
- [Getting Involved in Research and Training: A Guide for Persons with Intellectual Disabilities](https://healthmattersprogram.org/2012/01/01/getting-involved-in-research-and-training-a-guide-for-persons-with-intellectual-disabilities-2/) - Heller, T., Nelis, T., Collins, S. & Pederson, E.L. (2012)This guide explains to people with disabilities how they can participate in research and training projects, describes what research and training is, and what a participant can do. It also provides examples of projects and of ways to address problems others have had when working on
- [Affordable Care Act Toolkit for Self-Advocates](https://healthmattersprogram.org/2017/02/16/affordable-care-act-toolkit-for-self-advocates/) - The Affordable Care Act Toolkit for Self-Advocates was put together by the Autism Self Advocacy Network ( ASAN) to “equip self-advocates to participate in important conversations about our lives and the services we rely on.” Affordable Care Act Toolkit for Self-Advocates The Affordable Care Act (ACA) made it easier to get health insurance for all Americans,
- [Health for All Adolescents](https://healthmattersprogram.org/2017/01/30/health-for-all-adolescents/) - Wednesday, February 1, 2017, 11:00 a.m. - 12:30 p.m. ET http://bit.ly/2kLeTow HHS/Office of Adolescent Health (OAH), in partnership with the American Public Health Association, the Partnership for Maternal, Newborn & Child Health, and The Lancet's Commission on Adolescent Health and Wellbeing: Webinar. Health for All Adolescents. This webinar will provide a closer look at policies
- [The Health Care Policy Debate: Why Does it Matter? What is Your Role?](https://healthmattersprogram.org/2017/01/30/the-health-care-policy-debate-why-does-it-matter-what-is-your-role/) - Tuesday, January 31, 2017, 4:00 p.m. - 5:00 p.m. ET http://www.aucd.org/template/event.cfm?event_id=7932&id=16 Learn about the current health care policy debate and what policies are important to children, youth, and adults with disabilities and their families. Strategies for successful health care advocacy will also be discussed. This webinar is specifically designed for AUCD network trainees.
- [Annual Disability Statistics Compendium & State of the Science Conference](https://healthmattersprogram.org/2017/01/30/annual-disability-statistics-compendium-state-of-the-science-conference/) - February 13-14, 2017, Washington, DC http://bit.ly/2jZju9R Registration is FREE. The State of the Science Conference is open for in-person attendance only. The Annual Disability Statistics Compendium offers both in-person and webcast participation options. Please register if you plan to attend in-person or via webcast. The agenda, presenters, and logon procedures (for web viewers) will be emailed
- [Physical Activity and Fitness](https://healthmattersprogram.org/2005/01/01/physical-activity-and-fitness/) - Physical Activity and Fitness (2005). Rimmer, J.H. & Hiss, S. B. 87-128. This chapter is part of a larger collection titled Health Promotion for Persons with Intellectual and Developmental Disabilities. It is published by the American Association on Mental Retardation (AAMR) in Washington DC. ISBN: 0-940898-91-8 COST: $39.95Order directly from AAMR publishing at AAIDD Bookstore or
- [AAIDD Research Brief: Health and Wellness for People with IDD](https://healthmattersprogram.org/2017/01/18/aaidd-research-brief-health-and-wellness-for-people-with-idd/) - Sisirak, J. & Marks, B. (2015). AAIDD Research Brief: Health and Wellness for People with IDD. AAIDD National Goals Conference People with intellectual and developmental disabilities (IDD) have begun to participate in their own health promotion and disease prevention activities and are learning how to advocate for their own health. Over the next decade, a
- [Bridging the gap: from evidence to improved health for persons with intellectual and developmental disabilities](https://healthmattersprogram.org/2017/01/27/bridging-the-gap-from-evidence-to-improved-health-for-persons-with-intellectual-and-developmental-disabilities/) - Hilton Hotel, Belfast, Northern Ireland June 19-21, 2017 The IASSIDD Health SIRG will be holding a conference in Belfast, N Ireland on the 19th-21st June 2017 at the Hilton Hotel. The theme of the event is “Bridging the gap: from evidence to improved health for persons with IDD”. An international planning group has been working
- [Resources within Reason: The Evidence for Inclusion](https://healthmattersprogram.org/2017/01/26/resources-within-reason-the-evidence-for-inclusion/) - http://unc.live/2k770gM "Did you ever have someone ask you for a definition of inclusion? Or did you ever wish you could quickly access the research that documents the benefits of inclusion for young children with and without disabilities? If you answered yes, you may find this issue of Resources within Reason useful. It features resources that
- [Staying Healthy and Connecting with Neighbors May Help People with Mobility Disabilities Stay Involved in Their Communities](https://healthmattersprogram.org/2017/01/26/staying-healthy-and-connecting-with-neighbors-may-help-people-with-mobility-disabilities-stay-involved-in-their-communities/) - http://bit.ly/2knur2z People with mobility disabilities have difficulty standing, walking, or climbing stairs. Because of such difficulty, they may have trouble participating in recreational, social, civic, or religious activities in their communities. The participation limitation may stem from physical problems such as pain or fatigue, from environmental barriers like living in areas without public transportation, or
- [Health and Wellness Strand: Recommendations From National Goals Conference 2015](https://healthmattersprogram.org/2017/01/18/health-and-wellness-strand-recommendations-from-national-goals-conference-2015/) - Sisirak, J. & Marks, B. (2015). Health and Wellness Strand: Recommendations From National Goals Conference 2015. Inclusion, 3(4), 242-249, http://aaiddjournals.org/doi/abs/10.1352/2326-6988-3.4.242. Although a variety of health and wellness initiatives have emerged in the past decade, people with intellectual and developmental disabilities (IDD), their caregivers, and advocates still are facing remarkable challenges in staying healthy and receiving
- [The impact of support services teams: Community-based behavioral health support interventions](https://healthmattersprogram.org/2017/01/18/the-impact-of-support-services-teams-community-based-behavioral-health-support-interventions/) - Owen, R., Bowers, A., Heller, T., Hsieh, K. and Gould, R. (2016). The impact of support services teams: Community-based behavioral health support interventions. Journal of Policy and Practice in Intellectual Disabilities. doi:10.1111/jppi.12186. Abstract Background: Community capacity to serve people with intellectual/developmental disabilities (IDD) and behavioral health challenges is often limited. Using interdisciplinary teams to work with
- [State of the Science Conference on Lifespan Health and Function of Adults with Intellectual and Developmental Disabilities: Translating Research into Practice](https://healthmattersprogram.org/2013/08/11/state-of-the-science-conference-on-lifespan-health-and-function-of-adults-with-intellectual-and-developmental-disabilities-translating-research-into-practice/) - State of the Science Conference on Lifespan Health and Function of Adults with Intellectual and Developmental Disabilities: Translating Research into Practice
- ["My Thinker's Not Working"](https://healthmattersprogram.org/2014/01/11/my-thinkers-not-working/) - "My Thinker's Not Working"
- [Disability Through the Life Course](https://healthmattersprogram.org/2013/01/11/disability-through-the-life-course/) - Disability Through the Life Course
- [International Initiatives on Bridging Knowledge, Policy and Practice](https://healthmattersprogram.org/2012/12/04/international-initiatives-on-bridging-knowledge-policy-and-practice/) - International initiatives on bridging knowledge, policy and practice, (2012). Leonardi, M., Bickenbach, J., & LeRoy, B. International Journal Of Integrated Care, 12(8). https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3601517/
- [Psychological distress among Latino family caregivers of adults with schizophrenia: The roles of burden and stigma in the stress-process model](https://healthmattersprogram.org/2007/01/01/psychological-distress-among-latino-family-caregivers-of-adults-with-schizophrenia-the-roles-of-burden-and-stigma-in-the-stress-process-model/) - Psychological distress among Latino family caregivers of adults with schizophrenia: The roles of burden and stigma in the stress-process model. Magaña, S. Ramirez, J., Hernandez, M., & Cortez, R. (2007). Psychiatric Services. 58, 378–384. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2396526/
- [Health Outcomes of Midlife and Older Latina and Black American Mothers of Children With Developmental Disabilities](https://healthmattersprogram.org/2006/01/01/health-outcomes-of-midlife-and-older-latina-and-black-american-mothers-of-children-with-developmental-disabilities/) - Health Outcomes of Midlife and Older Latina and Black American Mothers of Children With Developmental Disabilities (2006). MagaÐa, S. & Smith, M. J. Mental Retardation, 44(3), 224-234. http://www.scopus.com/record/display.url?eid=2-s2.0-33746171747&origin=inward&txGid=9FFF4580C525FA46837496098E5A3169.y7ESLndDIsN8cE7qwvy6w%3a1
- [Involvement of Adult Siblings of Persons with Developmental Disabilities in Future Planning](https://healthmattersprogram.org/2009/01/01/involvement-of-adult-siblings-of-persons-with-developmental-disabilities-in-future-planning/) - Involvement of Adult Siblings of Persons with Developmental Disabilities in Future Planning (2009). Heller, T. & Kramer, J. Intellectual and Developmental Disabilities, 47, 208-219.
- [The Political Arithmetic of Disability and the American Family: A Demographic Perspective](https://healthmattersprogram.org/2014/04/11/the-political-arithmetic-of-disability-and-the-american-family-a-demographic-perspective/) - The Political Arithmetic of Disability and the American Family: A Demographic Perspective
- [Interventions to promote health: crossing networks of intellectual and developmental disabilities and aging](https://healthmattersprogram.org/2014/04/11/interventions-to-promote-health-crossing-networks-of-intellectual-and-developmental-disabilities-and-aging/) - Interventions to promote health: crossing networks of intellectual and developmental disabilities and aging
- [Measuring HCBS Quality in MLTSS Programs](https://healthmattersprogram.org/2015/01/11/measuring-hcbs-quality-in-mltss-programs/) - Measuring HCBS Quality in MLTSS Programs
- [International Congress: Perspectives on Aging with Intellectual Disability](https://healthmattersprogram.org/2015/01/11/international-congress-perspectives-on-aging-with-intellectual-disability/) - International Congress: Perspectives on Aging with Intellectual Disability
- [Improving Health Behaviors of Latina Mothers of Children and Adults with Developmental Disabilities](https://healthmattersprogram.org/2015/01/11/improving-health-behaviors-of-latina-mothers-of-children-and-adults-with-developmental-disabilities/) - Improving Health Behaviors of Latina Mothers of Children and Adults with Developmental Disabilities
- [Consensus Recommendations for the Evaluation and Management of Dementia in Adults With Intellectual Disabilities](https://healthmattersprogram.org/2015/01/11/consensus-recommendations-for-the-evaluation-and-management-of-dementia-in-adults-with-intellectual-disabilities/) - Consensus Recommendations for the Evaluation and Management of Dementia in Adults With Intellectual Disabilities
- [Research to Practice Self Determination Series: Self-Determination and Aging](https://healthmattersprogram.org/2015/01/11/research-to-practice-self-determination-series-self-determination-and-aging/) - Research to Practice Self Determination Series: Self-Determination and Aging
- [Guidelines for Structuring Community Care and Supports for People with Intellectual Disabilities Affected by Dementia](https://healthmattersprogram.org/2015/01/11/guidelines-for-structuring-community-care-and-supports-for-people-with-intellectual-disabilities-affected-by-dementia/) - Guidelines for Structuring Community Care and Supports for People with Intellectual Disabilities Affected by Dementia
- [The Special Olympics Community-Based Health Promotion Programs: Program Evaluation Report](https://healthmattersprogram.org/2015/01/11/the-special-olympics-community-based-health-promotion-programs-program-evaluation-report/) - The Special Olympics Community-Based Health Promotion Programs: Program Evaluation Report
- [Promoting Health & Safety for Workers with Disabilities Conference: Realizing the Promise of the ADA](https://healthmattersprogram.org/2015/06/01/promoting-health-safety-for-workers-with-disabilities-conference-realizing-the-promise-of-the-ada/) - Promoting Health & Safety for Workers with Disabilities Conference: Realizing the Promise of the ADA June 9 & 10, 2015 Chicago, Illinois
- [Getting Involved in Research and Training: A Guide for Persons with Intellectual Disabilities](https://healthmattersprogram.org/2014/01/11/getting-involved-in-research-and-training-a-guide-for-persons-with-intellectual-disabilities/) - Getting Involved in Research and Training: A Guide for Persons with Intellectual Disabilities
- [The health and well-being of Black mothers who care for their adult children with schizophrenia](https://healthmattersprogram.org/2004/01/01/the-health-and-well-being-of-black-mothers-who-care-for-their-adult-children-with-schizophrenia/) - The health and well-being of Black mothers who care for their adult children with schizophrenia. Magaña, S., Greenberg, J., & Seltzer, M. (2004). Psychiatric Services, 55, 711-713.
- [DD data brief: Service use by and needs of adults with functional limitations or ID/DD in the NHIS-D: Difference by age, gender, and disability](https://healthmattersprogram.org/2003/12/01/dd-data-brief-service-use-by-and-needs-of-adults-with-functional-limitations-or-iddd-in-the-nhis-d-difference-by-age-gender-and-disability/) - DD data brief: Service use by and needs of adults with functional limitations or ID/DD in the NHIS-D: Difference by age, gender, and disability (Vol. 5, No.2), (Dec. 2003). Larson, S., Lakin, C., & Huang, J. (Eds.), Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota. This DD Data Brief
- [DD data brief: Health insurance coverage and health care experiences of persons with disabilities in the NHIS-D](https://healthmattersprogram.org/2003/05/01/dd-data-brief-health-insurance-coverage-and-health-care-experiences-of-persons-with-disabilities-in-the-nhis-d/) - DD data brief: Health insurance coverage and health care experiences of persons with disabilities in the NHIS-D (Vol. 5, No.1), (May 2003). Anderson, L., Larson, S., Lakin, C., & Kwak, N. (Eds.), Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.This DD Data Brief describes the experiences with public and
- [Aftermath of Parental Death: Changes in the Content and Quality of Life](https://healthmattersprogram.org/1997/01/01/aftermath-of-parental-death-changes-in-the-content-and-quality-of-life/) - Aftermath of Parental Death: Changes in the Content and Quality of Life (1997). Gordon, R.M., Seltzer, M.M., & Krauss, M. W. In Robert Schalock (Ed.), Quality of Life: Its Application to Persons with Disability. Washington, DC: AAMR.ISBN: 0-940898-41-1 COST PER UNIT: $19.95 Order directly from the American Association on Mental Retardation at www.aamr.org or 1-301-604-1340
- [Geriatrics](https://healthmattersprogram.org/2006/01/01/geriatrics/) - Geriatrics (2006). Pekala Service, K., Tyler, Jr., C.V., & Janicki, M.P. , pp. 575-589.This chapter is in the book Medical Care for Children and Adults with Developmental Disabilities (2nd Ed.) edited by I. Leslie Rubin, M.D. and Allen Crocker, M.D. It describes the age-related health and psychosocial issues of older adults with I/DD. Topics include
- [Community supports for aging adults with lifelong disabilities](https://healthmattersprogram.org/2000/01/01/community-supports-for-aging-adults-with-lifelong-disabilities/) - Community supports for aging adults with lifelong disabilities (2000). Janicki, M. & Ansello, E. (Eds.) Baltimore: Brookes Publishing.This book provides practical approaches that enable older adults to remain in their homes and communities as they age. It draws on field-tested experiences and situations that can be applied to most settings. Topics include: financing services for
- [Value-based human resources management](https://healthmattersprogram.org/2000/01/01/value-based-human-resources-management/) - Value-based human resources management (2000). Henry, D.B., Keys, C.B., & Factor, A.R., In M. Janicki & E. Ansello (Eds.), Community supports for aging adults with lifelong disabilities. (271-286) Baltimore: Brookes Publishing.Staff in health care and human services organizations that serve the general population may not have the skills to communicate with older adults with intellectual
- [Aging With Intellectual Disabilities and Later-Life Family Caregiving](https://healthmattersprogram.org/1998/01/01/aging-with-intellectual-disabilities-and-later-life-family-caregiving/) - Aging With Intellectual Disabilities and Later-Life Family Caregiving (1998). Heller, T., In Edelstein, C.A. (Ed.), Comprehensive Clinical Psychology Volume 7, Clinical Geropsychology. Oxford: Pergamon/Elsevier.Dr. Heller examines later-life caregiving for adults with intellectual disabilities from a life-course perspective that takes into account the social trends and service patters that affect these families. It discusses demographic trends,
- [Aging and Developmental Disability: Current Research, Programming, and Practice Implications](https://healthmattersprogram.org/2001/01/01/aging-and-developmental-disability-current-research-programming-and-practice-implications/) - Aging and Developmental Disability: Current Research, Programming, and Practice Implications (2001). Hammel, J. & Nochajski, S. Binghamton: The Haworth PressThis book explores the research findings and practice implications pertaining to normative and disability-related aging. It discusses the effectiveness of specific interventions for aging adults with intellectual and related developmental disabilities, including assistive technology and environmental
- [Physical & Occupational Therapy in Geriatrics, Special Issue-Aging and Developmental Disabilities: Current Research, Programming and Practice Implications](https://healthmattersprogram.org/2000/01/01/physical-occupational-therapy-in-geriatrics-special-issue-aging-and-developmental-disabilities-current-research-programming-and-practice-implications/) - Physical & Occupational Therapy in Geriatrics, Special Issue-Aging and Developmental Disabilities: Current Research, Programming and Practice Implications (2000). Hammel, Joy, & Nochajski, Susan M. The Haworth Press, Vol 18 (1).ISBN: 0270-3181COST PER UNIT: $60.00Order directly from the publisher at: www.HaworthPress.com or call 1-800-429-6784.
- [Older Adults With Mental Retardation and Their Families](https://healthmattersprogram.org/1997/01/01/older-adults-with-mental-retardation-and-their-families/) - Older Adults With Mental Retardation and Their Families (1997). Heller, T. A chapter in Bray, N. W. (Ed.) International Review of Research in Mental Retardation-Vol 20. This chapter addresses the needs of older adults with mental retardation and their families from a psychosocial model that examines age-related changes and from the broader perspective of demographic
- [Siblings of disabled peoples’ attitudes toward prenatal genetic testing and disability: A mixed methods approach](https://healthmattersprogram.org/2016/08/24/siblings-of-disabled-peoples-attitudes-toward-prenatal-genetic-testing-and-disability-a-mixed-methods-approach/) - Carli Friedman, Aleksa L Owen Siblings of disabled peoples’ attitudes toward prenatal genetic testing and disability: A mixed methods approach. Disability Studies Quarterly, 36(3).Abstract We used the phenomenon of prenatal genetic testing to learn more about how siblings of disabled people understand prenatal genetic testing and social meanings of disability. By interweaving data on siblings'
- [Un/paid labor: Medicaid Home and Community Based Services waiver that pay family as personal care providers](https://healthmattersprogram.org/2016/08/24/unpaid-labor-medicaid-home-and-community-based-services-waiver-that-pay-family-as-personal-care-providers/) - Carli Friedman and Mary C. Rizzolo (2016) Un/Paid Labor: Medicaid Home and Community Based Services Waivers That Pay Family as Personal Care Providers. Intellectual and Developmental Disabilities: August 2016, Vol. 54, No. 4, pp. 233-244. doi: http://dx.doi.org/10.1352/1934-9556-54.4.233Correspondence concerning this article should be addressed to Carli Friedman, Disability and Human Development, University of Illinois at Chicago,
- [Individual, parent and social–environmental correlates of  caregiving experiences among parents of adults with autism spectrum disorder](https://healthmattersprogram.org/2016/06/01/individual-parent-and-socialenvironmental-correlates-of-caregiving-experiences-among-parents-of-adults-with-autism-spectrum-disorder/) - Burke, M. & Heller, T. (2016) Individual, parent and social–environmental correlates of caregiving experiences among parents of adults with autism spectrum disorder. Journal of Intellectual Disability Research, 60 (5), pp 401–411. doi: 10.1111/jir.12271Abstract Compared to parents of adults with other types of disabilities, parents of adults with autism spectrum disorder (ASD) experience worse well-being. Thus,
- [Health Care for People with Intellectual and Developmental Disabilities across the Lifespan](https://healthmattersprogram.org/2016/05/02/health-care-for-people-with-intellectual-and-developmental-disabilities-across-the-lifespan/) - Rubin, I.L., Merrick, J., Greydanus, D.E., Patel, D.R. (Eds.) (2016), Health Care for People with Intellectual and Developmental Disabilities across the Lifespan Switzerland: Springer.A new book has been published that offers a unique lifespan approach on health care for people with intellectual and developmental disabilities. It addresses the clinical as well as the systems of
- [Health services appraisal and the transition to Medicaid Managed Care from fee for service](https://healthmattersprogram.org/2016/04/20/health-services-appraisal-and-the-transition-to-medicaid-managed-care-from-fee-for-service/) - Owen, R., Heller, T. & Bowers, A. (2016). Health services appraisal and the transition to Medicaid Managed Care from fee for service. Disability and Health, 9(2), 239-247. doi:10.1016/j.dhjo.2015.10.004 Abstract:Background: Many states are transitioning fee-for-service (FFS) Medicaid into Medicaid Managed Care (MMC) for people with disabilities.Objective: This study examined managed care’s impact on health services appraisal (HSA)
- [Perceptions of health and healthcare of people with intellectual and developmental disabilities enrolled in Medicaid Managed Care](https://healthmattersprogram.org/2016/04/20/perceptions-of-health-and-healthcare-of-people-with-intellectual-and-developmental-disabilities-enrolled-in-medicaid-managed-care/) - Gibbons, H. M., Owen, R., & Heller, T. (2016). Perceptions of health and healthcare of people with intellectual and developmental disabilities enrolled in Medicaid Managed Care. Intellectual and Developmental Disabilities, 54(2), 94-105. DOI: 10.1352/1934-9556-54.2.94 Abstract:This study examined perceptions of health and healthcare of people with intellectual and developmental disabilities (IDD) receiving Medicaid Managed Care. Exploratory, semistructured
- [Dementia and Intellectual Disability Workshops](https://healthmattersprogram.org/2016/04/08/dementia-and-intellectual-disability-workshops/) - Dementia and Intellectual Disability Workshops The National Task Group on Intellectual Disabilities and Dementia Practices (NTG) is offering a series of workshops on “Dementia Capable Care of Adults with Intellectual Disabilities and Dementia” at several locations over the next coming few months. This workshop is offered as a two-day "basic" course or a three-day "Train-the-Trainer"
- [Prevalence of overweight and obesity among students with intellectual disabilities in taiwan: A secondary analysis](https://healthmattersprogram.org/2016/03/29/prevalence-of-overweight-and-obesity-among-students-with-intellectual-disabilities-in-taiwan-a-secondary-analysis/) - Pan C-C, Davis R, Nichols D, Hwang SH, Hsieh K. Prevalence of overweight and obesity among students with intellectual disabilities in Taiwan: A secondary analysis. Research in Developmental Disabilities. 2016; 53–54, 305-313
- [National Goals Conference: Self-Determination and Self-Advocacy Strand](https://healthmattersprogram.org/2016/02/17/national-goals-conference-self-determination-and-self-advocacy-strand/) - National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities Setting a National Agenda for Self-Determination and Self-Advocacy Research, Practice, and Policy In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify
- [National Goals Conference: Long Term Supports and Services Strand](https://healthmattersprogram.org/2016/02/17/national-goals-conference-long-term-supports-and-services-strand/) - National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities Setting a National Agenda for Long Term Supports and Services Research, Practice, and Policy In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge
- [National Goals Conference: Health and Wellness Strand](https://healthmattersprogram.org/2016/02/17/national-goals-conference-health-and-wellness-strand/) - National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities Setting a National Agenda for Health and Wellness Research, Practice, and Policy In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify
- [National Goals Conference: Families Strand](https://healthmattersprogram.org/2016/02/17/national-goals-conference-families-strand/) - National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities Setting a National Agenda for Family Research, Practice, and Policy In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform
- [National Goals Conference: Aging Strand](https://healthmattersprogram.org/2016/02/17/national-goals-conference-aging-strand/) - National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities Setting a National Agenda for Aging Research, Practice, and Policy In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform
- [Pregnancy Outcomes for Women with Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2016/01/21/pregnancy-outcomes-for-women-with-intellectual-and-developmental-disabilities/) - Pregnancy Outcomes for Women with Intellectual and Developmental DisabilitiesPresenters: Susan Parish, PhD, MSWRRTCDD 2016 Health and Wellness Series WebinarDid you know women with I/DD had longer hospital stays, and were more likely to have Caesarean deliveries in contrast to other women? Rates of adverse pregnancy outcomes were elevated for women with IDD across a range
- [Practical applications of the NTG-EDSD for screening adults with intellectual disability for dementia: A German-language version feasibility study](https://healthmattersprogram.org/2015/11/25/practical-applications-of-the-ntg-edsd-for-screening-adults-with-intellectual-disability-for-dementia-a-german-language-version-feasibility-study/) - Elisabeth L. Zeilinger, Claudia Gärtner, Matthew P. Janicki, Lucille Esralew & Germain WeberJournal of Intellectual & Developmental DisabilitiesPublished online: 23 Nov 2015http://dx.doi.org/10.3109/13668250.2015.1113238 ABSTRACT Background In this study, we evaluated the feasibility of using the German-language version of a recently developed screening tool for dementia for persons with intellectual disability (ID): the National Task Group –
- [Ageing-related experiences of adults with learning disability resident in rural areas: one Australian perspective](https://healthmattersprogram.org/2015/11/25/ageing-related-experiences-of-adults-with-learning-disability-resident-in-rural-areas-one-australian-perspective/) - Stuart Wark, Miranda Canon-Vanry, Peta Ryan, Rafat Hussain, Marie Knox, Meaghan Edwards, Marie Parmenter, Trevor Parmenter, Matthew Janicki, andChez Leggatt-CookBritish Journal of Learning Disabilities: Special Issue: Aging and People with Learning Disabilities Volume 43, Issue 4, Pages 293–301December 2015Summary This paper is about older people with learning disabilities who live in the country in Australia.
- [Life course health and healthcare utilization among adults with spina bifida](https://healthmattersprogram.org/2015/11/12/life-course-health-and-healthcare-utilization-among-adults-with-spina-bifida/) - Liptak GS, Robinson LM, Davidson PW, Dziorny A, Lavalley R, Flaherty MG, Dosa NPDevelopmental Medicine & Child Neurology 2015 Nov 2 Abstract AIM: To evaluate the prevalence of organ system disorders and describe healthcare utilization among adults with spina bifida at a regional clinic. METHOD: This study was a structured chart review using the Rochester
- [Caregiving and Family Support Interventions: Crossing Networks of Aging and Developmental Disabilities](https://healthmattersprogram.org/2015/10/23/caregiving-and-family-support-interventions-crossing-networks-of-aging-and-developmental-disabilities/) - Heller, T., Gibbons, H.M., & Fisher, D. (2015). Caregiving and Family Support Interventions: Crossing Networks of Aging and Developmental Disabilities. Intellectual and Developmental Disabilities, 53(5), 329–345.Abstract This scoping review addressed the following questions: (a) What types of caregiver interventions are being done in both aging and developmental disability research? (b) How are these interventions similar
- [Health Conditions and Functional Status in Adults with Autism: A Cross-Sectional Evaluation](https://healthmattersprogram.org/2015/10/07/health-conditions-and-functional-status-in-adults-with-autism-a-cross-sectional-evaluation/) - Fortuna, R.J., Robinson, L., Smith, T.H., Meccarello, J., Bullen, B., Nobis, K., Davidson, P.W.J Gen Intern Med. 2015 Sep 11. http://link.springer.com/article/10.1007%2Fs11606-015-3509-xAbstract BACKGROUND: Children and adolescents with autism spectrum disorder (ASD) have many well-known health concerns, yet health conditions in adults with ASD remain poorly defined. OBJECTIVE: To examine health conditions and functional status in adults
- [EEOC Sues Muskegon Family Care for Disability Discrimination](https://healthmattersprogram.org/2015/09/30/eeoc-sues-muskegon-family-care-for-disability-discrimination-2/) - Medical Provider Fired Employee with a Disability, Federal Agency ChargesDETROIT - Muskegon Family Care, a medical services provider located in Muskegon, Heights, MI, violated federal law by firing an employee due to a disability, the U.S. Equal Employment Opportunity Commission (EEOC) alleged in a lawsuit filed today.According to EEOC's suit, Avis Lane worked for Muskegon
- [How to Handle the 4 Most Challenging Autism Behaviors](https://healthmattersprogram.org/2015/08/26/how-to-handle-the-4-most-challenging-autism-behaviors/) - https://www.care.com/a/how-to-handle-the-4-most-challenging-autism-behaviors-1204050236
- [Guide to Flying with an Autistic Child](https://healthmattersprogram.org/2015/08/26/guide-to-flying-with-an-autistic-child/) - http://www.e-aircraftsupply.com/aircraft_products/file/guide-to-flying-with-a-child.aspx
- [A Parent’s Guide to Autism Spectrum Disorder](https://healthmattersprogram.org/2015/08/26/a-parents-guide-to-autism-spectrum-disorder/) - http://www.nimh.nih.gov/health/publications/a-parents-guide-to-autism-spectrum-disorder/index.shtml
- [National Center for Autism Resources & Education](https://healthmattersprogram.org/2015/08/26/national-center-for-autism-resources-education/) - https://www.disability.gov/resource/national-center-for-autism-resources-education-ncare/
- [The Life-Changing Impact of Autism Service Dogs](https://healthmattersprogram.org/2015/08/26/the-life-changing-impact-of-autism-service-dogs/) - https://www.rover.com/blog/autism-service-dogs
- [4 Paws For Ability](https://healthmattersprogram.org/2015/08/26/4-paws-for-ability/) - http://4pawsforability.org/autism-assistance-dog/
- [Health and Safety Conference for Workers with Disabilities](https://healthmattersprogram.org/2015/06/06/health-and-safety-conference-for-workers-with-disabilities/) - Health and Safety Conference for Workers with Disabilities
- [EEOC Issues Proposed Rule on ADA Compliance for Wellness Programs](https://healthmattersprogram.org/2015/05/12/eeoc-issues-proposed-rule-on-ada-compliance-for-wellness-programs/) - April 20, 2015EEOC Issues Proposed Rule on ADA Compliance for Wellness ProgramsThe U.S Equal Employment Opportunity Commission (EEOC) published a Notice of Proposed Rulemaking today that provides guidance to both employers and employees on how wellness programs offered as part of employers’ group health plans can comply with Title I of the American with Disabilities
- [Promoting Collaboration Between Hospice and Palliative Care Providers and Adult Day Services for Individuals With Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2015/04/01/promoting-collaboration-between-hospice-and-palliative-care-providers-and-adult-day-services-for-individuals-with-intellectual-and-developmental-disabilities/) - Corina R. Ronneberg, Lisa Peters-Beumer, Beth Marks, and Alan FactorAbstract While end-of-life issues are increasingly gaining more attention, people with intellectual and developmental disabilities (IDD) continue to receive significantly less consideration in research, education, and clinical practice compared with the general population. This is a growing concern especially since the sheer number of persons aging
- [Check out the *HealthMatters, Kentucky! Initiative* video](https://healthmattersprogram.org/2015/03/11/check-out-the-healthmatters-kentucky-initiative-video/) - Check out the *HealthMatters, Kentucky! Initiative* video
- [Guidelines for Dementia-Related Health Advocacy for Adults With Intellectual Disability and Dementia: National Task Group on Intellectual Disabilities and Dementia Practices. Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2015/02/10/guidelines-for-dementia-related-health-advocacy-for-adults-with-intellectual-disability-and-dementia-national-task-group-on-intellectual-disabilities-and-dementia-practices-intellectual-and-developm/) - Kathleen M. Bishop, Mary Hogan, Matthew P. Janicki, Seth M. Keller, Ronald Lucchino, Dawna T. Mughal, Elizabeth A. Perkins, Baldev K. Singh, Kathy Service, Sarah Wolfson, and the Health Planning Work Group of the National Task Group on Intellectual Disabilities and Dementia Practices (2015) Guidelines for Dementia-Related Health Advocacy for Adults With Intellectual Disability and
- [HealthMatters, Kentucky!](https://healthmattersprogram.org/2015/01/11/healthmatters-kentucky/) - HealthMatters, Kentucky!
- [HealthMatters™ Community Academic Partnership<](https://healthmattersprogram.org/2015/01/11/healthmatters-community-academic-partnership-2/) - HealthMatters™ Community Academic Partnership
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- [Use of promotoras de salud in interventions with Latino families of children with IDD](https://healthmattersprogram.org/2014/10/20/use-of-promotoras-de-salud-in-interventions-with-latino-families-of-children-with-idd/) - Magaña, S., Lopez, K., Paradiso de Sayu, R., Miranda, E. (2014). Use of promotoras de salud in interventions with Latino families of children with IDD. In R. Hodapp (Ed.) International Review of Research in Developmental Disabilities, 47, IRRDD, UK: Academic Press, 2014, pp. 39-75.
- [Viability of a Dementia Advocacy Effort for Adults with Intellectual Disability: Using a National Task Group Approach](https://healthmattersprogram.org/2014/09/17/viability-of-a-dementia-advocacy-effort-for-adults-with-intellectual-disability-using-a-national-task-group-approach/) - Journal of Policy and Practice in Intellectual Disabilities Volume 11 Number 3 pp 176–191 September 2014Matthew P. Janicki and Seth M. Keller
- [Obesity and associated factors in adults with intellectual disability](https://healthmattersprogram.org/2014/08/06/obesity-and-associated-factors-in-adults-with-intellectual-disability/) - K. Hsieh, J. H. Rimmer & T. HellerJournal of Intellectual Disability Researchvolume 58 part 9 pp 851–863 september 2014
- [Supporting People with Intellectual and Developmental Disabilities to Participate in their Communities through Support Staff Pilot Intervention](https://healthmattersprogram.org/2014/06/03/supporting-people-with-intellectual-and-developmental-disabilities-to-participate-in-their-communities-through-support-staff-pilot-intervention/) - Andrea Gossett Zakrajsek, Joy Hammel, & Joseph A. ScazzeroVolume 27, Issue 2 March 2014 Pages 154–162
- [Improving health behaviours of Latina mothers of youths and adults with intellectual and developmental disabilities](https://healthmattersprogram.org/2014/04/25/improving-health-behaviours-of-latina-mothers-of-youths-and-adults-with-intellectual-and-developmental-disabilities/) - Magaña, S., Li, H., Miranda, E., & Paradiso, R. (2014) Improving health behaviors of Latina mothers of youths and adults with intellectual and developmental disabilities. Journal of Intellectual Disability Research. doi: 10.1111/jir.12139
- [Interventions to promote health: crossing networks of intellectual and developmental disabilities and aging](https://healthmattersprogram.org/2014/02/13/interventions-to-promote-health-crossing-networks-of-intellectual-and-developmental-disabilities-and-aging-2/) - Heller, T., Fisher, D., Marks, B., & Hsieh, K. (2014) Interventions to promote health: crossing networks of intellectual and developmental disabilities and aging. Disability and Health Journal, 7, S24-S32.http://www.sciencedirect.com/science/article/pii/S193665741300109X
- [The Political Arithmetic of Disability and the American Family: A Demographic Perspective](https://healthmattersprogram.org/2014/02/13/the-political-arithmetic-of-disability-and-the-american-family-a-demographic-perspective-2/) - Fujiura, G. (2014) The Political Arithmetic of Disability and the American Family: A Demographic Perspective. Family Relations Interdisciplinary Journal of Applied Family Studies, 63(1), pp. 7-19. http://onlinelibrary.wiley.com/doi/10.1111/fare.12051/abstract
- [Reciprocity and Social Capital in Sibling Relationships of People With Disabilities](https://healthmattersprogram.org/2014/01/27/reciprocity-and-social-capital-in-sibling-relationships-of-people-with-disabilities/) - Kramer, J., Hall, Allison, & Heller, T. (2013) Reciprocity and Social Capital in Sibling Relationships of People With Disabilities. Intellectual and Developmental Disabilities, (51)6, 482-495. doi: http://dx.doi.org/10.1352/1934-9556-51.6.482http://aaiddjournals.org/doi/abs/10.1352/1934-9556-51.6.482
- [Obesity and associated factors in adults with intellectual disability](https://healthmattersprogram.org/2014/01/16/obesity-and-associated-factors-in-adults-with-intellectual-disability-2/) - Hsieh, K., Rimmer, J.H., & Heller, T. (2013). Obesity and associated factors in adults with intellectual disability, Journal of Intellectual Disability Research. doi: 10.1111/jir.12100rhttp://onlinelibrary.wiley.com/doi/10.1111/jir.12100/abstract
- [Improving Health Behaviors of Latina Mothers of Children and Adults with Developmental Disabilities](https://healthmattersprogram.org/2014/01/16/improving-health-behaviors-of-latina-mothers-of-children-and-adults-with-developmental-disabilities-2/) - Sandra Magaña, PhD, MSW, ProfessorDisability and Human DevelopmentUniversity of Illinois at Chicago
- [Health outcomes of mid-life and aging Latina and Black American mothers of children with developmental disabilities](https://healthmattersprogram.org/2014/01/15/health-outcomes-of-mid-life-and-aging-latina-and-black-american-mothers-of-children-with-developmental-disabilities/) - Magaña, S., & Smith, M.J. (2006). Health outcomes of mid-life and aging Latina and Black American mothers of children with developmental disabilities. Mental Retardation, 44, 224-234.
- [Health behaviors, service utilization and access to care among older mothers of color who have children with developmental disabilities](https://healthmattersprogram.org/2014/01/15/health-behaviors-service-utilization-and-access-to-care-among-older-mothers-of-color-who-have-children-with-developmental-disabilities/) - Magaña, S. & Smith, M. (2008). Health behaviors, service utilization and access to care among older mothers of color who have children with developmental disabilities. Intellectual and Developmental Disabilities, 46, 267-280.
- [Older adults of color with developmental disabilities and

            serious mental illness: Experiences and service patterns](https://healthmattersprogram.org/2014/01/15/older-adults-of-color-with-developmental-disabilities-and-serious-mental-illness-experiences-and-service-patterns/) - Magaña, S. & Ghosh, S. (2014). Older adults of color with developmental disabilities and serious mental illness: Experiences and service patterns. In K. Whitfield and T. Baker (Eds.) Handbook of Minority Aging. New York: Springer Publishing Company.
- [Health Promotion for People with Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2014/01/11/health-promotion-for-people-with-intellectual-and-developmental-disabilities/)
- [National Task Group Early Detection Screen for Dementia (NTG-EDSD) Manual](https://healthmattersprogram.org/2013/08/08/national-task-group-early-detection-screen-for-dementia-ntg-edsd-manual/) - National Task Group Early Detection Screen for Dementia (NTG-EDSD) Manual. L. Esralew, M.P. Janicki, M. DiSipio, N. Jokinen, S.M. Keller and Members of the National Task Group Section on Early Detection and Screening. (2013). NADD Bulletin, 16(3), 47-54.
- [The National Task Group on Intellectual Disabilities and Dementia Practices consensus recommendations for the evaluation and management of dementia in adults with intellectual disabilities](https://healthmattersprogram.org/2013/08/08/the-national-task-group-on-intellectual-disabilities-and-dementia-practices-consensus-recommendations-for-the-evaluation-and-management-of-dementia-in-adults-with-intellectual-disabilities/)
- [Guidelines for structuring community care and supports for people 
with intellectual disabilities affected  by dementia](https://healthmattersprogram.org/2013/08/08/guidelines-for-structuring-community-care-and-supports-for-people-with-intellectual-disabilities-affected-by-dementia-2/) - Guidelines for structuring community care and supports for people with intellectual disabilities affected by dementia. Jokinen, J. Janicki, M.P., Keller, S.M., McCallion, P., Force, L.T. and the National Task Group on Intellectual Disabilities and Dementia Practices. (2013). Journal of Policy and Practice in Intellectual Disabilities, 10(1), 1-28.Link to full document
- [Consensus Recommendations for the Evaluation and Management of Dementia in
Adults With Intellectual Disabilities](https://healthmattersprogram.org/2013/07/31/consensus-recommendations-for-the-evaluation-and-management-of-dementia-inadults-with-intellectual-disabilities/) - Moran, J.A., Rafii, M.S., Keller, S.M., Singh, B.K., & Janicki, M.P. (2013). Consensus Recommendations for the Evaluation and Management of Dementia in Adults With Intellectual Disabilities. In press. http://www.ncbi.nlm.nih.gov/pubmed/23849993
- [Research to Practice Self-Determination Series: Self-Determination and Aging](https://healthmattersprogram.org/2013/05/13/research-to-practice-self-determination-series-self-determination-and-aging-2/) - Edited by Tamar Heller & Alan Factor
- [Guidelines for Structuring Community Care and Supports for People with Intellectual
Disabilities Affected by Dementia](https://healthmattersprogram.org/2013/03/29/guidelines-for-structuring-community-care-and-supports-for-people-with-intellectualdisabilities-affected-by-dementia/) - Guidelines for Structuring Community Care and Supports for People with Intellectual Disabilities Affected by Dementia (2013). Jokinen, N., Janicki, M.P., Keller, S.M., McCallion, P., Force, L.T. & The National Task Group on Intellectual Disabilities and Dementia Practices. Journal of Policy and Practice in Intellectual Disabilities, (10)1, 1-24. http://onlinelibrary.wiley.com/doi/10.1111/jppi.12016/abstract
- [HealthMatters - Improving Health Status among Individuals with Disabilities through a Health Promotion Program](https://healthmattersprogram.org/2013/01/08/healthmatters-improving-health-status-among-individuals-with-disabilities-through-a-health-promotion-program/) - February 29, 2012 Dina Donohue-Chase, Kristin Krok, and Beth Marks) was invited by Easter Seals to present on increasing awareness around health promotion among both community agencies and individuals with I/DD—and spread the message that health promotion is everyone’s responsibility within an organization regardless of job description. The team will discuss HealthMatters Program, a health promotion
- [Integrated Wellness Initiatives: Building Organizational Capacity](https://healthmattersprogram.org/2013/01/08/integrated-wellness-initiatives-building-organizational-capacity/) - February 29, 2012HealthMatters Team presents at ANCOR Webinar on March 5th, 2012 - 1:00pm - 2:15pmPeople with developmental disabilities have the least health programming and highest levels of preventable secondary chronic health conditions in the nation. The prevailing myth is that people with DD are unhealthy because they have a disability.This webinar presents evidence that
- [Advancing a Research Agenda for Bridging Aging and Disability](https://healthmattersprogram.org/2012/12/04/advancing-a-research-agenda-for-bridging-aging-and-disability/) - Advancing a research agenda for bridging aging and disability (2012). Salvador-Carulla, L., Putnam, M., & Heller, T. International Journal Of Integrated Care, 12(8).http://www.ijic.org/index.php/ijic/article/view/1085/1921
- [Bringing Stakeholders Together Across Aging and Disability: GOWD Conference Series](https://healthmattersprogram.org/2012/12/04/bringing-stakeholders-together-across-aging-and-disability-gowd-conference-series/) - Bringing stakeholders together across aging and disability: GOWD conference series, (2012). Spindel, A., Campbell, M., & Mendez, J. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1083/1917
- [Key Focal Areas for Bridging the Fields of Aging and Disability: Findings From the Growing Older With a Disability Conference](https://healthmattersprogram.org/2012/12/04/key-focal-areas-for-bridging-the-fields-of-aging-and-disability-findings-from-the-growing-older-with-a-disability-conference/) - Key focal areas for bridging the fields of aging and disability: findings from the growing older with a disability conference, (2012). Naidoo, V., Putnam, M., & Spindel, A. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1082/1915
- [The Toronto Declaration on Bridging Knowledge, Policy and Practice in Aging and Disability](https://healthmattersprogram.org/2012/12/04/the-toronto-declaration-on-bridging-knowledge-policy-and-practice-in-aging-and-disability/) - The Toronto declaration on bridging knowledge, policy and practice in aging and disability, (2012). Bickenbach, J., Bigby, C., Salvador-Carulla, L., Heller, T., Leonardi, M., LeRoy, B., Mendez, J., Putnam, M., & Spindel, A. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1086/1923
- [Self-directed Support: Impact of Hiring Practices on Adults with Intellectual and Developmental Disabilities and Families](https://healthmattersprogram.org/2012/12/03/self-directed-support-impact-of-hiring-practices-on-adults-with-intellectual-and-developmental-disabilities-and-families/) - Self-directed support: Impact of hiring practices on adults with intellectual and developmental disabilities and families, (2012). Heller, T., Arnold, C.K., van Heumen, L., McBride, E.J., & Factor, A. American Journal on Intellectual and Developmental Disabilities, 117, 464-477.http://www.aaiddjournals.org/doi/abs/10.1352/1944-7558-117.6.464
- [Prevalence of Falls and Risk Factors in Adults with Intellectual Disability](https://healthmattersprogram.org/2012/12/03/prevalence-of-falls-and-risk-factors-in-adults-with-intellectual-disability/) - Prevalence of falls and risk factors in adults with Intellectual Disability, (2012). Hsieh, K., Rimmer, J., & Heller, T. American Journal on Intellectual and Developmental Disabilities, 117, 442-454.
- [Self-Reported Health of People with Intellectual
Disability](https://healthmattersprogram.org/2012/08/28/self-reported-health-of-people-with-intellectualdisability/) - Self-Reported Health of People with Intellectual Disability (2012). Fujiura, G., T. Intellectual and Developmental Disabilities: August 2012, Vol. 50, No. 4, pp. 352-369.
- [Employer Strategies for Responding to an Aging Workforce](https://healthmattersprogram.org/2012/06/02/employer-strategies-for-responding-to-an-aging-workforce-2/) - Employer Strategies for Responding to an Aging Workforceby Francine M. Tishman, Sara Van Looy, and Susanne M. BruyèreExecutive SummaryAccording to a Government Accountability Office (GAO) report issued in 2006, the number of workers over age 55 is projected to increase significantly over the next 20 years, with this demographic group projected to comprise as much
- [How is “Disability" Is Defined Differently in Federal Laws for Children & Adults?](https://healthmattersprogram.org/2012/06/02/how-is-disability-is-defined-differently-in-federal-laws-for-children-adults-2/) - How is “Disability" Is Defined Differently in Federal Laws for Children & Adults?Pathways for Disabled Students to Tertiary Education and Employment: Country Report for the United StatesThis document is the Country Report produced by the United States in the context of the EDPC activity on Pathways for Disabled Students to Tertiary Education and Employment. It
- [Need Help Finding Support Services?](https://healthmattersprogram.org/2012/06/02/need-help-finding-support-services-2/) - Need Help Finding Support Services?View more than 100 organizations nationwide that provide emotional, practical, and financial support services for people with cancer and their families.Information from the National Cancer Institute (NCI) about support services for people living with cancer and their families. Get connected to more than 100 organizations nationwide that provide emotional, practical, and
- [Top 10 CIO Strategies For Implementing Section 508](https://healthmattersprogram.org/2012/06/02/top-10-cio-strategies-for-implementing-section-508-2/) - Top 10 CIO Strategies For Implementing Section 508Last Updated: May 5, 20111. Adopt a Social Responsibility Perspective for AccessibilityAgencies unintentionally erect barriers to participation and inclusion for people with disabilities; however, a shift in perspective can fundamentally change their approach to accessibility (i.e., the staircase creates the barrier, not the wheelchair). Agencies that adopt a
- [New to Disability: Learn More about Disability and Independent Living](https://healthmattersprogram.org/2012/06/02/new-to-disability-learn-more-about-disability-and-independent-living-2/) - New to Disability: Learn More about Disability and Idependent LivingFind national and state resources on community living for people with disabilities.Disability.gov is the federal government website for comprehensive information on disability programs and services in communities nationwide. The site has information on topics such as applying for benefits, getting health care, finding a job, paying
- [Disability.gov Technology Resources](https://healthmattersprogram.org/2012/06/02/disability-gov-technology-resources-2/) - Disability.gov Technology ResourcesFind national and state resources on technology for people with disabilities.
- [Disability.gov Education Resources](https://healthmattersprogram.org/2012/06/02/disability-gov-education-resources-2/) - Disability.gov Education ResourcesFind national and state resources on education for people with disabilities.
- [Disability.gov Civil Right Resources](https://healthmattersprogram.org/2012/06/02/disability-gov-civil-right-resources-2/) - Disability.gov Civil Rights ResourcesFind national and state resources on civil rights for people with disabilities.
- [Disability.gov Employment Resources](https://healthmattersprogram.org/2012/06/02/disability-gov-employment-resources-2/) - Disability.gov Employment ResourcesFind national and state resources on employment for people with disabilities.
- [Disability.gov Healthy Living Resources](https://healthmattersprogram.org/2012/06/02/disability-gov-healthy-living-resources-2/) - Disability.gov Healthy Living ResourcesFind national and state resources on Healthy Living for people with disabilities.
- [Screen Magnification/Reader Software](https://healthmattersprogram.org/2012/06/02/screen-magnificationreader-software-2/) - Screen Magnification/Reader SoftwareLearn how screen magnification software can assist individuals with low vision. Visit us online at http://cap.mil/
- [How Can I Find a Good Amplified Stethoscope to Hear Soft Sounds](https://healthmattersprogram.org/2012/06/02/how-can-i-find-a-good-amplified-stethoscope-to-hear-soft-sounds-2/) - How Can I Find a Good Amplified Stethoscope to Hear Soft Sounds?As you probably know, there are many different types of stethoscopes available to student and health professionals. Sometimes it takes trial and error to find the right one, so it may be worthwhile to order a few and check the return policy so the
- [The Special Olympics Community-Based Health Promotion Programs: Program Evaluation Report](https://healthmattersprogram.org/2012/01/09/the-special-olympics-community-based-health-promotion-programs-program-evaluation-report-2/) - The Special Olympics Community-Based Health Promotion Programs: Program Evaluation Report. (2012). Heller, T., Hsieh, K., Badetti, L., & Parker, H. (2012). Chicago: University of Illinois at Chicago. Special Olympics Collaborating Research Center, Institute on Disability and Human Development, University of Illinois at Chicago.To view report, click here.
- [Preventing Health Problems among People with Intellectual and Developmental Disabilities: DSPs’ Role in Observing and Reporting Early Signs and Symptoms](https://healthmattersprogram.org/2012/01/01/preventing-health-problems-among-people-with-intellectual-and-developmental-disabilities-dsps-role-in-observing-and-reporting-early-signs-and-symptoms/) - Preventing Health Problems among People with Intellectual and Developmental Disabilities: DSPs’ Role in Observing and Reporting Early Signs and Symptoms. Marks, B. & Sisirak, J. (2012). Frontline Initiative, 10(2).http://rtc.umn.edu/docs/FI-Healthcare_FINAL_11-6-12.pdf
- [HealthMatters for People with Developmental Disabilities: Take Charge](https://healthmattersprogram.org/2012/01/01/healthmatters-for-people-with-developmental-disabilities-take-charge/) - HealthMatters for People with Developmental Disabilities: Take Charge! Marks, B. & Sisirak, J. (2012). National Gateway to Self-Determination. http://www.aucd.org/docs/issue3.pdf
- [Systematic Reviews for Informing Rehabilitation Practice: An Introduction](https://healthmattersprogram.org/2012/01/01/systematic-reviews-for-informing-rehabilitation-practice-an-introduction/) - Dijkers, M.P., Bushnik, T., Allen W., Heinemann, A.W., Heller, T., Libin, A.V., Starks, J., Sherer, M. & Vandergoot, D. (2012)Archives of Physical Medicine and Rehabilitation, (93), 912-918.
- [Physical Activity and Nutrition Health Promotion Interventions: What is Working for People with Disabilities?](https://healthmattersprogram.org/2011/02/01/physical-activity-and-nutrition-health-promotion-interventions-what-is-working-for-people-with-disabilities/) - Physical Activity and Nutrition Health Promotion Interventions: What is Working for People with Disabilities? (February 2011). Heller, T., McCubbin, J.A., Drum, D. & Peterson, J. Intellectual and Developmental Disabilities, 49 (1), 26-36.
- [Self-Determination Across the Life Span: Issues and Gaps](https://healthmattersprogram.org/2011/01/01/self-determination-across-the-life-span-issues-and-gaps/) - Self-Determination Across the Life Span: Issues and Gaps (2011). Heller, T., Schindler, A., Palmer, S.B., Wehmeyer, M.L., Parent, W., Jenson, R., Abery, B.H., Geringer, W., Bacon, A. & O’Hara, D.M. In Exceptionality: A Special Education Journal – Special Issue on Self-Determination, 19 (1), 31-45.
- [Introduction to the Special Issue on Scaling Efforts to Promote Self-Determination of People with Developmental Disabilities](https://healthmattersprogram.org/2011/01/01/introduction-to-the-special-issue-on-scaling-efforts-to-promote-self-determination-of-people-with-developmental-disabilities/) - Introduction to the Special Issue on Scaling Efforts to Promote Self-Determination of People with Developmental Disabilities (2011). Calkins, C., Wehmeyer, M.L., Bacon, A., Heller, T. & Walker, H.M. In Exceptionality: A Special Education Journal – Special Issue on Self-Determination, 19 (1), 2-5.
- [Lessons Learned in Scaling Up Effective Practices: Implications for Promoting Self-Determination Within Developmental Disabilities](https://healthmattersprogram.org/2011/01/01/lessons-learned-in-scaling-up-effective-practices-implications-for-promoting-self-determination-within-developmental-disabilities/) - Lessons Learned in Scaling Up Effective Practices: Implications for Promoting Self-Determination Within Developmental Disabilities (2011). Bacon, A., Walker, H.M., Schwartz, A.A., O’Hara, D.M., Calkins, C. & Wehmeyer, M.L. In Exceptionality: A Special Education Journal – Special Issue on Self-Determination, 19(1), 46-60.
- [Personal Self-Determination and Moderating Variables That Impact Efforts to Promote Self-Determination](https://healthmattersprogram.org/2011/01/01/personal-self-determination-and-moderating-variables-that-impact-efforts-to-promote-self-determination/) - Personal Self-Determination and Moderating Variables That Impact Efforts to Promote Self-Determination (2011). Wehmeyer, M.L., Abery, B.H., Dalun, Z., Ward, K., Willis, D., Amin-Hossain,A., Balcazar, F., Ball, A., Bacon, A., Calkins, C., Heller, T., Goode, T., Dias, R., Jesien, G., McVeigh, T., Nygren, M., Palmer, S.B. & Walker, H.M. In Exceptionality: A Special Education Journal –
- [Following through to the end: The use of inclusive strategies to analyse and interpret data in participatory action](https://healthmattersprogram.org/2011/01/01/following-through-to-the-end-the-use-of-inclusive-strategies-to-analyse-and-interpret-data-in-participatory-action/) - Following through to the end: The use of inclusive strategies to analyse and interpret data in participatory action. Kramer, J.M., Kramer, J.C., Garcia-Iriarte, E., & Hammel, J. (2011) Journal of Applied Research in Intellectual Disabilities, 24, 263-173.http://onlinelibrary.wiley.com/doi/10.1111/j.1468-3148.2010.00602.x/full
- [Lessons Learned: Community Based Train the Trainer Health Promotion Programming for People with ID](https://healthmattersprogram.org/2010/10/20/lessons-learned-community-based-train-the-trainer-health-promotion-programming-for-people-with-id/) - Lessons Learned: Community Based Train the Trainer Health Promotion Programming for People with ID. Sisirak, J. & Marks, B. (2010). Abstracts of the Third International Conference of IASSID Europe, 20-22 October, 2010, Rome. Journal of Applied Research in Intellectual Disabilities, 23(5), 467.http://onlinelibrary.wiley.com/doi/10.1111/j.1468-3148.2010.00587.x/abstract
- [Technical Standards Versus Essential Functions: Developing Disability-Friendly Policies for Nursing Programs](https://healthmattersprogram.org/2010/03/31/technical-standards-versus-essential-functions-developing-disability-friendly-policies-for-nursing-programs/) - Technical Standards Versus Essential Functions: Developing Disability-Friendly Policies for Nursing Programsby Martha SmithWhat do technical standards mean for nursing?Under Section 504 of the Rehabilitation Act, schools can, in fact, have technical standards. Technical Standards are all the non-academic requirements a students must have/meet to enter a program. For most health sciences programs, there are usually
- [The Future is Now: A Future Planning Training Curriculum for Families and Their Adult Relatives with Developmental Disabilities](https://healthmattersprogram.org/2010/01/01/the-future-is-now-a-future-planning-training-curriculum-for-families-and-their-adult-relatives-with-developmental-disabilities/) - The Future is Now: A Future Planning Training Curriculum for Families and Their Adult Relatives with Developmental Disabilities (2010). Factor, A., DeBrine, E., Caldwell, J., Arnold, K., Kramer, J., Nelis, T. & Heller, T.This curriculum equips families and their adult relative with a disability with the communication skills and information to jointly plan for the
- [Latina mothers caring for a son or daughter with autism or schizophrenia: Similarities, differences and the relationship between co-residency and maternal well-being](https://healthmattersprogram.org/2010/01/01/latina-mothers-caring-for-a-son-or-daughter-with-autism-or-schizophrenia-similarities-differences-and-the-relationship-between-co-residency-and-maternal-well-being/) - Latina mothers caring for a son or daughter with autism or schizophrenia: Similarities, differences and the relationship between co-residency and maternal well-being. Magaña S & Ghosh, S. (2010). Journal of Family and Social Work, 13, 227-250.http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2903044/
- [Measurement of Participation: Intersecting Person, Task, and Environment](https://healthmattersprogram.org/2010/01/01/measurement-of-participation-intersecting-person-task-and-environment/) - Measurement of Participation: Intersecting Person, Task, and Environment. Mallinson, T., & Hammel, J. (2010). Archives of Physical Medicine and Rehabilitation, 91,100-107.http://www.sciencedirect.com/science/article/pii/S0003999310002844
- [Major Health Risks in Aging Persons with Intellectual Disabilities: An Overview of Recent Studies](https://healthmattersprogram.org/2010/01/01/major-health-risks-in-aging-persons-with-intellectual-disabilities-an-overview-of-recent-studies/) - Major Health Risks in Aging Persons with Intellectual Disabilities: An Overview of Recent Studies (2010). Haveman, M., Heller, T., Lee, L., Maaskant, S.S. & Strydom, A. In Journal of Policy and Practice in Intellectual Disabilities: Special Issue on Aging, 59-69.
- [Health Trends From an International Sample of Older Adults with Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2010/01/01/health-trends-from-an-international-sample-of-older-adults-with-intellectual-and-developmental-disabilities/) - Health Trends From an International Sample of Older Adults with Intellectual and Developmental Disabilities (2010). Robinson, L. M., Davidson, P. W., Henderson, C. M., Janicki, M. P., Merrick, J., Morad, M., Wang, K. Y., Hsieh, K., Heller, T., Bishop, K. M. & Wexler, O. International Journal on Disability and Human Development, 9 (4), 329–338
- [Evaluation of Community-Based Health Promotion Programs for Special Olympics Athletes](https://healthmattersprogram.org/2010/01/01/evaluation-of-community-based-health-promotion-programs-for-special-olympics-athletes/) - Evaluation of Community-Based Health Promotion Programs for Special Olympics Athletes (2010). Marks, B., Sisirak, J., Heller, T., & Wagner, M. Journal of Policy and Practice in Intellectual Disabilities, 7(2), 119-129.
- [Health Matters for People with Developmental Disabilities: Creating a Sustainable Health Promotion Program](https://healthmattersprogram.org/2010/01/01/health-matters-for-people-with-developmental-disabilities-creating-a-sustainable-health-promotion-program/) - Health Matters for People with Developmental Disabilities: Creating a Sustainable Health Promotion Program (2010). Marks, B., Sisirak, J., & Heller, T. Baltimore: Paul H. Brookes Publishing Co.
- [Aging Families and the Demographics of Family Financial Support of Adults with Disabilities](https://healthmattersprogram.org/2010/01/01/aging-families-and-the-demographics-of-family-financial-support-of-adults-with-disabilities/) - Aging Families and the Demographics of Family Financial Support of Adults with Disabilities (2010).Fujiura, G.T. Journal of Disability Policy Studies, 20(4), 241-250.
- [Siblings of Adults with Developmental Disabilities: Psychosocial Outcomes, Relationships, and Future Planning](https://healthmattersprogram.org/2010/01/01/siblings-of-adults-with-developmental-disabilities-psychosocial-outcomes-relationships-and-future-planning/) - Siblings of Adults with Developmental Disabilities: Psychosocial Outcomes, Relationships, and Future Planning (2010). Heller,T., Keiling Arnold, C. Journal of Policy and Practice in Intellectual Disabilities, 7(1), 16-25.
- [Off to College: Tips for Students with Visual Impairments](https://healthmattersprogram.org/2009/06/02/off-to-college-tips-for-students-with-visual-impairments-2/) - Off to College: Tips for Students with Visual ImpairmentsBy Laura MagnusonCollege is full of new experiences. You will meet new people, learn new things, and perhaps be away from home for the first time. As a person who has a visual impairment, you may be wondering how you’re going to do it all. How will
- [A Rich Mosaic: Emerging research on Asian families of persons with intellectual and developmental disabilities](https://healthmattersprogram.org/2009/01/01/a-rich-mosaic-emerging-research-on-asian-families-of-persons-with-intellectual-and-developmental-disabilities/) - A Rich Mosaic: Emerging research on Asian families of persons with intellectual and developmental disabilities. Ghosh, S., & Magaña S. (2009). In L. Glidden & M. Seltzer (Eds). International Review of Research in Mental Retardation, 37, 179-212.http://www.sciencedirect.com/science/article/pii/S0074775009370068
- [Salud en Mujeres Con Discapacidad Intellectual](https://healthmattersprogram.org/2009/01/01/salud-en-mujeres-con-discapacidad-intellectual/) - Salud en Mujeres Con Discapacidad Intellectual (2009). Heller, T. In M. A. Verdugo Alonso, T. N. Sánchez, B. J. de Urries Vega, & M. Crespo Cuadrado (Eds.) Mejorando resultados personales para una vida de calidad: VII jornadas científicas de investigación sobre personas con discapacidad (pp 311-322). Salmanca: Amaru Ediciones E Inico.
- [Envejecimiento y Discapacidad Intellectual](https://healthmattersprogram.org/2009/01/01/envejecimiento-y-discapacidad-intellectual/) - Envejecimiento y discapacidad intellectual (2009). Heller, T. In M. A. Verdugo Alonso, T. N. Sánchez, B. J. de Urries Vega, & M. Crespo Cuadrado (Eds.) Mejorando resultados personales para una vida de calidad: VII jornadas científicas de investigación sobre personas con discapacidad (pp 57-68). Salmanca: Amaru Ediciones E Inico.
- [Family Support Interventions for Families of Adults with Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2009/01/01/family-support-interventions-for-families-of-adults-with-intellectual-and-developmental-disabilities/) - Family Support Interventions for Families of Adults with Intellectual and Developmental Disabilities (2009). Heller, T. & Schindler, A. In L.M. Glidden and M.M. Seltzer (Eds.), International review of research in mental retardation, Vol. 37, (pp. 299-333). Oxford, U.K.: Elsevier Ltd. Though families are considered the primary provider of support to people with intellectual and developmental
- [New Voices in Women's Health: Perceptions of Women with Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2009/01/01/new-voices-in-womens-health-perceptions-of-women-with-intellectual-and-developmental-disabilities/) - New Voices in Women's Health: Perceptions of Women with Intellectual and Developmental Disabilities (2009). Brown, A.A. & Gill, C.J. Intellectual and Developmental Disabilities, 47 (5), 337-347.
- [Health Status and Activities of Daily Living and Walking in Older People with Intellectual Disabilities](https://healthmattersprogram.org/2009/01/01/health-status-and-activities-of-daily-living-and-walking-in-older-people-with-intellectual-disabilities/) - Health Status and Activities of Daily Living and Walking in Older People with Intellectual Disabilities (2009). Henderson, M.C., Acquilano, J.P., Meccarello, J.C., Davidson, P.W., & Janicki, J. Journal of Policy and Practice in Intellectual Disabilities, 6 (4), 282-286.
- [Health Profile of Aging Family Caregivers Supporting Adults With Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2009/01/01/health-profile-of-aging-family-caregivers-supporting-adults-with-intellectual-and-developmental-disabilities/) - Health Profile of Aging Family Caregivers Supporting Adults With Intellectual and Developmental Disabilities (2009). Yamaki, K., Hsieh, K & Heller, T. Intellectual and Developmental Disabilities, 47(6), 425-435.
- [Residential Characteristics, Social Factors, and Mortality Among Adults With Intellectual Disabilities: Transitions Out of Nursing Homes](https://healthmattersprogram.org/2009/01/01/residential-characteristics-social-factors-and-mortality-among-adults-with-intellectual-disabilities-transitions-out-of-nursing-homes/) - Residential Characteristics, Social Factors, and Mortality Among Adults With Intellectual Disabilities: Transitions Out of Nursing Homes (2009). Hsieh, K., Heller, T. & Freels, S. Intellectual and Developmental Disabilities. 47(6). 447-465.
- [Consumer-Directed Goal Planning in the Delivery of Assistive Technology Services for People Who Are Aging with Intellectual Disabilities](https://healthmattersprogram.org/2009/01/01/consumer-directed-goal-planning-in-the-delivery-of-assistive-technology-services-for-people-who-are-aging-with-intellectual-disabilities/) - Consumer-Directed Goal Planning in the Delivery of Assistive Technology Services for People Who Are Aging with Intellectual Disabilities (2009). Mirza, M. & Hammel, J. Journal of Applied Research in Intellectual Disabilities. 22(1). 445-457.
- [Health Perceptions of Latinos with Intellectual Disabilities: The Results of a Pilot Study](https://healthmattersprogram.org/2008/10/01/health-perceptions-of-latinos-with-intellectual-disabilities-the-results-of-a-pilot-study/) - Health Perceptions of Latinos with Intellectual Disabilities: The Results of a Pilot Study (2008). Jurkowski, J., Rivera, Y. & Hammel, J. Health Promotion Practice.
- [What Does Participation Mean? An Insider Perspective From People With Disabilities](https://healthmattersprogram.org/2008/01/01/what-does-participation-mean-an-insider-perspective-from-people-with-disabilities/) - What Does Participation Mean? An Insider Perspective From People With Disabilities (2008). Hammel, J., Magasi, S., Heinemann, A., Whiteneck, G., Bogner, J. & Rodriguez, E. Disability and Rehabilitation, 30 (19) 1445-1460
- [Who Did What? A Participatory Action Research Project to Increase Group Capacity for Advocacy](https://healthmattersprogram.org/2008/01/01/who-did-what-a-participatory-action-research-project-to-increase-group-capacity-for-advocacy/) - Who Did What? A Participatory Action Research Project to Increase Group Capacity for Advocacy (2008). Garcia-Iriarte, E., Kramer, J.C., Kramer, J.M. & Hammel, J. Journal of Applied Research in Intellectual Disabilities, 22, 10-22.
- [Photovoice as Participatory Action Research Tool for Engaging People with Intellectual Disabilities in Research and Program Development](https://healthmattersprogram.org/2008/01/01/photovoice-as-participatory-action-research-tool-for-engaging-people-with-intellectual-disabilities-in-research-and-program-development/) - Photovoice as Participatory Action Research Tool for Engaging People with Intellectual Disabilities in Research and Program Development (2008). Jurkowski, J. Intellectual and Developmental Disabilities, 46 (1)1-11.
- [Report of the State of the Science in Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living Symposium](https://healthmattersprogram.org/2008/01/01/report-of-the-state-of-the-science-in-aging-with-developmental-disabilities-charting-lifespan-trajectories-and-supportive-environments-for-healthy-community-living-symposium/) - Report of the State of the Science in Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living Symposium (2008). Heller, T. Disability and Health Journal. 1, 127-130
- [Neurodevelopmental Conditions and Aging: Report on the Atlanta Study Group Charrette on Neurodevelopmental Conditions and Aging](https://healthmattersprogram.org/2008/01/01/neurodevelopmental-conditions-and-aging-report-on-the-atlanta-study-group-charrette-on-neurodevelopmental-conditions-and-aging/) - Neurodevelopmental Conditions and Aging: Report on the Atlanta Study Group Charrette on Neurodevelopmental Conditions and Aging (2008). Janicki, M., Henderson, M.C. & Rubin, L.I., Disability and Health Journal. 1, 116-124
- [Health Services, Health Promotion, and Health Literacy: Report of the State of the Science in Aging with Developmental Disabilities Conference](https://healthmattersprogram.org/2008/01/01/health-services-health-promotion-and-health-literacy-report-of-the-state-of-the-science-in-aging-with-developmental-disabilities-conference/) - Health Services, Health Promotion, and Health Literacy: Report of the State of the Science in Aging with Developmental Disabilities Conference (2008). Marks, B., Sisirak, J. & Hsieh, K. Disability and Health Journal. 1, 136-142.http://www.sciencedirect.com/science/article/pii/S1936657408000514
- [Environmental  Barriers and Supports to the Health, Function, and Participation of People with Developmental and Intellectual Disabilities: Report of the State of the Science in Aging with Developmental Disabilities Conference](https://healthmattersprogram.org/2008/01/01/environmental-barriers-and-supports-to-the-health-function-and-participation-of-people-with-developmental-and-intellectual-disabilities-report-of-the-state-of-the-science-in-aging-with-d/) - Environmental Barriers and Supports to the Health, Function, and Participation of People with Developmental and Intellectual Disabilities: Report of the State of the Science in Aging with Developmental Disabilities Conference (2008). Hammel, J., Jones, R., Smith, J., Sanford, J., Bodine, C. & Johnson, M. Disability and Health Journal. 1, 143-149.
- [Ascertaining Health-Related Information on Adults With Intellectual Disabilities Development and Field Testing of the Rochester Health Status Survey](https://healthmattersprogram.org/2008/01/01/ascertaining-health-related-information-on-adults-with-intellectual-disabilities-development-and-field-testing-of-the-rochester-health-status-survey/) - Ascertaining Health-Related Information on Adults With Intellectual Disabilities Development and Field Testing of the Rochester Health Status Survey (2008). Davidson, P., Henderson, M.C., Janicki, M., Robinson, L.M., Bishop, K. M., Wells, A., Garroway, J. & Wexler, O. Journal of Policy and Practice in Intellectual Disabilities. 5 (1), 12-23.
- [Overweight Status, Obesity, and Risk Factors for Coronary Heart Disease in Adults with Intellectual Disability](https://healthmattersprogram.org/2008/01/01/overweight-status-obesity-and-risk-factors-for-coronary-heart-disease-in-adults-with-intellectual-disability/) - Overweight Status, Obesity, and Risk Factors for Coronary Heart Disease in Adults with Intellectual Disability (2008). Henderson, C. M., Robinson, L. M., Davidson, P. W., Haveman, M., Janicki, M. P. & Albertini, G. Journal of Policy and Practice in Intellectual Disabilities, 5 (3), 174-177.
- [Health and Access to Health Care of Female Family Caregivers of Adults with Developmental Disabilities](https://healthmattersprogram.org/2008/01/01/health-and-access-to-health-care-of-female-family-caregivers-of-adults-with-developmental-disabilities/) - Health and Access to Health Care of Female Family Caregivers of Adults with Developmental Disabilities (2008). Caldwell, J. Journal of Disability Policy Studies.19(2). 68-79.
- [Health Behaviors, Service Utilization, and Access to Care Among Older Mothers of Color Who Have Children with Developmental Disabilities](https://healthmattersprogram.org/2008/01/01/health-behaviors-service-utilization-and-access-to-care-among-older-mothers-of-color-who-have-children-with-developmental-disabilities-2/) - Health Behaviors, Service Utilization, and Access to Care Among Older Mothers of Color Who Have Children with Developmental Disabilities (2008). Magaña, S., Smith, M.J. American Journal of Intellectual and Developmental Disabilities. 46(4). 267-280.http://aaiddjournals.org/doi/pdf/10.1352/1934-9556(2008)46%5B267%3AHBSUAA%5D2.0.CO%3B2
- [Family Support and Intergenerational Caregiving: Report of the State of the Science in Aging with Developmental Disabilities Conference](https://healthmattersprogram.org/2008/01/01/family-support-and-intergenerational-caregiving-report-of-the-state-of-the-science-in-aging-with-developmental-disabilities-conference/) - Family Support and Intergenerational Caregiving: Report of the State of the Science in Aging with Developmental Disabilities Conference (2008). Heller, T., Factor, A. Disability and Health Journal. 1, 131-135.
- [Adolescents and Adults With Autism With and Without Co-morbid Psychiatric Disorders: Differences in Maternal Well-Being](https://healthmattersprogram.org/2008/01/01/adolescents-and-adults-with-autism-with-and-without-co-morbid-psychiatric-disorders-differences-in-maternal-well-being/) - Adolescents and Adults With Autism With and Without Co-morbid Psychiatric Disorders: Differences in Maternal Well-Being (2008). Kring, S.R., Greenberg, J.S. and Seltzer, M.M. Journal of Mental Health Research in Intellectual Disabilities 1(2). 53-74
- [Photovoice With Vulnerable Populations: Addressing Disparities in Health Promotion Among People With Intellectual Disabilities Research and Program Development](https://healthmattersprogram.org/2007/01/01/photovoice-with-vulnerable-populations-addressing-disparities-in-health-promotion-among-people-with-intellectual-disabilities-research-and-program-development/) - Photovoice With Vulnerable Populations: Addressing Disparities in Health Promotion Among People With Intellectual Disabilities Research and Program Development (2007). Jurkowski, J., Paul, A. Health Promotion Practice, 8(4) 358-365.
- [International Perspectives](https://healthmattersprogram.org/2007/01/01/international-perspectives/) - International Perspectives (2007). Emerson, E., Fujiura, G.T. & Hatton, C. In The Handbook of Developmental Disabilities Odom, S. L., Horner, R.H., Snell, M. & J. Blacher (Eds.) pp. 593-613.A discussion of international policy and research in the field of developmental disabilities.ISBN: 978-1-60623-248-4COST: $51.00 (PAPERBACK); $72.25 (HARDCOVER)Order directly from Guilford Press:http://www.guilford.com or call (800) 365-7006.
- [Photovoice with Vulnerable Populations: Addressing Disparities in Health Promotion Among People With Intellectual Disabilities Research and Program Development](https://healthmattersprogram.org/2007/01/01/photovoice-with-vulnerable-populations-addressing-disparities-in-health-promotion-among-people-with-intellectual-disabilities-research-and-program-development-2/) - Photovoice with Vulnerable Populations: Addressing Disparities in Health Promotion Among People With Intellectual Disabilities Research and Program Development (2007). Jurkowski, J. & Paul, A. Health Promotion Practice, 8(4) 358-365.
- [Carer Reports of Health Status Among Adults with Intellectual/Developmental Disabilities in Taiwan Living at Home and Institutions](https://healthmattersprogram.org/2007/01/01/carer-reports-of-health-status-among-adults-with-intellectualdevelopmental-disabilities-in-taiwan-living-at-home-and-institutions/) - Carer Reports of Health Status Among Adults with Intellectual/Developmental Disabilities in Taiwan Living at Home and Institutions (2007). Wang, K. Y., Hsieh, K., Heller, T., Davidson, P. W. and Janicki, M. P. Journal of Intellectual Disability Research, 51(3), 173-183.
- [Longitudinal Outcomes of a Consumer-Directed Program Supporting Adults with Developmental Disabilities and Their Families](https://healthmattersprogram.org/2007/01/01/longitudinal-outcomes-of-a-consumer-directed-program-supporting-adults-with-developmental-disabilities-and-their-families/) - Longitudinal Outcomes of a Consumer-Directed Program Supporting Adults with Developmental Disabilities and Their Families (2007). Caldwell, J., Heller, T. American Journal of Intellectual and Developmental Disabilities. 45(3). 161-173
- [Experiences of Families With Relatives With Intellectual and Developmental Disabilities in a Consumer-Directed Support Program](https://healthmattersprogram.org/2007/01/01/experiences-of-families-with-relatives-with-intellectual-and-developmental-disabilities-in-a-consumer-directed-support-program/) - Experiences of Families With Relatives With Intellectual and Developmental Disabilities in a Consumer-Directed Support Program (2007). Caldwell, J. Disability & Society, 22 (6), 549-562.
- [Policies That Shape the Intellectual Disabilities Service System](https://healthmattersprogram.org/2007/01/01/policies-that-shape-the-intellectual-disabilities-service-system/) - Policies That Shape the Intellectual Disabilities Service System (2007). Fujiura, G. & Parish, S. Mental Retardation and Developmental Disabilities Research Reviews, 13, iii- iv.
- [Emerging Policy Challenges in Intellectual Disabilities](https://healthmattersprogram.org/2007/01/01/emerging-policy-challenges-in-intellectual-disabilities/) - Emerging Policy Challenges in Intellectual Disabilities (2007). Fujiura, G. & Parish, S. Mental Retardation and Developmental Disabilities Research Reviews, 13, 188-194.
- [Aging Family Caregivers: Policies and Practices](https://healthmattersprogram.org/2007/01/01/aging-family-caregivers-policies-and-practices/) - Aging Family Caregivers: Policies and Practices (2007). Heller, T., Caldwell, J. & Factor, A. Mental Retardation and Developmental Disabilities Research Reviews, 13, 136-142.
- [The Demography of Intellectual Disabilities: What the Beans Tell Us](https://healthmattersprogram.org/2007/01/01/the-demography-of-intellectual-disabilities-what-the-beans-tell-us/) - The Demography of Intellectual Disabilities: What the Beans Tell Us (2007). Fujiura, G.T. Insight, 1 (4), 12-20.
- [Hispanic caregivers of adults with mental retardation: The importance of family functioning](https://healthmattersprogram.org/2006/01/01/hispanic-caregivers-of-adults-with-mental-retardation-the-importance-of-family-functioning/) - Hispanic caregivers of adults with mental retardation: The importance of family functioning. Magaña, S., Schwartz, S., Rubert, M., & Szapocznik, J. (2006). American Journal on Mental Retardation, 111, 250-262.http://www.aaiddjournals.org/doi/pdf/10.1352/0895-8017%282006%29111%5B250%3AHCOAWM%5D2.0.CO%3B2
- [Psychological distress and well-being of Latina and non-Latina white mothers of youth and adults with an autism spectrum disorder: Cultural attitudes towards co-residence status](https://healthmattersprogram.org/2006/01/01/psychological-distress-and-well-being-of-latina-and-non-latina-white-mothers-of-youth-and-adults-with-an-autism-spectrum-disorder-cultural-attitudes-towards-co-residence-status/) - Psychological distress and well-being of Latina and non-Latina white mothers of youth and adults with an autism spectrum disorder: Cultural attitudes towards co-residence status. Magaña, S., & Smith, M.J. (2006). American Journal of Orthopsychiatry, 76(3), 346-357.http://onlinelibrary.wiley.com/doi/10.1037/0002-9432.76.3.346/abstract
- [Aging and Disability](https://healthmattersprogram.org/2006/01/01/aging-and-disability/) - Aging and Disability (2006). Heller, T. & Marks, B. In G. Albrecht (Ed.), Encyclopedia on Disability, Volume 1, (pp. 67-78). Thousand Oaks, CA: Sage.ISBN: 9780761925651 COST: $945.00Order directly from SAGE Publicationshttp://www.sagepub.com/booksOr Call: 1-800-818-7243
- [Examining Barriers and Supports to Community Living and Participation After a Stroke from a Participatory Action Research Approach](https://healthmattersprogram.org/2006/01/01/examining-barriers-and-supports-to-community-living-and-participation-after-a-stroke-from-a-participatory-action-research-approach/) - Examining Barriers and Supports to Community Living and Participation After a Stroke from a Participatory Action Research Approach (2006) Hammel, J., Jones, R., Gossett, A. & Morgan, E. Topics in Stroke Rehabilitation. 13(3), 43-58.
- [Evaluating an Interpersonal Model of Depression Among Adults with Down Syndrome](https://healthmattersprogram.org/2006/01/01/evaluating-an-interpersonal-model-of-depression-among-adults-with-down-syndrome/) - Evaluating an Interpersonal Model of Depression Among Adults with Down Syndrome (2006) Ailey. S.H., A.M., Heller, T. & Smith, E.V. Research and Theory for Nursing Practice. 20, 229-246.
- [Mother-Child Relationship Quality Among Adolescents and Adults with Autism](https://healthmattersprogram.org/2006/01/01/mother-child-relationship-quality-among-adolescents-and-adults-with-autism/) - Mother-Child Relationship Quality Among Adolescents and Adults with Autism (2006). Orsmond, G.I., Greenberg, J.S., Seltzer, M.M., & Krauss, M.W. American Journal on Mental Retardation, 111(2), 121-137.
- [Bidirectional Effects of Expressed Emotion and Behavior Problems and Symptoms in Adolescents and Adults With Autism](https://healthmattersprogram.org/2006/01/01/bidirectional-effects-of-expressed-emotion-and-behavior-problems-and-symptoms-in-adolescents-and-adults-with-autism/) - Bidirectional Effects of Expressed Emotion and Behavior Problems and Symptoms in Adolescents and Adults With Autism (2006). Greenberg, J.S., Seltzer, M.M., & Hong, J. American Journal on Mental Retardation, 111(4), 229-249.
- [Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning](https://healthmattersprogram.org/2006/01/01/supporting-aging-caregivers-and-adults-with-developmental-disabilities-in-future-planning-2/) - Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning (2006). Heller, T., Caldwell, J. Mental Retardation. 44(3). 189-202.
- [Consumer-Directed Supports: Economic, Health, and Social Outcomes for Families](https://healthmattersprogram.org/2006/01/01/consumer-directed-supports-economic-health-and-social-outcomes-for-families/) - Consumer-Directed Supports: Economic, Health, and Social Outcomes for Families (2006) Caldwell, J. Mental Retardation. 44(6). 405-417.
- [Depressive Symptoms in Adults with Mild to Moderate Intellectual Disability and Their Relation to Maternal Well Being](https://healthmattersprogram.org/2006/01/01/depressive-symptoms-in-adults-with-mild-to-moderate-intellectual-disability-and-their-relation-to-maternal-well-being/) - Depressive Symptoms in Adults with Mild to Moderate Intellectual Disability and Their Relation to Maternal Well Being (2006). Esbensen, J., Anna, Seltzer-Mailick, Marsha, Greenberg, J. Journal of Policy and Practice in Intellectual Disabilities 3(4). 229.
- [Lessons Drawn From the Critique of the Hissom Closure Evaluation](https://healthmattersprogram.org/2006/01/01/lessons-drawn-from-the-critique-of-the-hissom-closure-evaluation/) - Lessons Drawn From the Critique of the Hissom Closure Evaluation (2006). Fujiura, G.T. Mental Retardation, 44, 372-375
- [Healthy Aging and Community Participation: National Goals, Current Knowledge, and Future Research](https://healthmattersprogram.org/2005/01/01/healthy-aging-and-community-participation-national-goals-current-knowledge-and-future-research/) - Healthy Aging and Community Participation: National Goals, Current Knowledge, and Future Research (2005). Heller, T., Janicki, M. & Hawkins, B. In K. C. Lakin, & A. Turnbull (Eds.), National Goals and Research for Persons With Intellectual and Developmental Disabilities (pp 311-322). Washington, DC: American Association on Mental Retardation.
- [Group Home Care for Adults with Intellectual Disabilities and Alzheimer’s Disease](https://healthmattersprogram.org/2005/01/01/group-home-care-for-adults-with-intellectual-disabilities-and-alzheimers-disease-2/) - Group Home Care for Adults with Intellectual Disabilities and Alzheimer’s Disease (2005). Janicki, M. P., Dalton, A. J., McCallion, P., Baxley, D. D. & Zendell, A. Dementia, 4(3), 361-385.
- [Psychometric Evaluation of a Self-Reported Measure of Depression for Individuals with Mental Retardation](https://healthmattersprogram.org/2005/01/01/psychometric-evaluation-of-a-self-reported-measure-of-depression-for-individuals-with-mental-retardation/) - Psychometric Evaluation of a Self-Reported Measure of Depression for Individuals with Mental Retardation (2005). Esbensen, A. J., Seltzer, M. M., Greenberg, J. S. & Benson, B. A. American Journal of Mental Retardation, 110, 469-481.
- [Promoting Physical Activity Among Older People](https://healthmattersprogram.org/2005/01/01/promoting-physical-activity-among-older-people/) - Promoting Physical Activity Among Older People (2005). Hughes, S.L., Prohaska, T.R., Rimmer, J.H. & Heller, T. Generations, 29(2), 54-59.
- [Body Weight Status Among Adults with Intellectual Disability in the Community](https://healthmattersprogram.org/2005/01/01/body-weight-status-among-adults-with-intellectual-disability-in-the-community/) - Body Weight Status Among Adults with Intellectual Disability in the Community (2005). Yamaki, K. Mental Retardation, 43(1), 1-10.
- [Adults With Autism Living at Home or in Non-Family Settings: Positive and Negative Aspects of Residential Status](https://healthmattersprogram.org/2005/01/01/adults-with-autism-living-at-home-or-in-non-family-settings-positive-and-negative-aspects-of-residential-status/) - Adults With Autism Living at Home or in Non-Family Settings: Positive and Negative Aspects of Residential Status (2005). Krauss, M.W., Seltzer, M.M.& Jacobson, H.T. Journal of Intellectual Disability Research. 49(2).111-124.
- [Brief Research Report: Impact of a Consumer-Directed Family Support Program on Reduced Out-of-Home Institutional Placement](https://healthmattersprogram.org/2005/01/01/brief-research-report-impact-of-a-consumer-directed-family-support-program-on-reduced-out-of-home-institutional-placement/) - Brief Research Report: Impact of a Consumer-Directed Family Support Program on Reduced Out-of-Home Institutional Placement (2005). Heller, T. & Caldwell, J. Journal of Policy and Practice in Intellectual Disabilities, 2(1), 63-65.
- [Life Course Impacts of Mild Intellectual Deficits](https://healthmattersprogram.org/2005/01/01/life-course-impacts-of-mild-intellectual-deficits/) - Life Course Impacts of Mild Intellectual Deficits (2005). Seltzer, M.M., Floyd, F., Greenberg, J.S., et al. American Journal on Mental Retardation, 110(6), 451-468.
- [Health Promotion Pilot Programs Evaluation: Improving Athletes' Health](https://healthmattersprogram.org/2005/01/01/health-promotion-pilot-programs-evaluation-improving-athletes-health/) - Health Promotion Pilot Programs Evaluation: Improving Athletes' Health (2005). Prepared by the RRTC on Aging with Developmental Disabilities & Special Olympics.This report describes the outcomes of a health promotion program for Special Olympics (SO) athletes at 6 sites. The evaluation focused on health status and health behaviors among SO athletes, program satisfaction among coaches and
- [Determinants of State Utilization of Public Institutions for Persons with Intellectual Disabilities in the United States](https://healthmattersprogram.org/2005/01/01/determinants-of-state-utilization-of-public-institutions-for-persons-with-intellectual-disabilities-in-the-united-states/) - Determinants of State Utilization of Public Institutions for Persons with Intellectual Disabilities in the United States (2005). Rizzolo, M.C., Heller, T. & Braddock, D. Journal of Policy and Practice in Intellectual Disabilities, 2(1), 60-62.
- [American Journal on Mental Retardation: Special Issue on Family and Service System Supports](https://healthmattersprogram.org/2004/09/01/american-journal-on-mental-retardation-special-issue-on-family-and-service-system-supports/) - American Journal on Mental Retardation: Special Issue on Family and Service System Supports (September 2004). Heller, T. (Ed.). Volume 109, Issue 5. Guest Editor: Tamar Heller, Ph.D., Director of the RRTC on Aging and Developmental Disabilities. This issue of the American Journal on Mental Retardation addresses the effects of aging on families caring for persons
- [Nutritional Status and Risk Factors for Chronic Disease in Urban-Dwelling Adults With Down Syndrome](https://healthmattersprogram.org/2004/03/01/nutritional-status-and-risk-factors-for-chronic-disease-in-urban-dwelling-adults-with-down-syndrome/) - Nutritional Status and Risk Factors for Chronic Disease in Urban-Dwelling Adults With Down Syndrome (2004). Braunschweig, C.L., Gomez, S., Sheean, P., Tomey, K.M., Rimmer, J.H., Heller, T. In American Journal on Mental Retardation (March 2004), Special Issue on Aging, 109(2). Guest Editor: Marsha M. Seltzer, Ph.D. RRTCADD Principal Investigator, pp.186-193.
- [Attitudinal and Psychosocial Outcomes of a Fitness and Health Education Program on Adults With Down Syndrome](https://healthmattersprogram.org/2004/03/01/attitudinal-and-psychosocial-outcomes-of-a-fitness-and-health-education-program-on-adults-with-down-syndrome/) - Attitudinal and Psychosocial Outcomes of a Fitness and Health Education Program on Adults With Down Syndrome (2004). Heller, T., Hsieh, K., Rimmer, J.H. In American Journal on Mental Retardation (March 2004), Special Issue on Aging, 109(2). Guest Editor: Marsha M. Seltzer, Ph.D. RRTCADD Principal Investigator, pp.175-185
- [Improvements in Physical Fitness in Adults with Down Syndrome](https://healthmattersprogram.org/2004/03/01/improvements-in-physical-fitness-in-adults-with-down-syndrome/) - Improvements in Physical Fitness in Adults with Down Syndrome (2004). Rimmer, J.H., Heller, T., Wang, E., Valerio, I. In American Journal on Mental Retardation (March 2004), Special Issue on Aging, 109(2). Guest Editor: Marsha M. Seltzer, Ph.D. RRTCADD Principal Investigator, pp.165-174
- [American Journal on Mental Retardation](https://healthmattersprogram.org/2004/03/01/american-journal-on-mental-retardation/) - American Journal on Mental Retardation (March 2004), Special Issue on Aging, 109(2). Guest Editor: Marsha M. Seltzer, Ph.D. RRTCADD Principal Investigator
- [Defining a National Health Research Agenda for Older Adults With Intellectual Disabilities](https://healthmattersprogram.org/2004/03/01/defining-a-national-health-research-agenda-for-older-adults-with-intellectual-disabilities-2/) - Defining a National Health Research Agenda for Older Adults With Intellectual Disabilities (2004). Davidson, P.W., Heller, T. & Hyer, K. In Journal of Policy and Practice in Intellectual Disabilities (March 2004). Janicki, M. (Ed.). 1(1). pp. 2-9.
- [Journal of Policy and Practice in Intellectual Disabilities](https://healthmattersprogram.org/2004/03/01/journal-of-policy-and-practice-in-intellectual-disabilities/) - Journal of Policy and Practice in Intellectual Disabilities (March 2004). Janicki, M. (Ed.). 1(1). Matthew Janicki, Ph.D., Editor-in-chief: Associate Director for Technical Assistance of the RRTC on Aging and Developmental DisabilitiesThe Journal features content related to policy development, service design, working methods and treatment procedures, financial, administrative and legal frameworks. To subscribe, contact Wiley at
- [Defining a national health research agenda for older adults with intellectual disabilities](https://healthmattersprogram.org/2004/01/01/defining-a-national-health-research-agenda-for-older-adults-with-intellectual-disabilities/) - Defining a national health research agenda for older adults with intellectual disabilities (2004). Davidson, Philip W., Heller, Tamar, Hyer, Kathryn. pp. 2-9.
- [African American families who care for adults with developmental disabilities or mental illness: A call for research](https://healthmattersprogram.org/2004/01/01/african-american-families-who-care-for-adults-with-developmental-disabilities-or-mental-illness-a-call-for-research/) - African American families who care for adults with developmental disabilities or mental illness: A call for research. Magaña, S. (2004). African American Perspectives, 10, 129-139.http://www.rcgd.isr.umich.edu/prba/perspectives/springsummer2004/magnana.pdf
- [Aging With Developmental Disabilities:  Emerging Models for Promoting Health, Independence, and Quality of Life](https://healthmattersprogram.org/2004/01/01/aging-with-developmental-disabilities-emerging-models-for-promoting-health-independence-and-quality-of-life/) - Aging With Developmental Disabilities: Emerging Models for Promoting Health, Independence, and Quality of Life (2004). Heller, T. In B. Kemp and L. Mosqueda (Eds.). Aging With a Disability: What the Clinician Needs to Know (pp. 213-233). Baltimore: Johns Hopkins University Press.ISBN: 0780801878176COST: $28.00Order directly from http://www.press.jhu.edu
- [Public Spending for Developmental Disabilities in the United States: An Historical-Comparative Perspective](https://healthmattersprogram.org/2004/01/01/public-spending-for-developmental-disabilities-in-the-united-states-an-historical-comparative-perspective/) - Public Spending for Developmental Disabilities in the United States: An Historical-Comparative Perspective (2004). Braddock, D., Rizzolo, M.C., Hemp, R. & Parish, S. In R.J. Stancliffe and K.C. Lakin (Eds.) Cost and Outcomes of Community Services for People With Intellectual Disabilities. Baltimore: Brookes Publishing Company.This book provides a comprehensive analysis of the cost of community services
- [Genetically-Linked Syndromes in Intellectual Disabilities](https://healthmattersprogram.org/2004/01/01/genetically-linked-syndromes-in-intellectual-disabilities/) - Genetically-Linked Syndromes in Intellectual Disabilities (2004). Henderson, C.M. Journal of Policy and Practice in Intellectual Disabilities, Volume 1, Issue 1, pp.31-41.
- [Controlled Evaluation of Support Groups for Grandparent Caregivers of Children with Developmental Disabilities and Delays](https://healthmattersprogram.org/2004/01/01/controlled-evaluation-of-support-groups-for-grandparent-caregivers-of-children-with-developmental-disabilities-and-delays/) - Controlled Evaluation of Support Groups for Grandparent Caregivers of Children with Developmental Disabilities and Delays (2004). McCallion, P., Janicki, P.M., & Kolomer, S.R. American Journal on Mental Retardation, 109(5), 352-361.
- [Cultural Context of Caregiving: Differences in Depression Between Puerto Rican and Non-Latina White Mothers of Adults With Mental Retardation](https://healthmattersprogram.org/2004/01/01/cultural-context-of-caregiving-differences-in-depression-between-puerto-rican-and-non-latina-white-mothers-of-adults-with-mental-retardation/) - Cultural Context of Caregiving: Differences in Depression Between Puerto Rican and Non-Latina White Mothers of Adults With Mental Retardation (2004). Krauss, M.K., Magana, S., & Seltzer, M.M. Mental Retardation, 42(1), 1-11.http://www.aaiddjournals.org/doi/abs/10.1352/0047-6765(2004)42%3C1:CCOCDI%3E2.0.CO;2
- [Older Adults With Intellectual Disability in Residential Care Centers in Israel: Health Status and Service Utilization](https://healthmattersprogram.org/2004/01/01/older-adults-with-intellectual-disability-in-residential-care-centers-in-israel-health-status-and-service-utilization/) - Older Adults With Intellectual Disability in Residential Care Centers in Israel: Health Status and Service Utilization (2004). Merrick, J., Davidson, P.W., Morad, M., Janicki, M.P., Wexler, O. & Henderson, C.M. In American Journal on Mental Retardation, 109(5) pp. 413-420.
- [Continuum of intellectual disability: Demographic evidence for the "forgotten generation"](https://healthmattersprogram.org/2003/01/01/continuum-of-intellectual-disability-demographic-evidence-for-the-forgotten-generation/) - Continuum of intellectual disability: Demographic evidence for the "forgotten generation" (2003). Fujiura, G.T. Mental Retardation, 41 (6), 420-429.
- [Deinstitutionalization movement across states](https://healthmattersprogram.org/2003/01/01/deinstitutionalization-movement-across-states/) - Deinstitutionalization movement across states (I & II) (2003). Vol. 67, 150-154 & 233-236.
- [Research in developmental disabilities services in the United States](https://healthmattersprogram.org/2003/01/01/research-in-developmental-disabilities-services-in-the-united-states/) - Research in developmental disabilities services in the United States (I & II) (2003). Vol. 67 310-313 & 390-393.
- [Policy implications for services to older persons with dementia in Japan](https://healthmattersprogram.org/2003/01/01/policy-implications-for-services-to-older-persons-with-dementia-in-japan/) - Policy implications for services to older persons with dementia in Japan (I & II) (2003). Vol. 67. Takeda, N., Yamaki, K., Janicki, M.P., Heller, T., Suemitsu, S., & Egusa, Y. 465-469 & 556-559. Available in Japanese from the Japanese Journal of Public Health, (2003).
- [Adaptive Behavior and Cognitive Function of Adults With Down Syndrome: Modeling Change With Age](https://healthmattersprogram.org/2003/01/01/adaptive-behavior-and-cognitive-function-of-adults-with-down-syndrome-modeling-change-with-age/) - Adaptive Behavior and Cognitive Function of Adults With Down Syndrome: Modeling Change With Age (2003). Hawkins, B.A., Eklund, S.J., James, D.R. & Foose, A.K. Mental Retardation, 41(1), 7-28.
- [Bridging the equity gap: Health promotion for adults with intellectual and developmental disabilities](https://healthmattersprogram.org/2003/01/01/bridging-the-equity-gap-health-promotion-for-adults-with-intellectual-and-developmental-disabilities/) - Bridging the equity gap: Health promotion for adults with intellectual and developmental disabilities (2003). Marks, B.A., & Heller, T. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 205-228.http://www.sciencedirect.com/science/article/pii/S002964650200049X
- [Beyond the disability: Recognizing mental health issues among persons with intellectual and developmental disabilities](https://healthmattersprogram.org/2003/01/01/beyond-the-disability-recognizing-mental-health-issues-among-persons-with-intellectual-and-developmental-disabilities/) - Beyond the disability: Recognizing mental health issues among persons with intellectual and developmental disabilities (2003). Ailey, S.H. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 313-329.
- [Nursing clinics of North America: Intellectual and developmental disabilities](https://healthmattersprogram.org/2003/01/01/nursing-clinics-of-north-america-intellectual-and-developmental-disabilities/) - Nursing clinics of North America: Intellectual and developmental disabilities (2003). Volume 38, No. 2. Hahn, Joan Earle & Marks, Beth A.This quarterly journal issue reviews new diagnostic and nursing management techniques for individuals with intellectual and related developmental disabilities. Articles address a variety of adult/later life concerns including health promotion, sexuality, the nurse's role in
- [Mental health, intellectual disabilities and the aging process](https://healthmattersprogram.org/2003/01/01/mental-health-intellectual-disabilities-and-the-aging-process/) - Mental health, intellectual disabilities and the aging process (2003). Davidson, P.W., Prasher, V.P., & Janicki, M, P.Evidence suggests that mental health disorders may occur in up to half of all people with intellectual disability and that these disorders accelerate significantly with age. This book discusses the mental health and behavior needs of adults with intellectual
- [Management of respite and personal assistance services in a consumer-directed family support programme](https://healthmattersprogram.org/2003/01/01/management-of-respite-and-personal-assistance-services-in-a-consumer-directed-family-support-programme/) - Management of respite and personal assistance services in a consumer-directed family support programme (2003). Caldwell, J., & Heller, T. Journal of Intellectual Disability Research, 47(4/5), 352-366.
- [Technology and the Environment: Supportive Resource or Barrier for People with Developmental Disabilities?](https://healthmattersprogram.org/2003/01/01/technology-and-the-environment-supportive-resource-or-barrier-for-people-with-developmental-disabilities/) - Technology and the Environment: Supportive Resource or Barrier for People with Developmental Disabilities? (2003). Hammel, J. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 331-349.
- [Promoting Health across the Lifespan for Persons with Developmental Disabilities](https://healthmattersprogram.org/2003/01/01/promoting-health-across-the-lifespan-for-persons-with-developmental-disabilities/) - Promoting Health across the Lifespan for Persons with Developmental Disabilities. Hahn, J.E. & Marks, B. (Eds). (2003). Special Issue for Nursing Clinics of North America, 38(2).
- [Promoting Sexuality Across the Life Span for Individuals with Intellectual and Developmental Disabilities](https://healthmattersprogram.org/2003/01/01/promoting-sexuality-across-the-life-span-for-individuals-with-intellectual-and-developmental-disabilities/) - Promoting Sexuality Across the Life Span for Individuals with Intellectual and Developmental Disabilities (2003). Ailey, S.A., Marks, B.A., Crisp, C. & Hahn, J.E. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 229-252
- [Employment and income status of adults with developmental disabilities living in the community](https://healthmattersprogram.org/2002/01/01/employment-and-income-status-of-adults-with-developmental-disabilities-living-in-the-community/) - Employment and income status of adults with developmental disabilities living in the community (2002). Yamaki, K., & Fujiura, G. Mental Retardation , 40(2), 132-141.
- [Health Promotion for Individuals with Disabilities: The Need for a Transitional Model in Service Delivery](https://healthmattersprogram.org/2002/01/01/health-promotion-for-individuals-with-disabilities-the-need-for-a-transitional-model-in-service-delivery/) - Health Promotion for Individuals with Disabilities: The Need for a Transitional Model in Service Delivery (2002). Rimmer, J.H. Disability Management Health Outcomes, 10(6), 337-343.
- [Residential settings and outcomes for individuals with intellectual disabilities](https://healthmattersprogram.org/2002/01/01/residential-settings-and-outcomes-for-individuals-with-intellectual-disabilities/) - Residential settings and outcomes for individuals with intellectual disabilities (2002). Heller, T. Current Opinion in Psychiatry, 15, 503-508.
- [An eight-year follow-up of the impact of environmental characteristics on well-being of adults with developmental disabilities](https://healthmattersprogram.org/2002/01/01/an-eight-year-follow-up-of-the-impact-of-environmental-characteristics-on-well-being-of-adults-with-developmental-disabilities/) - An eight-year follow-up of the impact of environmental characteristics on well-being of adults with developmental disabilities (2002). Heller, T., Miller, A. B., Heish , K. Mental Retardation, 40, 366-378.
- [A Junction: Developmental Disabilities Services in the United States and Services to Older Persons With Dementia in Japan](https://healthmattersprogram.org/2002/01/01/a-junction-developmental-disabilities-services-in-the-united-states-and-services-to-older-persons-with-dementia-in-japan/) - A Junction: Developmental Disabilities Services in the United States and Services to Older Persons With Dementia in Japan (I & II) (2002). Vol. 66, 772-776 & 869-872.
- [Historical overview of developmental disabilities services in the United States](https://healthmattersprogram.org/2002/01/01/historical-overview-of-developmental-disabilities-services-in-the-united-states/) - Historical overview of developmental disabilities services in the United States (I & II) (2002). Vol. 66, 931-933 & Vol. 67, 68-72.
- [Promoting healthy aging, family support, and age-friendly communities for persons with developmental disabilities: Report of the 2001 Invitational Research Symposium on Aging with Developmental Disabilities](https://healthmattersprogram.org/2002/01/01/promoting-healthy-aging-family-support-and-age-friendly-communities-for-persons-with-developmental-disabilities-report-of-the-2001-invitational-research-symposium-on-aging-with-developmen/) - Promoting healthy aging, family support, and age-friendly communities for persons with developmental disabilities: Report of the 2001 Invitational Research Symposium on Aging with Developmental Disabilities (2002). Heller, T., Janicki, M, P., Hammel, J., & Factor, A.R.This report summarizes the research to date and presents recommendations for future research, progressive policies, and innovative intervention to promote
- [Determinants of exercise in adults with cerebral palsy](https://healthmattersprogram.org/2002/01/01/determinants-of-exercise-in-adults-with-cerebral-palsy/) - Determinants of exercise in adults with cerebral palsy (2002). Heller, T., Ying, G., Rimmer, J.H., & Marks, B.A. Public Health Nursing, 19(3), 223-231.
- [Differences in cardiovascular disease risk between non-diabetic adults with mental retardation with and without Down syndrome](https://healthmattersprogram.org/2002/01/01/differences-in-cardiovascular-disease-risk-between-non-diabetic-adults-with-mental-retardation-with-and-without-down-syndrome/) - Differences in cardiovascular disease risk between non-diabetic adults with mental retardation with and without Down syndrome (2002). Draheim, C., McCubbin, J.A., & Williams, D.P. American Journal on Mental Retardation, 107(3), 201-211.
- [Women with developmental disabilities: Health and aging](https://healthmattersprogram.org/2002/01/01/women-with-developmental-disabilities-health-and-aging/) - Women with developmental disabilities: Health and aging (2002). Brown, A.A., & Gill, C.J. Current Women's Health Reports, 2, 219-225.
- [Physical activity, dietary intake, and the insulin resistance syndrome in non-diabetic adults with mental retardation](https://healthmattersprogram.org/2002/01/01/physical-activity-dietary-intake-and-the-insulin-resistance-syndrome-in-non-diabetic-adults-with-mental-retardation/) - Physical activity, dietary intake, and the insulin resistance syndrome in non-diabetic adults with mental retardation (2002). Draheim, C.C., Williams, D.P., & McCubbin, J.A. American Journal on Mental Retardation, 107(5), 361-375.
- [Health characteristics and health services utilization in older adults with intellectual disability living in community residences](https://healthmattersprogram.org/2002/01/01/health-characteristics-and-health-services-utilization-in-older-adults-with-intellectual-disability-living-in-community-residences/) - Health characteristics and health services utilization in older adults with intellectual disability living in community residences (2002). Janicki, M.P., Davidson, P.W., Henderson, C.M., McCallion, P., Taets, J.D., Force, L.T., Sulkes, S.B., Frangenberg, E., & Ladrigan, P.M. Journal of Intellectual Disability Research, 46(4), 287-298.
- [Evaluation of two self-report depression measures for adults with down syndrome](https://healthmattersprogram.org/2002/01/01/evaluation-of-two-self-report-depression-measures-for-adults-with-down-syndrome/) - Evaluation of two self-report depression measures for adults with down syndrome (2002). Ailey, S.H., Marks, B., & Heller, T. The NADD BULLETIN, 5(4), 71-75.
- [Dementia-related care decision-making in group homes for persons with intellectual disabilities](https://healthmattersprogram.org/2002/01/01/dementia-related-care-decision-making-in-group-homes-for-persons-with-intellectual-disabilities/) - Dementia-related care decision-making in group homes for persons with intellectual disabilities (2002). Janicki, M.P., McCallion, P., & Dalton, A.J. Journal of Gerontological Social Work, 38(1/2), 179-195.
- [Barriers and supports for exercise participation among adults with down syndrome](https://healthmattersprogram.org/2002/01/01/barriers-and-supports-for-exercise-participation-among-adults-with-down-syndrome/) - Barriers and supports for exercise participation among adults with down syndrome (2002). Heller, T., Hsieh, K., & Rimmer, J. Journal of Gerontological Social Work, 38(1/2), 161-178.
- [Health, Age, and Gender: How do women with intellectual disabilities fare?](https://healthmattersprogram.org/2002/01/01/health-age-and-gender-how-do-women-with-intellectual-disabilities-fare/) - Health, Age, and Gender: How do women with intellectual disabilities fare? (2002). Anderson, D.J. Journal of Gerontological Social Work, 38(1/2), 137-160.
- [Edinburgh principles with accompanying guidelines and recommendations](https://healthmattersprogram.org/2002/01/01/edinburgh-principles-with-accompanying-guidelines-and-recommendations/) - Edinburgh principles with accompanying guidelines and recommendations (2002). Wilkinson, H., & Janicki, M.P. Journal of Intellectual Disability Research, 46(3), 279-284.
- [Health of women with intellectual disabilities](https://healthmattersprogram.org/2002/01/01/health-of-women-with-intellectual-disabilities/) - Health of women with intellectual disabilities (2002). Walsh, P.N. & Heller, T.This book presents the latest research on age-related health issues for women with intellectual disabilities. Chapters written by leading international researchers and practitioners address a variety of concerns including later life health risks, reproduction and sexuality, mental health, and health promotion. Complementary chapters discuss
- [Physical health of adults with intellectual disabilities](https://healthmattersprogram.org/2002/01/01/physical-health-of-adults-with-intellectual-disabilities/) - Physical health of adults with intellectual disabilities (2002). Prasher, V.P. & Janicki, M.P.This book presents the latest research on health issues and health promotion and their implications for adults with intellectual disabilities who are aging. It is an excellent primer on health issues and treatment considerations for practice, research and teaching.ISBN: 1-405-10219-5 COST PER UNIT: $47.95Order
- [Well-being and family role strain among Cuban American and Puerto Rican mothers of adults with mental retardation](https://healthmattersprogram.org/2002/01/01/well-being-and-family-role-strain-among-cuban-american-and-puerto-rican-mothers-of-adults-with-mental-retardation/) - Well-being and family role strain among Cuban American and Puerto Rican mothers of adults with mental retardation. Magaña, S., Seltzer, M., Krauss, M., Rubert, M., & Szapocznik, J. (2002). Journal of Human Behavior in the Social Environment, 5, 31-55.http://www.tandfonline.com/doi/abs/10.1300/J137v05n03_03#preview
- [African-American grandmother carers of children with disabilities: Predictors of depressive symptoms](https://healthmattersprogram.org/2002/01/01/african-american-grandmother-carers-of-children-with-disabilities-predictors-of-depressive-symptoms/) - African-American grandmother carers of children with disabilities: Predictors of depressive symptoms (2002). Kolomer, S.R., McCallion, P., and Janicki, M.P. Journal of Intellectual Disability Research, 37(3-4), 45-64.
- [Service utilization patterns of adults with intellectual disabilities: A Comparison of Puerto Rican and Non-Latino White Families](https://healthmattersprogram.org/2002/01/01/service-utilization-patterns-of-adults-with-intellectual-disabilities-a-comparison-of-puerto-rican-and-non-latino-white-families/) - Service utilization patterns of adults with intellectual disabilities: A Comparison of Puerto Rican and Non-Latino White Families (2002). Magana, S., Seltzer, M.M., and Krauss, M.W. Journal of Gerontological Social Work , 37(3-4), 65-86.http://www.waisman.wisc.edu/family/pubs/CulturalPubs/2002_service%20utiliz.pdf
- [Impact of Assistive Technology and Environmental Interventions on Function and Living Situation Status With People Who Are Aging With Developmental Disabilities](https://healthmattersprogram.org/2002/01/01/impact-of-assistive-technology-and-environmental-interventions-on-function-and-living-situation-status-with-people-who-are-aging-with-developmental-disabilities/) - Impact of Assistive Technology and Environmental Interventions on Function and Living Situation Status With People Who Are Aging With Developmental Disabilities (2002). Hammel, J., Lai, J, & Heller, T. Disability and Rehabilitation, 24(1-3), 93-105.
- [Reasons For Device Use Among Caregivers of the Frail Elderly](https://healthmattersprogram.org/2002/01/01/reasons-for-device-use-among-caregivers-of-the-frail-elderly/) - Reasons For Device Use Among Caregivers of the Frail Elderly (2002). Kane, C., Mann, W.C., Tomita, M. & Nochajski, S.M. Physical and Occupational Therapy in Geriatrics, 20(1).
- [Educating Scholars of Practice: An Approach to Preparing Tomorrow's Researchers](https://healthmattersprogram.org/2002/01/01/educating-scholars-of-practice-an-approach-to-preparing-tomorrows-researchers/) - Educating Scholars of Practice: An Approach to Preparing Tomorrow's Researchers (2002). Hammel, J., Finlayson, M., Kielhofner, G., Helfrich, C. & Peterson, E. Occupational Therapy & Health Care.
- [Leadership by People with Disabilities in Self-Determination Systems Change](https://healthmattersprogram.org/2002/01/01/leadership-by-people-with-disabilities-in-self-determination-systems-change/) - Leadership by People with Disabilities in Self-Determination Systems Change (2002). Powers, L.E., Ward, N., Ferris, L., Nelis, T., Ward, M., Wieck, C. & Heller, T. Journal of Disability Policy Studies, 13(2), 125-133.
- [Using Assistive Technology to Maximize Function in Older Adults with Developmental Disabilities](https://healthmattersprogram.org/2002/01/01/using-assistive-technology-to-maximize-function-in-older-adults-with-developmental-disabilities/) - Using Assistive Technology to Maximize Function in Older Adults with Developmental Disabilities (2002), Alvarez, T., Desi-Thalji, M., Wang, J., Budraja, S., Sundar, V. & Malik, C.This training curriculum provides information and resources on how assistive technologies (AT) and environmental interventions (EI) can address age related changes in function for older adults with I/DD in every
- [Aging and developmental disability: Special issue on current research, programming, and practice implications](https://healthmattersprogram.org/2001/01/01/aging-and-developmental-disability-special-issue-on-current-research-programming-and-practice-implications/) - Aging and developmental disability: Special issue on current research, programming, and practice implications (2001). Hammel, J., & Nochajski, S. Journal of Occupational and Physical Therapy in Geriatrics, 18(1), 1-4.
- [Risk factors for injuries and falls among adults with developmental disabilities](https://healthmattersprogram.org/2001/01/01/risk-factors-for-injuries-and-falls-among-adults-with-developmental-disabilities/) - Risk factors for injuries and falls among adults with developmental disabilities (2001). Hsieh, K., Heller, T., & Miller, A.B. Journal of Intellectual Disability Research, 45, 76-82.
- [Effect of menopause on cognitive performance in women with Down syndrome](https://healthmattersprogram.org/2001/01/01/effect-of-menopause-on-cognitive-performance-in-women-with-down-syndrome/) - Effect of menopause on cognitive performance in women with Down syndrome (2001). Patel, B.N., Seltzer, G.B., Wu, H.S., & Schupf, N. Neuroreport, 12(12), 2659-62.
- [A Prospective Study of Menopause in Women with Down Syndrome](https://healthmattersprogram.org/2001/01/01/a-prospective-study-of-menopause-in-women-with-down-syndrome/) - A Prospective Study of Menopause in Women with Down Syndrome (2001). Seltzer, G.B., Schupf, N. & Wu, H.S. Journal of Intellectual Disability Research, 45, 1-7.
- [Health status of mothers of adults with intellectual disability](https://healthmattersprogram.org/2001/01/01/health-status-of-mothers-of-adults-with-intellectual-disability/) - Health status of mothers of adults with intellectual disability (2001). Chen, S.C., Ryan-Henry, S., Heller, T., & Chen, E.H. Journal of Intellectual Disability Research, 45(5), 439-449.
- [International association for the scientific study of intellectual disabilities (IASSID) papers](https://healthmattersprogram.org/2001/01/01/international-association-for-the-scientific-study-of-intellectual-disabilities-iassid-papers/) - International association for the scientific study of intellectual disabilities (IASSID) papers (2001). Journal of Applied Research in Intellectual Disabilities, Vol. 14, No. 3. London: Blackwell Science.This special issue contains the research reports developed by the IASSID Special Interest Group on Aging in collaboration with the World Health Organization to promote the healthy aging of adults
- [Families of adolescents and adults with autism: Uncharted territory](https://healthmattersprogram.org/2001/01/01/families-of-adolescents-and-adults-with-autism-uncharted-territory/) - Families of adolescents and adults with autism: Uncharted territory (2001). Seltzer, M.M., Krauss, M.W., Orsmond, G.I., & Vestal, C. International Review of Research in Mental Retardation, 23, 267-294.
- [Change in social support and psychological well-being: A longitudinal study of aging mothers of adults with mental retardation](https://healthmattersprogram.org/2001/01/01/change-in-social-support-and-psychological-well-being-a-longitudinal-study-of-aging-mothers-of-adults-with-mental-retardation/) - Change in social support and psychological well-being: A longitudinal study of aging mothers of adults with mental retardation (2001). Hong, J., Seltzer, M.M., & Krauss, M.W. Family Relations, 50, 154-164.
- [Continuity or discontinuity of family involvement following residential transitions of adults with mental retardation](https://healthmattersprogram.org/2001/01/01/continuity-or-discontinuity-of-family-involvement-following-residential-transitions-of-adults-with-mental-retardation/) - Continuity or discontinuity of family involvement following residential transitions of adults with mental retardation (2001). Seltzer, M.M., Krauss, M.W., Hong, J., & Orsmond, G.I. Mental Retardation, 39, 181-194.
- [Innovative project supports later-life planning for adults and their aging family caregivers](https://healthmattersprogram.org/2001/01/01/innovative-project-supports-later-life-planning-for-adults-and-their-aging-family-caregivers/) - Innovative project supports later-life planning for adults and their aging family caregivers (2001). Heller, T., & Caldwell, J. Maximizing Human Potential, 8(3), 4-5.
- [Quality of life of adults with mental retardation/ developmental disabilities who live with family](https://healthmattersprogram.org/2001/01/01/quality-of-life-of-adults-with-mental-retardation-developmental-disabilities-who-live-with-family/) - Quality of life of adults with mental retardation/ developmental disabilities who live with family (2001). Seltzer, M.M., and Krauss, M.W. Mental Retardation and Developmental Disabilities Research Review, 7, 105-114.
- [Assistive Technology and Environmental Intervention (AT-EI ) Impact On Activity and Life Roles of Aging Persons with Developmental Disabilities: Findings and Implications for Practice](https://healthmattersprogram.org/2001/01/01/assistive-technology-and-environmental-intervention-at-ei-impact-on-activity-and-life-roles-of-aging-persons-with-developmental-disabilities-findings-and-implications-for-practice/) - Assistive Technology and Environmental Intervention (AT-EI ) Impact On Activity and Life Roles of Aging Persons with Developmental Disabilities: Findings and Implications for Practice (2001). Hammel, J. Journal of Occupational and Physical Therapy in Geriatrics, 18(1), 37-58.
- [Building Community Coalitions With People With Disabilities and Their Families: An Empowerment Approach](https://healthmattersprogram.org/2001/01/01/building-community-coalitions-with-people-with-disabilities-and-their-families-an-empowerment-approach/) - Building Community Coalitions With People With Disabilities and Their Families: An Empowerment Approach (2001). Keys, C.B. & Factor, A.R. Journal of Prevention & Intervention in the Community, 21(2), 91-112.
- [Dementia and People with Intellectual Disabilities: What Can We Do?](https://healthmattersprogram.org/2001/01/01/dementia-and-people-with-intellectual-disabilities-what-can-we-do/) - Dementia and People with Intellectual Disabilities: What Can We Do? (2001). Dalton, A., Janicki, M. & McCallion, P. (Executive Producers), Albany, NY: The New York State Developmental Disabilities Planning Council This CD-ROM video explains how adults with I/DD are affected by dementia and depicts their functional changes over time. It presents guidelines for early screenings
- [Effects of pacing vs. non-pacing on a one-mile walk test in adults with mental retardation](https://healthmattersprogram.org/2000/01/01/effects-of-pacing-vs-non-pacing-on-a-one-mile-walk-test-in-adults-with-mental-retardation/) - Effects of pacing vs. non-pacing on a one-mile walk test in adults with mental retardation (2000). Kunde, K. & Rimmer, J.H. Adapted Physical Activity Quarterly, 17, 413-420.
- [Disabilities and health limitations](https://healthmattersprogram.org/2000/01/01/disabilities-and-health-limitations/) - Disabilities and health limitations (2000). Rimmer, J.H. In Group fitness instructor manual. ACE's guide for fitness professionals (226-246). San Diego: American Council on Exercise.
- [Overview of health issues of older women with intellectual disabilities](https://healthmattersprogram.org/2000/01/01/overview-of-health-issues-of-older-women-with-intellectual-disabilities/) - Overview of health issues of older women with intellectual disabilities (2000). Gill, C.J., & Brown, A.A. Aging and Developmental Disability: Current Research, Programming, and Practice Implications (Eds. Hammel, J. & Nochajski, S.) Haworth Press, Inc., 23-36.
- [Prevalence of dementia and impact on intellectual disability services](https://healthmattersprogram.org/2000/01/01/prevalence-of-dementia-and-impact-on-intellectual-disability-services/) - Prevalence of dementia and impact on intellectual disability services (2000). Janicki, M.P. & Dalton, A.J. Mental Retardation, 38, 277-289.
- [Healthy aging: Adults with intellectual disabilities: Women’s health and related issues](https://healthmattersprogram.org/2000/01/01/healthy-aging-adults-with-intellectual-disabilities-womens-health-and-related-issues/) - Healthy aging: Adults with intellectual disabilities: Women’s health and related issues (2000). Walsh, P. N., Heller, T., Schupf, N. & van Schrojenstein Lantman-de-Valk, H. Geneva, Switzerland: International Association for the Scientific Study of Intellectual Disabilities and the World Health Organization.
- [Achieving a Beneficial Fitness: A Program and a Philosophy in Mental Retardation: Contemporary Issues in Health](https://healthmattersprogram.org/2000/01/01/achieving-a-beneficial-fitness-a-program-and-a-philosophy-in-mental-retardation-contemporary-issues-in-health/) - Achieving a Beneficial Fitness: A Program and a Philosophy in Mental Retardation: Contemporary Issues in Health, Vol.1, No. 1 (2000). Rimmer, J. American Association on Mental Retardation (AAMR).This book discusses the benefits of health promotion activities for individuals with mental retardation. It includes guidelines on developing innovative health and fitness programs.ISBN 0-940898-71-3 COST PER UNIT: $11.95
- [Grandparent Caregivers II: Service needs and service provision issues](https://healthmattersprogram.org/2000/01/01/grandparent-caregivers-ii-service-needs-and-service-provision-issues/) - Grandparent Caregivers II: Service needs and service provision issues (2000). McCallion, P., Janicki, M.P., Grant-Griffin, L., & Kolomer, S.R. Journal of Gerontological Social Work, 33(3), 63-90.
- [Grandparent Caregivers I: Characteristics of the grandparents and the children with disabilities for whom they care](https://healthmattersprogram.org/2000/01/01/grandparent-caregivers-i-characteristics-of-the-grandparents-and-the-children-with-disabilities-for-whom-they-care/) - Grandparent Caregivers I: Characteristics of the grandparents and the children with disabilities for whom they care (2000). Janicki, M.P., McCallion, P., Grant-Griffin, L., & Kolomer, S.R. Journal of Gerontological Social Work, 33(3), 35-55.
- [Grandparents as supports to mothers of persons with intellectual disability](https://healthmattersprogram.org/2000/01/01/grandparents-as-supports-to-mothers-of-persons-with-intellectual-disability/) - Grandparents as supports to mothers of persons with intellectual disability (2000). Heller, T., Hsieh, K., & Rowitz, L. Journal of Gerontological Social Work , 33, 23-34.
- [Brothers and sisters of adults with mental retardation: Gendered nature of the sibling relationship](https://healthmattersprogram.org/2000/01/01/brothers-and-sisters-of-adults-with-mental-retardation-gendered-nature-of-the-sibling-relationship/) - Brothers and sisters of adults with mental retardation: Gendered nature of the sibling relationship (2000). Orsmond, G. & Seltzer, M.M. American Journal of Mental Retardation, 105(6), 486-508.
- [Supporting adults with intellectual disabilities and their families: A literature review](https://healthmattersprogram.org/2000/01/01/supporting-adults-with-intellectual-disabilities-and-their-families-a-literature-review/) - Supporting adults with intellectual disabilities and their families: A literature review (2000). Heller, T. Aging and Developmental Disability: Current Research, Programming, and Practice Implications, The Haworth Press, 59-73.

## Pages

- [HealthMatters Homepage](https://healthmattersprogram.org/) - HealthMatters™ Program meets the Administration for Community Living’s criteria for evidence-based programs under Title III-D Highest Tier Evidence-Based Health Promotion/Disease Prevention Programs for people with intellectual and developmental disabilities (IDD) and their supports. With over 2 decades of research-to-practice, HealthMatters™ Program engages people with IDD and their supports to have access to research, education and training, service
- [HealthMatters Program Application](https://healthmattersprogram.org/virtual-coach-healthmatters/) - HealthMatters Program Application VIEW Recording of the July 14th, 2026 (1pm-1:45pm CDT) HealthMatters Program. DOWNLOAD Informational Session PowerPoint (PDF).DOWNLOAD Application PDF.APPLY online.Virtual Coach: HealthMatters Program FAQs For more information, contact Jasmina Sisirak, PhD, MPH.Sign Up to Join our Listserv HealthMatters Alerts.Important DatesInformation Session – July 14th, 2026 (1pm-1:45pm CDT)Deadline to Apply – August 7th, 2026, 5pm CDTApplication Decision –
- [Signs & Symptoms Handouts](https://healthmattersprogram.org/signs-and-symptoms-handouts/) - MyHealth Visit Signs & Symptoms Checklist Sign & Symptom Checklist Cards Signs and Symptoms of Common Health-Related Issues Experienced by Adults with IDD
- [2020-25 Healthy Brain Webinar Series for People with IDD](https://healthmattersprogram.org/2021-healthy-brain-webinar-series-for-people-with-idd/) - Watch YouTube videos from the 2020-25 Healthy Brain Webinar Series for People with IDD ~~~~~~~~~~~~~~~~~~~~PLEASE NOTE1. Webinars are offered at no cost.2. CEUs are not offered for the webinars.3. Webinars and materials archived on the 2020-25 Healthy Brain Webinar Series for People with Intellectual and Developmental Disabilities.SUPPORT AND FUNDINGHealthy Brain Webinar Series is presented by the HealthMatters Program, Department
- [National Healthy Brain Initiative for People with Intellectual and Developmental Disabilities](https://healthmattersprogram.org/healthybrain/) - Healthy Brain Initiative for People with Intellectual and Developmental Disabilities (IDD) project through the HealthMattersTM Program, in partnership with the National Task Group on Intellectual Disabilities and Dementia Practices and the ENGAGE-IL HRSA Geriatrics Workforce Enhancement Program (GWEP). HBI one of three Component B projects with the CDC’s National Healthy Brain Initiative (CDC-RFA-DP20-2003). Two other organizations addressing
- [HealthAdvocacy Program](https://healthmattersprogram.org/healthadvocacy-program/) - The HealthAdvocacy™ Program: It’s Our Health promotes health equity for people with disability (Evidence-informed Training).After completing this training, the learner will have an overview of the following issues experienced by people with disability:Structural / Social Determinants of Health (S/SDOH): Understanding Disparities in Healthcare AccessLearning Objective: Describe health advocacy and the importance of multi-level advocacy approaches to assess/understand
- [National Team - University of Illinois at Chicago](https://healthmattersprogram.org/national-team-university-of-illinois-at-chicago/) - Beth Marks, PhD, RN, FAANResearch Associate ProfessorPhone: 312-413-4097Email: bmarks1@uic.eduBeth is Co-Director of the HealthMatters Program in the Department of Disability and Human Development, University of Illinois at Chicago, and Past President, National Organization of Nurses with Disabilities. Beth directs research programs on empowerment and advancement of persons with disabilities. She has published numerous articles and books
- [Healthy Brain Resources for People with IDD and their Supports](https://healthmattersprogram.org/hbi-for-people-with-idd-resources/) - Resources Over-Medication and Older Adults with Intellectual Disability: Risks for Brain HealthIntellectual Disability and Dementia: A Caregiver’s Resource Guide for Rhode IslandersWorking Resources List on Dementia Care Abstracts (v20c)The RAISE Family Caregiver Resource and Dissemination CenterRisk Factors for DementiaDementia and IDD | Julie Moran, DO Discusses Dementia, Aging, and IDDSocial Determinants Data Linked to Higher
- [Healthy Brain Initiative for People with IDD Strategies](https://healthmattersprogram.org/healthy-brain-initiative-for-people-with-idd-strategies/) - Educate and Empower people with IDD (with and without dementia) and their supports (paid and unpaid caregivers, and stakeholders) about brain health.HealthMatters Program Virtual Coach: Program ApplicationHealthy Brain Webinar Series – YouTube Playlist2020-23 Healthy Brain Webinar Series for People with IDD‘My Thinker is Working’NTG ID and Dementia Information PackageNTG Dementia WorkshopsEmbed evaluation into training and caregiving
- [About Us](https://healthmattersprogram.org/about-us/) - HealthMatters Program™ is a collaboration between University of Illinois at Chicago and six states (Alaska, Illinois, Kentucky, Maryland, Missouri and North Carolina) that aims to improve health of people with intellectual and developmental disabilities (IDD). Meet our Team:National – University of Illinois at ChicagoAlaskaIllinoisKentuckyMarylandMissouriNorth Carolina VAYA Health Website AccessibilityThe HealthMatters™ Program is committed to providing access to important health promotion information on our website.
- [Spring into Health](https://healthmattersprogram.org/spring-into-health/) - SPRING INTO HEALTH is a 5-week health and wellness online zoom course created for individuals with intellectual and developmental disabilities in collaboration with the HealthMatters Program. WHERE and WHEN: Erin Shy will meet with learners 1 hour each week to talk about ways to incorporate healthy lifestyle habits into daily living. THURSDAYS: Beginning March 10th, 2022 |
- [Partnering to Transform Health Outcomes with Persons with Intellectual Disabilities and Developmental Disabilities (PATH-PWIDD)](https://healthmattersprogram.org/path-pwidd/) - The Administration for Community Living (ACL) has awarded a $1.75 million cooperative agreement to Rush University that will fill the gaps in health professions training programs by embedding disability-related content on the health care of individuals with intellectual and developmental disabilities (ID/DD) into interprofessional health education curriculum. Many health professions schools and licensing exams do
- [Virtual Coach: HealthMatters Program FAQs](https://healthmattersprogram.org/virtual-coach-healthmatters-program-faqs/) - Who can participate?What states can participate?The Program is open to all states in the USA. International applicants, please contact us directly.What is the age of participants with intellectual disabilities that can participate in the Program?The 12-week HealthMatters Program was tested with adults with intellectual and developmental disabilities. Even though it was not formally tested with
- [Healthy Brain Initiative for People with Intellectual and Developmental Disabilities](https://healthmattersprogram.org/healthy-brain-initiative-for-people-with-intellectual-and-developmental-disabilities/) - 2021 Healthy Brain Webinar Series for People with IDDView Webinar 1 on HealthMatters Program YouTube PlaylistDate and time: Tuesday, May 4, 2021 1:00 pm CDTDuration: 1 hourHandout: PowerPoint Presentation Overview. This presentation will introduce new the University of Illinois at Chicago’s Healthy Brain Initiative for People with Intellectual and Developmental Disabilities (HBI-PwIDD). HBI-PwIDD aims to enhance supports and quality of care and address misconceptions
- [OptimalRx: When Less is More](https://healthmattersprogram.org/what-we-do/optimalrx/) - The OptimalRx Project provides a team approach to identify care needs implement innovative practice models monitor and evaluate impact of optimal prescribing and alternative treatments. This project is an innovative approach to address polypharmacy, which is now “conceptually perceived as ‘a disease’ with potentially more serious complications than those of the diseases these different drugs
- [HealthMatters 4Kids - Today Counts Diabetes Prevention](https://healthmattersprogram.org/healthmatters-4kids/) - Children and teenagers with intellectual and developmental disabilities (I/DD) often do not get to learn how to eat smart, move more, and cope with stress. With obesity and diabetes on the rise for both children and adults, lowering the risk of diabetes during childhood is critical. What children and adolescents do today…counts! Children and teenagers
- [HealthMatters Program&#x2122](https://healthmattersprogram.org/what-we-do/health-matters-program/) - HealthMatters™ Program meets the Administration for Community Living’s criteria for evidence-based programs under Title III-D Highest Tier Evidence-Based Health Promotion/Disease Prevention Programs. See all approved programs. Over 2 decades of research and translation into community sites serving people with IDD.HealthMatters Program Train-the-Trainer Certified Instructor Workshop (see description below)12-Week HealthMatters Program for People with Developmental Disabilities
- [What We Do](https://healthmattersprogram.org/what-we-do/) - HealthMatters™ Program engages people with IDD and their supports to have access to research, education and training, service learning, and evaluation tools to improve their health where they live, work, learn, and play. Research and Training, Service Learning, and Evaluation HealthMatters™ Program: Certified Instructor Workshop Webinar Our "flagship" HealthMatters™ Program (HMP) is a tested, evidence-based
- [CDC COVID-19 Guidance Regarding Individuals with Disabilities](https://healthmattersprogram.org/cdc-covid-19-guidance-regarding-individuals-with-disabilities/) - CDC guidelines regarding COVID-19 for caregivers supporting people with IDD. Information and resources are provided for direct services providers, group homes, and other entities that work with people with disabilities (including intellectual disability). Specific information includes precautions that direct service providers can take to protect themselves and the people they work with, strategies for group
- [COVID-19 Webinar Series 2020](https://healthmattersprogram.org/covid-19-webinar-series/) - View COVID-19 Webinar Series on the HealthMatters Program YouTube Playlist Where's the Outrage: COVID-19 Response Now and Moving ForwardNicole T. Jorwic, J.D., Senior Director of Public Policy, The Arc United StatesWatch on YouTube May 26, 2020 at 1 PM CDT / 2 PM EDTProtecting Ourselves, Protecting Others Part 1: What to Wear at Work and WhyMelissa Desroches,
- [HealthMessages™: Peers Supporting Peers](https://healthmattersprogram.org/healthmessages-program/) - Learning with our Peers to Improve Our Health Behaviors (Evidence-based)HealthMessages Program Kit (12-week class).90-minute WebinarTraining for Peer Health Coaches (PHCs) (people with IDD) and Mentors.PHCs are leaders and educators who share HealthMessages with their peers.Mentors are support staff, friends, or family members of PHCs. PublicationEffectiveness of a HealthMessages Peer-to-Peer Program for People With Intellectual and
- [12-Week HealthMatters Program](https://healthmattersprogram.org/12-week-healthmatters-program/) - 12-Week HealthMatters ProgramExercise and Nutrition Health Education Program for People with Developmental Disabilities 12-Week HealthMatters Program for People with Developmental Disabilities includes exercise, nutrition, and health education components. Instructors teaching the 12-week program may find it useful to attend the HealthMatters Program: Train-the-Trainer Certified Instructor Workshop to implement the HealthMatters program.AudiencePeople with intellectual and/or developmental
- [Resources](https://healthmattersprogram.org/resources/) - Latest publications, events, and products and information to promote health across the lifespan where for people with intellectual and developmental disabilities live, work, learn, and play. Publications Events Products and Information Publications Search our listing of publications related to health and health promotion for people with disabilities. Events See upcoming and previous events. Products and Information Find products and
- [What About Staff: Impact of HealthMatters Program for Direct Support Staff](https://healthmattersprogram.org/what-about-staff-impact-of-healthmatters-program-for-direct-support-staff/) - Health Promotion for StaffThe health status and health behaviors among support staff providing daily support for people with IDD in community-based organizations (CBOs) is woefully undervalued. This training examines the health impact of direct care workers who participated in HealthMatters™ Program: Certified Instructor Workshop and implemented the 12-week HealthMatters Program for people with IDD whom
- [Health Alert: Signs & Symptoms Program](https://healthmattersprogram.org/health-alert-signs-symptoms-program/) - HealthAlert: Signs&Symptoms™ Program aims to help people with IDD and their supports to observe (and report) early signs and symptoms of new or changing health concerns for effective communication (Evidence-informed).Program provides specific instructions for Direct Support Professionals (DSPs) or other support persons to do the following:observe early signs and symptoms of new or changing health concerns
- [Getting the Memo for Health Matters: It’s Everyone’s Job​](https://healthmattersprogram.org/getting-the-memo-for-health-matters-its-everyones-job​/) - AudienceStaff in community-based organizations (CBOs). Workshop space is limited to 20-25 participants. Learning ObjectivesBy the end of the workshop, you will be able to: Understand the importance of health and wellness for people with I/DDIncorporate health and wellness initiatives for your clients with I/DDIdentify local and CBO-specific activities that promote health for people with I/DD
- [Funded Research](https://healthmattersprogram.org/funded-research/) - Current funded projects aim to build Communities of Practice for Health (CoP-H). Local CoP-H have pivotal role for health promotion and disease prevention programs for people with IDD across the lifespan. Community organizations across all sectors fill the existing gaps in the health care delivery system and can influence statewide and national policy support. Leveraging
- [National Task Group on Intellectual Disabilities and Dementia Practices (NTG)](https://healthmattersprogram.org/resources/national-task-group-on-dementia-care-and-intellectual-disabilities-ntg/) - What is the NTG? The National Task Group on Intellectual Disabilities and Dementia Practices (the ‘NTG’) is a coalition of interested persons and organizations working toward ensuring that the needs and interests of adults with intellectual and developmental disabilities who are affected by Alzheimer’s disease and related dementia – as well as their families and
- [Scale-Up Initiatives](https://healthmattersprogram.org/healthmatters-scale-up-projects/) - We offer several programs to scale up in your state, community, or organization. Contact us if you are interested in any program. HealthMatters™ Program: Certified Instructor Workshop Webinar Implement the HealthMatters™ Program (HMP) within your state or organization. HMP is a tested, evidence-based (1) HealthMatters™ Program: Certified Instructor Workshop Webinar (HMP-TtT), (2) Health Matters: The
- [Developing Projects](https://healthmattersprogram.org/what-we-do/developing-projects/) - We work with community partners to develop innovative programs that training deserts and create healthy communities where people live, learn, work, and play. HealthMatters: Nourish Nutrition Education and Training Program for direct care staff supporting people with IDD. HealthVISIT: Improving Patient Activation in Health Care Give people with IDD a tool to participate in their health visits
- [HealthMatters Program @ 24/7](https://healthmattersprogram.org/funded-research/healthmatters-program-24-7/) - eLibrary Community of Practice Content repository for eLearning Curating information with learning management system
- [Training for Health Professionals and Supports](https://healthmattersprogram.org/resources/training-for-health-professionals-and-supports/) - HealthMatters Community Academic Partnership Through the HealthMatters Community Academic Partnership (HMCAP), RRTC staff (Dr. Marks and Dr. Sisirak) and HealthMatters CAP Partners (Dina Donohue-Chase and Kristin Krok at Northpointe Resources) will continue working with Healthmatters community affiliates. HealthMatters Train the Trainer Workshop: Becoming a Certified Instructor An evidence-based 6-hour training that provides structured information on
- [Maryland Community Team](https://healthmattersprogram.org/maryland-community-team/) - Jennifer Eastman, MBAState Coordinator - MarylandMaryland Department of DisabilitiesPhone: 410-767-7901Email: jennifer.eastman@maryland.gov Jennifer Eastman received her Bachelors in Psychology and Masters in Business Administration. In addition to serving as the State Coordinator for HealthMatters, Maryland!, Jennifer is the Director of Community Living Policy at the Maryland Department of Disabilities, the only cabinet-level department in the nation that represents people
- [Missouri Community Team](https://healthmattersprogram.org/missouri-community-team/) - Christy Miller, MAState Coordinator - MissouriUMKC Institute for Human DevelopmentPhone: 816-235-5752Email: millerck@umkc.edu Since 2009 Christy has worked at the UMKC Institute for Human Development as a research assistant in program development. She writes grants and participates in project activities, evaluation, communications, and reporting. HealthMatters Missouri fits in with her interest in how health providers, community organizations,
- [North Carolina VAYA Health Team](https://healthmattersprogram.org/north-carolina-vaya-health-team/) - Karen LukenVAYA Health State Coordinator - North CarolinaPhone:Email: karenluken@gmail.com Karen Luken has more than 35 years of experience in disability and health, recreation therapy, and grants management. Karen is the project director for the “Medical Health Homes for People with Developmental Disabilities” initiative, funded by the NC Council on Developmental Disabilities and awarded to Easter Seals
- [Contact Us](https://healthmattersprogram.org/contact-us/) - If you have any questions or comments, please use the form below to get in contact with us.
- [Kentucky Community Team](https://healthmattersprogram.org/kentucky-community-team/) - Lindsey Mullis, MS State Coordinator Human Development Institute Phone: 859-218-4064 Email: lcpowe5@uky.edu Lindsey Catherine Mullis received her bachelors in exercise science and psychology along with her masters in health promotion and a certificate in developmental disabilities. She is the Health & Wellness coordinator for the Human Development Institute at the University of Kentucky and partners with the Kentucky Division of Developmental and
- [Illinois Community Team](https://healthmattersprogram.org/illinois-community-team/) - Kristin Krok, CTRS State Coordinator - Illinois NorthPointe Resources Phone: 847-731-5707 Email: kkrok@NorthPointeResources.org Kristin is a Health & Wellness Coordinator for Illinois and works at NorthPointe Resourcesin Zion, IL. Kristin has been working with people with disabilities for over 17 years. She has experience in direct care, program management and program development. She has overseen the development and expansion
- [Alaska Community Team](https://healthmattersprogram.org/alaska-community-team/) - Baldwin Tew, MA State Coordinator - Alaska Center for Human Development, University of Alaska-Anchorage Phone: 907-264-6277 Email: lynnann@alaskachd.org LynnAnn Baldwin Tew received her bachelors in history and her masters in nonprofit management. She is the Health & Wellness Coordinator and serves in the research department at the Center of Human Development at the University of Alaska-Anchorage (UAA). She
- [Worker Health](https://healthmattersprogram.org/worker-health/) - Legislative changes are increasingly supporting efforts to recruit, promote, and retain students and employees with disabilities, workers with chronic conditions, workers with work-related injuries, and workers who may be experiencing age-related changes which impact their work capacity across all employment sectors. Employers in various industries have created safe work environments to support workers with disabilities and
- [Introduction to HealthMatters@24/7](https://healthmattersprogram.org/introduction-to-healthmatters-24-7/) - These three (3), one (1) hour self-paced online modules will enhance your knowledge and understanding of your role in implementing the evidence-based HealthMatters Program and the importance of health promotion for people with intellectual and developmental disabilities to be healthy. In addition, you will explore the purposes, uses, and characteristics of the following Strategic Plans
- [HealthMatters Program: Train-the-Trainer Certified Instructor Workshop](https://healthmattersprogram.org/healthmatters-program-train-the-trainer-certified-instructor-workshop/)
- [NTG Links](https://healthmattersprogram.org/ntg-links/) - NTG Newsletters Overview Supporting Organizations Collaborative Projects Background and History Support Group for Family Caregivers/Family Advocacy Annual Conference Education and Training Workshop Schedule Webinar Schedule Products of the NTG Screening (NTG-EDSD) Thinker Document Practice Guidelines News Resources Members Join the NTG Working Groups Group Documents Meeting Minutes Special Projects NPEDD Webinar Series NTG - Dementia
- [Background and History of the NTG](https://healthmattersprogram.org/background-and-history-of-the-ntg/) - HISTORY The NTG was organized in late 2010 when the American Association on Intellectual and Developmental Disabilities, the American Academy of Developmental Medicine and Dentistry, along with the Rehabilitation Research and Training Center on Aging with Developmental Disabilities-Lifespan Health and Function at the University of Illinois at Chicago and the Center on Excellence in Aging
- [Collaborative Projects](https://healthmattersprogram.org/collaborative-projects-2/) - International Summit on Dementia and Intellectual Disability The National Task Group on Intellectual Disability and Dementia Practices, along with the RRTC DD/H at the University of Illinois at Chicago, together with colleagues in Scotland at the University of the West of Scotland (UWS), the University of Stirling, and Alzheimer's Scotland, organized an 'International Summit on Intellectual Disability and Dementia'
- [You're Invited!](https://healthmattersprogram.org/you-are-invited/) - You are invited to participate in a survey to better understand the health behaviors of adults with intellectual developmental disabilities (I/DD). This research is being conducted by Drs. Kelly Hsieh and Sandra Magaña at the Rehabilitation Research Training Center on Developmental Disabilities and Health (RRTCDD) at the University of Illinois at Chicago. The study will

## Events

- [Addressing Challenges of Social Media for Individuals Living with IDD and Mental Health Issues](https://healthmattersprogram.org/events/addressing-challenges-of-social-media-for-individuals-living-with-idd-and-mental-health-issues/) - View presentation on HealthMatters Program YouTube Playlist Date and time: Tuesday, October 13, 2020 1:00 pm CDT Duration: 1 hour and 2 minutes Handout: PowerPoint Presentation-Greg Wilson, Jake Jones, Jade Pollock, and Robyn Blanchard Overview: With the social restrictions surrounding COVID-19 pandemic, connecting with others via virtual and social media platforms has become much more prevalent.
- [Exercise as a Human Right: Providing Inclusive Physical Fitness Opportunities to People with IDD During the Pandemic and Beyond](https://healthmattersprogram.org/events/exercise-as-a-human-right-providing-inclusive-physical-fitness-opportunities-to-people-with-idd-during-the-pandemic-and-beyond/) - View presentation on HealthMatters Program YouTube Playlist Date and time: Tuesday, September 29, 2020 1:00 pm CDT Duration: 1 hour and 3 minutes Handout: Exercise as a Human Right Providing Inclusive Physical Fitness Opportunities to People with IDD During the Pandemic-Jared Ciner and David Godoy Overview: Finding ways to engage people with intellectual and developmental disabilities
- [Employment Resilience: People with IDD are Critical Frontline Workers](https://healthmattersprogram.org/events/employment-resilience-people-with-idd-are-critical-frontline-workers/) - View presentation on HealthMatters Program YouTube Playlist Date and time: Tuesday, August 18, 2020 1:00 pm CDT Duration: 1 hour and 4 minutes Handout: PowerPoint Presentation-Erin Riehle and Maryellen Daston Resource: Colorado Teen With Special Needs Thrives On Being An Essential Worker Overview: Internationally, some COVID-19 policies meant to protect people with IDD could have the
- [Addressing Emotional Health Needs of People with IDD During a Pandemic: A Model Demonstration Project to Promote Engagement](https://healthmattersprogram.org/events/addressing-emotional-health-needs-of-people-with-idd-during-a-pandemic-a-model-demonstration-project-to-promote-engagement/) - View presentation on HealthMatters Program YouTube Playlist Date and time: Tuesday, August 25, 2020 1:00 pm CDT Duration: 1 hour and 3 minutes Handout: PowerPoint Presentation-Rachel London, Ande Kolp, Donna Retzlaff, and Luann Brechbill Resource: Small Grant Opportunity: Engagement and Comfort during the COVID-19 Pandemic Overview: The Arc Maryland and the Maryland Developmental Disabilities Council collaborated
- [Preparing Your Employees for the Impact of COVID-19: Updates from Providers](https://healthmattersprogram.org/events/preparing-your-employees-for-the-impact-of-covid-19-updates-from-providers/) - View presentation on HealthMatters Program YouTube Playlist Date and time: Tuesday, July 7, 2020 1:00 pm CDT Duration: 1 hour Handouts: PowerPoint Presentation-Ed Kaul and Eligio Velasquez; Prepare your Small Business and Employees for the Effects of COVID-19 Overview: This presentation will provide an overview of the development of an infrastructure to prepare employees for disruption due
- [Shifting Services in Community-Based Organizations: Meeting the Needs of People with IDD](https://healthmattersprogram.org/events/shifting-services-in-community-based-organizations-meeting-the-needs-of-people-with-idd/) - View presentation on HealthMatters Program YouTube Playlist Date and time: Tuesday, August 11, 2020 1:00 pm CDT Duration: 56 minutes Handout: PowerPoint Presentation-Susan Silberman Resources: National Council on Aging (NCOA): The Impact of COVID-19 on Community-Based Organizations Serving Older Adults National Association of Direct Support Professionals (NADSP): Direct Support Workforce and COVID-19 National Survey 2020 Results
- [HealthMatters Program Virtual Coach: Health Matters Now More than Ever](https://healthmattersprogram.org/events/health-matters-now-more-than-ever-the-triple-burden-of-disease-for-people-with-idd/) - View presentation on HealthMatters Program YouTube Playlist Date and time: Tuesday, August 4, 2020 1:00 pm CDT Duration: 1 hour and 3 minutes Handout: PowerPoint Presentation-Jasmina Sisirak and Kristin Krok Overview: As an often underserved population, health promotion is even more imperative for people with IDD when living in turbulent communities during a pandemic. During a
- [Hospitalized People with IDD Need their Caregivers: They Aren’t Visitors](https://healthmattersprogram.org/events/hospitalized-people-with-idd-need-their-caregivers-they-arent-visitors/) - View presentation on HealthMatters Program YouTube Playlist Date and time: Tuesday, July 28, 2020 1:00 pm CDT Duration: 55 minutes Handouts and Resources: PowerPoint Presentation-Sarah Ailey Factors Related to Complications Among Adult Patients With Intellectual Disabilities Hospitalized at an Academic Medical Center Using Mock Tracers to Evaluate Care of Patients with Intellectual Disabilities, Part 1 Using
- [Even During a Crisis, People with Disabilities have Rights](https://healthmattersprogram.org/events/even-during-a-crisis-people-with-disabilities-have-rights/) - View presentation on HealthMatters Program YouTube Playlist Date and time: Tuesday, July 21, 2020 1:00 pm CDT Duration: 1 hour and 4 minutes Handout: PowerPoint Presentation-Robin Jones and Barry Taylor Overview: This presentation will provide updates on issues related to COVID-19 treatment for people with IDD. Guidelines being used to help health care providers and health
- [Communicating COVID-19 Updates to People with IDD, Caregivers, and Stakeholders](https://healthmattersprogram.org/events/communicating-covid-19-updates-to-people-with-idd-caregivers-and-stakeholders-2/) - View presentation on HealthMatters Program YouTube Playlist Date and time: Tuesday, July 14, 2020 1:00 pm CDT Duration: 1 hour and 1 minute Handouts: PowerPoint Presentation-Maggie Hassler, Communicating COVID-19 Webinar Takeaway Resource Overview: This presentation will provide an overview on strategies to establish preparedness communication plans for people with IDD, team, families, and community. Providing an
- [Talking about COVID-19: Resources for People with IDD](https://healthmattersprogram.org/events/communicating-covid-19-updates-to-people-with-idd-caregivers-and-stakeholders/) - View presentation on HealthMatters Program YouTube Playlist Date and time: Tuesday, June 16, 2020 1:00 pm CDT Duration: 1 hour 4 minutes Handout: PowerPoint Presentation, Presentation Transcript-Kathy Service Overview: “My staff is either panicked or thinks COVID-19 is silly.” This presentation will discuss strategies, resources, and tips to support people with IDD to understand what’s going
- [Survival Coalition and The Arc Wisconsin: Determining What’s Needed Now and in the Future in Response to COVID-19](https://healthmattersprogram.org/events/survival-coalition-and-the-arc-wisconsin-determining-whats-needed-now-and-in-the-future-in-response-to-covid-19/) - View presentation on HealthMatters Program YouTube Playlist Date and time: Tuesday, June 30, 2020 1:00 pm CDT Duration: 1 hour 1 minute Handout: PowerPoint Presentation-Lisa Pugh Resources: Press Packet (http://www.survivalcoalitionwi.org/wp-content/uploads/2020/04/SurvivalCoalition_PressPacket_COVIDsurvey_042220-1.pdf) Press release (https://arcwi.org/2020/04/30/over-30-groups-file-amicus-brief-in-wisconsin-regarding-heightened-covid-19-risks-to-people-with-disabilities-older-adults/) Amicus Brief (http://thearc.org/wp-content/uploads/2020/04/FINAL-Amicus-Brief-Wisconsin-Legislature-v-Andrea-Palm.pdf) Medical Rationing (https://arcwi.org/content/uploads/sites/17/2020/04/SurvivalCoalitionComments_Medical-Rationing-041320202.pdf) Provider Survey Press Release (http://www.survivalcoalitionwi.org/wp-content/uploads/2020/05/Provider-survey-findings_0520-002.pdf) Guidance on Re-opening During COVID-19 pandemic in ways that protect people with
- [Impact of COVID-19 on Organizations Serving Individuals with Intellectual and Developmental Disabilities](https://healthmattersprogram.org/events/impact-of-covid-19-on-organizations-serving-individuals-with-intellectual-and-developmental-disabilities/) - View presentation on HealthMatters Program YouTube Playlist Date and time: Tuesday, June 23, 2020 1:00 pm CDT Duration: 1 hour 2 minutes Handouts: PowerPoint Presentation-Donna Martin; Impact of COVID-19 on Organizations Serving Individuals with IDD Overview: This presentation will provide an overview of the April 2020 American Network of Community Options and Resources (ANCOR) survey results
- [Protecting Ourselves, Protecting Others Part 2: Caring for Someone Infected with COVID-19 in their Home](https://healthmattersprogram.org/events/protecting-ourselves-protecting-others-part-2-caring-for-someone-infected-with-covid-19-in-their-home/) - View presentation on HealthMatters Program YouTube Playlist Date and time: Tuesday, June 9, 2020 1:00 pm CDT Duration: 1 hour 14 minutes Handouts: PowerPoint Presentation Part 2; Protecting Ourselves, Protecting Others Part 2 RESOURCES Overview: This presentation will examine best practices for higher level protection needs, while caring for someone who has had a close
- [Protecting Ourselves, Protecting Others Part 1: What to Wear at Work and Why](https://healthmattersprogram.org/events/protecting-ourselves-protecting-others-part-1-what-to-wear-at-work-and-why/) - View presentation on HealthMatters Program YouTube Playlist Date and time: Tuesday, June 2, 2020 1:00 pm CDT Duration: 1 hour 18 minutes Handouts: PowerPoint Presentation; Protecting Ourselves, Protecting Others RESOURCES Overview: This presentation will present survey results regarding health care needs in community based organizations. Hygiene, PPE, and social distancing best practices for low-moderate protection
- [Where's the Outrage: COVID-19 Response Now and Moving Forward](https://healthmattersprogram.org/events/wheres-the-outrage-covid-19-response-now-and-moving-forward/) - View presentation on HealthMatters Program YouTube Playlist Date and time: Tuesday, May 26, 2020 1:00 pm CDT Duration: 1 hour Handout: PowerPoint Presentation Overview: This presentation will explore the Federal policy in response to COVID-19 and how the disability community is challenged to meet the unique needs of people with intellectual and developmental disabilities. What
- [Using the Health Matters Curriculum with the Project SEARCH Program Model](https://healthmattersprogram.org/events/using-the-health-matters-curriculum-with-the-project-search-program-model-2/) - View presentation on HealthMatters Program YouTube Playlist Date and time: Tuesday, May 19, 2020 1:00 pm CDT Duration: 1 hour Handouts: Online Resources and PowerPoint Presentation Description: Using the Health Matters Curriculum with the Project SEARCH Program Model Health and fitness are critical to achieving and maintaining competitive employment. With this in mind, we have
- [COVID-19 Know Your Rights & Prepare](https://healthmattersprogram.org/events/covid-19-know-your-rights-prepare/) - Presenter: Melissa L. Desroches, PhD, RN Date: Tuesday, April 21, 2020 Time: 2:00-3:00 pm (Eastern Time) Play recording (1 hr) Handout: COVID-19- Know Your Rights and Prepare URL Resources: COVID-19 Communication Rights Toolkit Preparing Individuals with Intellectual/Developmental Disabilities for Medical Treatment at Hospitals Description: COVID-19 Know Your Rights & Prepare - Description: For people with intellectual
- [Mental Health Promotion for People with Intellectual and Developmental Disability](https://healthmattersprogram.org/events/mental-health-promotion-people-with-idd/) - Presenter: Melissa L. Desroches, PhD, RN Date: Tuesday, April 14, 2020. Time: 2:00-3:00 pm (Eastern Time) Play recording (1 hr) Handout: Mental Health Promotion for People with IDD Description: Mental Health Promotion for People with Intellectual and Developmental Disability Project SEARCH is committed to supporting health and wellness during transition to employment. The changes that transition brings
- [Medication Overload: When More is Less](https://healthmattersprogram.org/events/medication-overload-when-more-is-less/) - Play Recording (55 minutes) Handouts: OptimalRx When Less is More * While polypharmacy literature primarily focuses on the elderly, research indicates between 11-60% of people with intellectual disability (ID) are also exposed to polypharmacy; whereas only 3% of people with ID has a psychosis-related disorder, an estimated 30-50% of all psychotropics prescribed are antipsychotics. Although adverse outcomes
- [Getting Fit! Bit by Bit](https://healthmattersprogram.org/events/getting-fit-bit-by-bit/) - Play Recording (1:03 minutes) Handouts: Getting Fit! Bit by Bit * Identifying Resources for Replication * Wellness Description * The Project SEARCH program at Children’s Hospital Colorado is in its second year of implementing a robust health and wellness model which is an expansion of the existing Health Matters curriculum. Outcomes for this model are indicating behavior
- [Understanding and Managing Work Related Anxiety](https://healthmattersprogram.org/events/understanding-and-managing-work-related-anxiety/) - Play Recording (56 minutes) Handouts: Understanding and Managing Work Related Anxiety * Duration: 1 hour Description: Understanding and Managing Work Related Anxiety Lots of people experience work related anxiety when they start a new job or begin an unknown work task. Most new employees can manage work related anxiety through natural coping strategies and self-help resources. Project
- [Suicide Prevention 101: The Perception of Happiness](https://healthmattersprogram.org/events/suicide-prevention-101-the-perception-of-happiness/) - Play Recording (1 hour 6 minutes) Handouts: Suicide Prevention 101-The Perception of Happiness Suicide PowerPoint * This a pre-recorded webinar and the inbox is not active. If you or someone you know is experiencing a crisis and/or suicidal ideation and needs support and help immediately please call 911 or the suicide prevention life-line at 1-800-273-8255.
- [Project SEARCH Year 1: Roadblocks, Detours and Success](https://healthmattersprogram.org/events/project-search-year-1-roadblocks-detours-and-success/) - Play Recording(1 hour 5 minutes) Handouts: Project SEARCH Year 1 PowerPoint * Daily Evaluation Report Project SEARCH * Hudson County PS Application (English Extended Deadline) with DVRS Referral * Monthly Vocational Report and Progress Review Resources: Danielle's Interview * Guillermo's Video * Johneisha's Video * Instructor Video Description: This presentation will explore
- [Promoting Health & Safety for Workers with Disabilities: Realizing the Promise of the ADA June 9 & 10, 2015 Chicago, Illinois](https://healthmattersprogram.org/events/promoting-health-safety-for-workers-with-disabilities-realizing-the-promise-of-the-ada-june-9-10-2015-chicago-illinois/) - The Americans with Disabilities Act turns 25 this year! This conference explored its impact in the workplace. Interdependence Between Health and Wellness and Employment Managing one’s health and healthcare is critical to successful employment. See the conference agenda here. Resources Conference Materials Conference Transcripts Coming Soon Resources ADA National Network American Association of People
- [Using the Health Matters Curriculum with the Project SEARCH Program Model](https://healthmattersprogram.org/events/using-the-health-matters-curriculum-with-the-project-search-program-model/) - Presenter: Maryellen Daston, Program Specialist, Cincinnati Children’s Hospital, Cincinnati, OH and Karen Guo Date: Tuesday, May 7, 2019. Time: 2:00-3:00 pm (Eastern Time) Play recording (59 min) Handout: Using the Health Matters Curriculum with the Project SEARCH Program Model PowerPoint Slides Maryellen Daston is a researcher and technical writer with a background in biomedical research.
- [Addressing Workplace Sexual Harassment](https://healthmattersprogram.org/events/webinar-2-addressing-workplace-sexual-harassment/) - Presenter: CEO, Heart Consulting, Madison, WI Date: Tuesday, March 12, 2019 Time: 2:30-3:30 pm (Eastern Time) Play recording (1 hr 2 min 6 sec) Handouts: Addressing Workplace Sexual Harassment PowerPoint Slides Sexual Harassment Caregiver Power and Control Wheel Ellen Merker, LPC-IT, started Heart Consulting LLC in 2017, after seeing the need for more resources around sexual assault and domestic
- [Building An Annual Calendar for Success (Including Families & the Community)](https://healthmattersprogram.org/events/building-an-annual-calendar-for-success-including-families-the-community/) - Presenter: Patti Moore, Upper Valley Career Center Project SEARCH Coordinator of Upper Valley Medical Center, Sidney, OH Date: Tuesday, April 9, 2019 Time: 2:00-3:00 pm (Eastern Time) Play recording (1 hr 2 min 6 sec) Handout: Building An Annual Calendar for Success (Including Families & the Community) Patti Moore, Upper Valley Career Center Project SEARCH Coordinator of Upper Valley
- [What, wait? You want me to talk about sexuality at Project SEARCH?](https://healthmattersprogram.org/events/webinar-1-what-wait-you-want-me-to-talk-about-sexuality-at-project-search-talking-one-on-one-with-individual-with-idd-about-sexuality-and-relation/) - Presenter: Katherine McLaughlin, Private Consultant, Professor of Human Sexuality, Keene State College, Keene, NH Date: Tuesday, February 12, 2019. Time: 2:00-3:00 pm (Eastern Time) Play recording (1 hr 2 min 6 sec) Handouts: What, wait PowerPoint Presentation Moving from Friend to Partner Taking Good Care of You - 3 Tips for Hygiene Health Living Between Genders Sexual

## Lessons

- [Healthy People](https://healthmattersprogram.org/lessons/healthy-people/) - Section 3
- [Culture of Health](https://healthmattersprogram.org/lessons/culture-of-health/)
- [Lifestyle Options](https://healthmattersprogram.org/lessons/lifestyle-options/) - Health Matters: Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities Evidenced-Based Curriculum for adults with I/DD 36 interactive lessons with 23 additional lifelong learning lessons Understand attitudes toward health, exercise & nutrition. Identify current behaviors. Develop clear exercise and nutrition goals and stick to them. Gain skills and knowledge about exercising & eating
- [Welcome to the HealthMatters™ Program](https://healthmattersprogram.org/lessons/introduction/) - Introducing our HealthMatters™ Program team HealthMatters Program™ is a collaboration between University of Illinois at Chicago and six states (Alaska, Illinois, Kentucky, Maryland, Missouri and North Carolina) that aims to improve health of people with intellectual and developmental disabilities (IDD). Meet our Team: National – University of Illinois at ChicagoAlaskaIllinoisKentuckyMarylandMissouriNorth Carolina VAYA Health
- [Know Your Rights with Medical Care](https://healthmattersprogram.org/lessons/know-your-rights-with-medical-care/)
- [Anytime, Anywhere for Health Care](https://healthmattersprogram.org/lessons/anytime-anywhere-for-health-care/) - We can get health care in many placed today. For example, we may get care at walk-in clinics, telehealth, at work, at school, at places like Walgreens, CVS, and Walmart.
- [Health Advocacy in Action](https://healthmattersprogram.org/lessons/health-advocacy-in-action/) - What we can do.
- [Health Care Providers](https://healthmattersprogram.org/lessons/health-care-providers/)
- [Advocating for My Health](https://healthmattersprogram.org/lessons/advocating-for-my-health/)
- [Caregivers and advocates](https://healthmattersprogram.org/lessons/caregivers-and-advocates/)

## Topics

- [Food Choices](https://healthmattersprogram.org/topic/food-choices/)
- [Welcome to the HealthMatters™ Program](https://healthmattersprogram.org/topic/welcome-to-the-healthmatters-program/) - This course will provide the information and the resources to teach the 12-week HealthMatters Program for people with intellectual and developmental disabilities. The Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities can be purchased on Amazon.com. Start your program within 2 weeks after you finish the HealthMatters™ Program course.
- [Know Your Rights with Medical Care](https://healthmattersprogram.org/topic/know-your-rights-with-medical-care/)
- [Take Charge](https://healthmattersprogram.org/topic/take-charge/)
- [Personal Notebooks](https://healthmattersprogram.org/topic/personal-notebooks/)
- [Toolkit for Primary Care Providers](https://healthmattersprogram.org/topic/toolkit-for-primary-care-providers/) - GENERAL ISSUESCommunicating EffectivelyInformed ConsentInformed Consent ChecklistAdaptive Functioning and Different Levels of IDDOffice Organizational tipsToday’s Visit Form PHYSICAL HEALTH ISSUESCumulative Patient ProfileFemale Preventive Care ChecklistMale Preventive Care ChecklistCheetham’s Checklist Cumulative Patient ProfileFemale Preventive Care ChecklistMale Preventive Care ChecklistCheetham’s Checklist HEALTH WATCH TABLESAutismDown SyndromeFetal Alcohol Spectrum Disorder (FASD)Fragile X SyndromePrader-Willi SyndromeWilliams Syndrome22q11.2 Deletion Syndrome BEHAVIORAL AND MENTAL HEALTH
- [Systems and Culture Care](https://healthmattersprogram.org/topic/culture-matters-universal-design/) - Creating Better Systems of Care for Adults with Disabilities: Lessons for Policy and PracticeDownload
- [I Can Choose!](https://healthmattersprogram.org/topic/i-can-choose/) - I have the right to choose my health care, including medical care. I can give consent or assent with support.
- [Know Your Medical History!](https://healthmattersprogram.org/topic/know-your-medical-history/) - Each time history repeats itself, the price goes up. Ensuring coordination of care and that medical providers have necessary medical histories.
- [Anytime, Anywhere](https://healthmattersprogram.org/topic/anytime-anywhere/) - Anytime, anywhere – questions to ask when getting medical care - Effectively getting care in various settings as healthcare provision shifts to include walk-in clinics (Walgreens, CVS, and Walmart), telehealth, physician assistants and nurse practitioners. We can get health care in many placed today.
- [Disability Competent Care](https://healthmattersprogram.org/topic/disability-competent-care/)
- [The Americans with Disabilities Act](https://healthmattersprogram.org/topic/the-americans-with-disabilities-act/) - Steps to Improve Access to Health Care Practices(1) Federal and state laws require health care professionals to ensure their services are accessible to clients with disabilities as well as their family members and caregivers. A range of no-cost and affordable solutions exists to assist health care providers in making facilities accessible and offering disability-competent care.
- [Coordinating Care](https://healthmattersprogram.org/topic/coordinating-care/)
- [Shopping for health care plan?](https://healthmattersprogram.org/topic/enrolling-in-a-plan-of-choice/) - Start here! Health insurance lingo you should learn. Understanding the basics of what to look for in a health care plan and enrolling in a plan of choice
- [Find your voice!](https://healthmattersprogram.org/topic/find-your-voice/) - Advocate! How to advocate and get what is needed by interactions with doctors and others such as office staff, pharmacists, and managed care coordinators.
- [Health Care Providers](https://healthmattersprogram.org/topic/health-care-providers/)
- [Places to Get Health Care](https://healthmattersprogram.org/topic/places-to-get-health-care/) - We can get health care in many placed today. For example, we may get care at walk-in clinics, telehealth, at work, at school, at places like Walgreens, CVS, and Walmart.
- [Health Care Plans](https://healthmattersprogram.org/topic/health-care-plans/)
- [Health Advocacy](https://healthmattersprogram.org/topic/health-advocacy/)
- [What Do I Want My Health Care Provider to Know?](https://healthmattersprogram.org/topic/what-do-i-want-my-health-care-provider-to-know/)
- [How Do I Want My Family to Help?](https://healthmattersprogram.org/topic/how-do-i-want-my-family-to-help/)
- [Portion Distortion](https://healthmattersprogram.org/topic/examine-portion-distortion-powerpoints/) - Do You Know How Food Portions Have Changed in 20 Years? Portion Distortion Interactive Quizzes Slide Sets Portion Distortion I Slide Show (708 KB PowerPoint) | (519 KB PDF) | Text-Only VersionPortion Distortion II Slide Show (1.1 MB PowerPoint) | (561 KB PDF) | Text-Only Version Note: Documents in PDF format require the Adobe Acrobat Reader®. If you experience problems with PDF
- [HealthMatters Program Research to Practice](https://healthmattersprogram.org/topic/healthmatters-programevidence-based-research-to-practice/) - HealthMatters™ Program (HMP) engages community and academic partners to implement health promoting policies and practices for people with intellectual and developmental disability (IDD) – reaching over 10,000 individuals and caregivers in 33 states and 9 countries. People in the HealthMatters Program see results that matter! In 1998, working with community based organizations (CBOs) providing
- [What is Fitness](https://healthmattersprogram.org/topic/what-is-fitness/)
- [HealthMatters Program for you and your organization to create a culture/climate of health! Am I Ready?](https://healthmattersprogram.org/topic/healthmatters-program-for-you-and-your-organization-to-create-a-cultureclimate-of-health-am-i-ready/)
- [Keeping the HealthMatters Program Going](https://healthmattersprogram.org/topic/keeping-the-healthmatters-program-going/) - Program Reminders Ensure safety Have fun Progressive in nature Include participant’s goals Incorporate Flexibility, Aerobic, Balance, and Stretching – FABS
- [Measuring Success](https://healthmattersprogram.org/topic/measuring-success/)
- [Doing Your HealthMatters Program!](https://healthmattersprogram.org/topic/doing-your-healthmatters-program/)
- [Individual Lesson Plan](https://healthmattersprogram.org/topic/individual-lesson-plan/)
- [Universal Design](https://healthmattersprogram.org/topic/universal-design/) - Usable by all people with creative solutions Communication/speech Energy/stamina Hearing Learning/memory Mental health Mobility Vision
- [Teaching Strategies](https://healthmattersprogram.org/topic/teaching-strategies/)
- [Outline your plan for success!](https://healthmattersprogram.org/topic/develop-program-plan/) - Please discuss and complete the online 12-Week HealthMatters Program Plan as a Team. Please note the following: You can download a 12-Week HealthMatters Program Plan Inventory to discuss with your team before submitting the. Submit one form per Organization. If there are multiple sites within Organization, each Team site must complete a separate form. Important Considerations
- [Achievable Goals for Everyone!](https://healthmattersprogram.org/topic/achievable-goals-for-everyone/)
- [WEBSITE TOOLS - CDC Interactive Tool](https://healthmattersprogram.org/topic/website-tools-cdc-interactive-tool-download-your-county-health-report/) - CDC’s Interactive Atlas of Heart Disease and Stroke Online mapping tool Allows users to create and customize county-level maps of heart disease and stroke by race and ethnicity, gender, age group, and more. Launch the Interactive Atlas and find your state to download your county health report.
- [Leading and Actual Causes of Death](https://healthmattersprogram.org/topic/topic-3/) - Common causes of death in the general population.
- [Life Expectancy for People with IDD](https://healthmattersprogram.org/topic/life-expectancy-for-people-with-idd/) - People with IDD who have lived 30-50 years with a disability are experiencing new health concerns. Syndrome and Gender Related Conditions People with IDD now have health concerns related to disability, aging, and aging with a disability. Men and women with IDD who have syndrome-related conditions may be predisposed to certain health conditions related to
- [Why Health Matters](https://healthmattersprogram.org/topic/why-health-matters/) - What We Know about Health Interactive Atlas - View county-level maps of heart disease and stroke, along with maps of social environmental conditions and health services for the entire United States or for a chosen state or territory. The Power of Prevention - A publication covering chronic diseases, what causes them and at what cost.

## Quizzes

- [Exercise and Nutrition Knowledge](https://healthmattersprogram.org/quizzes/pa-nutrition-knowledge/) - Questionnaire with No Answer KeyDownload Questionnaire Answer KeyDownload

## Certificates

- [Certificate of Completion](https://healthmattersprogram.org/certificates/certificate-of-completion/) - UNIVERSITY OF ILLINOIS AT CHICAGO CERTIFICATE OF PROFESSIONAL DEVELOPMENT In Recognition of Participation and Completion of 6 contact hours HealthMattersTM Program Train-the-Trainer Certified Instructor Webinar on:

## Assignments

- [Rights_of_Individuals_with_Developmental_or_Intellectual_Disabilities_in_Community_Based_Programs.pdf](https://healthmattersprogram.org/assignment/rights_of_individuals_with_developmental_or_intellectual_disabilities_in_community_based_programs-pdf/) - Rights_of_Individuals_with_Developmental_or_Intellectual_Disabilities_in_Community_Based_Programs.pdf

## Categories

- [Publications](https://healthmattersprogram.org/category/publications/)
- [Events](https://healthmattersprogram.org/category/presentations/)
- [Information and Products](https://healthmattersprogram.org/category/resources/)

## Tags

- [2015 National Goals Conference](https://healthmattersprogram.org/tag/2015-national-goals-conference/)
- [Advocacy](https://healthmattersprogram.org/tag/advocacy/)
- [Aging](https://healthmattersprogram.org/tag/aging/)
- [Assistive Technology](https://healthmattersprogram.org/tag/assistive-technology/)
- [Autism](https://healthmattersprogram.org/tag/autism/)
- [Autism Resources](https://healthmattersprogram.org/tag/autism-resources/)
- [Caregiving](https://healthmattersprogram.org/tag/caregiving/)
- [Community](https://healthmattersprogram.org/tag/community/)
- [Curricula](https://healthmattersprogram.org/tag/curricula/)
- [Dementia](https://healthmattersprogram.org/tag/dementia/)
- [Disability](https://healthmattersprogram.org/tag/disability/)
- [Families](https://healthmattersprogram.org/tag/families/)
- [General](https://healthmattersprogram.org/tag/general/)
- [Health](https://healthmattersprogram.org/tag/health/)
- [Health Care Services](https://healthmattersprogram.org/tag/health-care-services/)
- [Health Program](https://healthmattersprogram.org/tag/health-program/)
- [Health Promotion](https://healthmattersprogram.org/tag/health-promotion/)
- [Journals](https://healthmattersprogram.org/tag/journals/)
- [Long Term Services](https://healthmattersprogram.org/tag/long-term-services/)
- [Long Term Supports and Services](https://healthmattersprogram.org/tag/long-term-supports-and-services/)
- [Managed Care](https://healthmattersprogram.org/tag/managed-care/)
- [Policy/Service](https://healthmattersprogram.org/tag/policyservice/)
- [Presentations](https://healthmattersprogram.org/tag/presentations/)
- [Research Briefs](https://healthmattersprogram.org/tag/research-briefs/)
- [Research Reports/Briefs](https://healthmattersprogram.org/tag/research-reportsbriefs/)
- [RRTCDD](https://healthmattersprogram.org/tag/rrtcdd/)
- [Self Advocacy](https://healthmattersprogram.org/tag/self-advocacy/)
- [Self Determination](https://healthmattersprogram.org/tag/self-determination/)
- [Service Animals](https://healthmattersprogram.org/tag/service-animals/)
- [Siblings](https://healthmattersprogram.org/tag/siblings/)
- [Supports](https://healthmattersprogram.org/tag/supports/)
- [Supports and Services](https://healthmattersprogram.org/tag/supports-and-services/)
- [Webinars](https://healthmattersprogram.org/tag/webinars/)
- [Workshop](https://healthmattersprogram.org/tag/workshop/)
- [Education](https://healthmattersprogram.org/tag/education/)
- [Students with Disabilities](https://healthmattersprogram.org/tag/students-with-disabilities/)
- [Mobility disability](https://healthmattersprogram.org/tag/mobility-disability/)
- [Neighborhood connection](https://healthmattersprogram.org/tag/neighborhood-connection/)
- [Inclusion](https://healthmattersprogram.org/tag/inclusion/)
- [Conferences](https://healthmattersprogram.org/tag/conferences/)
- [Consensus Statement of the International Summit on Intellectual Disability](https://healthmattersprogram.org/tag/consensus-statement-of-the-international-summit-on-intellectual-disability/)
- [Conference](https://healthmattersprogram.org/tag/conference/)
- [End-of-Life](https://healthmattersprogram.org/tag/end-of-life/)
- [NTG](https://healthmattersprogram.org/tag/ntg/)
- [Request for Proposals](https://healthmattersprogram.org/tag/request-for-proposals/)
- [Affordable Care Act](https://healthmattersprogram.org/tag/affordable-care-act/)
- [Accommodations](https://healthmattersprogram.org/tag/accommodations/)
- [Employment and Disability](https://healthmattersprogram.org/tag/employment-and-disability/)
- [Health Care for People with Disabilities](https://healthmattersprogram.org/tag/health-care-for-people-with-disabilities/)
- [Health Professionals with Disabilities](https://healthmattersprogram.org/tag/health-professionals-with-disabilities/)
- [Articles](https://healthmattersprogram.org/tag/articles/)
- [Disability and Diversity](https://healthmattersprogram.org/tag/disability-and-diversity/)
- [ADA Justice News](https://healthmattersprogram.org/tag/ada-justice-news/)
- [Human Resources](https://healthmattersprogram.org/tag/human-resources/)
- [Health Care Providers](https://healthmattersprogram.org/tag/health-care-providers/)
- [Films](https://healthmattersprogram.org/tag/films/)
- [College](https://healthmattersprogram.org/tag/college/)
- [Websites](https://healthmattersprogram.org/tag/websites/)
- [Diversity](https://healthmattersprogram.org/tag/diversity/)
- [Communication](https://healthmattersprogram.org/tag/communication/)
- [ADA](https://healthmattersprogram.org/tag/ada/)
- [Disability Services Counselor](https://healthmattersprogram.org/tag/disability-services-counselor/)
- [Making a Difference in Nursing](https://healthmattersprogram.org/tag/making-a-difference-in-nursing/)
- [Discrimination](https://healthmattersprogram.org/tag/discrimination/)
- [EEOC](https://healthmattersprogram.org/tag/eeoc/)
- [Financial Planning](https://healthmattersprogram.org/tag/financial-planning/)
- [Informational Guides](https://healthmattersprogram.org/tag/informational-guides/)
- [Nursing Students](https://healthmattersprogram.org/tag/nursing-students/)
- [Disability Rights](https://healthmattersprogram.org/tag/disability-rights/)
- [Disability Trends](https://healthmattersprogram.org/tag/disability-trends/)
- [Hearing](https://healthmattersprogram.org/tag/hearing/)
- [Hospitals Making a Difference](https://healthmattersprogram.org/tag/hospitals-making-a-difference/)
- [Long-Term Care](https://healthmattersprogram.org/tag/long-term-care/)
- [Housing](https://healthmattersprogram.org/tag/housing/)
- [Mental Health](https://healthmattersprogram.org/tag/mental-health/)
- [Nutrition](https://healthmattersprogram.org/tag/nutrition/)
- [Transitions](https://healthmattersprogram.org/tag/transitions/)
- [ACA](https://healthmattersprogram.org/tag/aca/)
- [Stigma](https://healthmattersprogram.org/tag/stigma/)
- [Hispanic](https://healthmattersprogram.org/tag/hispanic/)
- [Health Insurance](https://healthmattersprogram.org/tag/health-insurance/)
- [Social Media](https://healthmattersprogram.org/tag/social-media/)
- [Participatory Action Research](https://healthmattersprogram.org/tag/participatory-action-research/)
- [Community Living](https://healthmattersprogram.org/tag/community-living/)
- [Medication Management](https://healthmattersprogram.org/tag/medication-management/)
- [Preventive Care](https://healthmattersprogram.org/tag/preventive-care/)
- [FAQs for Health Professionals with Disabilities](https://healthmattersprogram.org/tag/faqs-for-health-professionals-with-disabilities/)
- [Disclosure](https://healthmattersprogram.org/tag/disclosure/)
- [o](https://healthmattersprogram.org/tag/o/)
- [Worker Health](https://healthmattersprogram.org/tag/worker-health/)
- [OFCCP](https://healthmattersprogram.org/tag/ofccp/)
- [Human Rights](https://healthmattersprogram.org/tag/human-rights/)
- [Employment](https://healthmattersprogram.org/tag/employment/)
- [HealthMatters Program](https://healthmattersprogram.org/tag/healthmatters-program/)
- [Maryland](https://healthmattersprogram.org/tag/maryland/)
- [HealthMatters](https://healthmattersprogram.org/tag/healthmatters/)
- [Kentucky!](https://healthmattersprogram.org/tag/kentucky/)
- [Health Literacy](https://healthmattersprogram.org/tag/health-literacy/)
- [Self-Directed Care](https://healthmattersprogram.org/tag/self-directed-care/)
- [Nurses](https://healthmattersprogram.org/tag/nurses/)
- [Faculty](https://healthmattersprogram.org/tag/faculty/)
- [Medicaid](https://healthmattersprogram.org/tag/medicaid/)
- [Immigrants](https://healthmattersprogram.org/tag/immigrants/)
- [Refugees](https://healthmattersprogram.org/tag/refugees/)
- [Health Outcomes](https://healthmattersprogram.org/tag/health-outcomes/)
- [Homelessness](https://healthmattersprogram.org/tag/homelessness/)
- [Shelters](https://healthmattersprogram.org/tag/shelters/)
- [Sexuality](https://healthmattersprogram.org/tag/sexuality/)
- [Cultural Competency](https://healthmattersprogram.org/tag/cultural-competency/)
- [Disparities](https://healthmattersprogram.org/tag/disparities/)
- [Knowledge Translation](https://healthmattersprogram.org/tag/knowledge-translation/)
- [Disabilities](https://healthmattersprogram.org/tag/disabilities/)
- [Disability Identity](https://healthmattersprogram.org/tag/disability-identity/)
- [Research & RFPs](https://healthmattersprogram.org/tag/research-rfps/)
- [Civil Rights](https://healthmattersprogram.org/tag/civil-rights/)
- [Health In](https://healthmattersprogram.org/tag/health-in/)
- [Diabetes](https://healthmattersprogram.org/tag/diabetes/)
- [Health CAre](https://healthmattersprogram.org/tag/health-care/)
- [Social Support](https://healthmattersprogram.org/tag/social-support/)
- [Built Environment](https://healthmattersprogram.org/tag/built-environment/)
- [Physical Activity](https://healthmattersprogram.org/tag/physical-activity/)
- [Primary Care](https://healthmattersprogram.org/tag/primary-care/)
- [Patient Centered Care](https://healthmattersprogram.org/tag/patient-centered-care/)
- [Health Care Satisfaction](https://healthmattersprogram.org/tag/health-care-satisfaction/)
- [Culture of Health](https://healthmattersprogram.org/tag/culture-of-health/)
- [Chronic Diseases](https://healthmattersprogram.org/tag/chronic-diseases/)
- [Pain Management](https://healthmattersprogram.org/tag/pain-management/)
- [Oral Care](https://healthmattersprogram.org/tag/oral-care/)
- [Sunscreen](https://healthmattersprogram.org/tag/sunscreen/)
- [Accessibility](https://healthmattersprogram.org/tag/accessibility/)
- [Worker Safety & Health](https://healthmattersprogram.org/tag/worker-safety-health/)
- [Health care for people](https://healthmattersprogram.org/tag/health-care-for-people/)
- [Medication](https://healthmattersprogram.org/tag/medication/)
- [Disability Pride](https://healthmattersprogram.org/tag/disability-pride/)
- [Community Health Workers](https://healthmattersprogram.org/tag/community-health-workers/)
- [Project SEARCH](https://healthmattersprogram.org/tag/project-search/)
- [HealthMessages Program](https://healthmattersprogram.org/tag/healthmessages-program/)
- [Transition](https://healthmattersprogram.org/tag/transition/)
- [Disability Studies](https://healthmattersprogram.org/tag/disability-studies/)
- [Parents](https://healthmattersprogram.org/tag/parents/)
- [Sexual Assult](https://healthmattersprogram.org/tag/sexual-assult/)
- [Health Equity](https://healthmattersprogram.org/tag/health-equity/)
- [Health Disparities](https://healthmattersprogram.org/tag/health-disparities/)
- [Smoking](https://healthmattersprogram.org/tag/smoking/)
- [Disabilty](https://healthmattersprogram.org/tag/disabilty/)
- [Health Care Utilization](https://healthmattersprogram.org/tag/health-care-utilization/)
- [DSP](https://healthmattersprogram.org/tag/dsp/)
- [RFPs](https://healthmattersprogram.org/tag/rfps/)
- [Online Course](https://healthmattersprogram.org/tag/online-course/)
- [Promotores](https://healthmattersprogram.org/tag/promotores/)
- [Polypharmacy](https://healthmattersprogram.org/tag/polypharmacy/)
- [Caregiver](https://healthmattersprogram.org/tag/caregiver/)
- [Direct care workers](https://healthmattersprogram.org/tag/direct-care-workers/)
- [Sweden](https://healthmattersprogram.org/tag/sweden/)
- [Age-Friendly Health Systems](https://healthmattersprogram.org/tag/age-friendly-health-systems/)
- [Children with ID](https://healthmattersprogram.org/tag/children-with-id/)
- [Policy](https://healthmattersprogram.org/tag/policy/)
- [Down syndrome](https://healthmattersprogram.org/tag/down-syndrome/)
- [Exercise](https://healthmattersprogram.org/tag/exercise/)
- [Adolescents](https://healthmattersprogram.org/tag/adolescents/)
- [Technology](https://healthmattersprogram.org/tag/technology/)
- [Evidence-Based Programs](https://healthmattersprogram.org/tag/evidence-based-programs/)
- [Home-Based Primary Care](https://healthmattersprogram.org/tag/home-based-primary-care/)
- [Aging in Place](https://healthmattersprogram.org/tag/aging-in-place/)
- [Training](https://healthmattersprogram.org/tag/training/)
- [Health Status](https://healthmattersprogram.org/tag/health-status/)
- [Alzheimer's disease](https://healthmattersprogram.org/tag/alzheimers-disease/)
- [Workplace](https://healthmattersprogram.org/tag/workplace/)
- [COVID-19](https://healthmattersprogram.org/tag/covid-19/)
- [Healthy Brain Initiative](https://healthmattersprogram.org/tag/healthy-brain-initiative/)
- [ADRD](https://healthmattersprogram.org/tag/adrd/)
- [Engagement](https://healthmattersprogram.org/tag/engagement/)
- [Health Brain Initiative](https://healthmattersprogram.org/tag/health-brain-initiative/)
- [ProPublica](https://healthmattersprogram.org/tag/propublica/)
- [Loneliness](https://healthmattersprogram.org/tag/loneliness/)
- [Healthy Brain](https://healthmattersprogram.org/tag/healthy-brain/)
- ["disability paradox"](https://healthmattersprogram.org/tag/disability-paradox/)
- [Social Vulnerability](https://healthmattersprogram.org/tag/social-vulnerability/)
- [Natural Disasters](https://healthmattersprogram.org/tag/natural-disasters/)
- [SDOH](https://healthmattersprogram.org/tag/sdoh/)
- [Social Determinants of Health](https://healthmattersprogram.org/tag/social-determinants-of-health/)
- [Virtual Health Care](https://healthmattersprogram.org/tag/virtual-health-care/)

## Categories

- [Webinar](https://healthmattersprogram.org/event-category/webinar/)
- [Transitions](https://healthmattersprogram.org/event-category/transitions/)
- [Project SEARCH](https://healthmattersprogram.org/event-category/project-search/)
- [Health Promotion](https://healthmattersprogram.org/event-category/health-promotion/)
- [HealthMatters Program](https://healthmattersprogram.org/event-category/healthmatters-program/)
- [Workers with Disabilities](https://healthmattersprogram.org/event-category/workers-with-disabilities/)
- [COVID-19](https://healthmattersprogram.org/event-category/covid-19/)

## Topic Categories

- [fitness](https://healthmattersprogram.org/topic-category/fitness/)